00:00:00.080 --> 00:00:03.200
Because I think some people might just think you're born with threats, threats started straight away.
00:00:03.359 --> 00:00:06.959
And just for both of you guys, like when you started noticing it being part of your life.
00:00:07.200 --> 00:00:09.519
I haven't heard your story actually from your point of view.
00:00:09.599 --> 00:00:10.560
I've just read a little bit of it.
00:00:10.640 --> 00:00:13.199
So I'd be curious to take a seat, little girl, I'll tell you.
00:00:13.679 --> 00:00:17.600
Um no, it's it's uh it's it's it does sit down again.
00:00:17.839 --> 00:00:20.000
It does make me nervous, and even Lucy made a point to me.
00:00:20.079 --> 00:00:22.399
She goes, I'd actually understand a little bit more if it was an adult.
00:00:22.559 --> 00:00:23.600
But he's a 13-year-old boy.
00:00:30.079 --> 00:00:31.600
And he still wasn't allowed on that flight.
00:00:34.719 --> 00:00:36.000
You go, girl, you get them out.
00:00:36.240 --> 00:00:37.600
But fuck off.
00:00:37.759 --> 00:00:41.759
I was obviously just not looking because I'm not a bastard, but we all have eyes.
00:00:42.000 --> 00:00:55.600
And I out of nowhere, out of nowhere, I thought I was just sitting down, minding my own business, drinking my pint while I watched the football, but at the top of my lungs, I went, I came here for a titwank.
00:00:56.640 --> 00:01:00.560
Welcome back to cutting clothes with me, Josh Hughes, aka the Tourette's barber.
00:01:00.640 --> 00:01:02.240
And me, Queelon, the special Irish fella.
00:01:02.399 --> 00:01:05.359
This is Cut and Close, where we have real conversations, interesting guests.
00:01:05.519 --> 00:01:09.680
And we take nothing too seriously, and every conversation hits a little fucking close.
00:01:09.920 --> 00:01:10.959
Right, let's get into it.
00:01:11.040 --> 00:01:11.519
Let's do it.
00:01:12.560 --> 00:01:16.480
And if you want to support us on this pod, please like and subscribe wherever you're watching this.
00:01:16.560 --> 00:01:19.040
It fucking goes a long way for us, and we're already trying.
00:01:19.200 --> 00:01:20.000
God loves to try.
00:01:21.200 --> 00:01:21.519
Okay.
00:01:22.959 --> 00:01:27.519
So we've got a great show on today, and it was our pleasure to introduce our wonderful guest this week.
00:01:27.680 --> 00:01:32.480
Um and as it's Tourette's aware this month, um, just we couldn't get lucky with the guests we've got.
00:01:32.560 --> 00:01:36.079
Our guest today is one of the biggest online advocates for Tourette's worldwide.
00:01:36.159 --> 00:01:37.200
I'm gonna gas you up.
00:01:37.359 --> 00:01:41.760
Uh, an all-round good fuck! She's got me going, an all-round good person.
00:01:42.079 --> 00:01:48.719
Um not only is she known for having Tourette's online, but she's also in one of the top ten most followed people on TikTok, which is fucking incredible.
00:01:48.879 --> 00:01:52.319
So to welcome on Eve Eevee Meg, aka Trippy Hippie.
00:01:52.560 --> 00:01:53.599
Hi, here she is.
00:01:54.079 --> 00:01:55.280
Fucking bitch.
00:01:55.920 --> 00:01:58.159
Oh, don't thanks for coming on, my suite.
00:01:58.319 --> 00:02:00.319
I know you've taken the time to come down.
00:02:00.879 --> 00:02:07.439
A fairly we've been wanting to do it for a while, so yeah, we've been in talks about this, but it only we only managed to sort it out literally like a week ago, didn't we?
00:02:07.519 --> 00:02:07.760
Not even.
00:02:08.000 --> 00:02:09.199
I don't think I think it was like two days ago.
00:02:09.280 --> 00:02:10.319
It was about three days ago.
