WEBVTT
1
00:00:00.880 --> 00:00:05.320
Hello, and welcome back to bw overn MS podcast. Today,
2
00:00:05.480 --> 00:00:09.560
I want to talk about something that came from a
3
00:00:09.679 --> 00:00:14.800
simple image I recently shared on my media channel. I
4
00:00:14.919 --> 00:00:20.760
shared one person a woman who's casually dressed up. It's
5
00:00:21.039 --> 00:00:26.760
an image which is animated. And there are many possible
6
00:00:26.879 --> 00:00:32.799
symptoms of multiple sclerosis listed, such as fatigue, pain, cognitive changes,
7
00:00:33.240 --> 00:00:40.159
ultra sensation weakness, bladder, bowel issues, mood changes, sleep problems,
8
00:00:40.280 --> 00:00:46.399
vision problems, balance problems, you name it, but something interesting happened.
9
00:00:47.560 --> 00:00:53.359
People didn't just respond to the symptoms, they responded to
10
00:00:53.439 --> 00:00:59.520
the feeling behind them. And one person wrote everyone thinks
11
00:00:59.719 --> 00:01:06.439
I'm okay. Another describes something happening beneath the surface, and
12
00:01:06.519 --> 00:01:12.879
somebody else wrote something beautiful such as an unpredictable body
13
00:01:13.000 --> 00:01:19.159
forces you to find a steady strength within. That stayed
14
00:01:19.280 --> 00:01:23.560
with me because perhaps one of the hardest things about
15
00:01:23.719 --> 00:01:28.760
MS is in simply having MS symptoms, but it's not
16
00:01:29.040 --> 00:01:32.719
knowing which version of your body you are going to
17
00:01:32.760 --> 00:01:39.400
wake up with next morning. Some mornings your legs corporate.
18
00:01:40.000 --> 00:01:45.959
Another day they feel heavy. Yesterday you could concentrate your
19
00:01:46.319 --> 00:01:53.359
footy alert Today is different. Your brain feels wrapped up
20
00:01:53.959 --> 00:02:01.439
in a fog. Perhaps nobody around you notice any of it.
21
00:02:01.439 --> 00:02:05.519
It's inside you. You may look exactly the same, You
22
00:02:05.599 --> 00:02:11.240
may even dress the same clothes, look the same, but
23
00:02:12.479 --> 00:02:17.039
you feel different, and yet your internal landscape can be
24
00:02:17.120 --> 00:02:24.000
completely different. In today's episode, it's not about fixing that body,
25
00:02:24.879 --> 00:02:30.960
It's about something quieter. How do we create a little
26
00:02:31.039 --> 00:02:36.759
steadness an anchor as I'd like to call when the
27
00:02:36.800 --> 00:02:40.680
body itself doesn't always feel steady? What do we do?
28
00:02:41.879 --> 00:02:47.560
There is useful idea in mindfulness. We can distinguish between
29
00:02:47.639 --> 00:02:51.879
what is happening and what the struggle we sometimes build
30
00:02:51.919 --> 00:03:03.840
around what is happening. There might be fatigue, and then
31
00:03:05.039 --> 00:03:09.159
you may say, I shouldn't be this tired. There might
32
00:03:09.199 --> 00:03:13.599
be pain, and then you may think or say to yourself,
33
00:03:13.680 --> 00:03:17.639
why is the body doing this again? There might be
34
00:03:18.479 --> 00:03:22.759
brain fog and then you used to able to do things,
35
00:03:23.919 --> 00:03:27.280
and then you say, what's happening with me? There might
36
00:03:27.319 --> 00:03:31.400
be uncertainty, and then the mind travels forward. What if
37
00:03:31.439 --> 00:03:37.240
this gets worse and you get into these there's different
38
00:03:37.919 --> 00:03:43.479
stories in your mind. These thoughts are completely understandable, They
39
00:03:43.520 --> 00:03:49.280
are completely normal. Mindfulness isn't asking you to pretend that
40
00:03:49.479 --> 00:03:54.520
they are not there. You just accept it. It's there,
41
00:03:54.879 --> 00:03:58.919
You fully understand that, you fully feel that, and it's
42
00:03:58.960 --> 00:04:03.479
