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643 פרקים
מאז 15 בנובמבר 2010
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הפרק החדש ביותר 🔗

Help 4 HD Updates for 2025 with Katie Jackson

חיפוש פרקים ישנים

חפש פרקים קודמים של Help 4 HD Live!.

פרקים קודמים

Pay What You Can: www.paywhatyoucanpeersupport.com/faqs  Alliance of Hope: www.allianceofhope.org or phone number is 847-868-3313 National Suicide Hotline:   If you live in the US, contact the National Suicide Prevention Lifeline by calling 988 or texting “Hello” to 741741. Their website is ww‮…
Erika (HD Reach) and Lauren (Help4HD Podcast) talk with Clinical Social Worker and Hospice Supervisor Shivani Borah about Hospice and the end-of-life process. We discuss medications, advanced directives, and the myths and misunderstandings surrounding Hospice care. Join us as we dive into a very d‮…
HD Uncut: Days of Our Lives
The Help 4 HD Resource Database has a resource called mRelief, which is a nonprofit that helps you determine eligibility and sign up for SNAP and other supplemental programs by using a quick survey via text message. You can text the word “Food” to 74544 to complete the screening survey over text o‮…
Update about Sage Therapeutics with Lauren Holder
If you'd like to check out the video, here's the link: https://youtu.be/NTiqiAeBMOw
Please visit the Rare Patient Voice website for more information, or reach out to Lauren Holder at lauren@help4hd.org WES MICHAEL Founder and President, Rare Patient Voice Wes Michael founded Rare Patient Voice in 2013 to give patients and family caregivers the opportunity to voice their opini‮…
Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here: https://www.youtube.com/watch?v=y6CrrVGfBTk Breaking Down Barriers is s‮…
Our Lived Experience (Panel from Help 4 HD Symposium)
הצהרה: הפודקאסט והגרפיקה המוטבעים בדף זה הם מ-Help4HD, שהוא רכושו של בעליו ואינו קשור או מאושר על ידי Listen Notes, Inc.