Episode 095 - Utilize But Verify - AI in the Rare Disease Journey w/ Dr. Michael Henry

Welcome to Episode 095 of the Beyond the Diagnosis Podcast. Artificial intelligence is changing the way we find, understand, and use medical information—but what does that mean for people living with rare disease? In this episode, Kathy talks with Dr. Michael Henry about the role AI can play in the rare disease journey, from helping patients make sense of complex information and prepare for conversations with their healthcare providers to navigating the uncertainty of a diagnostic odyssey. They also explore an important question: How do we use AI without allowing it to replace the expertise, experience, and relationship at the heart of good medical care? This isn't about blindly trusting AI—or dismissing it. It's about learning how to question, verify, and use this rapidly evolving technology thoughtfully as another tool in the rare disease toolbox. 

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Resources mentioned in the podcast: 

• Get more info on Histiocytosis Awareness Month: www.histio.org/getinvolved/raiseawareness 

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Music: “Heroes” by Noah Smith