על אודות פודקאסט זה 🔗
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
מנחים:
תדירות עדכון:
every 9 days
אורך אודיו ממוצע:
40 minutes
ראיונות אורחים
יש ספונסרים
אנגלית
ארצות הברית
698 פרקים
מאז 15 בנובמבר 2010
episodic
בפודקסט זה 🔗
הפרק החדש ביותר 🔗
Description courtesy of Genetic Frontiers:When you walk through life for decades facing down an incurable disease, knowing how you might die—as Lauren Holder and I do—it's an excruciating, existential state that's hard to explain and difficult to negotiate. When I talked with Lauren, it was like a…
פרקים קודמים 🔗
In this episode, we dive deep into the personal and family impacts of genetic testing for Huntington’s disease. Wes, a genetic counselor, joins the conversation to discuss the emotional, psychological, and interpersonal effects of learning your genetic status. The episode explores how test results…
When you're at risk for Huntington's disease, deciding whether or not to undergo genetic testing is one of the most personal and life-changing decisions you may ever face.But what happens after you get your results?On this episode of Help 4 HD Live, I'm joined by a special guest, "Jules," who is s…
In this episode of Help 4 HD Live, host Katie Jackson sits down with Wes, a certified genetic counselor and director of HD Genetics, to explore the complexities of genetic testing for Huntington’s disease. Now in its fourth year, HD Genetics provides remote genetic counseling and testing services …
To read/Print the safety planning chapter of the Help 4 HD Toolkit, click here: Help4HD Database
Please visit the Help 4 HD database to see/print the HD Tool Kit end-of-life chapter here:Help4HD Database
Nancy and Alice are sisters, authors, scholars, and longtime members of the Huntington’s disease community. Their mother, Leonore Wexler, was diagnosed with Huntington’s disease in the late 1960s, at a time when very little was understood about the disease and families affected by HD often faced t…
Social Worker Spotlight with Jamie HollowayTraveling Tips & TricksHost: Katrina Hamel#HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #Travel
Please visit hdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pm
הצהרה: הפודקאסט והגרפיקה המוטבעים בדף זה הם מ-Help 4 HD Live!, שהוא רכושו של בעליו ואינו קשור או מאושר על ידי Listen Notes, Inc.
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