درباره این پادکست 🔗
CAH Pulse takes us on a journey to educate and bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH). Each month patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice living with this challenging condition. Our hope is to further connect and champion this incredible community.
*This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*
*This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*
فرکانس به روز رسانی:
every 45 days
میانگین طول صدا:
34 minutes
مصاحبه های مهمان
انگلیسی
ایالات متحده آمریکا
24 قسمت
از سال 13 نوامبر 2023
episodic
آخرین اپیزود 🔗
Can you compete in an Ironman while living with CAH? Allyson says, absolutely! In this episode of CAH Pulse, Allyson returns to share her lifelong journey as an athlete with CAH, which all began for her when she was a child as a competitive swimmer. Now, as a young adult, Allyson is training for he…
جستجوی اپیزودهای گذشته
اپیزودهای قبلی CAH PULSE را جستجو کن.
اپیزود قبلی 🔗
In this encouraging episode of CAH Pulse, Dina and Stephanie talk to Allyson who is gracefully navigating life with CAH. Allyson eagerly shares her journey from being diagnosed at birth to becoming an athlete, an aspiring mentor for others in the CAH community and a motivated, thriving young adult.…
Born with salt-wasting CAH before newborn screening existed, Julia Anthony spent much of her childhood, high school and even college days in hospitals dealing with adrenal crises; which did not stop her from playing sports or having plenty of fun. However, in hindsight, it did change her in a most …
In this powerful episode of CAH Pulse, Becky, shares her deeply personal journey navigating her newborn daughter’s unexpected CAH diagnosis. What was planned to be a joyful home birth turned into a whirlwind of uncertainty, medical urgency, and a near death experience for her newborn.
From frustra…
When Lupe’s daughter Christina was born, everything changed in an instant. After a difficult pregnancy and an unexpected diagnosis of CAH, Lupe found herself navigating
a condition she had never heard of.
In this episode of CAH Pulse, Stephanie and Dina learn about Lupe’s emotional early days of …
In this uplifting episode of CAH Pulse, Stephanie and Dina talk with the unflappable 17-year-old Karter, who shares his experiences as a high school student-athlete living with salt-wasting CAH. Karter’s unique and straightforward approach to managing his CAH as well as his advocacy and action is a…
In this final episode of Season 2 - Stephanie and Dina are joined by leading CAH experts, Drs. Witchel and Auchus. This episode was made to provide a deeper understanding of the differences between salt-wasting CAH (classical) and non-classical CAH which is often misunderstood, frequently under-dia…
In this episode of CAH Pulse, host Stephanie Erb and CARES Foundation director Dina Matos sit down with distinguished scholar Dr. Dimitri Grigoriadis of Neurocrine Biosciences for a rare behind-the-scenes look at how medications are discovered, tested, and brought to life. From the origins of CRF r…
In this uplifting episode, Stephanie and Dina speak to Brittany, an outspoken 29-year-old living with CAH. A self described "open book", Brittany shares her life's journey from her diagnosis as a toddler, thanks to her mother's intuition and advocacy, to her drive to find a cure for CAH. Along the…
In this touching episode, Stephanie and Dina speak to Kristina, a young mom to 2 little girls who's younger daughter lives with salt wasting CAH. Kristina recalls her journey from giving birth to Franny through her now fifteen months of life, including feeding routines, hospital visits, medication …
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