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End of Life: The Caregiver Perspective, Part 2

Are You Prepared for a Disaster?

Helpful information on being prepared for a disaster: https://www.ready.gov/disability Information about FEMA: https://www.disasterassistance.gov/ Here are some tips for people with disabilities to prepare for disasters:  Make a plan Create a network of people who can help you in an emergency, …

HD Uncut: Thoughts from Strasbourg

HD Uncut: Thoughts from Strasbourg
Our Lived Experience (Panel from Help 4 HD Symposium)
Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here: https://www.youtube.com/watch?v=y6CrrVGfBTk Breaking Down Barriers is sp…
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