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Welcome to the LEMS Aware Podcast. We’ve been waiting for you. My name is Kevin Freiert, and I will be your host. Lambert-Eaton myasthenic syndrome, also known as LEMS, is a rare neuromuscular disease that can have a profound effect on a person's mobility and quality of life. LEMS disrupts the comm…
“Recognize your limits but don’t limit yourself... There's a life lesson, maybe a metaphor in the airborne and parachute training that I went through. When something is new and difficult that first step is the hardest. Once you take that step with the right mindset and the right resources, like a w…

LEMS and Family Life

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When you are young, active, and always on the go it can be hard to accept that something is suddenly happening to you. This episode gives us a glimpse of what it is like raising a family after being diagnosed with LEMS (Lambert Eaton Myasthenic Syndrome).  In this episode, we talk with Connor about…
The start of new symptoms can be life changing for a patient, but they aren’t the only ones effected. Behind most patients there is a caregiver in some form, someone who is along for the journey, to experience the highs and lows and to be a cheerleader, note taker, medicine giver, and advocate when…
New symptoms. Invisibility. Isolation. Being diagnosed as Rare. Advocacy. Building connections. Ashley Gregory and Price Wooldridge walk us through their journeys living with LEMS. Ashley was starting a career, whereas Price held years of broad experience when their diagnostic odysseys began. They …
Aviso: O podcast e a arte incorporada nesta página são de Catalyst Pharmaceuticals, Inc., que é propriedade de seu proprietário e não é afiliado ou endossado por Listen Notes, Inc.