Listen Score
LS 24
Global Rank
TOP 10%

ABOUT THIS PODCAST 🔗

Update frequency:
every 17 days
Average audio length:
41 minutes
Guest interviews
English
United States
18 episodes
since July 22, 2025
episodic

LATEST EPISODE 🔗

Today I share my conversation with pediatric nurse practitioner Erin Fecske about epilepsy and hydrocephalus. We discuss what epilepsy is, how to diagnosis and treat it, how to tell the difference between a seizure and shunt malfunction and much more.  Resources on epilepsy from the Hydrocephalus A…

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PREVIOUS EPISODES

Send us Fan Mail In this episode, I had the wonderful opportunity to sit down with my daughter, Angelica, and talk about her life with hydrocephalus. I tried to keep the conversation focused on her experiences with surgery after a shunt malfunction and all things hydrocephalus — but she had other p…
Send us Fan Mail Today I share parts of my conversation with twin brothers, Josh and Jake. Josh has hydrocephalus and Jake doesn't. We talk about what can be challenging, what brings them joy and being brave. I also got the opportunity to speak with their mom, Emily, about things she's le…
Send us Fan Mail Not sure what an IEP or 504 plan is or if your child needs one? Today on Hydro Heroes Unite education law attorney Ashley VanCleef joins me to break down IEP's and 504 plans for adolescents living with hydrocephalus. We talk about what the plans are, how to start the process, …
Send us Fan Mail Pediatric psychologist Dr. Elizabeth McRae returns to the show after her Season 1 conversation on caregiver resilience and advocacy. Today I'll be sharing parts of our conversation about mental health in adolescents living with hydrocephalus. We explore how anxiety, depression…
Send us Fan Mail Today I’ll be sharing parts of my conversation with Camille, a 15-year-old high schooler who loves musical theater, singing and writing and was diagnosed with hydrocephalus when she was ten years old. Camille is our first brave adolescent voice this season speaking out in her own w…
Send us Fan Mail I sit down to talk with LaShonda, a mom of teen daughter Camille who was diagnosed with hydrocephalus at ten years old. We discuss their family's experience receiving the diagnosis, school experiences, advocacy and the challenges of supporting independence in a teenager living…
Send us Fan Mail Season 2 is all about the adolescent stage of hydrocephalus. To kick things off, Dr. Andy Zabel shares his insights as a neuropsychologist on brain development during this stage of life. We sat down to discuss executive functioning, when parents should consider a neuropsych evaluat…
Send us Fan Mail June 24th we kick off season 2 of Hydro Heroes Unite. This season is all about the adolescent stage of hydrocephalus. We'll discuss brain development, mental health, IEP & 504, and living an active life with medical experts and professionals who dedicate their careers to h…
Send us Fan Mail In this final episode of Season One, I bring it home (literally) and share parts of my conversation with my husband Scott as he opens up about his perspective through Angelica’s hydrocephalus and Dandy-Walker diagnosis. Scott opens up about: The shock of receiving a diagnosis duri…
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