ייתכן שפודקסט זה לא יוציא פרקים חדשים יותר, וייתכן שחלק מקבצי השמע אינם תקינים.
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על אודות פודקאסט זה 🔗
A podcast for people with Neurofibromatosis (NF-1, NF2-SWN, and Schwannomatosis)--and the people who care for them.
מנחים:
תדירות עדכון:
monthly
אורך אודיו ממוצע:
38 minutes
ראיונות אורחים
אנגלית
ארצות הברית
6 פרקים
מאז 9 במאי 2024
episodic
הפרק החדש ביותר 🔗
This is officially the end of Season 1. Thanks everyone, see you in 2025 for Season 2!
Thanks to our monthly supporters
Annette B.
Rosemary Anderson
פרקים קודמים 🔗
My guest for this episode is Dr. Tessa Hadlock, a renowned facial plastic surgeon and expert in facial nerve disorders. Dr. Hadlock discusses her pioneering work in facial paralysis treatments, specifically focusing on conditions related to Neurofibromatosis Type 2 (NF2). The conversation delves i…
In this episode, my guest is Dr. David Gutmann, a leading neurologist specializing in Neurofibromatosis Type 1 (NF1). The conversation delves into Dr. Gutmann's groundbreaking research on the NF1 protein neurofibromin and its role in downregulating the RAS/RAF/MAPK cell signaling pathway. We explo…
My guest this episode is John Manth, father of Leah Manth, who was diagnosed with Neurofibromatosis Type 2 (NF2-SWN) in 2007. John discusses their family's journey in seeking treatments and a cure for NF2, his extensive involvement in various NF organizations, and the impactful role of their servi…
This episode features Dr. Frank Buono, an Associate Research Scientist and Lecturer at the Yale School of Medicine, discussing his research on utilizing digital technologies to assist with treatment for individuals with rare diseases like neurofibromatosis (NF), with a focus on managing chronic pa…
Welcome to Decoding NF! This is just a brief introduction to the show.
Thanks to our monthly supporters
Annette B.
Rosemary Anderson
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‐ Albert "Llamacorn" Einstein
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