00:02:11.360 --> 00:02:22.960
It just ended up happening, but so it so Eevee and I have met before, and just for the lit just for the listeners and the watchers, obviously we've both got to rett, so it is going to be probably a little bit loud today, but do you know what?
00:02:23.039 --> 00:02:24.639
Fucking shut up and listen.
00:02:24.879 --> 00:02:27.919
Um yeah, so Eve and I met properly for the first time.
00:02:28.080 --> 00:02:28.560
Was it this year?
00:02:29.120 --> 00:02:29.919
Kind of briefly.
00:02:30.159 --> 00:02:31.759
No, it was la it was the end of last year.
00:02:32.000 --> 00:02:34.159
End of last year at the icewear premiere.
00:02:34.400 --> 00:02:36.319
Yeah, it was September, October.
00:02:36.719 --> 00:02:37.520
Was it that long already?
00:02:37.759 --> 00:02:38.719
It's been a while ago since you were.
00:02:38.879 --> 00:02:40.000
Yeah, I forgot it was that long ago.
00:02:40.080 --> 00:02:41.360
Um even then was quite brief.
00:02:41.599 --> 00:02:42.960
But we've been mutuals for a while now.
00:02:43.199 --> 00:02:43.680
Yeah, definitely.
00:02:43.919 --> 00:02:46.479
Lots of online activity, that sounds wrong.
00:02:46.719 --> 00:02:53.680
But yeah, no, so we've known each other for a while, and obviously a lot anyone in the threats community, fuck you and your mum, knows you, right?
00:02:53.840 --> 00:02:59.039
And I've a bit like myself, where you kind of put yourself out of line, but you've obviously how long have you actually been doing it now?
00:02:59.759 --> 00:03:02.479
Um, well, I got TikTok ten years ago now.
00:03:02.800 --> 00:03:03.199
Jesus.
00:03:03.360 --> 00:03:05.280
Um, but it was it was musically back then.
00:03:05.439 --> 00:03:05.840
Fuck you.
00:03:06.080 --> 00:03:06.479
Of course.
00:03:06.639 --> 00:03:07.120
That was the same thing.
00:03:07.439 --> 00:03:08.479
It was musically musically.
00:03:09.039 --> 00:03:09.599
I didn't actually know that.
00:03:09.840 --> 00:03:09.919
Yeah.
00:03:10.159 --> 00:03:11.840
Well, yeah, because then China bought it.
00:03:12.000 --> 00:03:12.960
China, China.
00:03:13.120 --> 00:03:14.080
And made in.
00:03:14.400 --> 00:03:15.759
And named it TikTok.
00:03:15.919 --> 00:03:16.960
And then it switched it.
00:03:17.199 --> 00:03:18.000
But it was musical, yeah.
00:03:18.080 --> 00:03:19.759
So it's the same app, they just gave it a different name.
00:03:19.919 --> 00:03:21.039
Cunt chicken.
00:03:21.439 --> 00:03:22.000
Fair enough.
00:03:22.080 --> 00:03:23.280
And what was the reason you started initially?
00:03:23.360 --> 00:03:25.039
Was it to spread awareness for Twitter threads?
00:03:25.120 --> 00:03:27.280
Or was it just because you wanted to start something that went from there?
00:03:27.599 --> 00:03:29.599
No, I was actually doing sign language videos.
00:03:30.000 --> 00:03:38.080
So I got it and I downloaded it when I was at college and I was having a really bad time at college, and I was like really shy and self-conscious.
00:03:38.400 --> 00:03:45.840
And so I got this new um social media, and I was like, this is great, like nobody really follows me, it's very like quiet.
00:03:46.159 --> 00:03:48.560
I don't really know anyone, I can just do my own thing.
00:03:48.719 --> 00:03:58.639
And I was I was doing sign language, so I was just like practicing it there, and then didn't mention anything about ticks, none of my health issues um till like a couple years in, I think.
00:03:58.719 --> 00:03:59.759
Okay, fair chicken.
