關於這個 Podcast 🔗
This podcast is a service of the Immune Deficiency Foundation — a nonprofit organization dedicated to improving the diagnosis, treatment, and quality of life of people diagnosed with primary immunodeficiency, or PI.
"Bold Conversations" is a program that explores the harsh realities of health access in the United States. Hosted by Dr. Nicole Rochester.
"Undiagnosed" is a narrative docuseries on that tells the true stories of PI patients and their long journeys to proper diagnosis and treatment.
To learn more about primary immunodeficiency, the PI community, or to support the foundation as a donor or volunteer, please visit our website at www.primaryimmune.org. If you have any questions you would like to be answered, email us at idf@primaryimmune.org.
"Bold Conversations" is a program that explores the harsh realities of health access in the United States. Hosted by Dr. Nicole Rochester.
"Undiagnosed" is a narrative docuseries on that tells the true stories of PI patients and their long journeys to proper diagnosis and treatment.
To learn more about primary immunodeficiency, the PI community, or to support the foundation as a donor or volunteer, please visit our website at www.primaryimmune.org. If you have any questions you would like to be answered, email us at idf@primaryimmune.org.
主持人：
更新頻率:
every 22 days
平均音訊長度:
39 minutes
嘉賓訪談
有贊助商
英語
美國
112 集
自從 2018年9月24日
episodic
最新一集 🔗
Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20-%20Will%20my%20genetic%20variant%20make%20me%20sick.pdf
View a PDF of this presentation: https://primaryimmune.org/sites/default/files/FOR%20WEB%20-%20Will%20my%20genetic%20variant%20make%20me%20sick.pdf
Dr. Dusan Bogunovic o…
以前的節目 🔗
TRANSCRIPT: https://primaryimmune.org/sites/default/files/Transcript%20-%20Vedia.pdf
Longtime Immune Deficiency Foundation advocate Rafhaela Vedia sits down with Rebecca Russ, the foundation's grassroots advocacy specialist, to discuss her journey with severe combined immune deficiency (SCID) and …
Transcript: https://primaryimmune.org/sites/default/files/Transcript%20-%20Disparaging%20language.pdf
Author and creator Ilana Jacqueline joins Dr. Nicole to discuss the lasting impact of disparaging language sometimes used in patient records.
https://ilanajacqueline.com/
https://yourgpsdoc.com/…
Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20-%20Jaworski%20interview.pdf
Peter Jaworski is a professor of ethics at Georgetown University who shares a highly specific field of interest with the primary immunodeficiency community: Plasma donation. He devotes an enormous a…
Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPTION%20YA%20voices%20conference.pdf
In June 2026, we interviewed young adults who attended the Immune Deficiency Foundation National Conference in San Antonio. Questions ranged in scope from joys and laughter to fears and worries.
…
Transcript: https://primaryimmune.org/sites/default/files/Transcript%20-%20Long%20covid%20and%20PI.pdf
Dr. Manish Butte (E. Richard Stiehm Endowed Chair, Professor, and Division Chief of Pediatric immunology at UCLA) provides an update on what's known (and unknown) about long COVID and primary im…
TRANSCRIPT: https://primaryimmune.org/sites/default/files/Transcript%20-%20Practice%20parameters.pdf
On this episode of the Immune Deficiency Foundation podcast, Dr. Paula Henao and Katherine Lontok, Ph.D. (the Foundation's medical director and director of science and policy communications, respec…
Transcript: https://primaryimmune.org/sites/default/files/Transcription%20-%20Art%20installations.pdf
On this episode of the Immune Deficiency Foundation Podcast, Tammy Black and Elizabeth Ferguson (the organization's chief communications officer and director of events, respectively) discuss the i…
Emma Mertens and Megan Messick discuss the Immune Deficiency Foundation's upcoming 2026 National Conference.
Click here to register: https://web.cvent.com/event/098b166d-370c-4dda-b02e-f7d80d76a5c5/websitePage:190e3719-e947-4da1-8dc7-e18fd2abd955?environment=P2
Your support of the Immune Deficien…
TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Jorey%20and%20Paula.pdf
On this episode, CEO Jorey Berry sits down with the foundation's new medical director, Dr. Paula Henao to discuss her career, her new role, and the state of immunology.
The information, terminology, an…
免責聲明: 本頁面嵌入的 Podcast 和封面圖片來自 Immune Deficiency Foundation，歸其所有者所有，與 Listen Notes, Inc. 無關聯，也未獲得 Listen Notes, Inc. 背書。
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