okay to feel that, and it certainly it isn't suggesting
43
00:04:05.080 --> 00:04:10.800
that MS symptoms can simply be meditated away instead of
44
00:04:10.840 --> 00:04:16.519
mindfulness gives you another possibility meet what is here without
45
00:04:16.600 --> 00:04:21.959
immediately fighting myself for having it, and that is very,
46
00:04:22.079 --> 00:04:30.079
very different. So let's maybe find the a bit of
47
00:04:30.079 --> 00:04:36.000
a space for a short practice meeting the body where
48
00:04:36.040 --> 00:04:40.600
it is, as it is in your own time and
49
00:04:40.680 --> 00:04:45.360
always if it feels comfortable, find a position where you
50
00:04:45.399 --> 00:04:51.680
are feeling the most relaxed, where your body can be supported,
51
00:04:52.680 --> 00:04:58.920
whether it's lying down on the floor or sitting. You
52
00:04:58.920 --> 00:05:01.519
don't need to close your e if you don't like it,
53
00:05:02.240 --> 00:05:06.839
well you can do if you wish, and there's nothing
54
00:05:07.279 --> 00:05:13.480
you need to achieve. Begin simply by noticing that you
55
00:05:13.560 --> 00:05:19.720
are here in this moment. Notice the support underneath your body,
56
00:05:20.560 --> 00:05:23.519
whether it's the seat, whether it's the floor, whether it's
57
00:05:23.519 --> 00:05:31.680
your bed, chair, the floor beneath your feet. And notice
58
00:05:32.040 --> 00:05:39.439
one breath, not a special breath, not necessarily a deep breath,
59
00:05:40.839 --> 00:05:56.759
just one breath your body is steady taking, perhaps silently
60
00:05:57.480 --> 00:06:03.639
say this is my body today, not yesterday's body, not
61
00:06:03.759 --> 00:06:10.560
the body I think I should have this body as
62
00:06:10.600 --> 00:06:31.480
it is now today. Now, gently notice what is most
63
00:06:31.560 --> 00:06:43.560
obvious in your body. Perhaps heaviness, tangling, burning, warm tightness,
64
00:06:45.000 --> 00:06:52.879
maybe pain, maybe restlessness, maybe all of these symptoms at
65
00:06:52.879 --> 00:07:00.319
the same time. Well, maybe you can notice something more
66
00:07:00.360 --> 00:07:08.480
pleasant or neutral. There is no need to search for symptoms.
67
00:07:10.000 --> 00:07:15.600
Just notice what is already asking for your attention right here,
68
00:07:15.920 --> 00:07:28.160
right now. And instead of the immediately asking how do
69
00:07:28.279 --> 00:07:33.920
I get rid of this? Try asking what does this
70
00:07:34.439 --> 00:07:42.399
feel like? Right now? It's more curiosity rather than judgment.
71
00:07:48.160 --> 00:07:55.439
Where exactly do you feel it? Does it have an edge?
72
00:07:55.959 --> 00:08:05.680
Does it move? Is it constant or intermittent to change
73
00:08:05.759 --> 00:08:17.199
moment to moment in intensity? You're not investigating your body
74
00:08:17.240 --> 00:08:21.839
for danger. You're simply listening to what your body has
75
00:08:21.920 --> 00:08:34.440
to say. Now imagine creating little space around whatever sensation
76
00:08:34.679 --> 00:08:42.120
is present. You don't need to like it, you don't
77
00:08:42.159 --> 00:08:48.080
need to approve of it. Simply allow to be here
78
00:08:48.360 --> 00:08:55.279
for this moment, perhaps quietly saying this is here and
79
00:08:55.480 --> 00:09:05.399
right now? Can I be kind to myself within this?
80
00:09:09.480 --> 00:09:11.919
Can I be kind to myself while this is here?
81
00:09:17.159 --> 00:09:21.279
Notice how different that question feels from how do I
82
00:09:21.440 --> 00:09:29.879
make it this disappear? If the sensation becomes uncomfortable or
83
00:09:30.120 --> 00:09:37.759
maybe overwhelming, move your attention away from it. Feel your feet,
84
00:09:39.399 --> 00:09:44.960
listen to the sound in the room, open your eyes.
