אודות פרק זה
Join us for a conversation about the transition from childhood to adulthood and how it impacts care, decision-making, family dynamics, and more.
Guest speakers:
- Adith Thummalapalli, Project Engineer, Vice President of PPMD Adult Advisory Committee, Individual Living with Duchenne
- Shelley Coskery, RN, Pediatric Nurse Practitioner at Children’s of Alabama
- Kim Rae , Fierce Advocate, mom to an individual living with Duchenne, Change Agent
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חיפוש פרקים ישנים
חפש פרקים קודמים של Beyond the Diagnosis: Duchenne Perspectives.
פרקים אחרים בפודקאסט הזה
On this episode of Beyond the Diagnosis, we’re talking all things love, partnership, and the real-life magic that happens when two people choose each other.
We’re joined by two wonderful couples who bring heart, humor, and honesty to the conversation. Pat Moeschen and his wife, Vanessa—a duo who p…
Tune in to hear from women with personal experiences in dystrophinopathy, as well as a certified genetic counselor.
Co-Host:
Trina Stelly, Resource Specialist - Females in Duchenne at Jett Foundation, Patient Advocate, Farmer
Guests:
Camlee Gianotti, Jett ambassador, Duchenne Sibling, Respira…
Tune in for a conversation with sibling and advocate Destiny Holland, and Child Life Specialist, Andrea Lerude, MS, CCLS, QMHP-CS as we tackle topics like supporting siblings, resources, navigating emotional challenges, and more.
Join us for an insightful conversation about preparing for college: from navigating academic challenges to social life and daily living, we cover it all.
Guest Speakers:
Annie Tulkin, MS, Founder and Director, Accessible College, LLC
James Daniels, III, University of Georgia graduate, Bachelor…
הצהרה: הפודקאסט והגרפיקה המוטבעים בדף זה הם מ-Jett Foundation, שהוא רכושו של בעליו ואינו קשור או מאושר על ידי Listen Notes, Inc.
