# Christine Von Raesfeld
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Top podcast episodes featuring christine von raesfeld.
When Patients Know Things the Doctor Does Not
The knowledgeable patient can still be seen as a threat, even by a medical resident. While every institution talks about how they much they care about their patients, they still tell patients that they don't need to see the data collected on them because they're not equipped to use their own data. …
E 65 ReImagine Healthcare Together: Christine Von Raesfeld & Dr. Amy Price
E 65 ReImagine Healthcare Together: Christine Von Raesfeld & Dr. Amy Price
Rare Disease Day Special: Christine Von Raesfeld Spills the Tea on Patient-Led Care, Research, and Pharmacogenomics
On this episode of HITea, we dive into an insightful conversation with Christine Von Raesfeld, Founder and CEO of People with Empathy. Christine, a rare disease warrior, shares her deeply personal journey about how she's championing her own care and research.
Discover the transformative power of ph…
Ep 76 The age of citizen science with Christine Von Raesfeld
Ep 76 The age of citizen science with Christine Von Raesfeld
Insight to Impact: Patient Voices in Health Tech & Policy
Effective solutions & ethical guardrails for data-driven decision-making, care, & treatment require patient involvement in policy & technology development.
Summary
Patient Insights on Health Access, Technology, and Public Policy
Data should inform decision-making for a triad of …
Perspectives on Patient Advocacy
Being a patient can sometimes feel isolating — like you’re shouting into a void. The fear, confusion, and overwhelm can make it all feel too much. That’s exactly where patient advocacy steps in: as a voice, a guide, and a lifeline when you need it most.
In our latest podcast episode, we speak with …
Catch-22.0: AI Creates Problems It Solves
Healthcare AI isn’t a tech problem—it’s a mirror reflecting how our health system already fails. Uncomfortable truths from Datapalooza 2025.
Summary
We’re asking the wrong questions about AI in healthcare. Instead of debating whether it’s good or bad, we need to examine the system-eating-its-ta…
Unifying Research S2E1 - Patient Negative One and Christine Von Raesfeld
In season two, episode one of Unifying Research, I had the pleasure of sitting down with a true research innovator and a rare disease patient with a fascinating story.
Our research expert this episode is Kaye Doiron, an innovator and serial entrepreneur, who is helping to redefine how we think abo…
A Patient’s Fight for Truly Personalized Care w/ Christine Von Raesfeld
What does personalized medicine really mean—and why does it still feel so out of reach for patients?
In this episode, Perry is joined by patient advocate and lived experience expert Christine Von Raesfeld for a powerful conversation that brings the patient voice to the forefront of personalized med…
When Answers Are Hard to Find: Inside Rare Disease Care
In this episode of Patient Innovations, Rashmi and Colleen explore one of the most complex and often misunderstood areas of healthcare: rare disease. While each condition may be considered uncommon, the lived experience is anything but rare for those affected. For many patients, it means navigating…
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