85
00:09:49.320 --> 00:09:54.200
Mindfulness is not about enduring discomfort. You are allowed to
86
00:09:54.360 --> 00:10:01.919
choose where your attention goes. You're more than a symptom.
87
00:10:05.600 --> 00:10:09.080
Now broaden your awareness. Notice that the sensation is only
88
00:10:09.200 --> 00:10:15.240
one part of everything happening right now. There may be
89
00:10:15.320 --> 00:10:20.679
fatigue and also breathing. There may be tingling, and also
90
00:10:20.879 --> 00:10:24.919
feeling of your hands resting. There may be pain and
91
00:10:25.000 --> 00:10:31.840
also sound somewhere nearby. There may be uncertainty, and still
92
00:10:31.919 --> 00:10:37.399
this moment, all at the same time. This symptom is real,
93
00:10:38.639 --> 00:10:43.240
but it doesn't have to occupy the whole landscape. Imagine
94
00:10:43.240 --> 00:10:49.039
looking at the sky. A cloud can be large, dark,
95
00:10:50.080 --> 00:10:54.200
impossible not to notice, but the cloud is not the
96
00:10:54.360 --> 00:11:01.200
entire sky. It's just a little detail. In the same way,
97
00:11:01.320 --> 00:11:17.519
you're experiencing a symptom, and you're not the symptom. Listening
98
00:11:17.559 --> 00:11:22.600
instead of baffling. Now ask your body one final question,
99
00:11:25.080 --> 00:11:31.360
what do you need from me to day? Don't force
100
00:11:31.399 --> 00:11:41.279
an answer. Perhaps the answer is rest moment, the quality
101
00:11:41.279 --> 00:11:57.759
of food, quiet connection, fresh air, medical advice, a slower day. Well,
102
00:11:57.759 --> 00:12:02.600
perhaps there is no answer at all, and that's fine too.
103
00:12:11.399 --> 00:12:17.080
Then gently say to yourself, I don't have to experience
104
00:12:17.120 --> 00:12:22.960
today the way I experience yesterday. I can listen again.
105
00:12:24.919 --> 00:12:37.720
I can begin from here. Take one comfortable breath, notice
106
00:12:37.759 --> 00:12:50.320
the room around you, and when you are ready, continue
107
00:12:50.320 --> 00:12:56.159
where you are, day or night depends where you are
108
00:12:56.360 --> 00:13:04.200
and when you are doing this. Living with MS can
109
00:13:04.320 --> 00:13:13.000
sometimes mean becoming extraordinarily attentive to your body. But there
110
00:13:13.039 --> 00:13:17.840
is a difference between monitoring the body with fear and
111
00:13:17.879 --> 00:13:23.960
listening to the body with curiosity. Perhaps this is something
112
00:13:24.039 --> 00:13:29.240
we can all practice. Not what's wrong with me today?
113
00:13:29.279 --> 00:13:34.679
But what's here today? Not why can't I do what
114
00:13:34.840 --> 00:13:41.480
I did yesterday? But what is possible today? And not
115
00:13:41.720 --> 00:13:48.559
everyone thinks I'm fine, But perhaps my experience is real
116
00:13:49.679 --> 00:13:58.759
even when it isn't visible. Your body may be sometimes unpredictable.
117
00:14:00.000 --> 00:14:06.360
Mindfulness doesn't promise to make it predictable. What it can
118
00:14:06.480 --> 00:14:12.399
help us cultivate is something different, a steadier relationship with
119
00:14:12.679 --> 00:14:21.840
ourselves inside that uncertainty, and sometimes that's where strength begins.
