ABOUT THIS EPISODE
#eatingdisorders #eatingdisorderawareness #mentalhealth
Most people only access eating disorder support at crisis point — in this episode, we explore how community can change that.
Early intervention and accessible eating disorder support can make a significant difference to long-term recovery outcomes.
How can community help with eating disorders and what does meaningful support really look like in practice?
In this episode of Wellbeing Talk, I’m joined by Vanessa Longley, CEO of Beat, the UK’s eating disorder charity - for a conversation about eating disorder prevention, early intervention, recovery, and the role community plays during Eating Disorder Awareness Week 2026 (EDAW 2026).
Eating disorders are serious mental health conditions and often deeply isolating experiences — yet recovery does not happen alone.
Together, we explore common misconceptions about eating disorders, why early support matters, the vital role of families and carers alongside how workplaces, online communities and healthcare systems can better respond to those affected.
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⏱️ Chapters
0:00 Intro - Can Community Help Eating Disorders? | Vanessa Longley
01:44 Why Vanessa Longley Joined Beat & Common Misunderstandings About Eating Disorders
04:21 The Biggest Challenges in Preventing Eating Disorders Today
07:59 Emotional Moments That Show Why Eating Disorder Support Matters
11:58 New Research in Eating Disorders That Gives Hope
14:35 What Beat’s Data Reveals About Unmet Eating Disorder Support in the UK
17:43 What People Really Say When They First Reach Out for Help
20:13 Supporting Parents & Carers in Eating Disorder Recovery
23:49 Beat’s 2025–2030 Strategy Explained — Changing the Story on Eating Disorders
26:30 Calories on Menus: What the Evidence Says About Eating Disorders
28:25 Why Early Help Matters & What Stops People Getting Support Sooner
31:00 Social Media, Online Communities & Eating Disorder Recovery
37:28 New NHS Eating Disorder Guidance for Children & Young People — What’s Changed?
43:30 How the NHS and Charities Like Beat Can Work Better Together
47:30 Inequality in Eating Disorder Care — Geography, Identity & Stigma
52:08 The Role of Employers in Supporting Eating Disorders at Work
54:35 Eating Disorder Awareness Week 2026 — Why Community Matters
57:05 How to Support Someone with an Eating Disorder (Practical Advice)
58:25 The Future of Eating Disorder Support by 2030
59:30 A Message for Anyone Struggling or Supporting a Loved One
01:01:07 Outro
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If you or someone you know is affected by an eating disorder, confidential support is available via
Beat: https://www.beateatingdisorders.org.uk
Beat Eating Disorders Helpline: 0808 801 0677 (UK)
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🔔 If you’re interested in how to have more compassionate and constructive conversations about mental health - both in and outside of the workplace, don’t forget to subscribe to the @letsgowellbeing YouTube channel.
IN THIS EPISODE
SHOW NOTES 🔗
TRANSCRIPT 🔗
Kind: captions
Language: en
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Eating disorders are often described as
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some of the most challenging mental
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health conditions. They affect how
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people see themselves, how they relate
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to others, and whether they feel able to
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ask for help at all. Far from an
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anecdote, the most recent data shows
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that hospital admissions for eating
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disorders have doubled in the last
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decade, with the vast majority happening
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as an emergency. We know that recovery
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doesn't happen in isolation, and family,
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friends, workplaces, and communities all
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have their role to play. Yet, many
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people still tell us they feel alone or
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unsure of where to turn. So, how does
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community actually help when somebody is
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struggling with an eating disorder? And
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what changes when help and support is
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accessed early?
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>> We've known for decades that if you have
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food insecurity under the age of five,
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that will lead to a a significantly
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increased prevalence of eating disorders
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as an adolescent. It's about helping
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people to take a really positive next
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step.
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>> Yes. [music]
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>> And if they can take one positive
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action, then the likelihood of them
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getting better is massively increased.
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uh at the moment uh eating disorders are
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around about 9% [music] of all mental
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health conditions and we get less than
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1% of the funding for research. [music]
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We need to bring that patient voice and
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uh people's voice so that those
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providing the services [music] really
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understand the impact of the decisions
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they're making.
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>> To explore these questions, I'm joined
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by Vanessa Longley, CEO of Beat, the
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UK's eating disorder charity. Since
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joining in 2025, she's led work that
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supported tens of thousands of people
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while shaping a longerterm strategy
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focused on prevention, early
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intervention, and ensuring that nobody
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faces an eating disorder alone. Vanessa,
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good to see you.
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>> Really good to see you, mate.
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>> Thank you for joining the show. As per
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usual, I'd like to start with um
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learning a little more about the person
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in front of me. In your case, um you've
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joined Beats since June 2025 after a
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long career of leading organizations in
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the third sector.
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On a personal level, what drew you to
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this work with Beat and what do people
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misunderstand about eating disorders
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before they encounter them up close?
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>> I think you're so right, Matt. It's that
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personal experience that makes you
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really understand uh the conditions that
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that that people are facing. So um my
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daughter was uh was born with an
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invisible disability uh and uh had to go
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on quite a a journey to manage that and
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um it's not a surprise that on that
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journey she reached that age where she
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just didn't want to be different and
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that's it's really hard. Um, and she
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struggled. She struggled with her mental
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health. Um, and we were very lucky to
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get the help that we needed. But you
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know the I I do remember that occasion
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you or so many of them. But the occasion
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I I suppose that that I remember most is
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her I'm not very tall. I'm only about
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5'2. And uh so my daughter was the same
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height as me by then and having this
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lanky adolescent sitting on my lap
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because she was crying. She was too
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tired to chew. Um
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and spooning custard into her mouth
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because I'm her mom and I wanted her to
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be well so desperately.
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>> Um and yes, we got the help we needed.
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Uh I tried to do the therapy for her. It
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turns out you can't do the therapy for
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your kids. Uh so we did a pact. Uh and
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the pact was that she would stick with
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therapy, which is hard. Um but she would
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stick with therapy and I would use my
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day job to go and try and change the
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world to make it a bit better for her
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and the friends who were experiencing
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all sorts of mental health challenges.
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And that's what drew me into young
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people's mental health. So, and coming
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to be I think it does give you a unique
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perspective uh as a parent because it's
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just so hard because you're dealing with
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something where you're waking up every
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morning and knowing there are meals
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ahead of you that day. Um and uh so
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yeah, I try and bring some of that. It's
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one experience, but but one of those
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experiences I think helps give me some
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insight into into what we need to do
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here.
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>> Wow. That's um yeah really powerful
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insight. Um so you you've mentioned as
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well that essentially eating disorders
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are preventable.
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>> Absolutely.
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>> And that with the right help and support
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recovery is possible. From where you're
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sitting right now, what do you see as
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some of the biggest challenges on the
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road to a world without eating
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disorders?
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>> I think you know and absolutely that's
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possible. So let's [clears throat] start
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off with the optimism. Sure. um
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challenges, barriers. I think the really
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simple thing is knowledge.
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Uh we have a tiny amount of research
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going on out there considering the
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seriousness that eating disorders
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present. So at the moment uh eating
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disorders are around about 9% of all
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mental health conditions and we get less
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than 1% of the funding for research. But
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what's even more concerning is that the
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research that's being done, I mean some
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of it is brilliant. We do have great
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research going on out there. Some of the
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genomic stuff is amazing and that might
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well lead to us understanding the
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genetics behind eating disorders and
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could trans transform treatments. But
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even other research that's out there is
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it should be leading to changes in
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policy and practice and informing that.
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Um, it drives me up the wall sometimes,
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which is that, you know, we we've known
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for years, we've known for decades that
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if you have food insecurity under the
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age of five,
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>> that will lead to a significantly
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increased prevalence of eating disorders
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as an adolescent. We've just had the
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biggest cost of living crisis in the UK
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for many, many decades. And I'm saying
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to politicians and saying to anyone who
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will listen that this gives us an
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opportunity. We can plan for a problem
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that's going to occur now in what five,
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seven, 10 years time, but we just don't
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really have the systems to turn those
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those insights that's researched in
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insights into practice on the ground.
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And I think that's a massive challenge
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for us as a sector and as an NHS and as
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a government and all the way down to the
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family level because there are there is
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real evidence base that parents and
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carers and people with an eating
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disorder themselves need to know in
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order to understand what's being
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offered. I had a I had a dad on the
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phone, incredibly angry dad um where he
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had been offered by the eating disorder
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specialists um family based therapy and
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he was incredibly angry because he just
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said, you know, that you know, the
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specialist is saying that I've done
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something wrong. It's my fault that my
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daughter has an eating disorder. Um, and
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I was able to say to him, actually,
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family based therapy is the best
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evidence-based treatment for your child
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at their age with their condition, and
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they could do therapy on their own.
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>> Mh.
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>> But actually, it's because you're a good
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dad that they want you in their own. And
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they went away feeling stronger and more
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confident about that that treatment
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because they now had the evidence behind
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it. So I think there's something about
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knowledge should not be stuck in a
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shelf. We need to learn as much as we
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can about eating disorders, but then we
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need to make sure that's put into
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practice on a daily basis uh for by GPS
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at uh political level but also at a
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family level.
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>> So um thinking about how we address the
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disparities in funding.
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>> Yeah.
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thinking about the importance of early
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intervention and also reframing um I
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guess people's perspectives around the
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role of family, friends and the wider
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community um when it comes to supporting
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people like in this case the the family
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based therapy. The guy was quite angry.
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Um and then you mentioned about putting
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research into practice.
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>> So you've been in post for nearly a year
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now.
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>> It's gone quick.
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>> Yeah. Yeah. I I was going to say just
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along along that journey, what would you
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say are some of the moments that have
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kind of really stuck with you on a you
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know the moments that you would say
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really reaffirm why this work is
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important?
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>> Yeah, I think it's uh it's very easy
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when you're doing this work every day,
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it's it's easy to forget the day-to-day
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reality out there is very different.
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Levels of knowledge are very different.
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Um so the one story that one of the
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stories I'll share is um uh we got
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contacted by a mom whose daughter had
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really struggled with an eating disorder
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>> and was in recovery. I mean this is huge
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amount of work that they' done uh as a
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family um getting the right treatment
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and this girl it was such a massive
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success. mom had managed to get this
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girl back to school and she'd gone into
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school and they'd had a biology lesson
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and the biology teacher h was teaching
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about uh how bodies work and respond to
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food
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>> and had pulled two girls out in front of
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the class to demonstrate that there are
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naturally different body types
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and they' pulled out this young girl
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with an eating disorder to discuss her
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body in front of the whole class
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and if that wasn't bad enough and
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obviously that it caused all sorts of
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trauma um which had to be unpicked. But
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this girl having been through treatment,
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she was brave enough to go into back
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into that school with her mom to see the
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head to say, "Look, this has happened.
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My daughter would would really like to
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do a talk at school and to the teachers
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to try and explain to them how important
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it is not to do this stuff and to talk a
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little bit more about eating disorders."
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And the response of the head
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We don't want to be talking about eating
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disorders otherwise everyone will get
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it.
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>> As if it's somehow a catching condition.
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>> Yeah.
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>> And it's something like that that really
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brings home that that everyday
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experience of people out there. It it it
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shows the stigma is still really strong
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and misunderstanding of what eating
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disorders are, what they look like. Um
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this is stuff we need to be talking
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about uh in the same way as it's much
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better nowadays. It's not perfect, but
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we talk about mental health far more
00:10:27.680 --> 00:10:28.550
than we used to.
00:10:28.560 --> 00:10:28.870
>> Sure.
00:10:28.880 --> 00:10:30.389
>> But eating disorders seem to be this
00:10:30.399 --> 00:10:31.670
subset that there's still a lot of
00:10:31.680 --> 00:10:34.069
stigma around. So So yeah, that that
00:10:34.079 --> 00:10:38.470
sits with me. And um yeah, I I need to
00:10:38.480 --> 00:10:41.670
make sure that we as an organization are
00:10:41.680 --> 00:10:43.269
changing
00:10:43.279 --> 00:10:45.269
that that situation for for girls like
00:10:45.279 --> 00:10:47.750
that for for kids like that who are
00:10:47.760 --> 00:10:50.069
doing so much work on their own. We as a
00:10:50.079 --> 00:10:51.590
society need a group around them and
00:10:51.600 --> 00:10:52.949
support them.
00:10:52.959 --> 00:10:54.949
>> No, that's um yeah, it's really really
00:10:54.959 --> 00:10:57.590
powerful story again. Um just coming
00:10:57.600 --> 00:10:59.430
back to the research piece as well. Um
00:10:59.440 --> 00:11:01.350
because you mentioned just in terms of
00:11:01.360 --> 00:11:03.829
the the challenges in terms of you know
00:11:03.839 --> 00:11:05.269
realizing a world without eating
00:11:05.279 --> 00:11:07.190
disorders um they're varied.
00:11:07.200 --> 00:11:07.509
>> Yeah.
00:11:07.519 --> 00:11:09.509
>> Quite far reaching um but you mentioned
00:11:09.519 --> 00:11:11.030
about different bits of research and how
00:11:11.040 --> 00:11:12.310
we turn that into practice. Are there
00:11:12.320 --> 00:11:14.069
any bits of research that kind of kind
00:11:14.079 --> 00:11:15.430
of come to mind that get you really
00:11:15.440 --> 00:11:17.590
excited in terms of making progress?
