À PROPOS DE CE PODCAST 🔗
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc.
**Please consult with you own physician for advice about any medical recommendation.
**Please consult with you own physician for advice about any medical recommendation.
Animateurs :
Fréquence de mise à jour:
every 10 days
Durée audio moyenne:
41 minutes
Entretiens avec des invités
A des sponsors
Anglais
États-Unis
643 épisodes
depuis 15 novembre 2010
episodic
DANS CE PODCAST 🔗
DERNIER ÉPISODE 🔗
Help 4 HD Updates for 2025 with Katie Jackson
RECHERCHER LES ÉPISODES PASSÉS
Rechercher les épisodes précédents de Help 4 HD Live!.
ÉPISODES PRÉCÉDENTS 🔗
Pay What You Can: www.paywhatyoucanpeersupport.com/faqs
Alliance of Hope: www.allianceofhope.org or phone number is 847-868-3313
National Suicide Hotline:
If you live in the US, contact the National Suicide Prevention Lifeline by calling 988 or texting “Hello” to 741741.
Their website is www…
Erika (HD Reach) and Lauren (Help4HD Podcast) talk with Clinical Social Worker and Hospice Supervisor Shivani Borah about Hospice and the end-of-life process. We discuss medications, advanced directives, and the myths and misunderstandings surrounding Hospice care. Join us as we dive into a very di…
The Help 4 HD Resource Database has a resource called mRelief, which is a nonprofit that helps you determine eligibility and sign up for SNAP and other supplemental programs by using a quick survey via text message. You can text the word “Food” to 74544 to complete the screening survey over text or…
Update about Sage Therapeutics with Lauren Holder
If you'd like to check out the video, here's the link: https://youtu.be/NTiqiAeBMOw
Please visit the Rare Patient Voice website for more information, or reach out to Lauren Holder at lauren@help4hd.org
WES MICHAEL
Founder and President, Rare Patient Voice
Wes Michael founded Rare Patient Voice in 2013 to give patients and family caregivers the opportunity to voice their opinio…
Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here: https://www.youtube.com/watch?v=y6CrrVGfBTk
Breaking Down Barriers is sp…
Our Lived Experience (Panel from Help 4 HD Symposium)
Avertissement: Le podcast et les illustrations intégrés sur cette page proviennent de Help4HD, qui est la propriété de son propriétaire et n'est ni affilié ni approuvé par Listen Notes, Inc.
MOTEUR DE RECHERCHE DE PODCASTS
Vous pouvez utiliser notre site Web pour rechercher des podcasts3,835,152et des épisodes197,398,912par personnes, lieux ou sujets.
If I have seen further than others, it is by listening to podcasts and standing upon the shoulders of
giants.
‐ Isaac "Llamacorn" Newton
RECHERCHER LES ÉPISODES PASSÉS
Rechercher les épisodes précédents de Help 4 HD Live!.
DEMANDER CE PODCAST
Why to claim podcasts?
If you are a podcaster, the best way to manage your podcasts on Listen Notes is by claiming your Listen Notes
podcast pages.
It is a great, free way to engage the podcast community and increase the visibility of your podcasts.
After claiming your Listen Notes podcast pages, you will be able to:
✓
Manually refresh the RSS feed to sync up
✓
Get a verified badge (
✓
) alongside with your podcast name on Listen Notes
✓
Post petites annonces for sponsorship,
guests, co-hosts,
cross-promotion...
✓
Respond to listener comments on Listen Notes
✓
Use speech-to-text techniques to transcribe your show and
edit transcripts
✓
Improve the presence of your podcasts, e.g., self-service
interview de podcasteur...
✓
If you share your Listen Notes page and at-mention @ListenNotes
on X (formerly Twitter),
notre compte officiel sur X (anciennement Twitter) will retweet to promote
your show to our followers.
Coming soon:
◯ Self-service promotion on Listen Notes
◯ Track your podcast stats on Listen
Notes, e.g., listens, page
views...
◯ Manage episodes
MODIFIER
Merci de nous avoir aidé à tenir la base de données de podcasts à jour.