GIỚI THIỆU VỀ PODCAST NÀY 🔗
with Vascular and Aortic Connective Tissue Conditions
Tần suất cập nhật:
biweekly
Độ dài âm thanh trung bình:
34 minutes
Tiếng Anh
Hoa Kỳ
65 tập
kể từ Ngày 29 tháng 4 năm 2018
serial
TRONG PODCAST NÀY 🔗
TẬP CŨ NHẤT 🔗
Welcome to the first episode of Staying Connected!
I started Staying Connected as way to connect with other people diagnosed or impacted by vascular Ehlers Danlos Syndrome (vEDS).
In today’s episode, I talk to Bridgette, who was diagnosed in her early twenties following an angiogram that went ter…
TÌM KIẾM CÁC TẬP TRƯỚC
Tìm kiếm các tập trước của translucent one – Staying Connected.
TẬP TRƯỚC 🔗
In this episode I talk to Deborah, whose 9 year old son was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) at the age of five.
We hear about the road to diagnosis, changes they’ve made to his daily life, and coping strategies.
To learn more about Deborah’s books and to get one, visit http:…
Today I talk to Shannon, who was diagnosed with both the vascular and classical types of Ehlers Danlos Syndrome. She is just shy of 32 years old and has lived through 32 surgeries related to complications from EDS!
If you have vEDS, or have or lost a family member with vEDS, and want to be on this…
In this episode I talk to Annie, who was diagnosed clinically with vEDS at 8 years old and officially diagnosed at 14.
Annie is the first person I have met in person with vEDS and she is amazing! It is such a gift to be able to get to know her
If you have vEDS, or have or lost a family memb…
Aaron is 33 and was diagnosed a year and a half ago with vascular Ehlers Danlos Syndrome (vEDS). He tells us his story of diagnosis and events that he has experienced so far. He also tells us about his father’s story with vEDS, which was undiagnosed when he passed away two years ago.
This intervie…
Carla and her daughter Effie were diagnosed with vEDS after Effie was put into foster care for suspected abuse. It wasn’t until Effie and Carla got diagnosed with vEDS that Carla and her husband were able to get her back.
If you have vEDS, or have or lost a family member with vEDS, and want to be …
Brook had years of complications that pointed towards vEDS, or Vascular Ehlers Danlos Syndrome, but it wasn’t until his 40s that he was finally diagnosed. He has been through so much and his story is inspirational!
Stay tuned for more episodes on the last Sunday of every month!
…
Chrystal was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) along with her mother and brother. She has survived a pregnancy and is the last surviving member of her family who has vEDS. She was an inspiring person to talk to! <3
If you have vEDS, or have or lost a family member with vEDS,…
Emily was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) after a misdiagnosis of Classical EDS and the passing of her mother, who also had vEDS and was not properly diagnosed. Emily still finds joy in music, and continues to play for her mom. <3
If you have vEDS, or have or lost a family…
As a twist, in this episode my friend Becca asks me about my story!
If you want to check out what I’ve been up to, you can find links to my youtube and website below:
youtube.com/translucentone
translucentone.blog
Don’t forget to subscribe to this podcast to hear more patient stories with Vascu…
Tuyên bố miễn trừ trách nhiệm: Podcast và tác phẩm nghệ thuật được nhúng trên trang này là của Katie Wright, là tài sản của chủ sở hữu và không được liên kết hoặc xác nhận bởi Listen Notes, Inc.
CÔNG CỤ TÌM KIẾM PODCAST
Bạn có thể sử dụng trang web của chúng tôi để tìm kiếm các podcast3,827,930và các tập196,318,180theo người, địa điểm hoặc chủ đề.
Đầu tư vào tri thức luôn mang lại lợi ích lớn nhất, vì vậy tôi nghe podcast.
‐ Benjamin "Llamacorn" Franklin
TÌM KIẾM CÁC TẬP TRƯỚC
Tìm kiếm các tập trước của translucent one – Staying Connected.
PODCAST ĐƯỢC TUYÊN BỐ
This podcast page is claimed and managed by
@katie517
CHỈNH SỬA
Cảm ơn bạn đã giúp cơ sở dữ liệu podcast luôn cập nhật.