00:11:17.600 --> 00:11:20.069
>> I mean there's a lot out there. Um, some
00:11:20.079 --> 00:11:24.870
of it I um I uh so some of it is the as
00:11:24.880 --> 00:11:28.630
I mentioned the genomics stuff and I'm
00:11:28.640 --> 00:11:31.509
incredibly proud of the UK for having
00:11:31.519 --> 00:11:33.829
some of this cutting edge research in
00:11:33.839 --> 00:11:35.110
this area
00:11:35.120 --> 00:11:37.670
>> and it's giving us an insight into what
00:11:37.680 --> 00:11:39.990
eating disorders are that they are they
00:11:40.000 --> 00:11:41.509
are mental health serious mental health
00:11:41.519 --> 00:11:44.630
conditions they also do have a genetic
00:11:44.640 --> 00:11:47.829
element and we know that there's a the
00:11:47.839 --> 00:11:49.910
biological ele element ments around that
00:11:49.920 --> 00:11:52.949
if people are restricting um very
00:11:52.959 --> 00:11:55.350
seriously then changes happen in the
00:11:55.360 --> 00:11:58.710
brain which make it even harder to
00:11:58.720 --> 00:12:00.389
engage with the treatments that need to
00:12:00.399 --> 00:12:02.630
happen in order to get well. And so
00:12:02.640 --> 00:12:05.590
there's some really fascinating research
00:12:05.600 --> 00:12:07.829
happening, you know, whether that's um
00:12:07.839 --> 00:12:10.550
looking at ketamine for the treatment of
00:12:10.560 --> 00:12:12.470
uh anorexia
00:12:12.480 --> 00:12:15.030
>> um or whether that's uh all the way
00:12:15.040 --> 00:12:18.230
through to the real effectiveness of
00:12:18.240 --> 00:12:21.110
psycho education around teaching uh
00:12:21.120 --> 00:12:23.590
young people to recognize and name
00:12:23.600 --> 00:12:25.829
emotions. And we forget how hard that
00:12:25.839 --> 00:12:27.110
is. That's a skill that has to be
00:12:27.120 --> 00:12:29.750
learned. No one's born with the ability
00:12:29.760 --> 00:12:32.629
to to have a name for an emotion. And
00:12:32.639 --> 00:12:35.670
actually just the simple act of teaching
00:12:35.680 --> 00:12:38.230
a child how to recognize those emotions
00:12:38.240 --> 00:12:41.269
can have a huge positive impact all the
00:12:41.279 --> 00:12:43.590
way through to um I was speaking to a
00:12:43.600 --> 00:12:45.910
researcher who's been looking at h the
00:12:45.920 --> 00:12:47.829
link between hypermobility and eating
00:12:47.839 --> 00:12:51.190
disorders really interesting and then
00:12:51.200 --> 00:12:54.230
all the way through to uh the work the
00:12:54.240 --> 00:12:55.670
report that we've been doing around uh
00:12:55.680 --> 00:12:57.269
we call it the no place like home
00:12:57.279 --> 00:13:00.310
campaign we pulled together over a
00:13:00.320 --> 00:13:03.110
thousand pieces of research into
00:13:03.120 --> 00:13:05.350
treatments around intensive daycare and
00:13:05.360 --> 00:13:08.710
balancing what that can offer compared
00:13:08.720 --> 00:13:10.310
with impatient care.
00:13:10.320 --> 00:13:10.949
>> Sure.
00:13:10.959 --> 00:13:15.110
>> And uh really interesting to see that
00:13:15.120 --> 00:13:18.550
evidence base that uh having people stay
00:13:18.560 --> 00:13:20.389
at home but receive intensive day
00:13:20.399 --> 00:13:21.590
support
00:13:21.600 --> 00:13:23.350
>> can be better for the patient. They
00:13:23.360 --> 00:13:26.069
prefer it. It can have better outcomes
00:13:26.079 --> 00:13:27.670
for the patient and it could be
00:13:27.680 --> 00:13:29.910
substantially cheaper. So there's
00:13:29.920 --> 00:13:31.110
there's lots of things there. We're
00:13:31.120 --> 00:13:32.389
always going to need impatient care,
00:13:32.399 --> 00:13:33.990
don't we? You know, that's that's
00:13:34.000 --> 00:13:35.430
something that's going to be vital, but
00:13:35.440 --> 00:13:36.870
there are things we can learn from this
00:13:36.880 --> 00:13:38.710
research which could change the way we
00:13:38.720 --> 00:13:39.509
deliver care.
00:13:39.519 --> 00:13:41.750
>> So, genetics, naming emotions, and and
00:13:41.760 --> 00:13:44.310
also just the research into how where a
00:13:44.320 --> 00:13:45.509
person receives care.
00:13:45.519 --> 00:13:45.910
>> Yeah.
00:13:45.920 --> 00:13:47.509
>> And how that informs outcomes.
00:13:47.519 --> 00:13:49.430
>> Yeah, absolutely. And a whole range of
00:13:49.440 --> 00:13:51.190
it. And it's happening internationally
00:13:51.200 --> 00:13:53.110
as well. This is the great stuff that
00:13:53.120 --> 00:13:56.230
that um I love to see where we're trying
00:13:56.240 --> 00:13:59.030
to work with colleagues overseas because
00:13:59.040 --> 00:14:01.030
these conditions don't have borders.
00:14:01.040 --> 00:14:01.590
>> No.
00:14:01.600 --> 00:14:04.790
>> And what what other organi organizations
00:14:04.800 --> 00:14:07.269
and countries allow us to do is to have
00:14:07.279 --> 00:14:10.310
insights that come from different
00:14:10.320 --> 00:14:12.710
cultural start points. So it allows us
00:14:12.720 --> 00:14:15.189
to see some of the impacts of the
00:14:15.199 --> 00:14:17.590
marginalized and minoritized groups.
00:14:17.600 --> 00:14:17.910
Yes.
00:14:17.920 --> 00:14:20.310
>> Um because that's so important. It's so
00:14:20.320 --> 00:14:21.509
easy to miss that.
00:14:21.519 --> 00:14:23.189
>> Yeah, definitely. And I'd definitely
00:14:23.199 --> 00:14:24.949
like to touch on um I guess the
00:14:24.959 --> 00:14:27.350
importance of community, but also um I
00:14:27.360 --> 00:14:29.910
guess how people access support and how
00:14:29.920 --> 00:14:31.910
that's affected by let's say geography
00:14:31.920 --> 00:14:33.430
and and and background. We're going to
00:14:33.440 --> 00:14:34.710
come on to that a little bit later on,
00:14:34.720 --> 00:14:36.310
but I guess all of this when we talk
00:14:36.320 --> 00:14:37.990
about research into practice, it makes
00:14:38.000 --> 00:14:39.750
me think about the reality on the ground
00:14:39.760 --> 00:14:41.590
and just some of the work that you've
00:14:41.600 --> 00:14:43.670
been doing. So, for example, as I
00:14:43.680 --> 00:14:45.350
understand it, over the last 18 months,
00:14:45.360 --> 00:14:47.590
you've supported people over 36,000
00:14:47.600 --> 00:14:50.389
times by phone, email, um, web chat, and
00:14:50.399 --> 00:14:52.550
also social media. Uh, and that's been
00:14:52.560 --> 00:14:54.790
made possible by close to nearly 6 and a
00:14:54.800 --> 00:14:57.509
half thousand volunteer hours, which I
00:14:57.519 --> 00:14:58.629
have to say is really, really
00:14:58.639 --> 00:14:59.829
impressive. I don't know what the math
00:14:59.839 --> 00:15:02.550
works out there over 18 months, but
00:15:02.560 --> 00:15:03.430
>> it sounds like a lot.
00:15:03.440 --> 00:15:05.110
>> It is a lot. It's a lot. And, you know,
00:15:05.120 --> 00:15:07.189
any, if there are any volunteers uh, out
00:15:07.199 --> 00:15:08.949
there listening to this, just we're
00:15:08.959 --> 00:15:11.509
eternally grateful. They save lives
00:15:11.519 --> 00:15:12.150
every day.
00:15:12.160 --> 00:15:13.350
>> Absolutely.
00:15:13.360 --> 00:15:15.670
>> And and just thinking about those
00:15:15.680 --> 00:15:17.750
numbers, what when we think about those
00:15:17.760 --> 00:15:20.069
numbers, what does that tell you about
00:15:20.079 --> 00:15:23.189
the unmet need in the UK right now?
00:15:23.199 --> 00:15:25.750
>> Uh the difficult truth.
00:15:25.760 --> 00:15:26.949
>> Mhm.
00:15:26.959 --> 00:15:29.509
>> It's not enough. All those thousands
00:15:29.519 --> 00:15:31.030
we're reaching, it's nowhere near
00:15:31.040 --> 00:15:35.509
enough. Um we know there's at least 1.25
00:15:35.519 --> 00:15:37.590
million people in the UK with an eating
00:15:37.600 --> 00:15:39.189
disorder.
00:15:39.199 --> 00:15:42.069
Um, we are reaching thousands at the
00:15:42.079 --> 00:15:45.750
moment, but unfortunately the reality is
00:15:45.760 --> 00:15:48.069
that most people who develop a needing
00:15:48.079 --> 00:15:49.749
disorder will need some help along the
00:15:49.759 --> 00:15:53.269
way. And our helpline acts as a it acts
00:15:53.279 --> 00:15:54.389
as a front door.
00:15:54.399 --> 00:15:54.949
>> Sure.
00:15:54.959 --> 00:15:59.350
>> Um, we may not have every single uh
00:15:59.360 --> 00:16:01.269
service that that someone might need.
00:16:01.279 --> 00:16:02.629
You know, many people need inpatient
00:16:02.639 --> 00:16:04.710
care, which is not something we do, but
00:16:04.720 --> 00:16:07.350
we are a start point. And I think that's
00:16:07.360 --> 00:16:10.790
where um I think we need as beat need to
00:16:10.800 --> 00:16:13.350
develop but also we need to make that
00:16:13.360 --> 00:16:15.269
promise to the eating disorder community
00:16:15.279 --> 00:16:18.550
which is whatever care you need we will
00:16:18.560 --> 00:16:20.389
we will take you to that next step and
00:16:20.399 --> 00:16:21.910
it's something we do on the on the
00:16:21.920 --> 00:16:25.910
phones and and um and by email is that
00:16:25.920 --> 00:16:27.910
um and you'll know it from your uh from
00:16:27.920 --> 00:16:29.269
your times with the Samaritans that we
00:16:29.279 --> 00:16:30.550
talk about motivational interviewing
00:16:30.560 --> 00:16:33.030
which it always sounds like a like a
00:16:33.040 --> 00:16:35.030
kind of a
00:16:35.040 --> 00:16:37.110
a very corporate thing but actually it's
00:16:37.120 --> 00:16:38.949
about helping people to take a really
00:16:38.959 --> 00:16:40.069
positive next step.
00:16:40.079 --> 00:16:40.790
>> Yes.
00:16:40.800 --> 00:16:43.509
>> And if they can take one positive
00:16:43.519 --> 00:16:45.670
action, then the likelihood of them
00:16:45.680 --> 00:16:47.910
getting better is massively increased
00:16:47.920 --> 00:16:50.230
because that one positive move leads
00:16:50.240 --> 00:16:52.230
onto another positive move. So, our
00:16:52.240 --> 00:16:54.550
helpline staff and our volunteers are
00:16:54.560 --> 00:16:56.550
trained in these techniques that if you
00:16:56.560 --> 00:16:59.110
come to us, wherever you are on that
00:16:59.120 --> 00:17:00.870
journey, whether you are struggling
00:17:00.880 --> 00:17:02.230
yourself with an eating disorder or
00:17:02.240 --> 00:17:04.069
you've got a loved one who's struggling,
00:17:04.079 --> 00:17:06.069
we'll try and help you take that one
00:17:06.079 --> 00:17:07.029
step
00:17:07.039 --> 00:17:09.029
>> and then get you to the right place and
00:17:09.039 --> 00:17:11.429
then you can always come back. Um, we
00:17:11.439 --> 00:17:13.750
will we're very happy. Call us back a
00:17:13.760 --> 00:17:15.829
number of times. But the important thing
00:17:15.839 --> 00:17:18.630
is you you you can't necessarily tackle
00:17:18.640 --> 00:17:21.669
the whole picture in one go. This is big
00:17:21.679 --> 00:17:23.750
stuff and some people with an eating
00:17:23.760 --> 00:17:25.510
disorder, they are going to need help
00:17:25.520 --> 00:17:29.830
for months and years and that's okay.
00:17:29.840 --> 00:17:32.070
This it's about getting started. So
00:17:32.080 --> 00:17:33.190
that's what that's is what we're doing a
00:17:33.200 --> 00:17:35.990
lot of and I think yeah that's I need to
00:17:36.000 --> 00:17:37.750
make that commitment to the eating
00:17:37.760 --> 00:17:39.430
disorder community that we commit to
00:17:39.440 --> 00:17:42.789
doing more. M and of course behind every
00:17:42.799 --> 00:17:45.430
statistic there is um a human being an
00:17:45.440 --> 00:17:47.590
individual and often when they reach out
00:17:47.600 --> 00:17:49.029
to you you know coming through the front
00:17:49.039 --> 00:17:51.750
door be it the the helpline um they're
00:17:51.760 --> 00:17:53.830
in quite a vulnerable position.
00:17:53.840 --> 00:17:54.710
>> Yeah.
00:17:54.720 --> 00:17:56.390
>> What are in terms of trends what are
00:17:56.400 --> 00:17:57.830
some of the things that you hear from
00:17:57.840 --> 00:17:59.830
people when they reach out to you for
00:17:59.840 --> 00:18:00.950
the first time?
00:18:00.960 --> 00:18:02.230
>> Yeah it's I mean it's a really
00:18:02.240 --> 00:18:04.710
interesting range. We are seeing as you
00:18:04.720 --> 00:18:06.150
mentioned about more people turning up
00:18:06.160 --> 00:18:08.710
at A&E in crisis and we've certainly
00:18:08.720 --> 00:18:11.029
seen a significant increase the number
00:18:11.039 --> 00:18:12.549
of people with an eating disorder
00:18:12.559 --> 00:18:14.789
reaching out to us for the first time
00:18:14.799 --> 00:18:17.990
already in crisis which is extremely
00:18:18.000 --> 00:18:20.070
concerning. That's you know that's when
00:18:20.080 --> 00:18:21.590
we have to do some significant
00:18:21.600 --> 00:18:25.110
safeguarding um work and make sure that
00:18:25.120 --> 00:18:28.310
they are okay. But that goes all the way
00:18:28.320 --> 00:18:31.990
through. And what really still surprises
00:18:32.000 --> 00:18:34.470
me is the number of people who phone us
00:18:34.480 --> 00:18:36.710
not sure if they've got an eating
00:18:36.720 --> 00:18:39.669
disorder. And a lot of that is about the
00:18:39.679 --> 00:18:43.430
fact that we have this this stereotypes
00:18:43.440 --> 00:18:45.590
around what eating disorder ought to
00:18:45.600 --> 00:18:46.310
look like
00:18:46.320 --> 00:18:47.270
>> or who can get one
00:18:47.280 --> 00:18:50.070
>> or and who can get one. Absolutely. And
00:18:50.080 --> 00:18:51.909
uh and so we have a lot of people say,
00:18:51.919 --> 00:18:53.510
"Oh, I haven't got an eating disorder,
00:18:53.520 --> 00:18:54.870
but I'm struggling with this and I
00:18:54.880 --> 00:18:56.310
didn't know if you could help." like,
00:18:56.320 --> 00:18:57.909
"Well, actually, it sounds like you do
00:18:57.919 --> 00:18:59.430
have an eating disorder."
