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חפש פרקים קודמים של Beyond the Diagnosis: Duchenne Perspectives.

פרקים אחרים בפודקאסט הזה

The Sibling Experience

Tune in for a conversation with sibling and advocate Destiny Holland, and Child Life Specialist, Andrea Lerude, MS, CCLS, QMHP-CS as we tackle topics like supporting siblings, resources, navigating emotional challenges, and more.
Tune in to hear from women with personal experiences in dystrophinopathy, as well as a certified genetic counselor. Co-Host:  Trina Stelly, Resource Specialist - Females in Duchenne at Jett Foundation, Patient Advocate, Farmer Guests:   Camlee Gianotti, Jett ambassador, Duchenne Sibling, Respira‮…
Join us for an insightful conversation about preparing for college: from navigating academic challenges to social life and daily living, we cover it all. Guest Speakers: Annie Tulkin, MS, Founder and Director, Accessible College, LLC James Daniels, III,  University of Georgia graduate, Bachelor‮…
Join us for a conversation about the transition from childhood to adulthood and how it impacts care, decision-making, family dynamics, and more. Guest speakers: Adith Thummalapalli, Project Engineer, Vice President of PPMD Adult Advisory Committee, Individual Living with Duchenne Shelley Cosker‮…
הצהרה: הפודקאסט והגרפיקה המוטבעים בדף זה הם מ-Jett Foundation, שהוא רכושו של בעליו ואינו קשור או מאושר על ידי Listen Notes, Inc.