ABOUT THIS PODCAST 🔗
No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
Hosts:
Update frequency:
biweekly
Average audio length:
53 minutes
Guest interviews
Has sponsors
English
United States
195 episodes
since Jan. 29, 2019
episodic
LATEST EPISODE 🔗
Real life requires real answers, something Ryan Olson seeks to provide through his new website: RealFSHD.com. This week, Ryan Olson returns to the podcast to talk candidly about life with FSHD and why he created a site sharing what he’s found useful in the 25 years since his diagnosis. From an AI…
SEARCH PAST EPISODES
Search past episodes of FSHD Straight Talk with Tim Hollenback.
PREVIOUS EPISODES 🔗
Jim Shaugnessy is looking for a girlfriend. That’s not a joke, even though he spent his life writing for late night TV including Conan O’Brien and The Tonight Show. In this candid conversation, Shaughnessy’s trademark mix of Philly frankness and not shying away from difficult topics is on display…
Christine Hoene is a force of nature. From windsurfing to roller pole to ice climbing, there are very few sports she hasn’t tried. Convinced by a dream in her 30s to live life to the fullest, Hoene chose to try a new sport, every year, for an entire year. While some sports, like snowboarding, she…
Join us for the 2026 Walk & Roll special episode of FSHD Straight Talk with Tim Hollenback. This year’s episode features: Dana Simone-Kurtz, San Diego; Joanne Dalessandro, Chicagoland; and Jane Roberts, Alberta, Canada. This year’s Walk leaders represent folks living with FSHD, care partners,…
Stephen Pollock is a dedicated father and pastor, living each day as a commitment to his faith. Born in Ireland, Pollock started his career practicing family medicine. In this episode he reflects on how his symptoms were visible as early as his med school anatomy classes, yet it would be almost 2…
Rami Jokinen is a scholar, a musician, an advocate, and a jokester. Part of the Beat FSHD!-Combo, you might recognize him from the band’s recent World FSHD rock anthem and as the wearer of a hat bearing his ask of physicians and researchers “Feel free to beat FSHD.”
In this episode of FSHD Strai…
Fashion designer Vasiliki “Vas” Charitonos believes adaptive clothing can be both accessible and stylish. Her approach is informed by her own experience with FSHD. As a teenager, Vas began adapting her clothes when getting dressed became more difficult, a challenge familiar to many people living wi…
Kathy Chase has a sense of humor - about life and her husband Larry’s FSHD diagnosis. In this episode, Kathy joins Tim for a candid conversation about how FSHD has affected and strengthened her marriage. Kathy’s blogs are eloquent as is she as she provides insight into her experience as a spouse,…
This week, Chris Carrino returns to FSHD Straight Talk for a conversation about inspiration. Recently awarded the Curty Gowdy Media Award and entered into the Naismith Basketball Hall of Fame, Carrino discusses feeling humbled and reacting to how sports announcing has both inspired him and allowe…
Happy World FSHD Day 🍊🧡 On June 20th, folks living with FSHD and their communities come together to raise awareness about FacioScapuloHumeral Muscular Dystrophy. June 20th is a day for sharing stories and information about this rare, relentlessly progressing disease. In this year's World FSHD Day…
Disclaimer: The podcast and artwork embedded on this page are from FSHD Straight Talk, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
PODCAST SEARCH ENGINE
You can use our website to search 3,832,198 podcasts and 196,939,749 episodes by people, places, or topics.
An investment in knowledge pays the best interest, so I listen to podcasts.
‐ Benjamin "Llamacorn" Franklin
SEARCH PAST EPISODES
Search past episodes of FSHD Straight Talk with Tim Hollenback.
CLAIM THIS PODCAST
Why to claim podcasts?
If you are a podcaster, the best way to manage your podcasts on Listen Notes is by claiming your Listen Notes
podcast pages.
It is a great, free way to engage the podcast community and increase the visibility of your podcasts.
After claiming your Listen Notes podcast pages, you will be able to:
✓
Manually refresh the RSS feed to sync up
✓
Get a verified badge (
✓
) alongside with your podcast name on Listen Notes
✓
Post classified ads for sponsorship,
guests, co-hosts,
cross-promotion...
✓
Respond to listener comments on Listen Notes
✓
Use speech-to-text techniques to transcribe your show and
edit transcripts
✓
Improve the presence of your podcasts, e.g., self-service
podcaster interview...
✓
If you share your Listen Notes page and at-mention @ListenNotes
on X (formerly Twitter),
our official X (formerly Twitter) account will retweet to promote
your show to our followers.
Coming soon:
◯ Self-service promotion on Listen Notes
◯ Track your podcast stats on Listen
Notes, e.g., listens, page
views...
◯ Manage episodes
EDIT
Thank you for helping to keep the podcast database up to date.