00:18:59.440 --> 00:19:02.070
>> Or, uh, parents, carers, friends, family
00:19:02.080 --> 00:19:04.390
going, I've noticed this. Do you think
00:19:04.400 --> 00:19:06.789
it could be an eating disorder? I'm
00:19:06.799 --> 00:19:08.470
like, yeah, yeah, it can be.
00:19:08.480 --> 00:19:10.789
>> And this comes back to the the challenge
00:19:10.799 --> 00:19:12.470
around the knowledge gap that you
00:19:12.480 --> 00:19:13.350
mentioned earlier.
00:19:13.360 --> 00:19:15.830
>> Absolutely. Absolutely. And we have um,
00:19:15.840 --> 00:19:18.310
you know, and I I know again this is uh
00:19:18.320 --> 00:19:20.470
close to your heart, which is we have
00:19:20.480 --> 00:19:23.110
young men out there uh training two,
00:19:23.120 --> 00:19:25.510
three times a day in a gym.
00:19:25.520 --> 00:19:28.150
uh who are injecting themselves with a
00:19:28.160 --> 00:19:31.029
blend of weight loss drugs and steroids
00:19:31.039 --> 00:19:33.270
uh and then and then dehydrating in
00:19:33.280 --> 00:19:36.470
order to look cut. Um and that is
00:19:36.480 --> 00:19:39.029
absolutely where you know they are they
00:19:39.039 --> 00:19:43.270
are absolutely consumed by calories and
00:19:43.280 --> 00:19:45.750
musculature and that is a form of an
00:19:45.760 --> 00:19:47.750
eating disorder and yet their personal
00:19:47.760 --> 00:19:49.350
trainers will be there going you look
00:19:49.360 --> 00:19:50.150
great mate
00:19:50.160 --> 00:19:51.669
>> you're doing really well you just got to
00:19:51.679 --> 00:19:53.990
push yourself harder and that's not that
00:19:54.000 --> 00:19:56.230
is not the fault of personal trainers
00:19:56.240 --> 00:19:59.270
they are not trying to drive people to
00:19:59.280 --> 00:20:01.110
ill health quite the opposite it's just
00:20:01.120 --> 00:20:03.750
there's lack of recognition that what
00:20:03.760 --> 00:20:05.750
they're seeing in some of these young
00:20:05.760 --> 00:20:09.029
men is is really a very very serious
00:20:09.039 --> 00:20:11.430
mental health condition which could make
00:20:11.440 --> 00:20:12.470
them very ill.
00:20:12.480 --> 00:20:15.029
>> Of course, recognizing um an eating
00:20:15.039 --> 00:20:16.789
disorder is one thing. Knowing how to
00:20:16.799 --> 00:20:18.390
let's say open up the conversation about
00:20:18.400 --> 00:20:20.150
something that is really personal.
00:20:20.160 --> 00:20:20.549
>> Yeah,
00:20:20.559 --> 00:20:21.750
>> it's potentially something else
00:20:21.760 --> 00:20:23.510
entirely. Um I wanted to pick up on
00:20:23.520 --> 00:20:24.870
something you mentioned about parents
00:20:24.880 --> 00:20:27.669
and carers because they play, I would
00:20:27.679 --> 00:20:29.430
say, quite a crucial role in a person's
00:20:29.440 --> 00:20:32.149
recovery journey. oftentimes they may
00:20:32.159 --> 00:20:35.750
feel like they're um overlooked
00:20:35.760 --> 00:20:37.270
>> and
00:20:37.280 --> 00:20:38.950
I guess I wonder if you could talk to me
00:20:38.960 --> 00:20:41.830
about how Beats work has evolved over
00:20:41.840 --> 00:20:44.549
the years to kind of address that gap.
00:20:44.559 --> 00:20:48.390
>> Yeah, you're absolutely right. Um it's
00:20:48.400 --> 00:20:50.549
I'm from personal experience. It's
00:20:50.559 --> 00:20:52.549
incredibly lonely
00:20:52.559 --> 00:20:54.870
>> to be a parent
00:20:54.880 --> 00:20:58.549
because you're you're carrying that
00:20:58.559 --> 00:21:00.230
daily
00:21:00.240 --> 00:21:03.350
concern of if you get this wrong, you
00:21:03.360 --> 00:21:05.750
could lose your child.
00:21:05.760 --> 00:21:08.549
And that act of feeding, I can't even
00:21:08.559 --> 00:21:11.669
tell you how fundamental that is. Uh it
00:21:11.679 --> 00:21:13.190
feels
00:21:13.200 --> 00:21:15.510
you you can feel like a failure. There
00:21:15.520 --> 00:21:17.669
are many emotions. Let's just put it
00:21:17.679 --> 00:21:21.590
there. Um and so for beat it's
00:21:21.600 --> 00:21:23.750
absolutely vital that we make sure that
00:21:23.760 --> 00:21:27.029
parents and carers get support alongside
00:21:27.039 --> 00:21:28.630
uh their young person with a with an
00:21:28.640 --> 00:21:30.630
eating disorder. So you know if there's
00:21:30.640 --> 00:21:31.990
parents and carers out there right now
00:21:32.000 --> 00:21:35.669
then uh we we have an online um
00:21:35.679 --> 00:21:38.230
platform. It's absolutely free. Uh you
00:21:38.240 --> 00:21:41.750
sign up. There are um little modules to
00:21:41.760 --> 00:21:43.270
learn all about different eating
00:21:43.280 --> 00:21:46.070
disorders, to learn the latest insight
00:21:46.080 --> 00:21:49.350
and knowledge about how you can support
00:21:49.360 --> 00:21:51.350
your young person. Uh there's
00:21:51.360 --> 00:21:53.669
peer-to-peer support. There's monthly
00:21:53.679 --> 00:21:56.789
clinical um insight groups. It's there.
00:21:56.799 --> 00:21:57.190
>> Got it.
00:21:57.200 --> 00:21:59.110
>> Come come come and access it. But
00:21:59.120 --> 00:22:01.990
fundamentally, there is tons you can do
00:22:02.000 --> 00:22:04.149
to help. And some of those natural
00:22:04.159 --> 00:22:08.070
instincts you have to fight against. Um
00:22:08.080 --> 00:22:11.190
there's a uh a dad another dad that I
00:22:11.200 --> 00:22:13.669
spoke to. Uh I'm laughing because he he
00:22:13.679 --> 00:22:15.990
his again his his daughter's got through
00:22:16.000 --> 00:22:18.310
this and is in recovery. He remembers
00:22:18.320 --> 00:22:19.909
the first time he visited her in the
00:22:19.919 --> 00:22:21.909
impatient unit.
00:22:21.919 --> 00:22:25.750
And um he hadn't learned much at that
00:22:25.760 --> 00:22:28.470
stage. He was just just going on
00:22:28.480 --> 00:22:30.710
instinct and he said he recognized he
00:22:30.720 --> 00:22:33.110
was just terrified. He was desperate. He
00:22:33.120 --> 00:22:35.350
was desperate and the idea of taking his
00:22:35.360 --> 00:22:36.950
daughter to an eating disorder unit and
00:22:36.960 --> 00:22:39.190
leaving her there was just the worst
00:22:39.200 --> 00:22:42.149
thing he'd ever done in his life and uh
00:22:42.159 --> 00:22:43.830
so he went to visit her and he had this
00:22:43.840 --> 00:22:45.990
kind of thing in his head off and I I'm
00:22:46.000 --> 00:22:47.430
sure I'm sure I can get her to eat and
00:22:47.440 --> 00:22:49.750
then she can come home with me and so he
00:22:49.760 --> 00:22:53.669
was trying to sneak her a Mars bar and
00:22:53.679 --> 00:22:56.070
and the consultant took him to one side
00:22:56.080 --> 00:22:57.909
and said right okay we need to have a
00:22:57.919 --> 00:23:00.310
chat because this is not helpful
00:23:00.320 --> 00:23:03.350
>> and uh and he did he he did he did our
00:23:03.360 --> 00:23:05.029
parents course and he and he is laughing
00:23:05.039 --> 00:23:06.710
at himself because he looks back and he
00:23:06.720 --> 00:23:08.950
goes, "Oh my goodness." You know, it was
00:23:08.960 --> 00:23:10.070
probably one of the worst things I could
00:23:10.080 --> 00:23:10.470
have done.
00:23:10.480 --> 00:23:11.750
>> Definitely making it worse. Yeah.
00:23:11.760 --> 00:23:15.430
>> Um but actually they're now at a stage
00:23:15.440 --> 00:23:16.950
where he and his daughter have been able
00:23:16.960 --> 00:23:19.430
to have those conversations. And his
00:23:19.440 --> 00:23:21.750
daughter said, "I knew you just wanted
00:23:21.760 --> 00:23:24.710
me to be well." And that's an amazing
00:23:24.720 --> 00:23:27.270
place to be. Amazing place to get to.
00:23:27.280 --> 00:23:29.110
But yeah, so they refer to it sometimes.
00:23:29.120 --> 00:23:31.110
and she'll say, "She's in recovery, but
00:23:31.120 --> 00:23:33.110
he still fusses because he's her dad."
00:23:33.120 --> 00:23:34.870
And so occasionally may now have the
00:23:34.880 --> 00:23:36.070
short hand, which is, "Yeah, I don't
00:23:36.080 --> 00:23:38.549
need a Mars B." Um, and that's great,
00:23:38.559 --> 00:23:41.029
but that's that's why it's so important
00:23:41.039 --> 00:23:43.350
to have parent support is a very lonely
00:23:43.360 --> 00:23:45.029
place to be. And and there are others
00:23:45.039 --> 00:23:46.630
that have been through it that can help
00:23:46.640 --> 00:23:49.029
you along that way.
00:23:49.039 --> 00:23:51.830
So shifting from support to how we
00:23:51.840 --> 00:23:54.230
deliver change, how you deliver change
00:23:54.240 --> 00:23:58.310
long term. Um your 2025 to 2030 strategy
00:23:58.320 --> 00:24:01.110
is built around three pillars. That's
00:24:01.120 --> 00:24:03.029
answering the call, spreading the word,
00:24:03.039 --> 00:24:05.110
and changing the story.
00:24:05.120 --> 00:24:07.990
>> So if you had to explain that strategy
00:24:08.000 --> 00:24:10.630
to somebody who's never heard of Beat,
00:24:10.640 --> 00:24:13.669
what problem are you trying to solve?
00:24:13.679 --> 00:24:16.310
>> Okay. Um I obviously I could talk about
00:24:16.320 --> 00:24:18.950
this for hours but um you asked me to do
00:24:18.960 --> 00:24:20.870
the the for someone who's who doesn't
00:24:20.880 --> 00:24:23.510
know us. So I think I often use the
00:24:23.520 --> 00:24:25.909
analogy that it's like there's a house
00:24:25.919 --> 00:24:29.029
on fire. Um people out there with an
00:24:29.039 --> 00:24:31.830
eating disorder are in crisis and we at
00:24:31.840 --> 00:24:35.190
beat have to provide support now. They
00:24:35.200 --> 00:24:37.350
need help now. And whether that's
00:24:37.360 --> 00:24:39.909
through our helpline, our web chat, um
00:24:39.919 --> 00:24:41.830
all of the information online, the
00:24:41.840 --> 00:24:43.510
programs of support we provide for them
00:24:43.520 --> 00:24:45.590
and their parents, that's all about
00:24:45.600 --> 00:24:48.470
delivering direct support to people who
00:24:48.480 --> 00:24:51.669
are in need right now. But it's not
00:24:51.679 --> 00:24:53.990
enough just to put a fire out. We also
00:24:54.000 --> 00:24:55.830
need to at the same time start building
00:24:55.840 --> 00:24:57.269
that fire break.
00:24:57.279 --> 00:24:59.029
>> So we're stopping people reaching crisis
00:24:59.039 --> 00:25:01.909
in the future. So, we're also working
00:25:01.919 --> 00:25:03.909
about uh building that community and
00:25:03.919 --> 00:25:05.269
we've already mentioned about that
00:25:05.279 --> 00:25:07.269
community that's able to recognize and
00:25:07.279 --> 00:25:09.590
respond and it's the two things together
00:25:09.600 --> 00:25:11.510
that make the difference and that's all
00:25:11.520 --> 00:25:15.830
of our training of um uh of uh teachers
00:25:15.840 --> 00:25:17.430
uh schools professionals health
00:25:17.440 --> 00:25:19.029
professionals
00:25:19.039 --> 00:25:21.269
um as well as the awareness. If I can
00:25:21.279 --> 00:25:23.350
get a eating disorder story in one of
00:25:23.360 --> 00:25:25.350
the soaps and that's brilliant. It's a
00:25:25.360 --> 00:25:26.870
way of reaching millions of people in
00:25:26.880 --> 00:25:27.350
one go.
00:25:27.360 --> 00:25:28.870
>> Have we not have not had that yet?
