ABOUT THIS PODCAST 🔗
with Vascular and Aortic Connective Tissue Conditions
Update frequency:
biweekly
Average audio length:
34 minutes
English
United States
65 episodes
since April 29, 2018
serial
IN THIS PODCAST 🔗
OLDEST EPISODE 🔗
Welcome to the first episode of Staying Connected!
I started Staying Connected as way to connect with other people diagnosed or impacted by vascular Ehlers Danlos Syndrome (vEDS).
In today’s episode, I talk to Bridgette, who was diagnosed in her early twenties following an angiogram that went ter…
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PREVIOUS EPISODES 🔗
In this episode I talk to Deborah, whose 9 year old son was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) at the age of five.
We hear about the road to diagnosis, changes they’ve made to his daily life, and coping strategies.
To learn more about Deborah’s books and to get one, visit http:…
Today I talk to Shannon, who was diagnosed with both the vascular and classical types of Ehlers Danlos Syndrome. She is just shy of 32 years old and has lived through 32 surgeries related to complications from EDS!
If you have vEDS, or have or lost a family member with vEDS, and want to be on this…
In this episode I talk to Annie, who was diagnosed clinically with vEDS at 8 years old and officially diagnosed at 14.
Annie is the first person I have met in person with vEDS and she is amazing! It is such a gift to be able to get to know her
If you have vEDS, or have or lost a family memb…
Aaron is 33 and was diagnosed a year and a half ago with vascular Ehlers Danlos Syndrome (vEDS). He tells us his story of diagnosis and events that he has experienced so far. He also tells us about his father’s story with vEDS, which was undiagnosed when he passed away two years ago.
This intervie…
Carla and her daughter Effie were diagnosed with vEDS after Effie was put into foster care for suspected abuse. It wasn’t until Effie and Carla got diagnosed with vEDS that Carla and her husband were able to get her back.
If you have vEDS, or have or lost a family member with vEDS, and want to be …
Brook had years of complications that pointed towards vEDS, or Vascular Ehlers Danlos Syndrome, but it wasn’t until his 40s that he was finally diagnosed. He has been through so much and his story is inspirational!
Stay tuned for more episodes on the last Sunday of every month!
…
Chrystal was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) along with her mother and brother. She has survived a pregnancy and is the last surviving member of her family who has vEDS. She was an inspiring person to talk to! <3
If you have vEDS, or have or lost a family member with vEDS,…
Emily was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) after a misdiagnosis of Classical EDS and the passing of her mother, who also had vEDS and was not properly diagnosed. Emily still finds joy in music, and continues to play for her mom. <3
If you have vEDS, or have or lost a family…
As a twist, in this episode my friend Becca asks me about my story!
If you want to check out what I’ve been up to, you can find links to my youtube and website below:
youtube.com/translucentone
translucentone.blog
Don’t forget to subscribe to this podcast to hear more patient stories with Vascu…
Disclaimer: The podcast and artwork embedded on this page are from Katie Wright, which is the property of its owner and not affiliated with or endorsed by Listen Notes, Inc.
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