ABOUT THIS EPISODE
Amanda joins me on the show this month to deep dive into the life of the zebra - AKA invisible illness. I have an official diagnosis for a connective tissue disorder called Ehlers Danlos Syndrome (EDS). Amanda shares the same disorder just minus the official diagnosis, so this show really dives deep into the similarities and uniqueness people with chronic illness share.
We touch on all kinds of topics from being super bendy (but somehow also super stiff??), pushing through the pain and usually overdoing it, mental health and its connection to physical health, and the importance of clutter piles in our lives.
1 in 20 people have a rare disease - EDS is one of them, affecting an estimated 1 in 5000. It is also one of the most misunderstood and under-diagnosed disorders and having real conversations about the reality of living with it is a great way to help change that.
I also touch on my Everesting for EDS Fundraiser - I am raising $29,029 for EDS research this year while I prepare for the 29029 Everesting Event in Stratton Vermont this October (DONATE AND FOLLOW HERE!!).
I hope you enjoy this episode - it is one of my personal favorites!
