关于这个播客 🔗
Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases. #makerarevisible
更新频率:
bimonthly
平均音频长度:
31 minutes
英语
美国
5 集
自从 2021年10月3日
episodic
最新一集 🔗
Listen in as we hear from the Rare Leaders and Parents with their journey in Duchenne Muscular Dystrophy. #beckshelpinghands #makerarevisible #duchennemusculardystrophy #rarestrides #zebrastrong #rarediseases
---
Support this podcast: https://podcasters.spotify.com/pod/show/rare-st...
以前的节目 🔗
Join us for Rare Strides updates about Rare Wish and the Make Rare Visible Challenge with co-founder, Beth Nguyen.
---
Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support
Join us as we speak with Missy who is the parent of our first Code Rare participant and learn all about Code Rare. For more information about Code Rare go to our website at www.rarestrides.com
---
Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support
Season 1, Episode 2 we are speaking with Rare Strides board member Dennis who is a parent of a Rare child. He shares his experience being a parent to a child who was diagnosed with a Rare disease, the struggles and the triumphs. Tune in and dig in to learn how you can #makerarevisible. You can fi...
Rare Strides Host, Trena Myers interviews Rare Strides founder and today's guest, Beth Nguyen. Trena inquires with Beth on the reasons behind the creation of Rare Strides. Join us on this episode to learn about the building blocks of Rare Strides where we hope to "make rare visible." #rarestrides...
你已看过这个播客的所有节目了
免责声明: 本页面嵌入的播客和封面图片来自 Rare STRIDES,归其所有者所有,与 Listen Notes, Inc. 无关联,也未获得 Listen Notes, Inc. 背书。
认领这个播客
Why to claim podcasts?
If you are a podcaster, the best way to manage your podcasts on Listen Notes is by claiming your Listen Notes
podcast pages.
It is a great, free way to engage the podcast community and increase the visibility of your podcasts.
After claiming your Listen Notes podcast pages, you will be able to:
✓
Manually refresh the RSS feed to sync up
✓
Get a verified badge (
✓
) alongside with your podcast name on Listen Notes
✓
Post 分类广告 for sponsorship,
guests, co-hosts,
cross-promotion...
✓
Respond to listener comments on Listen Notes
✓
Use speech-to-text techniques to transcribe your show and
edit transcripts
✓
Improve the presence of your podcasts, e.g., self-service
播客创作者访谈...
✓
If you share your Listen Notes page and at-mention @ListenNotes
on X (formerly Twitter),
我们的官方 X(原 Twitter)账户 will retweet to promote
your show to our followers.
Coming soon:
◯ Self-service promotion on Listen Notes
◯ Track your podcast stats on Listen
Notes, e.g., listens, page
views...
◯ Manage episodes