이 팟캐스트 소개 🔗
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc.
**Please consult with you own physician for advice about any medical recommendation.
**Please consult with you own physician for advice about any medical recommendation.
진행자:
업데이트 빈도:
every 10 days
평균 오디오 길이:
41 minutes
게스트 인터뷰
스폰서 있음
영어
미국
에피소드 643 개
2010년 11월 15일부터
episodic
이 팟캐스트 내 🔗
최신 에피소드 🔗
Help 4 HD Updates for 2025 with Katie Jackson
이전 에피소드 🔗
Pay What You Can: www.paywhatyoucanpeersupport.com/faqs
Alliance of Hope: www.allianceofhope.org or phone number is 847-868-3313
National Suicide Hotline:
If you live in the US, contact the National Suicide Prevention Lifeline by calling 988 or texting “Hello” to 741741.
Their website is www…
Erika (HD Reach) and Lauren (Help4HD Podcast) talk with Clinical Social Worker and Hospice Supervisor Shivani Borah about Hospice and the end-of-life process. We discuss medications, advanced directives, and the myths and misunderstandings surrounding Hospice care. Join us as we dive into a very di…
The Help 4 HD Resource Database has a resource called mRelief, which is a nonprofit that helps you determine eligibility and sign up for SNAP and other supplemental programs by using a quick survey via text message. You can text the word “Food” to 74544 to complete the screening survey over text or…
Update about Sage Therapeutics with Lauren Holder
If you'd like to check out the video, here's the link: https://youtu.be/NTiqiAeBMOw
Please visit the Rare Patient Voice website for more information, or reach out to Lauren Holder at lauren@help4hd.org
WES MICHAEL
Founder and President, Rare Patient Voice
Wes Michael founded Rare Patient Voice in 2013 to give patients and family caregivers the opportunity to voice their opinio…
Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here: https://www.youtube.com/watch?v=y6CrrVGfBTk
Breaking Down Barriers is sp…
Our Lived Experience (Panel from Help 4 HD Symposium)
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