00:03:59.919 --> 00:04:01.520
And then when did you notice it started blowing up?
00:04:01.680 --> 00:04:06.319
Because obviously you and Josh both probably spreading what spread most of the awareness for Trett in the UK now, probably.
00:04:07.039 --> 00:04:07.759
In different ways, but yeah.
00:04:08.080 --> 00:04:12.400
Blow around trumpets, maybe, but there's a lot of there's so many people out there doing it.
00:04:12.479 --> 00:04:19.600
I think it's I feel bad for some people because I think they really want it to blow up, and I'm not saying that everyone is going to, it doesn't necessarily mean that at all.
00:04:19.680 --> 00:04:24.959
But when you did it at the start, you didn't do it, you were doing it to almost people out there just to see how help you deal with it.
00:04:25.279 --> 00:04:29.360
Well, for me, when it came to like putting myself out of there, we used that account actually a shop account, right?
00:04:29.519 --> 00:04:29.759
For H.
00:04:30.959 --> 00:04:33.040
And then I posted a couple of haircut videos.
00:04:33.120 --> 00:04:34.879
I think two the first two did really well.
00:04:35.040 --> 00:04:36.399
Like fuck you, Angela Mum.
00:04:36.639 --> 00:04:40.399
A couple of hundred thousand views, but then we posted one with Little Harry and it just went mental.
00:04:40.560 --> 00:04:46.000
But that was all off the back of Lucy saying to me, Josh, why don't you show how you work with your when your threats is bad?
00:04:46.560 --> 00:04:47.680
And it just went from there.
00:04:47.759 --> 00:04:49.439
But was that similar with you?
00:04:49.600 --> 00:04:52.879
Like, was there one specific video that sent it mental online then?
00:04:53.199 --> 00:04:56.560
There was one in 2018 and kind of on topic for you.
00:04:56.639 --> 00:04:59.040
I don't know if you've addressed this on here or not, your legs.
00:04:59.199 --> 00:04:59.680
Have you got a lot of things?
00:05:00.000 --> 00:05:00.480
I have, yeah.
00:05:00.560 --> 00:05:02.720
I mean obviously all my socials I have, but yeah.
00:05:02.800 --> 00:05:09.680
So in in 2018 when my legs weren't working, I posted a video of me like kind of getting my legs back and walking across the kitchen.
00:05:10.240 --> 00:05:20.399
And that was like that was like my first that was like my first um viral video in 2018 was me just kind of hobbling along the kitchen.
00:05:20.879 --> 00:05:22.879
Um It's weird to think about it like that.
00:05:23.279 --> 00:05:27.040
See, it's it's obviously like it's amazing that you put yourself out there.
00:05:27.519 --> 00:05:32.879
But then isn't it a bit mad when people do become fascinated with something that actually is really hard to put yourself out there for?
00:05:33.040 --> 00:05:36.480
But then people appreciate and respect the sharing of your story, right?
00:05:36.800 --> 00:05:42.240
Well, people find like things that are different or a bit kind of odd, I guess you would say.
00:05:42.319 --> 00:05:58.800
They find it really interesting, they probably don't want to admit it, but like I think it's the reason that like I'm pretty sure there was at one point where like the hashtag Tourette's on TikTok had like over a billion views, and I think it's because people were just so like fascinated in something that was really like unusual and different.
00:05:59.439 --> 00:06:00.319
I think you're 100% right.
00:06:00.399 --> 00:06:04.879
I think there is that kind of fascination, especially with the uncontrollable side and the swearing.
00:06:05.040 --> 00:06:11.759
Fuck which is definitely like and again, I think most of the people think that that is Tourette's if the stereotype is that you must swear and you can't control yourself.
00:06:11.839 --> 00:06:15.839
Yeah, but that's just uh and people finding it really like hilarious as well.
00:06:16.079 --> 00:06:16.399
Exactly.
00:06:16.480 --> 00:06:23.759
And I don't mind personally, I don't know about you, I don't mind when people find it funny because I'd rather them find it funny and acknowledge it rather than act like it hasn't happened.
