เกี่ยวกับพอดแคสต์นี้ 🔗
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
ผู้จัด:
ความถี่ในการอัพเดต:
every 10 days
ความยาวเสียงโดยเฉลี่ย:
40 minutes
สัมภาษณ์แขก
มีสปอนเซอร์
ภาษาอังกฤษ
สหรัฐอเมริกา
697 ตอน
ตั้งแต่ 15 พฤศจิกายน 2010
episodic
ในพอดแคสต์นี้ 🔗
ตอนล่าสุด 🔗
In this episode, we dive deep into the personal and family impacts of genetic testing for Huntington’s disease. Wes, a genetic counselor, joins the conversation to discuss the emotional, psychological, and interpersonal effects of learning your genetic status. The episode explores how test results …
ตอนก่อนหน้านี้ 🔗
When you're at risk for Huntington's disease, deciding whether or not to undergo genetic testing is one of the most personal and life-changing decisions you may ever face.But what happens after you get your results?On this episode of Help 4 HD Live, I'm joined by a special guest, "Jules," who is sh…
In this episode of Help 4 HD Live, host Katie Jackson sits down with Wes, a certified genetic counselor and director of HD Genetics, to explore the complexities of genetic testing for Huntington’s disease. Now in its fourth year, HD Genetics provides remote genetic counseling and testing services f…
To read/Print the safety planning chapter of the Help 4 HD Toolkit, click here: Help4HD Database
Please visit the Help 4 HD database to see/print the HD Tool Kit end-of-life chapter here:Help4HD Database
Nancy and Alice are sisters, authors, scholars, and longtime members of the Huntington’s disease community. Their mother, Leonore Wexler, was diagnosed with Huntington’s disease in the late 1960s, at a time when very little was understood about the disease and families affected by HD often faced tr…
Social Worker Spotlight with Jamie HollowayTraveling Tips & TricksHost: Katrina Hamel#HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #Travel
Please visit hdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pm
How are Huntington's disease clinics doing when it comes to the patient experience?On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're incredibly close to reaching 100 responses from peopl…
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