关于这个播客 🔗

主持人:
更新频率:
monthly
平均音频长度:
31 minutes
嘉宾访谈
英语
美国
45 集
自从 2021年1月19日
episodic

最新一集 🔗

Haemcast’s special series in collaboration with Local families with bleeding disorders continues with a reflection on what makes the parents of children with haemophilia feel supported.  Mums Melissa and Alex both acknowledge the importance of the ongoing support they have from their sons’ haemo...

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In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we look at some of the challenges that can arise when treating a child with haemophilia. Getting used to administering treatment can be challenging, particularly in the early days. Until rec...
In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we look at some of the challenges that can arise when treating a child with haemophilia. Getting used to administering treatment can be challenging, particularly in the early days. Until rec...
The next in our special collaboration between Haemcast and Local families with bleeding disorders focuses on the partners of people who live with haemophilia and von Willebrand disease.   Anya, Emma and Tom agree that while bleeding disorders are significant in their lives, they don’t define thei...
When making choices about treatment for a bleeding disorder, for a child or for yourself, what matters most?  In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we speak with parents about the considerations that come into play when making d...
When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition, they have to help them understand it too. In this episode of Haemcast’s special series in colla...
The first in a special Haemcast series in collaboration with Local families with bleeding disorders, exploring aspects of family life. In this episode, members of Local families with bleeding disorders discuss the online workshops that helped them explore their experiences and express their hope...
Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as describing his own journey towards becoming an advocate for people with haemophilia in Uganda, Morris h...
Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people. Helen leads an active life despite her condition and is a passionate advocate for the rare blee...
Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care during Terence's lifetime – and some of the  things that perhaps haven't. Kate discusses the impor...
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