À PROPOS DE CET ÉPISODE
In this episode of Regulation Station, Becca Engle is joined by Jillian Eisloeffel, founder of Bobby's World: Profound Autism and parent to an 11-year-old child with high support needs.
Together they discuss caregiving, self-injurious behaviours, medical advocacy, and the realities of supporting a child with complex needs. Jillian shares her family's experiences navigating crisis periods, adapting their home for safety, advocating for medical answers, and finding ways to regulate herself while caring for her son.
The conversation also explores the challenges families face accessing support, the importance of community, and why understanding the full spectrum of autistic experiences matters.
In this episode:
- Parenting a child with profound autism
- Self-injurious behaviours and medical advocacy
- Why caregiver regulation matters
- Creating safe environments at home
- The realities of school, healthcare, and support systems
- Finding community and support as a caregiver
- Balancing privacy, dignity, and advocacy online
- Practical advice for families navigating difficult seasons
Content Note: This episode includes discussion of self-injurious behaviour, caregiver stress, medical trauma, family challenges, and disability support systems.
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