درباره این پادکست 🔗
The official podcast for the Muscular Dystrophy Association
میزبان‌ها:
فرکانس به روز رسانی:
monthly
میانگین طول صدا:
46 minutes
مصاحبه های مهمان
انگلیسی
ایالات متحده آمریکا
70 قسمت
از سال 1 ژوئن 2021
episodic
آخرین اپیزود 🔗
In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make…
جستجوی اپیزودهای گذشته
اپیزودهای قبلی MDA Quest Podcast را جستجو کن.
اپیزود قبلی 🔗
In this episode of Quest Podcast, we chat with Sue Bruhn, PhD, CEO of the Charcot-Marie-Tooth Association (CMTA); Stephan Züchner, MD, PhD, Chief Genomics Officer at the University of Miami Miller School of Medicine; and Brian Lin, PhD, Senior Research Portfolio Director at the Muscular Dystrophy…
In this Quest Podcast episode, we sit down with actor, comedian, and disability advocate Steve Way, currently starring as Alden in Hulu's hit thriller Furious. Steve talks about how the role was written for him after a chance meeting with creator Liz Meriwether on a panel about caregiving in medi…
In this episode of the Quest Podcast, we chat with Kiersten Riggs, a 24-year-old rare disease advocate from Tulsa, Oklahoma, who was a varsity cheerleader when her family first heard the words Friedreich's ataxia (FA). Kiersten opens up about being diagnosed alongside her older sister, the four y…
In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into a platform for connection and representation. Cerys opens up about growing up in a family that chose openness…
In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carly Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atroph…
In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary documentary The Ride Ahead. In the film, Samuel opens up about his personal journey into adul…
In this Quest Podcast episode, we chat with advocate, social media influencer, and President of the Periodic Paralysis Association (PPA), Cienna Ditri, who lives with periodic paralysis. Cienna shares her diagnostic journey — from childhood soccer games where something felt "off" to finally getti…
In this Quest Podcast episode, we chat with internationally recognized fashion designer Izzy Camilleri, a true pioneer in adaptive fashion. She shares how her successful career in high-end fashion took a transformative turn when she began designing clothing for people with disabilities and partne…
In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and problem-solving. She opens up about how creativity and “life hacking” became essentia…
سلب مسئولیت: پادکست و آثار هنری تعبیه شده در این صفحه متعلق به Muscular Dystrophy Association است که متعلق به صاحب آن است و به Listen Notes، Inc وابسته یا تایید نشده است.
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‐ Albert "Llamacorn" Einstein
جستجوی اپیزودهای گذشته
اپیزودهای قبلی MDA Quest Podcast را جستجو کن.
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