00:25:28.880 --> 00:25:31.110
>> Yeah, we have. Yeah, we've had a few um
00:25:31.120 --> 00:25:32.710
Heartbeat for those if you follow
00:25:32.720 --> 00:25:35.830
Heartbeat. Um but um as as well as some
00:25:35.840 --> 00:25:38.710
others. Uh but yeah, that's it's a it's
00:25:38.720 --> 00:25:40.950
a shortcut to giving people the tools
00:25:40.960 --> 00:25:42.950
they need to actually manage that if
00:25:42.960 --> 00:25:44.390
they come across it in their everyday
00:25:44.400 --> 00:25:48.470
lives. And then uh however well we do at
00:25:48.480 --> 00:25:50.789
supporting individuals, we've got to
00:25:50.799 --> 00:25:52.390
recognize that there are some things in
00:25:52.400 --> 00:25:55.029
society that we really need to fix. This
00:25:55.039 --> 00:25:57.110
is the structural stuff that we need to
00:25:57.120 --> 00:25:58.870
fix to make this better. And whether
00:25:58.880 --> 00:26:01.029
that's working with the government
00:26:01.039 --> 00:26:04.470
around calories on menus, which um is
00:26:04.480 --> 00:26:06.230
really unhelpful if you have an eating
00:26:06.240 --> 00:26:07.830
disorder, all the way through to some of
00:26:07.840 --> 00:26:11.750
those industries uh like um social media
00:26:11.760 --> 00:26:16.230
uh um AI um and working with those
00:26:16.240 --> 00:26:18.710
industries to say this is what where the
00:26:18.720 --> 00:26:21.029
problems are and this is how to fix them
00:26:21.039 --> 00:26:23.510
and and we've had some real real success
00:26:23.520 --> 00:26:26.549
in that. M so you mentioned about um
00:26:26.559 --> 00:26:28.390
taking the time to upskill everybody
00:26:28.400 --> 00:26:30.470
that could be involved in a person's
00:26:30.480 --> 00:26:31.990
recovery journey
00:26:32.000 --> 00:26:33.990
>> um for an eating disorder.
00:26:34.000 --> 00:26:37.190
>> That last thing there about calories on
00:26:37.200 --> 00:26:39.590
menus.
00:26:39.600 --> 00:26:42.149
>> What would you suggest as an alternative
00:26:42.159 --> 00:26:44.149
to the calories on menus?
00:26:44.159 --> 00:26:46.390
>> I I um I would like to say follow the
00:26:46.400 --> 00:26:48.710
evidence. Okay. So all of the evidence
00:26:48.720 --> 00:26:50.630
currently shows that if you put calories
00:26:50.640 --> 00:26:54.870
on menus, it has almost no impact on
00:26:54.880 --> 00:26:57.909
food choices by those who live in larger
00:26:57.919 --> 00:27:01.909
bodies. Um it it can affect a choice by
00:27:01.919 --> 00:27:04.549
around about 70 to 100 calories, but
00:27:04.559 --> 00:27:05.430
nothing beyond that
00:27:05.440 --> 00:27:06.149
>> really.
00:27:06.159 --> 00:27:09.430
>> Whereas it has a massive impact on those
00:27:09.440 --> 00:27:11.269
with an eating disorder.
00:27:11.279 --> 00:27:13.110
>> So it's I know that's counterintuitive.
00:27:13.120 --> 00:27:15.110
You'd think, oh, shove calories on menus
00:27:15.120 --> 00:27:17.110
and uh people who are looking to lose
00:27:17.120 --> 00:27:19.909
weight can can calculate. Unfortunately,
00:27:19.919 --> 00:27:23.590
not. That's not how it works. So, uh we
00:27:23.600 --> 00:27:26.070
um we've had success in Scotland. Uh so,
00:27:26.080 --> 00:27:28.789
the Scottish government have um delayed
00:27:28.799 --> 00:27:30.630
putting calories on menus for for that
00:27:30.640 --> 00:27:33.909
reason. Um still working on the UK on
00:27:33.919 --> 00:27:35.909
the the the rest of the UK, but we'll
00:27:35.919 --> 00:27:37.590
get there.
00:27:37.600 --> 00:27:39.510
>> That is really interesting. And yes, um
00:27:39.520 --> 00:27:41.029
and the reason I ask that is just just
00:27:41.039 --> 00:27:43.830
from my own very I guess uh you say the
00:27:43.840 --> 00:27:46.149
word parochial uh point of view. Um
00:27:46.159 --> 00:27:48.549
yeah, I I think I would have thought
00:27:48.559 --> 00:27:49.990
calories on menus would have been really
00:27:50.000 --> 00:27:51.110
useful for that case. But what you're
00:27:51.120 --> 00:27:53.669
saying is it disproportionately it it
00:27:53.679 --> 00:27:55.669
the impact is negligible in terms of the
00:27:55.679 --> 00:27:57.350
people that it's quote unquote supposed
00:27:57.360 --> 00:27:58.630
to help and actually has a
00:27:58.640 --> 00:28:01.190
disproportionate effect on um well a
00:28:01.200 --> 00:28:03.430
number of others specifically people um
00:28:03.440 --> 00:28:05.110
that are having an eating disorder.
00:28:05.120 --> 00:28:06.710
>> And it's back to knowledge to action,
00:28:06.720 --> 00:28:08.870
isn't it? is that how do we how do we
00:28:08.880 --> 00:28:10.470
develop this research and insight and
00:28:10.480 --> 00:28:11.830
actually put it into place?
00:28:11.840 --> 00:28:12.230
>> Yeah.
00:28:12.240 --> 00:28:14.070
>> Um because otherwise we're back to
00:28:14.080 --> 00:28:18.149
making laws and making uh huge uh policy
00:28:18.159 --> 00:28:20.870
decisions nationally rooted in
00:28:20.880 --> 00:28:24.230
misunderstanding, myth and stereotype.
00:28:24.240 --> 00:28:27.190
>> So early intervention is a reoccurring
00:28:27.200 --> 00:28:29.029
theme. Yeah. Across your strategies,
00:28:29.039 --> 00:28:31.350
your campaigns and your services.
00:28:31.360 --> 00:28:34.389
>> Um what would you say gets in the way of
00:28:34.399 --> 00:28:38.230
people accessing help early? So stigma
00:28:38.240 --> 00:28:41.269
>> is a simple one. Um
00:28:41.279 --> 00:28:46.470
we we are really looking at a society
00:28:46.480 --> 00:28:50.950
where many many young people and and
00:28:50.960 --> 00:28:54.230
older people uh are too ashamed to come
00:28:54.240 --> 00:28:56.870
forward. Shame is a very common emotion
00:28:56.880 --> 00:28:59.669
around eating disorders. uh very sadly
00:28:59.679 --> 00:29:03.510
it is about three years um gap on
00:29:03.520 --> 00:29:05.350
average between someone developing a
00:29:05.360 --> 00:29:08.070
problem and asking for help and during
00:29:08.080 --> 00:29:10.950
that time behaviors be can become really
00:29:10.960 --> 00:29:13.590
entrenched. So and you go from you know
00:29:13.600 --> 00:29:15.269
if you could only intervene early
00:29:15.279 --> 00:29:18.630
sometimes you can redirect whereas by
00:29:18.640 --> 00:29:21.990
the time you've waited three years
00:29:22.000 --> 00:29:23.909
um you can often be looking at someone
00:29:23.919 --> 00:29:26.389
who's really needing some quite in-depth
00:29:26.399 --> 00:29:29.190
help. So there's a lot of work to be
00:29:29.200 --> 00:29:33.110
done and as we've as we've discussed
00:29:33.120 --> 00:29:35.909
this idea of what an eating disorder is
00:29:35.919 --> 00:29:37.909
and this is about barriers to service.
00:29:37.919 --> 00:29:41.510
All too often we've had people go have
00:29:41.520 --> 00:29:43.830
that real courage and bravery that when
00:29:43.840 --> 00:29:45.909
they do ask for help they go to the
00:29:45.919 --> 00:29:48.149
doctor and the feedback they get is
00:29:48.159 --> 00:29:50.630
you're not ill enough yet.
00:29:50.640 --> 00:29:53.350
And uh and that can be devastating. I
00:29:53.360 --> 00:29:55.590
mean, it's it can be life-threatening
00:29:55.600 --> 00:29:57.350
because with a with with an eating
00:29:57.360 --> 00:29:59.029
disorder, that can be seen if you're
00:29:59.039 --> 00:30:00.310
told you're not ill enough, that can be
00:30:00.320 --> 00:30:03.350
seen as a challenge and and therefore,
00:30:03.360 --> 00:30:05.430
you know, people are looking to to lose
00:30:05.440 --> 00:30:08.710
even more weight. But more than that, um
00:30:08.720 --> 00:30:10.310
there is I I totally understand it and
00:30:10.320 --> 00:30:12.310
and don't get me wrong, I have never yet
00:30:12.320 --> 00:30:14.470
met a health professional that doesn't
00:30:14.480 --> 00:30:16.070
want to do the right thing by their
00:30:16.080 --> 00:30:18.310
patients. These are extraordinary
00:30:18.320 --> 00:30:21.350
people. My my sister is a is a community
00:30:21.360 --> 00:30:23.990
mental health nurse. Uh I see her making
00:30:24.000 --> 00:30:26.149
incredibly difficult decisions every day
00:30:26.159 --> 00:30:28.470
and she will fight for her patients.
00:30:28.480 --> 00:30:31.669
It's brilliant. Uh but we have to
00:30:31.679 --> 00:30:33.750
recognize that these professionals are
00:30:33.760 --> 00:30:37.110
under extreme pressures.
00:30:37.120 --> 00:30:39.830
>> But it makes sense if only we can get
00:30:39.840 --> 00:30:41.269
treatment in early
00:30:41.279 --> 00:30:45.590
>> then we save so much time, energy, pain
00:30:45.600 --> 00:30:49.350
and money in the long term.
00:30:49.360 --> 00:30:52.470
So restrictive criteria, um stigma,
00:30:52.480 --> 00:30:54.149
pressure on the system, these are some
00:30:54.159 --> 00:30:55.830
of the things that prevent people
00:30:55.840 --> 00:30:56.789
getting help early.
00:30:56.799 --> 00:30:57.430
>> Absolutely.
00:30:57.440 --> 00:30:57.909
>> Yeah.
00:30:57.919 --> 00:30:59.190
>> Absolutely.
00:30:59.200 --> 00:31:02.230
>> And of course um digital support plays
00:31:02.240 --> 00:31:04.950
an increasingly um important role in
00:31:04.960 --> 00:31:06.710
terms of people accessing help. That's
00:31:06.720 --> 00:31:09.029
whether it's uh self-help tools or um
00:31:09.039 --> 00:31:12.630
you know online communities. So on your
00:31:12.640 --> 00:31:14.310
website, just some of the stats that I
00:31:14.320 --> 00:31:15.510
read, and again, it's incredible
00:31:15.520 --> 00:31:18.470
numbers, you know, um 107,000 people
00:31:18.480 --> 00:31:19.909
plus have access your downloadable
00:31:19.919 --> 00:31:22.950
resources in the last 18 months. Um over
00:31:22.960 --> 00:31:25.190
1 million unique visitors.
00:31:25.200 --> 00:31:27.430
>> And I guess the point here is that we
00:31:27.440 --> 00:31:29.750
know that online communities can be both
00:31:29.760 --> 00:31:31.350
um supportive
00:31:31.360 --> 00:31:34.470
>> but at the same time harmful.
00:31:34.480 --> 00:31:37.750
So from your perspective where beat's
00:31:37.760 --> 00:31:39.590
concerned, how do we help people
00:31:39.600 --> 00:31:41.509
navigate those digital spaces in a way
00:31:41.519 --> 00:31:43.350
that protects recovery while still
00:31:43.360 --> 00:31:45.269
fostering connection?
00:31:45.279 --> 00:31:48.230
>> Yeah, I mean it's uh if I had a a simple
00:31:48.240 --> 00:31:49.669
answer then I could probably make a
00:31:49.679 --> 00:31:50.710
fortune, couldn't I? But
00:31:50.720 --> 00:31:51.669
>> it's not a simple question.
00:31:51.679 --> 00:31:53.909
>> It's not a no no but we should we should
00:31:53.919 --> 00:31:55.830
wrestle with these you know is exactly
00:31:55.840 --> 00:31:57.509
the mental health community need to
00:31:57.519 --> 00:32:00.710
wrestle with some of these really big
00:32:00.720 --> 00:32:02.549
modern challenges in society. I mean,
00:32:02.559 --> 00:32:05.830
who would have thought um we were we'd
00:32:05.840 --> 00:32:07.509
be facing this sort of challenge? You
00:32:07.519 --> 00:32:09.669
know, this is social media has not been
00:32:09.679 --> 00:32:13.909
around that long. Um and uh and and
00:32:13.919 --> 00:32:15.669
things like that. So, we are learning as
00:32:15.679 --> 00:32:17.909
we go the the positives and the
00:32:17.919 --> 00:32:19.909
negatives of this. So, it's a nuance
00:32:19.919 --> 00:32:21.509
conversation. I don't have a simple
00:32:21.519 --> 00:32:23.430
answer to start with, but there are some
00:32:23.440 --> 00:32:26.070
things I do know. Sure. So one of those
00:32:26.080 --> 00:32:29.830
is that uh making online communities
00:32:29.840 --> 00:32:32.230
safe is something that organizations
00:32:32.240 --> 00:32:36.070
like beat like other trusted uh third
00:32:36.080 --> 00:32:39.029
sector providers can do brilliantly.
00:32:39.039 --> 00:32:42.070
Firstly because we have the trust um
00:32:42.080 --> 00:32:44.950
secondly we are able to moderate those
00:32:44.960 --> 00:32:46.789
spaces. So, I mean there's so I mean
00:32:46.799 --> 00:32:48.630
really simple stuff. We have brilliant
00:32:48.640 --> 00:32:51.350
peer-to-peer support groups for uh
00:32:51.360 --> 00:32:53.110
people who are who are sharing a
00:32:53.120 --> 00:32:55.269
specific eating disorder journey
00:32:55.279 --> 00:32:56.789
>> and we make sure that when we are
00:32:56.799 --> 00:32:59.110
holding those groups that the questions
00:32:59.120 --> 00:33:01.269
all come and are moderated before they
00:33:01.279 --> 00:33:01.750
appear.
00:33:01.760 --> 00:33:04.630
>> Good. It's a really simple thing and we
00:33:04.640 --> 00:33:07.669
have uh someone very highly trained who
00:33:07.679 --> 00:33:09.830
will just scan through a question and
00:33:09.840 --> 00:33:12.870
make sure that there is uh that there's
00:33:12.880 --> 00:33:15.830
no element of trigger there. So things
00:33:15.840 --> 00:33:17.190
like that it's it's a relative
00:33:17.200 --> 00:33:18.950
relatively simple thing to do but it
00:33:18.960 --> 00:33:21.110
means you can't remove all humanness
00:33:21.120 --> 00:33:23.190
from the from the from the digital
00:33:23.200 --> 00:33:24.950
space. I I I talk a lot about online
00:33:24.960 --> 00:33:26.630
spaces rather than digital spaces
00:33:26.640 --> 00:33:29.269
because I think there is that blend that
00:33:29.279 --> 00:33:32.630
we can do really really well.
