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Martijn de Groot has had tics since he was a child. Mostly, he suppressed them and they were rarely noticed. A few years ago, concerned that they might be getting worse, he started tracking them by pressing a small one-button tracker in his pocket that recorded a timestamp when a tic came. The first months of data surprised him. He had many more tics than he thought. After consulting with his primary doctor, who referred him to a specialist, he was diagnosed with Tourette’s syndrome. This came as a shock. In this podcast about a Show & Tell talk which appears in The Quantified Self: Learning to Observe, Martijn discusses some of the most interesting things he learned from making 5,933 observations over 330 days: before, during, and after therapy for Tourette’s syndrome.
Joining me: Martijn de Groot, Radboud University Medical Center; Sara Riggare, Uppsala University; Thomas Blomseth Christiansen, cofounder of TOTTI Labs; and Jakob Eg Larsen, Technical University of Denmark.
You can see Martijn’s data visualizations here: A single-case (N-of-1) study of Tourette syndrome using personal science to support self-care
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Links:
Personal Science Research Group
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