120
00:14:23.879 --> 00:14:28.519
Thank you for spending a few minutes with me, I
121
00:14:28.639 --> 00:14:35.480
really wanted to reflect on this last media post that
122
00:14:35.559 --> 00:14:38.960
I just published, and it got a lot of attention
123
00:14:39.200 --> 00:14:45.039
from thousands of people I've never seen before. So thank
124
00:14:45.080 --> 00:14:51.679
you to everyone who shared, reshared, who liked, who saved
125
00:14:53.519 --> 00:14:57.799
this simple infographic with a human being and multiple symptoms
126
00:14:58.200 --> 00:15:03.600
of a mess. Be gentle with your body, stay curious
127
00:15:03.639 --> 00:15:10.120
about your experiences, and remind what happens beneath the surface
128
00:15:10.720 --> 00:15:17.360
matters too. Your body may be unpredictable, your relationship with
129
00:15:17.519 --> 00:15:23.440
yourself can still become a place of steadiness. So let's
130
00:15:23.480 --> 00:15:25.399
begin having this conversation today.
1
00:00:00.880 --> 00:00:05.320
Hello, and welcome back to bw overn MS podcast. Today,
2
00:00:05.480 --> 00:00:09.560
I want to talk about something that came from a
3
00:00:09.679 --> 00:00:14.800
simple image I recently shared on my media channel. I
4
00:00:14.919 --> 00:00:20.760
shared one person a woman who's casually dressed up. It's
5
00:00:21.039 --> 00:00:26.760
an image which is animated. And there are many possible
6
00:00:26.879 --> 00:00:32.799
symptoms of multiple sclerosis listed, such as fatigue, pain, cognitive changes,
7
00:00:33.240 --> 00:00:40.159
ultra sensation weakness, bladder, bowel issues, mood changes, sleep problems,
8
00:00:40.280 --> 00:00:46.399
vision problems, balance problems, you name it, but something interesting happened.
9
00:00:47.560 --> 00:00:53.359
People didn't just respond to the symptoms, they responded to
10
00:00:53.439 --> 00:00:59.520
the feeling behind them. And one person wrote everyone thinks
11
00:00:59.719 --> 00:01:06.439
I'm okay. Another describes something happening beneath the surface, and
12
00:01:06.519 --> 00:01:12.879
somebody else wrote something beautiful such as an unpredictable body
13
00:01:13.000 --> 00:01:19.159
forces you to find a steady strength within. That stayed
14
00:01:19.280 --> 00:01:23.560
with me because perhaps one of the hardest things about
15
00:01:23.719 --> 00:01:28.760
MS is in simply having MS symptoms, but it's not
16
00:01:29.040 --> 00:01:32.719
knowing which version of your body you are going to
17
00:01:32.760 --> 00:01:39.400
wake up with next morning. Some mornings your legs corporate.
18
00:01:40.000 --> 00:01:45.959
Another day they feel heavy. Yesterday you could concentrate your
19
00:01:46.319 --> 00:01:53.359
footy alert Today is different. Your brain feels wrapped up
20
00:01:53.959 --> 00:02:01.439
in a fog. Perhaps nobody around you notice any of it.
21
00:02:01.439 --> 00:02:05.519
It's inside you. You may look exactly the same, You
22
00:02:05.599 --> 00:02:11.240
may even dress the same clothes, look the same, but
23
00:02:12.479 --> 00:02:17.039
you feel different, and yet your internal landscape can be
24
00:02:17.120 --> 00:02:24.000
completely different. In today's episode, it's not about fixing that body,
25
00:02:24.879 --> 00:02:30.960
It's about something quieter. How do we create a little
26
00:02:31.039 --> 00:02:36.759
steadness an anchor as I'd like to call when the
27
00:02:36.800 --> 00:02:40.680
body itself doesn't always feel steady? What do we do?