00:33:32.640 --> 00:33:35.509
It's we do have to accept as well that
00:33:35.519 --> 00:33:36.950
there are spaces out there that are
00:33:36.960 --> 00:33:39.269
actively dangerous.
00:33:39.279 --> 00:33:41.590
And I think what's uh the responsibility
00:33:41.600 --> 00:33:43.110
we have again as a mental health
00:33:43.120 --> 00:33:46.549
community as beat is not to be scared to
00:33:46.559 --> 00:33:48.230
stand up and tell people that these
00:33:48.240 --> 00:33:50.389
spaces are dangerous. is not just about
00:33:50.399 --> 00:33:52.710
protecting children under 13 or children
00:33:52.720 --> 00:33:55.830
under 16. It's about recognizing that
00:33:55.840 --> 00:33:59.669
all vulnerable people need and deserve
00:33:59.679 --> 00:34:02.870
protection. No one needs to read really
00:34:02.880 --> 00:34:04.789
nasty, dangerous, disordered eating
00:34:04.799 --> 00:34:08.550
content. That's not necessary. So, uh
00:34:08.560 --> 00:34:11.510
it's about actually challenging these
00:34:11.520 --> 00:34:14.629
large companies to design for safety. So
00:34:14.639 --> 00:34:16.470
every month we run a series of prompts
00:34:16.480 --> 00:34:17.829
through AI
00:34:17.839 --> 00:34:19.909
>> to see what type of information is
00:34:19.919 --> 00:34:21.909
coming back from AI. It's really
00:34:21.919 --> 00:34:23.909
important for us to understand and we
00:34:23.919 --> 00:34:26.790
were very concerned to see that uh
00:34:26.800 --> 00:34:28.869
because it collectates rather than
00:34:28.879 --> 00:34:31.510
curates it was pulling through some
00:34:31.520 --> 00:34:34.069
really dangerous tips, tricks,
00:34:34.079 --> 00:34:38.230
techniques around uh you know anorexia
00:34:38.240 --> 00:34:42.869
pro um stuff. Really very very dangerous
00:34:42.879 --> 00:34:44.389
advice.
00:34:44.399 --> 00:34:48.629
And um I reached out to the companies
00:34:48.639 --> 00:34:50.149
and said, "Look, you know, this is this
00:34:50.159 --> 00:34:51.909
is what we're seeing."
00:34:51.919 --> 00:34:54.230
>> And uh and I suppose one of the things I
00:34:54.240 --> 00:34:57.510
love about uh OpenAI who I've had a
00:34:57.520 --> 00:35:00.470
conversation with is uh because they're
00:35:00.480 --> 00:35:04.550
still in that kind of tech startup
00:35:04.560 --> 00:35:07.829
uh phase, uh their idea of a long time
00:35:07.839 --> 00:35:10.870
is three months. And uh and so they said
00:35:10.880 --> 00:35:12.790
to me, "Right, okay, we've fixed this
00:35:12.800 --> 00:35:14.310
one, this other stuff. We're going to
00:35:14.320 --> 00:35:15.589
have to think about it. It might take a
00:35:15.599 --> 00:35:17.190
while." I was going away thinking, "Oh,
00:35:17.200 --> 00:35:18.630
perhaps we'll we'll get it done by
00:35:18.640 --> 00:35:21.349
2030." Um well, three months it turns
00:35:21.359 --> 00:35:27.109
out. And uh and uh they I now as of week
00:35:27.119 --> 00:35:30.150
before last um we reran our prompts.
00:35:30.160 --> 00:35:31.430
Doesn't matter what I try, I can't get
00:35:31.440 --> 00:35:33.349
the can't get the dangerous content out
00:35:33.359 --> 00:35:35.270
there. Uh and that
00:35:35.280 --> 00:35:36.950
>> stress testing the AI. I think that's
00:35:36.960 --> 00:35:39.510
absolutely and that is transformational.
00:35:39.520 --> 00:35:41.030
>> Yeah. Yeah. Massively. I mean it's you
00:35:41.040 --> 00:35:42.710
know AI it's on the tip of everybody's
00:35:42.720 --> 00:35:43.270
tongue.
00:35:43.280 --> 00:35:45.349
>> Absolutely. It's it's not perfect. Don't
00:35:45.359 --> 00:35:47.990
get me wrong. It is not perfect. But if
00:35:48.000 --> 00:35:50.550
you are a a child or a young person and
00:35:50.560 --> 00:35:53.270
you are using chat GPT to try and get
00:35:53.280 --> 00:35:55.270
information, it will not give it to you.
00:35:55.280 --> 00:35:57.510
It will only say I'm concerned about
00:35:57.520 --> 00:35:59.430
you. Why don't you speak to beat? Why
00:35:59.440 --> 00:36:00.470
don't you, you know, have you thought
00:36:00.480 --> 00:36:02.069
about getting help? Is there anyone you
00:36:02.079 --> 00:36:03.670
trust that you can speak to? Good.
00:36:03.680 --> 00:36:05.030
>> And that is amazing.
00:36:05.040 --> 00:36:08.310
>> Yeah. And I do remember um last year, it
00:36:08.320 --> 00:36:10.150
was around August
00:36:10.160 --> 00:36:11.910
>> um there was an update from OpenAI and
00:36:11.920 --> 00:36:13.349
they spoke very specifically about some
00:36:13.359 --> 00:36:15.190
of the things that uh they're changing
00:36:15.200 --> 00:36:17.349
in order to make um
00:36:17.359 --> 00:36:18.310
>> make it safer.
00:36:18.320 --> 00:36:18.630
>> Yeah.
00:36:18.640 --> 00:36:20.150
>> For for use cases like this in terms of
00:36:20.160 --> 00:36:22.390
people accessing um information from
00:36:22.400 --> 00:36:24.630
trusted sources. Um so it's really good
00:36:24.640 --> 00:36:26.550
to hear that um that's been put into
00:36:26.560 --> 00:36:27.109
practice.
00:36:27.119 --> 00:36:27.589
>> Yeah.
00:36:27.599 --> 00:36:29.190
>> Um and they're, you know, even if there
00:36:29.200 --> 00:36:32.150
are kind of still gaps um in in the
00:36:32.160 --> 00:36:33.829
algorithm, let's say, that they're able
00:36:33.839 --> 00:36:35.349
to address that. and you were able to
00:36:35.359 --> 00:36:36.790
kind of reach the person you needed to
00:36:36.800 --> 00:36:38.630
and um that's really really that's
00:36:38.640 --> 00:36:40.550
really impressive. So so in terms of
00:36:40.560 --> 00:36:43.270
navigating online spaces um safely while
00:36:43.280 --> 00:36:45.349
maintaining connection, it's about um
00:36:45.359 --> 00:36:47.030
thinking about how we work with things
00:36:47.040 --> 00:36:50.230
like AI um thinking about the uh the
00:36:50.240 --> 00:36:52.310
peer the peer support groups and also
00:36:52.320 --> 00:36:53.750
actually not being afraid to actually,
00:36:53.760 --> 00:36:55.829
you know, call out or signpost
00:36:55.839 --> 00:36:57.190
information that we know is actually
00:36:57.200 --> 00:36:59.109
harmful because it's not just like you
00:36:59.119 --> 00:37:01.589
say uh kids under the age of 13. It's um
00:37:01.599 --> 00:37:03.510
it's it's it's everybody that you know
00:37:03.520 --> 00:37:05.910
should be protected from um harmful or
00:37:05.920 --> 00:37:06.950
misinformation.
00:37:06.960 --> 00:37:09.190
>> Yeah, absolutely. We all deserve to be
00:37:09.200 --> 00:37:12.550
able to walk into a online space in the
00:37:12.560 --> 00:37:15.109
same way as we would walk into a a space
00:37:15.119 --> 00:37:17.430
in reality and and feel safe.
00:37:17.440 --> 00:37:19.510
>> Yeah.
00:37:19.520 --> 00:37:21.349
Interesting.
00:37:21.359 --> 00:37:22.870
And I didn't I actually didn't have any
00:37:22.880 --> 00:37:24.390
questions lined up about AI, but it's
00:37:24.400 --> 00:37:25.829
interesting how it it tilted towards
00:37:25.839 --> 00:37:27.750
that. Anyway, so um no, thanks for that.
00:37:27.760 --> 00:37:28.950
Just listening to all of that, it's
00:37:28.960 --> 00:37:30.790
clear that while online spaces do
00:37:30.800 --> 00:37:32.310
provide and can offer that sense of
00:37:32.320 --> 00:37:34.550
connection, um they can't and probably
00:37:34.560 --> 00:37:36.630
shouldn't carry all of that
00:37:36.640 --> 00:37:39.430
responsibility on their own. Which
00:37:39.440 --> 00:37:41.990
brings us which brings me to the formal
00:37:42.000 --> 00:37:44.470
role of um or the role of formal
00:37:44.480 --> 00:37:46.230
services. So the services that are
00:37:46.240 --> 00:37:47.750
designed to step in early and
00:37:47.760 --> 00:37:50.710
consistently. So recently we've seen new
00:37:50.720 --> 00:37:53.030
NHS guidance on eating disorder services
00:37:53.040 --> 00:37:54.390
for children and young people.
00:37:54.400 --> 00:37:57.510
>> Mhm. So they place a strong emphasis on
00:37:57.520 --> 00:37:59.349
early intervention, family and carer
00:37:59.359 --> 00:38:01.349
support as well as avoidant restrictive
00:38:01.359 --> 00:38:05.190
food intake disorder also known as ARID.
00:38:05.200 --> 00:38:07.510
So from Beat's perspective, what feels
00:38:07.520 --> 00:38:09.670
like the most significant shift in this
00:38:09.680 --> 00:38:10.230
guidance?
00:38:10.240 --> 00:38:12.630
>> All of it. All of it. I mean this is I
00:38:12.640 --> 00:38:14.150
mean this is the first new guidance
00:38:14.160 --> 00:38:15.829
since 2015
00:38:15.839 --> 00:38:20.310
>> and uh we were really pleased uh about
00:38:20.320 --> 00:38:23.270
how open uh the NHS England was in
00:38:23.280 --> 00:38:26.630
working with us and others uh to really
00:38:26.640 --> 00:38:28.150
get more insight. But I mean if there's
00:38:28.160 --> 00:38:30.150
if I was pointed to one thing that
00:38:30.160 --> 00:38:33.030
simple thing of stating really clearly
00:38:33.040 --> 00:38:34.950
that medical practitioners need to look
00:38:34.960 --> 00:38:37.990
beyond BMI as the single measure for
00:38:38.000 --> 00:38:39.829
whether someone is ill enough or well
00:38:39.839 --> 00:38:42.870
enough to get treatment. um it puts a
00:38:42.880 --> 00:38:44.950
lot more emphasis on saying BMI is one
00:38:44.960 --> 00:38:46.390
piece of information
00:38:46.400 --> 00:38:48.550
>> but on top of that you that if you look
00:38:48.560 --> 00:38:51.349
at uh parental concerns and behaviors
00:38:51.359 --> 00:38:54.870
are equally if not more important in
00:38:54.880 --> 00:38:56.950
order to diagnose there is something
00:38:56.960 --> 00:38:58.550
happening here that we need to we need
00:38:58.560 --> 00:39:00.310
to intervene now
00:39:00.320 --> 00:39:03.510
>> that is really important now let's not
00:39:03.520 --> 00:39:05.430
pretend that it it it magics up the
00:39:05.440 --> 00:39:06.870
services that are going to be needed in
00:39:06.880 --> 00:39:09.190
order to support that but you can't ask
00:39:09.200 --> 00:39:10.790
for the service if the guidance isn't
00:39:10.800 --> 00:39:11.829
there in the first place.
00:39:11.839 --> 00:39:12.310
>> Sure.
00:39:12.320 --> 00:39:13.750
>> And then the other thing which it
00:39:13.760 --> 00:39:16.390
recognizes is that there is a
00:39:16.400 --> 00:39:18.390
responsibility beyond the medical
00:39:18.400 --> 00:39:22.150
profession for um recognizing and
00:39:22.160 --> 00:39:23.670
addressing some of these issues really
00:39:23.680 --> 00:39:26.870
early. So I'm I'm really proud that it's
00:39:26.880 --> 00:39:29.990
uh it's it's signposted to our schools
00:39:30.000 --> 00:39:32.470
professionals online training. Uh it's
00:39:32.480 --> 00:39:35.109
free again. If there anyone who has ever
00:39:35.119 --> 00:39:36.950
been to a school or knows of a school
00:39:36.960 --> 00:39:38.710
that wants to recommend the school gets
00:39:38.720 --> 00:39:42.069
on online again uh mini modules so
00:39:42.079 --> 00:39:46.230
people can um teachers can can learn and
00:39:46.240 --> 00:39:49.030
really practical actionable advice. Uh
00:39:49.040 --> 00:39:50.710
this is the bit I love. It's the it's
00:39:50.720 --> 00:39:53.349
for the um lunchtime supervisors out
00:39:53.359 --> 00:39:54.069
there. Oh yeah.
