ABOUT THIS PODCAST 🔗
🎙️ Let's Talk MND Hosted by Jane Simpson | #EndMND 💙 Hosted by Jane Simpson, whose late husband Robert fought MND for 10 months, Let's Talk MND shares the real stories of those affected by Motor Neurone Disease. Through heartfelt conversations with people living with MND, their families, carers, and leading experts, the podcast brings together a community of strength, understanding, and hope — proving that even in the darkest times, love and courage shine through.
Hosts:
Update frequency:
every 10 days
Average audio length:
40 minutes
Guest interviews
English
United States
89 episodes
since Oct. 3, 2023
episodic
LATEST EPISODE 🔗
In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world!
We explore incidence rates, genetics and environmental factors, and the challenges o…
PREVIOUS EPISODES 🔗
What happens when you live with MND far longer than expected?
In this special episode, Phil Camden, John Hanley, Matt Stickland and Peter Chambers come together to share their experiences of living with MND over many years.
They talk openly about what keeps them going, what they’ve learned along…
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, Adam shares what it means to discover your MND has a genetic cause — not just for you, but for your family and future generations.
He talks about genetic testing and counselling, navigating conver…
In this episode, I’m joined by Sarah Shuttlewood, who shares her family’s journey following her father Peter’s diagnosis with MND.
Sarah speaks openly about navigating MND from a daughter’s perspective — the shock of diagnosis, supporting her children through their grandfather’s illness, and the c…
Professor Tom Oxley
In this episode, I’m joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.
We discuss how Synchron’s Brain Computer Implant is helping people living with Motor Neurone Disease regain independence by enabling the…
In this episode, I’m joined by Marlene Lewis and her daughter Nicole to share the story of their husband and father, Shane Lewis, who lived with MND.
Together, they speak candidly about the realities of living with MND in regional Australia, where accessing specialist care can be incredibly challe…
Professor Tom Oxley
In this episode, I’m joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.
We discuss how Synchron’s Brain Computer Implant is helping people living with Motor Neurone Disease regain independence by enabling the…
Tom Oxley
In this episode, I’m joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.
We discuss how Synchron’s Brain Computer Implant is helping people living with Motor Neurone Disease regain independence by enabling them to contr…
In this episode, Todd Johnson shares his personal journey with MND, the challenges of diagnosis, and his passionate advocacy for improved care and innovation in the sector.
Todd is also the Chair on MND Victoria
Discover insights on care gaps, technological opportunities, and how community and co…
Gary Suntup is a deep thinker, he is a psychologist he shares his personal journey of losing hobbies and passions due to health issues, exploring how this impacts identity and self-understanding.
He also discusses his practice of radical acceptance.
Disclaimer: The podcast and artwork embedded on this page are from Jane Simpson, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
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