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In this episode, I’m joined by Marlene Lewis and her daughter Nicole to share the story of their husband and father, Shane Lewis, who lived with MND.
Together, they speak candidly about the realities of living with MND in regional Australia, where accessing specialist care can be incredibly challenging. They also discuss the additional barriers faced by people diagnosed over the age of 65 who are ineligible for the NDIS.
Shane made the courageous decision to access Voluntary Assisted Dying, and Marlene and Nicole generously share their experience of the application process, including the difficulties created by living in a regional area where even video medical appointments weren’t readily available.
Above all, this is a conversation about Shane himself—a much-loved husband, father, mate and all-round great bloke.
This is an honest and important discussion about love, loss, inequity, and ensuring every Australian living with MND has access to the care and choices they deserve.
