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OM DENNE PODKAST 🔗
A podcast for people with Neurofibromatosis (NF-1, NF2-SWN, and Schwannomatosis)--and the people who care for them.
Verter:
Opdateringsfrekvens:
monthly
Gjennomsnittlig lydlængde:
38 minutes
Gæsteinterviews
Engelsk
USA
6 episoder
siden 9. mai 2024
episodic
NYESTE EPISODE 🔗
This is officially the end of Season 1. Thanks everyone, see you in 2025 for Season 2!
Thanks to our monthly supporters
Annette B.
Rosemary Anderson
SØK BLANT TIDLIGERE EPISODER
Søk etter gamle episoder av Decoding NF.
SISTE EPISODER 🔗
My guest for this episode is Dr. Tessa Hadlock, a renowned facial plastic surgeon and expert in facial nerve disorders. Dr. Hadlock discusses her pioneering work in facial paralysis treatments, specifically focusing on conditions related to Neurofibromatosis Type 2 (NF2). The conversation delves in…
In this episode, my guest is Dr. David Gutmann, a leading neurologist specializing in Neurofibromatosis Type 1 (NF1). The conversation delves into Dr. Gutmann's groundbreaking research on the NF1 protein neurofibromin and its role in downregulating the RAS/RAF/MAPK cell signaling pathway. We explor…
My guest this episode is John Manth, father of Leah Manth, who was diagnosed with Neurofibromatosis Type 2 (NF2-SWN) in 2007. John discusses their family's journey in seeking treatments and a cure for NF2, his extensive involvement in various NF organizations, and the impactful role of their servic…
This episode features Dr. Frank Buono, an Associate Research Scientist and Lecturer at the Yale School of Medicine, discussing his research on utilizing digital technologies to assist with treatment for individuals with rare diseases like neurofibromatosis (NF), with a focus on managing chronic pai…
Welcome to Decoding NF! This is just a brief introduction to the show.
Thanks to our monthly supporters
Annette B.
Rosemary Anderson
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Ansvarsfraskrivelse: Podkasten og kunstværket, det finnes indlejret på denne siden, er fra Shane Smith, som tilhører dens eier og ikke er tilknyttet eller godkjent av Listen Notes, Inc.
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