ABOUT THIS PODCAST 🔗
Welcome to —Let’s Talk about Epilepsy - your podcast to hear real stories, expert insights, and honest conversations about life with epilepsy.
Whether you’re living with epilepsy, supporting a young person who is, or just want to understand more, we’re here to help you feel informed, empowered, and connected. We bring together the voices that matter—young people, families, and experts—to share experiences, tackle challenges, and celebrate wins. Tune in and be part of something bigger!
Whether you’re living with epilepsy, supporting a young person who is, or just want to understand more, we’re here to help you feel informed, empowered, and connected. We bring together the voices that matter—young people, families, and experts—to share experiences, tackle challenges, and celebrate wins. Tune in and be part of something bigger!
Update frequency:
every 22 days
Average audio length:
49 minutes
Guest interviews
English
United States
20 episodes
since July 16, 2025
episodic
LATEST EPISODE 🔗
How does epilepsy affect memory, and what can help when you're constantly forgetting things?
In this episode, host Scarlett is joined by former Youth Voice Network member Annie and a young person living with epilepsy to talk honestly about memory challenges, brain fog and the impact epilepsy and …
SEARCH PAST EPISODES
Search past episodes of Let’s talk about epilepsy.
PREVIOUS EPISODES 🔗
In this episode of the Young Epilepsy Podcast, we explore the transition from children’s to adult services for young people with harder-to-manage epilepsy.
Host Joe Paternoster, Assistant Psychologist at Young Epilepsy, is joined by Neil Williamson, Safeguarding Trustee at Dravet Syndrome UK and f…
What really frustrates young people about living with epilepsy?
In this honest and unfiltered episode of Let's Talk About Epilepsy, host Cam is joined by members of Young Epilepsy's Youth Voice Network: Hattie, Sophie and Spike. Together, they create a safe space to vent about the realities of li…
In this episode of the Young Epilepsy Podcast, we explore Vagus Nerve Stimulation (VNS) therapy and how it can help children and young people with harder to manage epilepsy.
Host Kirsten McHale, Head of Healthcare at Young Epilepsy, is joined by Dr Das, Paediatric Consultant Neurologist at Great O…
PLEASE NOTE:
Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatme…
In this episode, host Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery. They explain when surgery might be considered, what the process involves, and how it can change a young person’s life, alongside real reassurance and …
In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the family, the emotional impact on siblings, and why support and understanding matter for everyone.
NOTICE…
In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’t respond to medication.
Around 1 in 3 young people with epilepsy continue to have seizures despi…
In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the realities of learning to drive with epilepsy - from excitement and hope to frustration, disappointmen…
We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about the moment of diagnosis, the fears and misconceptions they faced, and the journey to independence.
…
Disclaimer: The podcast and artwork embedded on this page are from Young Epilepsy, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
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