00:39:54.079 --> 00:39:55.910
>> And it's like how do you scan a room? to
00:39:55.920 --> 00:39:57.750
scan a whole room at lunchtime. And if
00:39:57.760 --> 00:39:59.589
you can see a child that keeps cutting
00:39:59.599 --> 00:40:01.750
their dinner up into smaller and smaller
00:40:01.760 --> 00:40:03.910
pieces, that's a red flag. It's an early
00:40:03.920 --> 00:40:06.069
warning sign. It's a chance not for them
00:40:06.079 --> 00:40:07.589
to intervene themselves. They can they
00:40:07.599 --> 00:40:10.310
can take that back to the pastoral care
00:40:10.320 --> 00:40:12.230
and say, "Look, this is concerning." And
00:40:12.240 --> 00:40:14.630
then we can help with uh the online
00:40:14.640 --> 00:40:16.390
training. It's got a whole package of
00:40:16.400 --> 00:40:18.470
how you start those conversations,
00:40:18.480 --> 00:40:21.190
things like that. that is now part of
00:40:21.200 --> 00:40:23.670
this NHS guidance of saying we as a
00:40:23.680 --> 00:40:25.430
community need to group around people
00:40:25.440 --> 00:40:26.870
get in early and then when they get to
00:40:26.880 --> 00:40:29.109
the GP yeah if they've got a change in
00:40:29.119 --> 00:40:30.870
behaviors if you've got concerned
00:40:30.880 --> 00:40:33.997
parents let's get help now really early
00:40:34.007 --> 00:40:34.550
[clears throat]
00:40:34.560 --> 00:40:36.150
>> I I like the well the thing that I take
00:40:36.160 --> 00:40:37.829
from that is um I guess it kind of comes
00:40:37.839 --> 00:40:40.790
back to um the earlier thread about um
00:40:40.800 --> 00:40:42.310
parents and carers feeling maybe
00:40:42.320 --> 00:40:44.470
overlooked or left out and so this
00:40:44.480 --> 00:40:46.390
guidance explicitly kind of recognizes
00:40:46.400 --> 00:40:49.270
that as a as a formal form of support um
00:40:49.280 --> 00:40:52.390
behavior behaviors as well. Um and that
00:40:52.400 --> 00:40:54.550
can be recognized earlier if we get the
00:40:54.560 --> 00:40:56.069
knowledge
00:40:56.079 --> 00:40:58.150
and the practical skill sets to people
00:40:58.160 --> 00:41:00.630
that are in a position to um recognize
00:41:00.640 --> 00:41:03.430
the signs and symptoms first aka um the
00:41:03.440 --> 00:41:04.870
lunchtime supervisors.
00:41:04.880 --> 00:41:06.790
>> Yeah. Yeah. I I can give a a personal
00:41:06.800 --> 00:41:09.030
example of this which is uh with my
00:41:09.040 --> 00:41:10.069
daughter. [clears throat]
00:41:10.079 --> 00:41:13.670
>> Um when I first asked for help um I
00:41:13.680 --> 00:41:16.390
finally got a referral to um through the
00:41:16.400 --> 00:41:20.390
system and we know the system and I went
00:41:20.400 --> 00:41:23.990
through the entire system to u the
00:41:24.000 --> 00:41:26.069
pediatric consultant and all the tests
00:41:26.079 --> 00:41:28.069
were run, the blood tests, the the test
00:41:28.079 --> 00:41:29.750
for epilepsy, the test for this, the
00:41:29.760 --> 00:41:31.589
test for that and all of those tests
00:41:31.599 --> 00:41:34.069
were negative. And so we reached the end
00:41:34.079 --> 00:41:35.990
of the path and they were really happy
00:41:36.000 --> 00:41:37.430
to tell me that all the tests they done
00:41:37.440 --> 00:41:39.589
were negative and therefore they
00:41:39.599 --> 00:41:41.030
discharged me. That was the letter that
00:41:41.040 --> 00:41:41.829
I got.
00:41:41.839 --> 00:41:44.150
>> And I'm thinking, but nothing has
00:41:44.160 --> 00:41:45.430
changed.
00:41:45.440 --> 00:41:47.670
>> My my daughter is still experiencing all
00:41:47.680 --> 00:41:49.349
of these concerning symptoms that I
00:41:49.359 --> 00:41:52.150
started with. And I went back to the GP
00:41:52.160 --> 00:41:54.150
and I and I said to the GP, look, this
00:41:54.160 --> 00:41:55.510
is, you know, we've gone through all of
00:41:55.520 --> 00:41:59.349
this. I don't know what to do. And thank
00:41:59.359 --> 00:42:02.069
goodness for a very very good family uh
00:42:02.079 --> 00:42:05.589
GP. My GP said to me, "Look, I have
00:42:05.599 --> 00:42:07.829
never come across a situation where a
00:42:07.839 --> 00:42:09.829
parent has said there's something wrong
00:42:09.839 --> 00:42:11.190
and then we don't eventually find
00:42:11.200 --> 00:42:12.950
something wrong. So, I'm going to send
00:42:12.960 --> 00:42:15.030
you around the system again." And when
00:42:15.040 --> 00:42:16.630
we went through the system a second
00:42:16.640 --> 00:42:19.910
time, her her um her disability was was
00:42:19.920 --> 00:42:22.790
discovered. And she's on medication now.
00:42:22.800 --> 00:42:24.550
But everything that flowed from that wow
00:42:24.560 --> 00:42:26.630
>> was was was discovered. So that's a
00:42:26.640 --> 00:42:28.710
monumental shift then in terms of again
00:42:28.720 --> 00:42:31.109
BMI is one thing but actually taking um
00:42:31.119 --> 00:42:32.470
and taking into account real
00:42:32.480 --> 00:42:34.870
consideration to uh the parents concerns
00:42:34.880 --> 00:42:36.230
and behaviors as well.
00:42:36.240 --> 00:42:37.910
>> Absolutely. And I again I'd say out
00:42:37.920 --> 00:42:39.670
there if if you're a parent, if you're
00:42:39.680 --> 00:42:42.950
an employer, if you are a um you know if
00:42:42.960 --> 00:42:44.870
you're a friend,
00:42:44.880 --> 00:42:47.589
if you have concerns, if you if you feel
00:42:47.599 --> 00:42:50.390
that there is something going on, then
00:42:50.400 --> 00:42:52.309
that's a very good sign that there that
00:42:52.319 --> 00:42:55.349
there may be something not right. And uh
00:42:55.359 --> 00:42:57.430
I'm not saying you need to pretend, you
00:42:57.440 --> 00:42:59.430
know, develop your medical degree. Um
00:42:59.440 --> 00:43:01.109
unfortunately watching, as much as I've
00:43:01.119 --> 00:43:02.870
watched Hobby City, it does not qualify
00:43:02.880 --> 00:43:05.589
you to do a medical diagnosis. But what
00:43:05.599 --> 00:43:08.550
you can do is say, are you okay?
00:43:08.560 --> 00:43:10.790
>> And then you ask a second time. You
00:43:10.800 --> 00:43:12.230
really all right?
00:43:12.240 --> 00:43:14.790
>> And it's that type of opening up,
00:43:14.800 --> 00:43:16.550
getting people to begin to talk about
00:43:16.560 --> 00:43:18.630
these things that will make a
00:43:18.640 --> 00:43:19.349
difference.
00:43:19.359 --> 00:43:21.430
>> It's um it's hold still going.
00:43:21.440 --> 00:43:22.870
>> I don't know. I might be well out of
00:43:22.880 --> 00:43:25.030
date by that. I see [laughter]
00:43:25.040 --> 00:43:27.030
dated you mention that. Yeah. But okay.
00:43:27.040 --> 00:43:29.430
Um okay. So the the guidance also
00:43:29.440 --> 00:43:31.430
recognizes the role of the voluntary and
00:43:31.440 --> 00:43:33.589
community sector um more explicitly than
00:43:33.599 --> 00:43:36.630
before. So given some of the challenges
00:43:36.640 --> 00:43:39.430
that still exist uh in terms of you know
00:43:39.440 --> 00:43:40.710
I think we mentioned one already earlier
00:43:40.720 --> 00:43:42.390
in terms of uh that kind of crisis
00:43:42.400 --> 00:43:45.109
focused care um the restrictive criteria
00:43:45.119 --> 00:43:46.710
in terms of who gets access to help and
00:43:46.720 --> 00:43:49.589
then also at times a lack of almost
00:43:49.599 --> 00:43:52.550
mutual respect between services.
00:43:52.560 --> 00:43:54.870
what as you see it does a good
00:43:54.880 --> 00:43:57.030
partnership between the NHS and
00:43:57.040 --> 00:43:59.030
organizations like BE actually look like
00:43:59.040 --> 00:44:00.950
in practice?
00:44:00.960 --> 00:44:02.630
>> Yeah, I think that first of all I mean
00:44:02.640 --> 00:44:04.950
let's just say I certainly in my time at
00:44:04.960 --> 00:44:07.829
BE I've never met a medical practitioner
00:44:07.839 --> 00:44:09.670
or healthcare worker who doesn't want
00:44:09.680 --> 00:44:11.349
the same as me which is the best outcome
00:44:11.359 --> 00:44:12.069
for patients.
00:44:12.079 --> 00:44:12.550
>> Okay.
00:44:12.560 --> 00:44:14.230
>> Uh people go into these professions
00:44:14.240 --> 00:44:15.430
because they're passionate.
00:44:15.440 --> 00:44:17.829
>> Absolutely. um it is structures and
00:44:17.839 --> 00:44:19.320
systems that can be limiting
00:44:19.330 --> 00:44:21.829
[clears throat] and uh that's where I
00:44:21.839 --> 00:44:24.069
think there's a huge power for the third
00:44:24.079 --> 00:44:26.309
sector and the NHS to come together. One
00:44:26.319 --> 00:44:27.990
of the things that we're able to do is
00:44:28.000 --> 00:44:31.670
to have uh the flexibility to uh
00:44:31.680 --> 00:44:34.950
research to test to pilot um and to
00:44:34.960 --> 00:44:38.390
offer that back to the NHS um and learn
00:44:38.400 --> 00:44:40.550
together to really understand the
00:44:40.560 --> 00:44:41.910
problems and challenges that they're
00:44:41.920 --> 00:44:44.470
facing and find solutions together. So
00:44:44.480 --> 00:44:48.870
the the intensive daycare uh does stuff
00:44:48.880 --> 00:44:51.270
that that we've been working on at beat.
00:44:51.280 --> 00:44:52.710
>> This is the at home.
00:44:52.720 --> 00:44:54.550
>> This is we call Yeah, it's our campaign.
00:44:54.560 --> 00:44:55.670
No place like home. No place like home.
00:44:55.680 --> 00:44:55.990
That's
00:44:56.000 --> 00:44:59.030
>> and um and as I say that was rooted in
00:44:59.040 --> 00:45:02.470
analysis of over a thousand
00:45:02.480 --> 00:45:05.589
uh research papers. Now uh most people
00:45:05.599 --> 00:45:07.349
in the NHS do not have the time to sit
00:45:07.359 --> 00:45:08.790
down and read all those papers. So it's
00:45:08.800 --> 00:45:10.069
hardly a surprise they're not
00:45:10.079 --> 00:45:11.670
necessarily putting in stuff into
00:45:11.680 --> 00:45:14.309
practice. But what our recommendations
00:45:14.319 --> 00:45:16.870
are rooted in is saying what if we can
00:45:16.880 --> 00:45:19.190
get better outcomes for patients. Uh
00:45:19.200 --> 00:45:22.470
deliver care that patients prefer. Um
00:45:22.480 --> 00:45:24.790
deliver care that lasts longer. You're
00:45:24.800 --> 00:45:26.710
more likely to stay in recovery if
00:45:26.720 --> 00:45:28.870
you've practiced those skills in your
00:45:28.880 --> 00:45:30.710
own home environment throughout your
00:45:30.720 --> 00:45:33.430
treatment. And it just so happens is
00:45:33.440 --> 00:45:36.069
massively cheaper for the NHS. So that
00:45:36.079 --> 00:45:38.390
allows you to then care for more people.
00:45:38.400 --> 00:45:41.190
Um we still need inpatient care. We
00:45:41.200 --> 00:45:43.670
still need probably even you know even
00:45:43.680 --> 00:45:46.710
better in intensive intake patient care
00:45:46.720 --> 00:45:48.870
for a few people but there for other
00:45:48.880 --> 00:45:51.109
people this is a really good option a
00:45:51.119 --> 00:45:52.390
better option
00:45:52.400 --> 00:45:54.150
>> and I think it's a it's an example like
00:45:54.160 --> 00:45:56.870
that where we are and in April we're
00:45:56.880 --> 00:45:59.829
running a a symposium I believe I
00:45:59.839 --> 00:46:01.430
believe we're calling it um which is
00:46:01.440 --> 00:46:04.309
we're bringing together people from ICBS
00:46:04.319 --> 00:46:06.550
uh to talk about the no place like home
00:46:06.560 --> 00:46:08.790
approach but also to help them
00:46:08.800 --> 00:46:11.030
understand what which individual steps
00:46:11.040 --> 00:46:13.510
they need to take to move towards that
00:46:13.520 --> 00:46:15.270
because it can be really hard when
00:46:15.280 --> 00:46:17.990
you've got these complex NHS structures,
00:46:18.000 --> 00:46:20.069
>> integrative care boards.
00:46:20.079 --> 00:46:22.069
>> Uh yes. So this is ICBS,
00:46:22.079 --> 00:46:24.309
>> ICBS, sorry. Yeah. Um so this is the way
00:46:24.319 --> 00:46:27.510
the NHS is is packaged up at a regional
00:46:27.520 --> 00:46:29.190
level and it's all very well. you know,
00:46:29.200 --> 00:46:31.270
I can stand at the front and say, you
00:46:31.280 --> 00:46:33.510
know, on average, we are spending what
00:46:33.520 --> 00:46:38.150
sort of 450 million pounds uh on 35,000
00:46:38.160 --> 00:46:39.670
patients with an eating disorder, most
00:46:39.680 --> 00:46:41.430
of them coming into general medical
00:46:41.440 --> 00:46:45.829
wards. But if you are a local NHS trust
00:46:45.839 --> 00:46:47.589
and you are trying to balance your
00:46:47.599 --> 00:46:49.670
books, what you need is for
00:46:49.680 --> 00:46:51.109
organizations like us to come and say,
00:46:51.119 --> 00:46:52.870
"Look, we can we can help you think this
00:46:52.880 --> 00:46:53.990
through."
