درباره این پادکست 🔗
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
میزبان‌ها:
فرکانس به روز رسانی:
every 10 days
میانگین طول صدا:
40 minutes
مصاحبه های مهمان
اسپانسر دارد
انگلیسی
ایالات متحده آمریکا
696 قسمت
از سال 15 نوامبر 2010
episodic
در این پادکست 🔗
آخرین اپیزود 🔗
When you're at risk for Huntington's disease, deciding whether or not to undergo genetic testing is one of the most personal and life-changing decisions you may ever face.But what happens after you get your results?On this episode of Help 4 HD Live, I'm joined by a special guest, "Jules," who is sh…
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اپیزود قبلی 🔗
In this episode of Help 4 HD Live, host Katie Jackson sits down with Wes, a certified genetic counselor and director of HD Genetics, to explore the complexities of genetic testing for Huntington’s disease. Now in its fourth year, HD Genetics provides remote genetic counseling and testing services f…
To read/Print the safety planning chapter of the Help 4 HD Toolkit, click here: Help4HD Database
Please visit the Help 4 HD database to see/print the HD Tool Kit end-of-life chapter here:Help4HD Database
Nancy and Alice are sisters, authors, scholars, and longtime members of the Huntington’s disease community. Their mother, Leonore Wexler, was diagnosed with Huntington’s disease in the late 1960s, at a time when very little was understood about the disease and families affected by HD often faced tr…
Social Worker Spotlight with Jamie HollowayTraveling Tips & TricksHost: Katrina Hamel#HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #Travel
Please visit hdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pm
How are Huntington's disease clinics doing when it comes to the patient experience?On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're incredibly close to reaching 100 responses from peopl…
Today, Roche announced they will be ending two of their programs for #HuntingtonsDisease. Dr. Rachel Harding of HDBuzz will be joining Lauren to talk about this and what it means for the HD community.
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If I have seen further than others, it is by listening to podcasts and standing upon the shoulders of
giants.
‐ Isaac "Llamacorn" Newton
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