ABOUT THIS EPISODE
In this episode of TSC Now host Dan Klein is joined by Bruce Hainan and Jim Kotsailidis from Nobelpharma America, LLC and Shelly Meitzler, TSC Alliance Director of Outreach and Support, and mom to Ashlin and Mason with TSC. Shelly shares her experience looking for housing for her eldest daughter Ashlin, a dependent adult with tuberous sclerosis complex (TSC). She then shares the questions parents should ask when vetting potential housing options for their children. Bruce and Jim share additional resources parents can use to help them find the options available to them and talk about the work Nobelpharma is doing meeting with both residential housing facilities to educate them about TSC and with TSC clinics to develop heat maps of available resources and alleviate some of the burden parents shoulder when looking for options.
This episode is sponsored by Nobelpharma America LLC. The opinions expressed are those of the host and guest speakers individually and do not reflect the policies or positions of Nobelpharma. The following content is for informational purposes only. It is not medical advice and is not intended to recommend or suggest a course of treatment or treatment options. Be sure to talk to your doctor about your symptoms and conditions.
