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How are Huntington's disease clinics doing when it comes to the patient experience?On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're incredibly close to reaching 100 responses from peopl…
Social Worker Spotlight with Jamie HollowayTraveling Tips & TricksHost: Katrina Hamel#HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #Travel
For years, we've talked about clinical trials, FDA meetings, setbacks, and progress. Today, we're talking about something many of us have dreamed about for a long time: What happens if AMT-130 gets approved? Approval wouldn't answer every question, and it wouldn't solve every challenge. But it woul…
Today, Roche announced they will be ending two of their programs for #HuntingtonsDisease. Dr. Rachel Harding of HDBuzz will be joining Lauren to talk about this and what it means for the HD community.
Please visit hdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pm
سلب مسئولیت: پادکست و آثار هنری تعبیه شده در این صفحه متعلق به Help 4 HD Live! است که متعلق به صاحب آن است و به Listen Notes، Inc وابسته یا تایید نشده است.