28
00:02:41.879 --> 00:02:47.560
There is useful idea in mindfulness. We can distinguish between
29
00:02:47.639 --> 00:02:51.879
what is happening and what the struggle we sometimes build
30
00:02:51.919 --> 00:03:03.840
around what is happening. There might be fatigue, and then
31
00:03:05.039 --> 00:03:09.159
you may say, I shouldn't be this tired. There might
32
00:03:09.199 --> 00:03:13.599
be pain, and then you may think or say to yourself,
33
00:03:13.680 --> 00:03:17.639
why is the body doing this again? There might be
34
00:03:18.479 --> 00:03:22.759
brain fog and then you used to able to do things,
35
00:03:23.919 --> 00:03:27.280
and then you say, what's happening with me? There might
36
00:03:27.319 --> 00:03:31.400
be uncertainty, and then the mind travels forward. What if
37
00:03:31.439 --> 00:03:37.240
this gets worse and you get into these there's different
38
00:03:37.919 --> 00:03:43.479
stories in your mind. These thoughts are completely understandable, They
39
00:03:43.520 --> 00:03:49.280
are completely normal. Mindfulness isn't asking you to pretend that
40
00:03:49.479 --> 00:03:54.520
they are not there. You just accept it. It's there,
41
00:03:54.879 --> 00:03:58.919
You fully understand that, you fully feel that, and it's
42
00:03:58.960 --> 00:04:03.479
okay to feel that, and it certainly it isn't suggesting
43
00:04:05.080 --> 00:04:10.800
that MS symptoms can simply be meditated away instead of
44
00:04:10.840 --> 00:04:16.519
mindfulness gives you another possibility meet what is here without
45
00:04:16.600 --> 00:04:21.959
immediately fighting myself for having it, and that is very,
46
00:04:22.079 --> 00:04:30.079
very different. So let's maybe find the a bit of
47
00:04:30.079 --> 00:04:36.000
a space for a short practice meeting the body where
48
00:04:36.040 --> 00:04:40.600
it is, as it is in your own time and
49
00:04:40.680 --> 00:04:45.360
always if it feels comfortable, find a position where you
50
00:04:45.399 --> 00:04:51.680
are feeling the most relaxed, where your body can be supported,
51
00:04:52.680 --> 00:04:58.920
whether it's lying down on the floor or sitting. You
52
00:04:58.920 --> 00:05:01.519
don't need to close your e if you don't like it,
53
00:05:02.240 --> 00:05:06.839
well you can do if you wish, and there's nothing
54
00:05:07.279 --> 00:05:13.480
you need to achieve. Begin simply by noticing that you
55
00:05:13.560 --> 00:05:19.720
are here in this moment. Notice the support underneath your body,
56
00:05:20.560 --> 00:05:23.519
whether it's the seat, whether it's the floor, whether it's
57
00:05:23.519 --> 00:05:31.680
your bed, chair, the floor beneath your feet. And notice
58
00:05:32.040 --> 00:05:39.439
one breath, not a special breath, not necessarily a deep breath,
59
00:05:40.839 --> 00:05:56.759
just one breath your body is steady taking, perhaps silently
60
00:05:57.480 --> 00:06:03.639
say this is my body today, not yesterday's body, not
61
00:06:03.759 --> 00:06:10.560
the body I think I should have this body as
62
00:06:10.600 --> 00:06:31.480
it is now today. Now, gently notice what is most
63
00:06:31.560 --> 00:06:43.560
obvious in your body. Perhaps heaviness, tangling, burning, warm tightness,
64
00:06:45.000 --> 00:06:52.879
maybe pain, maybe restlessness, maybe all of these symptoms at
65
00:06:52.879 --> 00:07:00.319
the same time. Well, maybe you can notice something more
66
00:07:00.360 --> 00:07:08.480
pleasant or neutral. There is no need to search for symptoms.
67
00:07:10.000 --> 00:07:15.600
Just notice what is already asking for your attention right here,
68
00:07:15.920 --> 00:07:28.160
right now. And instead of the immediately asking how do
69
00:07:28.279 --> 00:07:33.920
I get rid of this? Try asking what does this
70
00:07:34.439 --> 00:07:42.399
feel like? Right now? It's more curiosity rather than judgment.
71
00:07:48.160 --> 00:07:55.439
Where exactly do you feel it? Does it have an edge?
72
00:07:55.959 --> 00:08:05.680
Does it move? Is it constant or intermittent to change
73
00:08:05.759 --> 00:08:17.199
moment to moment in intensity? You're not investigating your body
74
00:08:17.240 --> 00:08:21.839
for danger. You're simply listening to what your body has
75
00:08:21.920 --> 00:08:34.440
to say. Now imagine creating little space around whatever sensation
76
00:08:34.679 --> 00:08:42.120
is present. You don't need to like it, you don't
77
00:08:42.159 --> 00:08:48.080
need to approve of it. Simply allow to be here
78
00:08:48.360 --> 00:08:55.279
for this moment, perhaps quietly saying this is here and
79
00:08:55.480 --> 00:09:05.399
right now? Can I be kind to myself within this?
