How CASA Volunteers Support Youth in PPLA
In this episode, we explore an important and sometimes misunderstood topic: Planned Permanent Living Arrangements, or PPLAs. What happens when a child in foster care isn’t likely to be adopted or reunited with their parents? And what role do CASA volunteers play in making sure these children still…
Ep. 79 Connection Beyond Loss: Love, Grief & Continuing Bonds with Amy Cox
Welcome back to the HEAR HER podcast.
Please Note:This episode includes a discussion of child loss and suicide. Please listen with care and tend to yourself as needed. 💛
In this deeply tender and compassionate conversation, Heather sits with Amy Cox to explore grief, loss, and the unimaginable expe…
Historical Progress | Tough Conversations about Sickle Cell Disease - Episode 3
Has anything in sickle cell care actually been fixed?
In the third episode of our Tough Conversations about Sickle Cell Disease series, our panelists look back at the historical problems in sickle cell and ask what has truly changed. Kyle Smith reflects on his time working at a children’s hospital,…
Why Sickle Cell? | Tough Conversations about Sickle Cell Disease - Episode 1
What brings someone to sickle cell disease, and what keeps them fighting for change?
In the first episode of our Tough Conversations about Sickle Cell Disease series, four thought leaders driving progress in the sickle cell space share their “why.” Dr. Amy Cox talks about finding the community thro…
Sickle Cell Pain | Tough Conversations about Sickle Cell Disease - Episode 6
What makes sickle cell pain so different from anything else?
In the sixth episode of our Tough Conversations about Sickle Cell Disease series, our panelists open up about what sickle cell pain really feels like and why it is so hard to understand from the outside. Dr. Halimat Olaniyan compares sick…
Racism vs.Complexity | Tough Conversations about Sickle Cell Disease - Episode 5
Are sickle cell’s biggest challenges rooted in systemic racism, or in the complexity of the disease itself?
In the fifth episode of our Tough Conversations about Sickle Cell Disease series, our panelists agree the answer is both. Jimi Olaghere reflects on how systemic racism is a problem no single …
Research Barriers | Tough Conversations about Sickle Cell Disease - Episode 4
Why has sickle cell research moved so much slower than research for other diseases?
In the fourth episode of our Tough Conversations about Sickle Cell Disease series, our panelists agree on one answer: money. Dr. Amy Cox explains how historic barriers like redlining and discrimination have limited …
Gene Therapy & The Cure | Tough Conversations about Sickle Cell Disease - Episode 8
Gene therapy is often called a cure for sickle cell disease, but is that really the right word?
In the eighth episode of our Tough Conversations about Sickle Cell Disease series, our panelists unpack what “cure” actually means, and who gets to define it. Dr. Halimat Olaniyan shares why her first th…
What Good Care Look Like? | Tough Conversations about Sickle Cell Disease - Episode 9
Beyond new treatments, what does good sickle cell care actually look like, and how far are we from it?
In the final episode of our Tough Conversations about Sickle Cell Disease series, our panelists share what good care means to them and leave us with their key takeaways. Kyle Smith opens up about …
Research Endpoints | Tough Conversations about Sickle Cell Disease - Episode 7
Pain is the hallmark of sickle cell disease, but is it the only thing research should be measuring?
In the seventh episode of our Tough Conversations about Sickle Cell Disease series, our panelists rethink what clinical trials should track, and who gets left out of them. Jimi Olaghere shares what p…
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