このポッドキャストについて 🔗
Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases. #makerarevisible
更新頻度:
bimonthly
平均音声長:
31 minutes
英語
アメリカ合衆国
5 エピソード
2021年10月3日から
episodic
最新エピソード 🔗
Listen in as we hear from the Rare Leaders and Parents with their journey in Duchenne Muscular Dystrophy. #beckshelpinghands #makerarevisible #duchennemusculardystrophy #rarestrides #zebrastrong #rarediseases
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Support this podcast: https://podcasters.spotify.com/pod/show/rare-stri…
以前のエピソード 🔗
Join us for Rare Strides updates about Rare Wish and the Make Rare Visible Challenge with co-founder, Beth Nguyen.
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Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support
Join us as we speak with Missy who is the parent of our first Code Rare participant and learn all about Code Rare. For more information about Code Rare go to our website at www.rarestrides.com
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Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support
Season 1, Episode 2 we are speaking with Rare Strides board member Dennis who is a parent of a Rare child. He shares his experience being a parent to a child who was diagnosed with a Rare disease, the struggles and the triumphs. Tune in and dig in to learn how you can #makerarevisible. You can find…
Rare Strides Host, Trena Myers interviews Rare Strides founder and today's guest, Beth Nguyen. Trena inquires with Beth on the reasons behind the creation of Rare Strides. Join us on this episode to learn about the building blocks of Rare Strides where we hope to "make rare visible." #rarestrides #…
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