80
00:09:09.480 --> 00:09:11.919
Can I be kind to myself while this is here?
81
00:09:17.159 --> 00:09:21.279
Notice how different that question feels from how do I
82
00:09:21.440 --> 00:09:29.879
make it this disappear? If the sensation becomes uncomfortable or
83
00:09:30.120 --> 00:09:37.759
maybe overwhelming, move your attention away from it. Feel your feet,
84
00:09:39.399 --> 00:09:44.960
listen to the sound in the room, open your eyes.
85
00:09:49.320 --> 00:09:54.200
Mindfulness is not about enduring discomfort. You are allowed to
86
00:09:54.360 --> 00:10:01.919
choose where your attention goes. You're more than a symptom.
87
00:10:05.600 --> 00:10:09.080
Now broaden your awareness. Notice that the sensation is only
88
00:10:09.200 --> 00:10:15.240
one part of everything happening right now. There may be
89
00:10:15.320 --> 00:10:20.679
fatigue and also breathing. There may be tingling, and also
90
00:10:20.879 --> 00:10:24.919
feeling of your hands resting. There may be pain and
91
00:10:25.000 --> 00:10:31.840
also sound somewhere nearby. There may be uncertainty, and still
92
00:10:31.919 --> 00:10:37.399
this moment, all at the same time. This symptom is real,
93
00:10:38.639 --> 00:10:43.240
but it doesn't have to occupy the whole landscape. Imagine
94
00:10:43.240 --> 00:10:49.039
looking at the sky. A cloud can be large, dark,
95
00:10:50.080 --> 00:10:54.200
impossible not to notice, but the cloud is not the
96
00:10:54.360 --> 00:11:01.200
entire sky. It's just a little detail. In the same way,
97
00:11:01.320 --> 00:11:17.519
you're experiencing a symptom, and you're not the symptom. Listening
98
00:11:17.559 --> 00:11:22.600
instead of baffling. Now ask your body one final question,
99
00:11:25.080 --> 00:11:31.360
what do you need from me to day? Don't force
100
00:11:31.399 --> 00:11:41.279
an answer. Perhaps the answer is rest moment, the quality
101
00:11:41.279 --> 00:11:57.759
of food, quiet connection, fresh air, medical advice, a slower day. Well,
102
00:11:57.759 --> 00:12:02.600
perhaps there is no answer at all, and that's fine too.
103
00:12:11.399 --> 00:12:17.080
Then gently say to yourself, I don't have to experience
104
00:12:17.120 --> 00:12:22.960
today the way I experience yesterday. I can listen again.
105
00:12:24.919 --> 00:12:37.720
I can begin from here. Take one comfortable breath, notice
106
00:12:37.759 --> 00:12:50.320
the room around you, and when you are ready, continue
107
00:12:50.320 --> 00:12:56.159
where you are, day or night depends where you are
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and when you are doing this. Living with MS can
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sometimes mean becoming extraordinarily attentive to your body. But there
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is a difference between monitoring the body with fear and
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listening to the body with curiosity. Perhaps this is something
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we can all practice. Not what's wrong with me today?
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But what's here today? Not why can't I do what
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I did yesterday? But what is possible today? And not
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everyone thinks I'm fine, But perhaps my experience is real
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even when it isn't visible. Your body may be sometimes unpredictable.
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Mindfulness doesn't promise to make it predictable. What it can
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help us cultivate is something different, a steadier relationship with
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ourselves inside that uncertainty, and sometimes that's where strength begins.
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Thank you for spending a few minutes with me, I
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really wanted to reflect on this last media post that
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I just published, and it got a lot of attention
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from thousands of people I've never seen before. So thank
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you to everyone who shared, reshared, who liked, who saved
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this simple infographic with a human being and multiple symptoms
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of a mess. Be gentle with your body, stay curious
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about your experiences, and remind what happens beneath the surface
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matters too. Your body may be unpredictable, your relationship with
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yourself can still become a place of steadiness. So let's
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begin having this conversation today.
