درباره این پادکست 🔗
Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases. #makerarevisible
فرکانس به روز رسانی:
bimonthly
میانگین طول صدا:
31 minutes
انگلیسی
ایالات متحده آمریکا
5 قسمت
از سال 3 اکتبر 2021
episodic
آخرین اپیزود 🔗
Listen in as we hear from the Rare Leaders and Parents with their journey in Duchenne Muscular Dystrophy. #beckshelpinghands #makerarevisible #duchennemusculardystrophy #rarestrides #zebrastrong #rarediseases
---
Support this podcast: https://podcasters.spotify.com/pod/show/rare-stri…
جستجوی اپیزودهای گذشته
اپیزودهای قبلی Rare Strides را جستجو کن.
اپیزود قبلی 🔗
Join us for Rare Strides updates about Rare Wish and the Make Rare Visible Challenge with co-founder, Beth Nguyen.
---
Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support
Join us as we speak with Missy who is the parent of our first Code Rare participant and learn all about Code Rare. For more information about Code Rare go to our website at www.rarestrides.com
---
Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support
Season 1, Episode 2 we are speaking with Rare Strides board member Dennis who is a parent of a Rare child. He shares his experience being a parent to a child who was diagnosed with a Rare disease, the struggles and the triumphs. Tune in and dig in to learn how you can #makerarevisible. You can find…
Rare Strides Host, Trena Myers interviews Rare Strides founder and today's guest, Beth Nguyen. Trena inquires with Beth on the reasons behind the creation of Rare Strides. Join us on this episode to learn about the building blocks of Rare Strides where we hope to "make rare visible." #rarestrides #…
شما تمام اپیزودهای این پادکست را دیدهاید
سلب مسئولیت: پادکست و آثار هنری تعبیه شده در این صفحه متعلق به Rare STRIDES است که متعلق به صاحب آن است و به Listen Notes، Inc وابسته یا تایید نشده است.
موتور جستجوی پادکست
می توانید از وب سایت ما برای جستجوی پادکست های3,825,215و قسمت های195,817,643بر اساس افراد، مکان ها یا موضوعات استفاده کنید.
If I have seen further than others, it is by listening to podcasts and standing upon the shoulders of
giants.
‐ Isaac "Llamacorn" Newton
جستجوی اپیزودهای گذشته
اپیزودهای قبلی Rare Strides را جستجو کن.
مدعی این پادکست شوید
Why to claim podcasts?
If you are a podcaster, the best way to manage your podcasts on Listen Notes is by claiming your Listen Notes
podcast pages.
It is a great, free way to engage the podcast community and increase the visibility of your podcasts.
After claiming your Listen Notes podcast pages, you will be able to:
✓
Manually refresh the RSS feed to sync up
✓
Get a verified badge (
✓
) alongside with your podcast name on Listen Notes
✓
Post آگهیهای طبقهبندیشده for sponsorship,
guests, co-hosts,
cross-promotion...
✓
Respond to listener comments on Listen Notes
✓
Use speech-to-text techniques to transcribe your show and
edit transcripts
✓
Improve the presence of your podcasts, e.g., self-service
مصاحبه با پادکستر...
✓
If you share your Listen Notes page and at-mention @ListenNotes
on X (formerly Twitter),
حساب رسمی X ما (که قبلاً Twitter بود) will retweet to promote
your show to our followers.
Coming soon:
◯ Self-service promotion on Listen Notes
◯ Track your podcast stats on Listen
Notes, e.g., listens, page
views...
◯ Manage episodes
ویرایش
از کمک شما برای بروز نگهداشتن پایگاهدادههای پادکست سپاسگزاریم