00:46:54.000 --> 00:46:55.829
Um and that's you know I'm really keen
00:46:55.839 --> 00:46:58.870
to do more of that to actually give be a
00:46:58.880 --> 00:47:01.829
practical sounding board uh where we
00:47:01.839 --> 00:47:03.910
have we have insight we have uh
00:47:03.920 --> 00:47:06.710
information but also all of that is
00:47:06.720 --> 00:47:08.870
rooted in lived experience and a lot of
00:47:08.880 --> 00:47:10.550
the time we will need to bring that to
00:47:10.560 --> 00:47:12.950
the four that we need to bring that
00:47:12.960 --> 00:47:16.470
patient voice and uh people's voice so
00:47:16.480 --> 00:47:18.710
that those providing the services really
00:47:18.720 --> 00:47:19.990
understand the impact of the decisions
00:47:20.000 --> 00:47:22.790
they're making. So more people and well
00:47:22.800 --> 00:47:24.230
yeah I guess the net result off the back
00:47:24.240 --> 00:47:26.470
of that is that more people um get
00:47:26.480 --> 00:47:30.630
access to um the services that work um
00:47:30.640 --> 00:47:31.510
when they need it.
00:47:31.520 --> 00:47:31.910
>> Yeah.
00:47:31.920 --> 00:47:32.470
>> Right.
00:47:32.480 --> 00:47:33.190
>> Absolutely.
00:47:33.200 --> 00:47:35.270
>> Yeah. And I guess just thinking about
00:47:35.280 --> 00:47:37.589
access um you know despite you know a
00:47:37.599 --> 00:47:39.430
lot of progress over the years um access
00:47:39.440 --> 00:47:42.950
to support still isn't equal. So for
00:47:42.960 --> 00:47:44.870
those that aren't aware, um could you
00:47:44.880 --> 00:47:46.470
talk us through how things like
00:47:46.480 --> 00:47:49.510
geography um identity, poverty, we've
00:47:49.520 --> 00:47:51.109
mentioned stigma already, but you know
00:47:51.119 --> 00:47:53.109
factors relating to somebody's identity
00:47:53.119 --> 00:47:55.829
um where they live etc. um kind of
00:47:55.839 --> 00:47:58.309
affects whether whether they seek help
00:47:58.319 --> 00:48:00.230
um or feels able to actually stay
00:48:00.240 --> 00:48:02.470
engaged with recovery.
00:48:02.480 --> 00:48:06.630
>> Yeah. So um without any question um the
00:48:06.640 --> 00:48:08.309
if you are from a minoritized or
00:48:08.319 --> 00:48:09.750
marginalized group
00:48:09.760 --> 00:48:11.109
>> you have an increased likelihood of
00:48:11.119 --> 00:48:13.670
developing an eating disorder and you
00:48:13.680 --> 00:48:15.589
are less likely to seek treatment for
00:48:15.599 --> 00:48:17.829
that. Uh I don't think that's anything
00:48:17.839 --> 00:48:20.470
for us to be proud of. We have that
00:48:20.480 --> 00:48:21.670
knowledge now.
00:48:21.680 --> 00:48:23.990
>> It's an absolute responsibility on every
00:48:24.000 --> 00:48:26.470
single organization working in this
00:48:26.480 --> 00:48:29.109
space to try and make that not true in
00:48:29.119 --> 00:48:31.270
the future. Um and there is something
00:48:31.280 --> 00:48:33.670
about uh access which is absolutely
00:48:33.680 --> 00:48:35.589
fundamental to beat strategy. You know
00:48:35.599 --> 00:48:37.030
that first thing is about making that
00:48:37.040 --> 00:48:40.549
front door wider so that everyone can uh
00:48:40.559 --> 00:48:43.430
can find their way in and then we find
00:48:43.440 --> 00:48:46.150
the help them find the right service.
00:48:46.160 --> 00:48:48.630
>> Uh so yeah I it's without doubt that
00:48:48.640 --> 00:48:53.030
that is a a real challenge and we have
00:48:53.040 --> 00:48:55.829
to recognize that it's not that these
00:48:55.839 --> 00:48:59.430
people are hard to reach. It's very much
00:48:59.440 --> 00:49:01.349
that services have not been designed all
00:49:01.359 --> 00:49:02.710
of the time with them in mind.
00:49:02.720 --> 00:49:03.670
>> That was going to be the next question.
00:49:03.680 --> 00:49:05.030
It's like, okay, we've got the data that
00:49:05.040 --> 00:49:07.190
backs, but actually, you know, why is
00:49:07.200 --> 00:49:08.230
that the case?
00:49:08.240 --> 00:49:11.109
>> It's a whole range of things. So, um,
00:49:11.119 --> 00:49:13.589
uh, and you know, and I'm very mindful
00:49:13.599 --> 00:49:17.589
that I'm sitting here as, um, uh, as a a
00:49:17.599 --> 00:49:19.270
CEO, so I've got, you know, power in
00:49:19.280 --> 00:49:22.390
that capacity. I'm a white woman. Um,
00:49:22.400 --> 00:49:25.349
I'm reasonably well educated. Uh, and
00:49:25.359 --> 00:49:28.150
even I had to fight to get services for
00:49:28.160 --> 00:49:31.349
my child. Um, using, you know, all of my
00:49:31.359 --> 00:49:32.950
highbrow language and looking stuff up
00:49:32.960 --> 00:49:34.950
on the internet. Um,
00:49:34.960 --> 00:49:35.750
>> symposium.
00:49:35.760 --> 00:49:36.549
>> Yeah. Yeah. Exactly.
00:49:36.559 --> 00:49:37.430
>> I'm going to have to keep that
00:49:37.440 --> 00:49:37.990
afterwards.
00:49:38.000 --> 00:49:41.829
>> Yeah. Um, so it is, um, we've got to get
00:49:41.839 --> 00:49:43.510
real here. I think there is something
00:49:43.520 --> 00:49:46.309
about So there is something about uh, we
00:49:46.319 --> 00:49:48.790
we need people to be seen.
00:49:48.800 --> 00:49:51.750
uh beat have to make sure that we are
00:49:51.760 --> 00:49:54.069
showing representations and training
00:49:54.079 --> 00:49:56.710
people. There is still tons of people
00:49:56.720 --> 00:49:59.270
out there who think that an eating
00:49:59.280 --> 00:50:01.510
disorder is the preserve of uh
00:50:01.520 --> 00:50:03.910
middleclass white teenage girls,
00:50:03.920 --> 00:50:05.910
>> high achieving white teenage girls.
00:50:05.920 --> 00:50:07.349
>> And you're like, well, no, this is not
00:50:07.359 --> 00:50:08.950
true. This is just the people that you
00:50:08.960 --> 00:50:12.870
see. Uh so we need to, I say, make
00:50:12.880 --> 00:50:15.270
people visible. uh and that's a lot
00:50:15.280 --> 00:50:17.510
about uh centering our lived experience.
00:50:17.520 --> 00:50:19.589
So we want to make sure that before
00:50:19.599 --> 00:50:21.910
researchers start picking the topics
00:50:21.920 --> 00:50:23.670
that they want to research. They get
00:50:23.680 --> 00:50:27.030
input from lived experience panels uh to
00:50:27.040 --> 00:50:29.270
be able and experts by experience to
00:50:29.280 --> 00:50:30.870
shape the research they're doing because
00:50:30.880 --> 00:50:32.470
otherwise we're just reproving what we
00:50:32.480 --> 00:50:34.150
knew already which is if you just
00:50:34.160 --> 00:50:36.549
interview middle-class white girls uh
00:50:36.559 --> 00:50:38.150
teenage girls that that's
00:50:38.160 --> 00:50:39.589
>> it's an echo echo chamber.
00:50:39.599 --> 00:50:40.069
>> Exactly.
00:50:40.079 --> 00:50:40.470
>> Yeah.
00:50:40.480 --> 00:50:42.069
>> So there's a there's that role that we
00:50:42.079 --> 00:50:44.390
can play. Uh there's also being very
00:50:44.400 --> 00:50:46.870
mindful that of of doing culturally
00:50:46.880 --> 00:50:51.910
sensitive support. So, uh we have we
00:50:51.920 --> 00:50:55.430
have Ramadan um guidance right now um
00:50:55.440 --> 00:50:58.549
available and up and um and actually
00:50:58.559 --> 00:51:01.349
being able to again from people with
00:51:01.359 --> 00:51:02.870
lived experience to talk through what
00:51:02.880 --> 00:51:04.230
it's like to have an eating disorder
00:51:04.240 --> 00:51:08.309
during Randa uh where they're
00:51:08.319 --> 00:51:10.710
the the guidance is really clear that
00:51:10.720 --> 00:51:12.870
you are not expected to to fast if
00:51:12.880 --> 00:51:14.790
you're not well.
00:51:14.800 --> 00:51:17.030
at the same time the the the wanting to
00:51:17.040 --> 00:51:19.990
be part of your community and food being
00:51:20.000 --> 00:51:22.790
such a huge part of that. Um or
00:51:22.800 --> 00:51:24.950
Christmas, we do guidance at Christmas.
00:51:24.960 --> 00:51:27.589
It's like how do you negotiate Christmas
00:51:27.599 --> 00:51:30.790
dinner if if your entire extended family
00:51:30.800 --> 00:51:31.430
is there?
00:51:31.440 --> 00:51:32.710
>> I mean, it's all about food, isn't it?
00:51:32.720 --> 00:51:35.990
>> And it's all about the food. Uh so yeah,
00:51:36.000 --> 00:51:37.670
there are lots of things like that about
00:51:37.680 --> 00:51:39.910
being culturally sensitive um and giving
00:51:39.920 --> 00:51:43.589
people tools that that that reflect the
00:51:43.599 --> 00:51:45.109
things they're dealing with.
00:51:45.119 --> 00:51:46.950
>> There's also the need to actually help
00:51:46.960 --> 00:51:49.030
them meet other people, peers, people
00:51:49.040 --> 00:51:51.109
who have negotiated these these things
00:51:51.119 --> 00:51:52.790
themselves. And that's where the
00:51:52.800 --> 00:51:54.630
community stuff comes in because it's
00:51:54.640 --> 00:51:57.109
not necessarily about depending on your
00:51:57.119 --> 00:51:58.630
friends, your family, your football
00:51:58.640 --> 00:52:01.910
team. That's the space where we can as a
00:52:01.920 --> 00:52:04.630
third sector create a community out of
00:52:04.640 --> 00:52:06.710
those with shared experience.
00:52:06.720 --> 00:52:09.430
>> What role do employers play in reducing
00:52:09.440 --> 00:52:11.670
some of these inequalities
00:52:11.680 --> 00:52:12.470
>> in access?
00:52:12.480 --> 00:52:12.790
>> Yeah.
00:52:12.800 --> 00:52:13.589
>> To support.
00:52:13.599 --> 00:52:16.710
>> Yeah, absolutely. I this is a really
00:52:16.720 --> 00:52:18.549
interesting one [clears throat]
00:52:18.559 --> 00:52:22.630
>> um because I think
00:52:22.640 --> 00:52:25.910
if you had asked an employer let's say
00:52:25.920 --> 00:52:27.750
10 years ago if you gone to an employer
00:52:27.760 --> 00:52:29.190
and said what are you doing for the me
00:52:29.200 --> 00:52:30.309
to support the mental health of your
00:52:30.319 --> 00:52:32.950
workforce they would look at you blankly
00:52:32.960 --> 00:52:35.349
horrified and go well that's nothing to
00:52:35.359 --> 00:52:37.190
do with us that's that's that's that's
00:52:37.200 --> 00:52:39.349
their personal life.
00:52:39.359 --> 00:52:42.230
If you did that today and they weren't
00:52:42.240 --> 00:52:45.589
able to reel off a whole range of
00:52:45.599 --> 00:52:47.910
workplacebased initiatives that they're
00:52:47.920 --> 00:52:49.030
doing to support the mental health of
00:52:49.040 --> 00:52:51.030
their staff, then you wouldn't want to
00:52:51.040 --> 00:52:53.589
work there. It's absolutely seen not as
00:52:53.599 --> 00:52:55.510
a staff benefit or a perk. It's seen as
00:52:55.520 --> 00:52:56.710
an absolute necessity.
00:52:56.720 --> 00:52:57.190
>> Sure.
00:52:57.200 --> 00:52:59.829
>> And it is. It's brilliant. If you do the
00:52:59.839 --> 00:53:01.670
same now with most employers around
00:53:01.680 --> 00:53:03.829
eating disorders, even though I can tell
00:53:03.839 --> 00:53:06.230
them for absolute sure that there will
00:53:06.240 --> 00:53:07.829
be someone in their workplace who is
00:53:07.839 --> 00:53:09.190
struggling with an eating disorder right
00:53:09.200 --> 00:53:12.150
now, it is that you still get that look
00:53:12.160 --> 00:53:14.950
of slight terror um from many of most.
00:53:14.960 --> 00:53:17.670
So what I would say as an employer is uh
00:53:17.680 --> 00:53:20.150
first of all there is information out
00:53:20.160 --> 00:53:22.390
there that you can you can access to you
00:53:22.400 --> 00:53:24.950
know uh beat or anyone else with there's
00:53:24.960 --> 00:53:27.030
plenty of others come to beat and we can
00:53:27.040 --> 00:53:29.510
uh uh we've got a helpfinder so there's
00:53:29.520 --> 00:53:31.030
tons of information on there that will
00:53:31.040 --> 00:53:34.069
take you to regional charities um but
00:53:34.079 --> 00:53:35.990
but be you've got a load of information
00:53:36.000 --> 00:53:37.670
so I you know I don't want to say
00:53:37.680 --> 00:53:39.510
educate yourself but you're an employer
00:53:39.520 --> 00:53:41.510
you're looking after human beings
00:53:41.520 --> 00:53:45.030
>> and you could be that one trusted person
00:53:45.040 --> 00:53:46.470
that is the difference between someone
00:53:46.480 --> 00:53:50.230
surviving and not. So I would say invest
00:53:50.240 --> 00:53:51.750
in mental health first train uh first
00:53:51.760 --> 00:53:53.670
aid training because that's a brilliant
00:53:53.680 --> 00:53:55.670
thing for your all of your staff and
00:53:55.680 --> 00:53:57.990
employee well-being. Inform yourself
00:53:58.000 --> 00:53:59.910
about eating disorders. Have a think
00:53:59.920 --> 00:54:02.790
about the cultures in your office. If
00:54:02.800 --> 00:54:04.549
your all of your gettogethers, all of
00:54:04.559 --> 00:54:07.190
your social things are built around oh
00:54:07.200 --> 00:54:09.430
let's order pizza in, let's uh let's all
00:54:09.440 --> 00:54:12.150
go for for high calorie beers. Let's
00:54:12.160 --> 00:54:14.950
make it all about the food. then you may
00:54:14.960 --> 00:54:17.270
be unintentionally excluding people or
00:54:17.280 --> 00:54:19.349
causing harm. And I'm not saying you
00:54:19.359 --> 00:54:21.670
can't have fun. I mean, you've come to
00:54:21.680 --> 00:54:24.630
our office, there's always uh there's
00:54:24.640 --> 00:54:26.390
always things going on, but it's the way
00:54:26.400 --> 00:54:29.109
you talk about food. It's the way you
00:54:29.119 --> 00:54:31.349
encourage people to join in and make
00:54:31.359 --> 00:54:33.270
people feel welcome, whatever stage
00:54:33.280 --> 00:54:34.790
they're at.
