ABOUT THIS PODCAST 🔗
As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65.
For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone.
This isn’t meant to be a shiny podcast that gives you all the answers.
For a lot of us, the answers don’t exist - we’re just getting on the best we can.
Hosted on Acast. See acast.com/privacy for more information.
Hosts:
Update frequency:
every 9 days
Average audio length:
30 minutes
English
United States
19 episodes
since March 7, 2025
episodic
LATEST EPISODE 🔗
Last week we heard from Suzi, who is living with FTD. This week her husband, Colin, joins me to share the other side of their story.
Colin and Suzi met in 2007 and married on Christmas Eve 2008. Not long after, Susie was diagnosed with FTD at just 50, and their life together changed overnight.
Coli…
SEARCH PAST EPISODES
Search past episodes of FTD - Navigating The Cr*p.
PREVIOUS EPISODES 🔗
This week I'm joined by Suzi Barton - the FTD Warrior. Suzi was diagnosed with FTD at just 50 and has been living with it for 11 years.
She's a former social worker, a mum, a nana to 11, a rock chick and a miniature maker, and she's proof that a dementia diagnosis doesn't mean life has to stop.
Suz…
Series 3 kicks off in FTD Awareness Week 2026 with Emily Harris.
Her mum, Andrea, was a nurse for 35 years. She was first diagnosed with young onset Alzheimer's at 56, until a genetic test showed she actually has MAPT FTD.
Emily talks openly about the early signs, the fight for answers, the heartbr…
In this special bonus episode of FTD: Navigating the Crap, Beth is joined by Natalie Carter, host of the Dementia Dialogues podcast.
Earlier this year, Beth shared her own family’s experience of Frontotemporal Dementia on Natalie’s podcast, and now the roles are reversed as she joins Beth to share …
In this final episode of Season Two, Beth takes a moment to pause, look back, and share where life - and her mum’s dementia journey - are now.
She talks openly about the hardest moments of the past year: the sudden overnight decline that changed everything, learning to adapt to new routines with he…
In this episode, Beth is joined by Eleanor Connelly from Tide (Together In Dementia Everyday) - a charity dedicated to supporting carers and former carers of people living with dementia. Eleanor opens up about her experience caring for her dad with vascular dementia, and how her own grief led her t…
In this episode, Beth is joined by her friend Lauren, who shares the story of her Nana’s dementia diagnosis at 87, after years of slowly declining health.
Lauren explains how her Nana’s diabetes complicated symptoms, delayed a diagnosis and masked what was really going on - and how dementia still …
In this episode, Beth is joined by Helen, whose family has been profoundly affected by familial FTD.
Helen first experienced the disease through her aunt, and later through her mum. When her mum was diagnosed, Helen was confronted with the reality that FTD could be genetic and that it might also s…
In this special bonus episode, Beth shares a very personal update about her family’s experience with genetic testing for FTD.
After finally receiving a long-awaited appointment with a geneticist, Beth reflects on the difficult questions this raises - whether to test or not, the emotional toll of w…
In this deeply emotional episode, Beth sits down with close friend Kirsty Roebuck, who has faced the unimaginable - both of her parents were diagnosed with vascular dementia within 18 months of each other.
Kirsty opens up about the first signs that something wasn’t right with her dad and the grief …
Disclaimer: The podcast and artwork embedded on this page are from Beth Jones, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
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