معلومات عن هذا البودكاست 🔗

تردد التحديث:
every 75 days
متوسط ​​طول الصوت:
32 minutes
مقابلات الضيوف
لديها رعاة
الإنجليزية
الولايات المتحدة
8 حلقة
منذ 30 أكتوبر، 2024
episodic

أحدث حلقة 🔗

For children living with Duchenne muscular dystrophy, every adventure is an opportunity to create memories, build confidence, and experience life beyond their diagnosis. In this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea sit down with Jeff "Riot," Rare Disease Advocate, Communi…

البحث في الحلقات الماضية

البحث في الحلقات السابقة من Catalyst Convos.

الحلقات السابقة

In this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea sit down with Marissa Penrod, Founder and CEO of Team Joseph. Marissa shares how her son’s diagnosis with Duchenne muscular dystrophy changed the trajectory of her life and how that journey has evolved as more young people with …
On this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea are joined by two rare disease caregivers, Mark and Bill, who open up about their journeys as fathers, husbands, and unwavering supporters of their families. Mark shares his experiences navigating life alongside his wife, who li…
In this episode of Catalyst Convos, host Carrie Ostrea speaks with Dr. Maya Doyle and Jessica Campbell about what it really means to support families living with rare and chronic conditions. Dr. Doyle is a professor of social work at Quinnipiac University, specializing in healthcare, transition of …
In this episode of Catalyst Convos, hosts Amy Grover and Carrie Ostrea explore the often-overlooked barriers to care faced by rare disease patients in rural communities. Joining them are Darby Gavin from the National Organization for Rare Disorders (NORD) and Terri Klein, President and CEO of the M…
On this episode of Catalyst Convos, host Amy Grover is joined by Laura Romero, a university student living with epilepsy, and Desiree Taliancich, a nurse practitioner diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). Together, they dive deep into the unique healthcare challenges in the Hispa…
Welcome to the inaugural episode of Catalyst Convos! Join hosts Amy Grover and Carrie Ostrea as they embark on an inspiring journey with Rich Daly, the Chief Executive Officer of Catalyst Pharmaceuticals. In this captivating discussion, Rich opens up about his personal battle with epilepsy and the …
Welcome to Catalyst Convos, a show that brings you a wide range of conversations relevant to those impacted by rare and difficult-to-treat diseases, including Lambert-Eaton Myasthenic Syndrome (LEMS), Duchenne Muscular Dystrophy, Epilepsy, and Small Cell Lung Cancer. Featuring genuine experiences f…
لقد شاهدت جميع حلقات هذا البودكاست
إخلاء المسؤولية: البودكاست والأعمال الفنية المضمنة في هذه الصفحة مأخوذة من Catalyst Pharmaceuticals، وهي مملوكة لمالكها وليست تابعة لشركة Listen Notes, Inc أو معتمدة منها.