00:54:34.800 --> 00:54:36.790
>> So, I guess it's uh well, it sounds
00:54:36.800 --> 00:54:38.069
like, you know, employers clearly have
00:54:38.079 --> 00:54:40.470
their role to play, but um
00:54:40.480 --> 00:54:41.670
>> you know, none of this exists in
00:54:41.680 --> 00:54:44.230
isolation. And I guess it brings me to
00:54:44.240 --> 00:54:45.589
or makes me think about the broader
00:54:45.599 --> 00:54:47.510
picture of shared responsibility and
00:54:47.520 --> 00:54:50.790
connection which is exactly what eating
00:54:50.800 --> 00:54:53.270
disorder awareness week 2026 is going to
00:54:53.280 --> 00:54:55.910
be focused on. Um this year's theme of
00:54:55.920 --> 00:54:59.270
course being community. So for a range
00:54:59.280 --> 00:55:01.109
of reasons that we've kind of touched on
00:55:01.119 --> 00:55:02.710
eating disorders can be incredibly
00:55:02.720 --> 00:55:04.710
isolating.
00:55:04.720 --> 00:55:07.030
So as you see it, what is the
00:55:07.040 --> 00:55:09.750
significance of community uh to a person
00:55:09.760 --> 00:55:11.750
who's either struggling with or caring
00:55:11.760 --> 00:55:14.150
for someone with an eating disorder?
00:55:14.160 --> 00:55:16.390
>> Community is absolutely essential.
00:55:16.400 --> 00:55:19.910
>> Um so we know that having even if you
00:55:19.920 --> 00:55:22.630
just have one person, one person that
00:55:22.640 --> 00:55:24.950
you feel you can turn to, that you can
00:55:24.960 --> 00:55:25.990
trust,
00:55:26.000 --> 00:55:27.750
>> that can make a transformative
00:55:27.760 --> 00:55:30.309
difference in your recovery. And that
00:55:30.319 --> 00:55:32.309
can be uh we we think about communities
00:55:32.319 --> 00:55:35.109
sometimes as as family or friends and
00:55:35.119 --> 00:55:36.630
yeah absolutely they're great and
00:55:36.640 --> 00:55:38.549
they're vital but we're also talking
00:55:38.559 --> 00:55:40.950
about those communities beyond that. It
00:55:40.960 --> 00:55:43.829
might be your football team. It might be
00:55:43.839 --> 00:55:45.589
uh your I don't know your theater group
00:55:45.599 --> 00:55:49.910
or cinema group or um if it's my my for
00:55:49.920 --> 00:55:52.549
my daughter it's the sci-fi club at uni.
00:55:52.559 --> 00:55:55.109
Um that's where she found her people. Uh
00:55:55.119 --> 00:55:57.270
>> just out of interest what is she into
00:55:57.280 --> 00:55:59.109
sci-fi wise? We're talking Star Trek. we
00:55:59.119 --> 00:55:59.510
talking?
00:55:59.520 --> 00:56:01.270
>> Oh, no, no, no. It's much more. It's
00:56:01.280 --> 00:56:03.750
there's I You're going to have to I
00:56:03.760 --> 00:56:04.950
don't understand it entirely. There's
00:56:04.960 --> 00:56:07.190
roleplay games nowadays where it's kind
00:56:07.200 --> 00:56:10.950
of a blend of um Amdram Theater and
00:56:10.960 --> 00:56:12.789
Dungeons and Dragons is what I
00:56:12.799 --> 00:56:14.789
understand. Um so, yeah, that that's
00:56:14.799 --> 00:56:16.870
that's more her her bad.
00:56:16.880 --> 00:56:17.270
>> Okay.
00:56:17.280 --> 00:56:18.710
>> So, um but yeah,
00:56:18.720 --> 00:56:19.910
>> there's a whole there's a whole to be
00:56:19.920 --> 00:56:21.030
fair, there's a whole rabbit hole there
00:56:21.040 --> 00:56:22.470
with the whole dungeon. It's not it's
00:56:22.480 --> 00:56:23.589
not the work of a minute to explain
00:56:23.599 --> 00:56:23.910
that.
00:56:23.920 --> 00:56:25.430
>> No, but I I suppose that's the point,
00:56:25.440 --> 00:56:27.349
isn't it? is that our communities are
00:56:27.359 --> 00:56:31.190
the people uh and the organizations and
00:56:31.200 --> 00:56:33.750
the spaces in which we feel welcome and
00:56:33.760 --> 00:56:34.630
we feel safe,
00:56:34.640 --> 00:56:35.349
>> right?
00:56:35.359 --> 00:56:39.349
>> And I can guarantee 100% guarantee that
00:56:39.359 --> 00:56:41.109
if you are out there feeling alone,
00:56:41.119 --> 00:56:42.630
there will be other people out there
00:56:42.640 --> 00:56:45.589
that know you and understand you and can
00:56:45.599 --> 00:56:47.670
support you. So, we've got communities
00:56:47.680 --> 00:56:50.150
that we will create for you around a
00:56:50.160 --> 00:56:52.870
around an eating disorder, but just turn
00:56:52.880 --> 00:56:54.789
to the person next to you. turn to the
00:56:54.799 --> 00:56:56.789
person that you feel you can start to
00:56:56.799 --> 00:57:02.309
trust because they will help if asked.
00:57:02.319 --> 00:57:06.069
>> And so if somebody wants to be a better
00:57:06.079 --> 00:57:08.390
ally to a friend, a colleague, family
00:57:08.400 --> 00:57:10.870
member, partner, what's one thing you
00:57:10.880 --> 00:57:13.270
wish they understood about how to show
00:57:13.280 --> 00:57:13.990
up?
00:57:14.000 --> 00:57:17.990
>> Yeah. So I mean this comes directly from
00:57:18.000 --> 00:57:19.750
uh those those people with lived
00:57:19.760 --> 00:57:22.390
experience who are in recovery
00:57:22.400 --> 00:57:25.510
>> and almost
00:57:25.520 --> 00:57:30.710
all of them would say that they wished
00:57:30.720 --> 00:57:32.630
that someone had said something at the
00:57:32.640 --> 00:57:35.990
time that even if at the time they
00:57:36.000 --> 00:57:37.589
wouldn't have welcomed it and they might
00:57:37.599 --> 00:57:39.829
have got cross about it, they wished
00:57:39.839 --> 00:57:42.549
someone had said something because those
00:57:42.559 --> 00:57:45.030
that did have someone who there who did
00:57:45.040 --> 00:57:47.750
that just started that conversation. A
00:57:47.760 --> 00:57:50.150
lot of times that conversation sat with
00:57:50.160 --> 00:57:52.630
that individual and they were able to
00:57:52.640 --> 00:57:54.630
replay it and think about it and the
00:57:54.640 --> 00:57:56.390
next step for them was getting help.
00:57:56.400 --> 00:57:58.390
>> So for eating disorder awareness week we
00:57:58.400 --> 00:58:00.549
are launching a conversation guide how
00:58:00.559 --> 00:58:02.470
to how to start that conversation.
00:58:02.480 --> 00:58:04.150
>> Uh you don't have to be an expert, you
00:58:04.160 --> 00:58:05.030
don't have to be a clinical
00:58:05.040 --> 00:58:07.910
psychologist, you have to be interested,
00:58:07.920 --> 00:58:11.349
curious, you have to care. uh and
00:58:11.359 --> 00:58:13.910
opening up that conversation as I say
00:58:13.920 --> 00:58:15.910
for for many people it can be the
00:58:15.920 --> 00:58:17.910
difference between survival and not so
00:58:17.920 --> 00:58:20.710
if in doubt always ask
00:58:20.720 --> 00:58:24.630
>> if in doubt always ask love it so when
00:58:24.640 --> 00:58:27.430
you look ahead to 2030 what would that's
00:58:27.440 --> 00:58:29.750
the end of this strategic period what
00:58:29.760 --> 00:58:31.990
would success look like not just for
00:58:32.000 --> 00:58:34.390
beat but the uh the wider system of
00:58:34.400 --> 00:58:37.270
people supporting eating disorders wider
00:58:37.280 --> 00:58:38.710
system supporting people with eating
00:58:38.720 --> 00:58:39.750
disorders Sorry,
00:58:39.760 --> 00:58:41.190
>> it's it's this huge question. I mean,
00:58:41.200 --> 00:58:43.190
and I'm I am a bit of a dreamer on this,
00:58:43.200 --> 00:58:45.829
but uh what's absolutely possible by
00:58:45.839 --> 00:58:48.950
2030, let's say there's more than 1.25
00:58:48.960 --> 00:58:50.150
million people living with an eating
00:58:50.160 --> 00:58:52.470
disorder. There is absolutely no reason
00:58:52.480 --> 00:58:55.670
why every single one of those people
00:58:55.680 --> 00:58:57.030
should not be getting support,
00:58:57.040 --> 00:58:58.470
information, and advice suitable for
00:58:58.480 --> 00:58:59.589
them.
00:58:59.599 --> 00:59:01.990
>> And if you can do that, if you do that
00:59:02.000 --> 00:59:04.069
early enough, then we actually crack
00:59:04.079 --> 00:59:07.430
early intervention. So by 2030, I'd like
00:59:07.440 --> 00:59:09.829
to see that fire break starting to work
00:59:09.839 --> 00:59:12.309
to actually starting to see the fact
00:59:12.319 --> 00:59:14.230
that we are catching people at an
00:59:14.240 --> 00:59:17.270
earlier stage intervening with the right
00:59:17.280 --> 00:59:19.990
uh the right tools, giving them the
00:59:20.000 --> 00:59:22.309
space and the support so that we can
00:59:22.319 --> 00:59:24.630
actually get people well before they
00:59:24.640 --> 00:59:28.549
reach crisis. And for somebody that's
00:59:28.559 --> 00:59:30.789
listening that may be struggling [music]
00:59:30.799 --> 00:59:33.349
themselves
00:59:33.359 --> 00:59:35.670
>> or supporting somebody they love, what
00:59:35.680 --> 00:59:37.750
would you want them to hear today?
00:59:37.760 --> 00:59:41.030
So, if you're out there, whether it's
00:59:41.040 --> 00:59:43.270
whether you're just starting to be
00:59:43.280 --> 00:59:45.589
concerned about whether you may have a
00:59:45.599 --> 00:59:46.870
problem
00:59:46.880 --> 00:59:48.630
>> or whether you're facing down that
00:59:48.640 --> 00:59:50.549
incredibly difficult situation where you
00:59:50.559 --> 00:59:52.870
may be having a relapse, [music]
00:59:52.880 --> 00:59:56.069
there is help out there. And it may be
00:59:56.079 --> 00:59:57.510
that you've tried things before and it
00:59:57.520 --> 00:59:59.829
hasn't worked. That's on us. It's on us
00:59:59.839 --> 01:00:02.470
to find the [music] support that works
01:00:02.480 --> 01:00:04.950
for you. All we need you to do is to
01:00:04.960 --> 01:00:07.829
reach out and ask. So, I would say the
01:00:07.839 --> 01:00:10.150
beat helpline is [music] uh open every
01:00:10.160 --> 01:00:13.270
weekday. Uh our website is open 24/7 and
01:00:13.280 --> 01:00:15.109
has got loads of information. Our
01:00:15.119 --> 01:00:18.230
helpfinder, there's there's a ton of
01:00:18.240 --> 01:00:20.549
really brilliant small charities out
01:00:20.559 --> 01:00:23.510
there providing onetoone and face toface
01:00:23.520 --> 01:00:25.510
support. [music] Um and you can pop your
01:00:25.520 --> 01:00:27.510
postcode in and find uh find support
01:00:27.520 --> 01:00:29.589
local to you. But but keep asking.
01:00:29.599 --> 01:00:31.510
>> Never think that you're on your own
01:00:31.520 --> 01:00:34.150
because if you are in any doubt, I am
01:00:34.160 --> 01:00:36.630
here. My organization is here. There may
01:00:36.640 --> 01:00:38.789
only be 85 of us, but I mean, who needs
01:00:38.799 --> 01:00:40.549
more than 85 people? We're working on
01:00:40.559 --> 01:00:43.190
the case. So, challenge us to find you
01:00:43.200 --> 01:00:45.589
the help that you need.
01:00:45.599 --> 01:00:47.910
>> Love it, Vanessa. It's been an absolute
01:00:47.920 --> 01:00:49.670
pleasure. Thanks for joining the show.
01:00:49.680 --> 01:00:51.109
>> Thank you so much.
01:00:51.119 --> 01:00:52.630
>> If it's one thing to take away from this
01:00:52.640 --> 01:00:54.150
conversation, it's that support doesn't
01:00:54.160 --> 01:00:55.750
start with services, it starts with
01:00:55.760 --> 01:00:57.750
people. This has been Wellbeing Talk
01:00:57.760 --> 01:00:59.829
with myself, Matt Balffor, your guide to
01:00:59.839 --> 01:01:01.109
all things mental health in the
01:01:01.119 --> 01:01:02.870
workplace. Be sure to subscribe to the
01:01:02.880 --> 01:01:04.470
Let's Go Wellbeing YouTube channel and
01:01:04.480 --> 01:01:11.910
we'll connect on the next episode.
01:01:11.920 --> 01:01:15.892
So, Vanessa that terrible start.
01:01:15.902 --> 01:01:17.922
[laughter]