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đī¸ Let's Talk MND Hosted by Jane Simpson | #EndMND đ Hosted by Jane Simpson, whose late husband Robert fought MND for 10 months, Let's Talk MND shares the real stories of those affected by Motor Neurone Disease. Through heartfelt conversations with people living with MND, their families, carers, and leading experts, the podcast brings together a community of strength, understanding, and hope â proving that even in the darkest times, love and courage shine through.
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every 10 days
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40 minutes
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episodic
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In this episode, Peta Hardy, an Occupational Therapist who specialises in MND, and shares insights on how occupational therapy supports individuals with MND.
She discusses assistive technology, home safety, and the importance of a multidisciplinary team to improve quality of life.
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Let's Talk MND āĻāĻ° āĻ
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In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world!
We explore incidence rates, genetics and environmental factors, and the challenges oâĻ
What happens when you live with MND far longer than expected?
In this special episode, Phil Camden, John Hanley, Matt Stickland and Peter Chambers come together to share their experiences of living with MND over many years.
They talk openly about what keeps them going, what theyâve learned alongâĻ
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, Adam shares what it means to discover your MND has a genetic cause â not just for you, but for your family and future generations.
He talks about genetic testing and counselling, navigating converâĻ
In this episode, Iâm joined by Sarah Shuttlewood, who shares her familyâs journey following her father Peterâs diagnosis with MND.
Sarah speaks openly about navigating MND from a daughterâs perspective â the shock of diagnosis, supporting her children through their grandfatherâs illness, and the câĻ
Professor Tom Oxley
In this episode, Iâm joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.
We discuss how Synchronâs Brain Computer Implant is helping people living with Motor Neurone Disease regain independence by enabling theâĻ
In this episode, Iâm joined by Marlene Lewis and her daughter Nicole to share the story of their husband and father, Shane Lewis, who lived with MND.
Together, they speak candidly about the realities of living with MND in regional Australia, where accessing specialist care can be incredibly challeâĻ
Professor Tom Oxley
In this episode, Iâm joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.
We discuss how Synchronâs Brain Computer Implant is helping people living with Motor Neurone Disease regain independence by enabling theâĻ
Tom Oxley
In this episode, Iâm joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.
We discuss how Synchronâs Brain Computer Implant is helping people living with Motor Neurone Disease regain independence by enabling them to contrâĻ
In this episode, Todd Johnson shares his personal journey with MND, the challenges of diagnosis, and his passionate advocacy for improved care and innovation in the sector.
Todd is also the Chair on MND Victoria
Discover insights on care gaps, technological opportunities, and how community and coâĻ
āĻĻāĻžāĻŦāĻŋ āĻĒāĻ°āĻŋāĻ¤ā§āĻ¯āĻžāĻ: āĻāĻ āĻĒā§āĻˇā§āĻ āĻžāĻ¯āĻŧ āĻāĻŽā§āĻŦā§āĻĄ āĻāĻ°āĻž āĻĒāĻĄāĻāĻžāĻ¸ā§āĻ āĻāĻŦāĻ āĻāĻ°ā§āĻāĻāĻ¯āĻŧāĻžāĻ°ā§āĻ Jane Simpson āĻĨā§āĻā§ āĻāĻ¸ā§āĻā§, āĻ¯āĻž āĻāĻ° āĻŽāĻžāĻ˛āĻŋāĻā§āĻ° āĻ¸āĻŽā§āĻĒāĻ¤ā§āĻ¤āĻŋ āĻāĻŦāĻ Listen Notes, Inc āĻĻā§āĻŦāĻžāĻ°āĻž āĻ
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If I have seen further than others, it is by listening to podcasts and standing upon the shoulders of
giants.
‐ Isaac "Llamacorn" Newton
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