معلومات عن هذا البودكاست 🔗
As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65.
For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone.
This isn’t meant to be a shiny podcast that gives you all the answers.
For a lot of us, the answers don’t exist - we’re just getting on the best we can.
Hosted on Acast. See acast.com/privacy for more information.
المضيفون:
تردد التحديث:
every 9 days
متوسط طول الصوت:
31 minutes
الإنجليزية
الولايات المتحدة
22 حلقة
منذ 7 مارس، 2025
episodic
أحدث حلقة 🔗
This week I’m joined by Wanda Smith, founder of CureGRN, a global nonprofit raising awareness, building community and driving research into FTD caused by a progranulin (GRN) gene mutation.
Wanda’s connection to dementia began in 1982. Her mum was diagnosed with young onset Alzheimer’s, and for almo…
البحث في الحلقات الماضية
البحث في الحلقات السابقة من FTD - Navigating The Cr*p.
الحلقات السابقة 🔗
This week I’m joined by Leanne, whose mum was diagnosed with behavioural variant frontotemporal dementia in 2018 and is now living in a care home.
Leanne talks honestly about the early signs that something wasn’t right, like unexplained spending and a loss of empathy. She first thought her mum migh…
This week I’m joined by Sam, whose son Andre was diagnosed with FTD at just 22. Sadly, he passed away at 24.
Andre was a cheeky, lovable rogue with a smile that could get him out of anything. Sam takes us through their journey together, from the first small changes at her wedding to Andre’s rapid d…
Last week we heard from Suzi, who is living with FTD. This week her husband, Colin, joins me to share the other side of their story.
Colin and Suzi met in 2007 and married on Christmas Eve 2008. Not long after, Susie was diagnosed with FTD at just 50, and their life together changed overnight.
Coli…
This week I'm joined by Suzi Barton - the FTD Warrior. Suzi was diagnosed with FTD at just 50 and has been living with it for 11 years.
She's a former social worker, a mum, a nana to 11, a rock chick and a miniature maker, and she's proof that a dementia diagnosis doesn't mean life has to stop.
Suz…
Series 3 kicks off in FTD Awareness Week 2026 with Emily Harris.
Her mum, Andrea, was a nurse for 35 years. She was first diagnosed with young onset Alzheimer's at 56, until a genetic test showed she actually has MAPT FTD.
Emily talks openly about the early signs, the fight for answers, the heartbr…
In this special bonus episode of FTD: Navigating the Crap, Beth is joined by Natalie Carter, host of the Dementia Dialogues podcast.
Earlier this year, Beth shared her own family’s experience of Frontotemporal Dementia on Natalie’s podcast, and now the roles are reversed as she joins Beth to share …
In this final episode of Season Two, Beth takes a moment to pause, look back, and share where life - and her mum’s dementia journey - are now.
She talks openly about the hardest moments of the past year: the sudden overnight decline that changed everything, learning to adapt to new routines with he…
In this episode, Beth is joined by Eleanor Connelly from Tide (Together In Dementia Everyday) - a charity dedicated to supporting carers and former carers of people living with dementia. Eleanor opens up about her experience caring for her dad with vascular dementia, and how her own grief led her t…
In this episode, Beth is joined by her friend Lauren, who shares the story of her Nana’s dementia diagnosis at 87, after years of slowly declining health.
Lauren explains how her Nana’s diabetes complicated symptoms, delayed a diagnosis and masked what was really going on - and how dementia still …
إخلاء المسؤولية: البودكاست والأعمال الفنية المضمنة في هذه الصفحة مأخوذة من Beth Jones، وهي مملوكة لمالكها وليست تابعة لشركة Listen Notes, Inc أو معتمدة منها.
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‐ Benjamin "Llamacorn" Franklin
البحث في الحلقات الماضية
البحث في الحلقات السابقة من FTD - Navigating The Cr*p.
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