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Join Julie for information, exploration, stories of hope and real talk related to running with dystonia, neuro plasticity and establishing better movement patterns at any age.
Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well.
Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.
Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.
Give us a listen if you'd like to learn more.
One small favor... if you like these podcasts and want to support the show, could you buy us a cup of coffee through a donation to support our hosting and producing fees? https://www.buymeacoffee.com/dystonia
You can email us here if you're interested in collaborating or contributing - runnersdystonia@gmail.com
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에피소드 36 개
2024년 7월 9일부터
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I had a discussion with Neuroplastic Osteopath Coenie de Groot who talks with me about neuroplastic pain and how we can use our brains to overcome chronic conditions.
You can find out more at his website.
Also mentioned in the podcast were these resources:
SIRPA
Symptomatic me
Pain Reprocessing The…
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Jennifer is a runner and outdoor enthusiast with cervical dystonia. She was diagnosed just a few years ago and has already been through multiple rounds of botox, PT and now has had DBS.
Key points include:
acting fast when you notice something doesn't seem right with your body
self-advocacy
…
Ruth Chiles is a somatic performance therapist, author, and educator working at the intersection of neuroscience, trauma, and physical and mental flow.
As a musician who experienced and fully recovered from focal embouchure dystonia and other performance blocks, Ruth understands from the inside wha…
In this episode, Julie and Mindy explore how psychedelics, psychotherapy, movement, mindfulness, creativity, and connection can work together as an ecosystem for healing.
Mindy Tockman, LPC, is a trauma therapist, speaker, and founder of Resonance, an emerging integrative wellness center being deve…
In this episode, I have a conversation with Movement educator Monika Volkmar where we talk about how foot mechanics can help or hinder the gait cycle when the timing is not appropriate. Monika shares her history, knowledge and many resources on her journey, work and education in this rich discussio…
Bree Sutton is a mental health therapist specializing in helping athletes and high achievers overcome anxiety and reach their full potential. Her approach is unique because of the integration of techniques like HeartMath biofeedback to enhance heart rate variability and brainspotting to target deep…
Tim Koh, Professor of Kinesiology and Nutrition at the University of Illinois-Chicago, shares his story of dystonia and information about a possible link with a genetic mutation (THAP 1).
Please share these podcasts with friends, supporters, healthcare providers, your team. Without your support, w…
Julie talks with Ariel Beccia, a researcher with the Harvard School of Public Health, on her dystonia story and how she got from not running 10 years ago to where she is now with running and racing and workouts.
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The information shared in this podcast …
Julie sits down with Dr. Bernard Ravina, CEO and founder of Vima Therapeutics. His company is developing a drug that looks promising in helping those with dystonia.
Vima Therapeutic website
Vima Therapeutics team
Site for current Phase 2 dystonia study into first oral medication. The study is name…
Neurologist Erik van Wensen shares his personal story and where we are with current understanding and research in the area of dystonia and specifically task-specific sports dystonia.
Mentioned in the recording:
EMDR - Eye Movement Desensitization and Reprocessing
CBT - Cognitive Behavioral Therapy…
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