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Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care during Terence's lifetime – and some of the  things that perhaps haven't. Kate discusses the importa…
The final part of our mini-series featuring Terence O'Rourke, in which he reflects on living with severe haemophilia A. In this episode, Terence discusses his approach to making decisions about treatment, and the importance of teamwork in both his working life and in relation to his haemophilia ca…
Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people. Helen leads an active life despite her condition and is a passionate advocate for the rare bleedi…
In part 4 of our mini-series in conversation with Terence O'Rourke, he reflects on changes in treatment for haemophilia and the arrival of Factor VIII.   Terence describes some of the prejudice he experienced as a person with haemophilia, and the faith his wife had in him. He also discusses the pr…
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