ABOUT THIS EPISODE
They told her she had an STD. She didn't. She had Hidradenitis Suppurativa (HS) a chronic, painful condition that took her 37 years to fully understand, and one that most doctors, hospitals, and even Social Security still get wrong.
In this episode of Disability Warriors, host Michael Liner sits down with Brindley Brooks, founder and CEO of HS Connect, the largest HS patient advocacy organization in the world. Brindley shares her own diagnosis story, why HS patients wait 7–10 years on average for a diagnosis, and why shame and stigma keep so many from ever seeking treatment.
Michael and Brindley also dig into what most people don't realize: HS can be severe enough to qualify for Social Security disability benefits, but the SSA's 2022 rule changes made that path harder than ever, in some cases requiring proof of mobility devices most doctors have never even prescribed for HS. If you or someone you love has been dismissed, misdiagnosed, or told to just 'push through it,' this conversation is for you.
Learn more and get involved: HSConnect.org
If HS or another invisible condition is affecting your ability to work, Liner Legal can help you understand your Social Security disability options. Visit https://linerlegalsurvey.com/
This podcast is for informational purposes only and is not legal or medical advice.
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