00:06:23.920 --> 00:06:24.160
Yeah.
00:06:24.480 --> 00:06:27.120
Because I can't stand when people try and act like it hasn't been said.
00:06:27.439 --> 00:06:36.480
No, I prefer to be around people who have a sense of humour rather than like me saying stuff that I'm like myself giggling at, and then they're sat there like really kind of straight faced.
00:06:36.560 --> 00:06:37.439
I find that really awkward.
00:06:37.839 --> 00:06:48.959
The only thing that does bother me is like there was a TikTok that went out a few months ago, and it was these two girls, and it looked like they were on like a podcast like this, and one of them said, What's the like what did she say?
00:06:49.120 --> 00:06:50.639
What's the most desirable condition?
00:06:50.720 --> 00:06:51.279
Do you see this?
00:06:51.439 --> 00:06:53.279
If you could have a neurological condition, what would you have?
00:06:53.360 --> 00:06:54.079
It's your Tourette.
00:06:54.480 --> 00:06:56.480
Tourette's and then she did an impression of a tick.
00:06:56.800 --> 00:06:59.199
I just no that that's piss take, personally.
00:06:59.360 --> 00:07:06.959
I mean, there's you could talk about Tourette's if you're talking about it with some sort of respect, and I but I I I saw that video and I've seen it quite oh jeez.
00:07:07.279 --> 00:07:07.680
Sorry.
00:07:07.920 --> 00:07:11.360
Oh little Red Riding Hood.
00:07:11.519 --> 00:07:13.279
Um loved her tits.
00:07:14.000 --> 00:07:14.800
Yeah, man.
00:07:15.439 --> 00:07:16.879
What was the question?
00:07:17.199 --> 00:07:20.560
Um you were talking about how the girls on the podcast were impersonating.
00:07:22.000 --> 00:07:22.639
Yeah, that was weird.
00:07:23.519 --> 00:07:24.800
No, I was talking, sorry, I went back to you.
00:07:25.120 --> 00:07:25.839
It was your conversation.
00:07:26.319 --> 00:07:28.560
Yeah, it was weird because lesbians.
00:07:28.800 --> 00:07:30.399
But you also struggled with that with your comments.
00:07:30.480 --> 00:07:34.720
You got that quite a lot with a lot of girls commenting things like I wish my boyfriend had Tourette's not seen.
00:07:36.240 --> 00:07:43.920
Because I actually don't get a lot of I don't get a lot of hate online, but it is that sort of maybe misunderstood questions where they're like, I wish my boyfriend had to do it.
00:07:44.079 --> 00:07:52.399
If there's like one thing for like you two both, for people out there who don't know much about Tourette's, what do you think it makes easier for people to deal with and maybe not come across offensive?
00:07:52.560 --> 00:07:54.480
Like, what would you want people to know?
00:07:55.120 --> 00:07:56.800
I'll let you go first if you want.
00:07:57.839 --> 00:07:58.560
Ladies first?
00:08:00.560 --> 00:08:02.560
There's like there's like loads of it, I suppose.
00:08:02.720 --> 00:08:07.839
Like I think people think of it as like the really funny condition, which obviously it can be.
00:08:07.920 --> 00:08:09.040
Like, we're very good at having a laugh.
00:08:09.199 --> 00:08:09.680
You have to look at it.
00:08:10.800 --> 00:08:11.680
If you don't laugh, you cry.
00:08:12.000 --> 00:08:13.360
I'm happy to have a laugh about it.
00:08:13.680 --> 00:08:19.759
But then I think people don't think about like for example, the uncomfortable feeling in your body, whatever the tick may be.
00:08:20.399 --> 00:08:24.399
Like, like even sat here, I can like feel it in my legs, my stomach, my eyebrows.
00:08:24.480 --> 00:08:26.399
Like, I can feel it a lot of the time.
00:08:26.720 --> 00:08:35.360
And I think people probably don't think about that side of things of like literally feeling okay, I have to move, otherwise it feels like I don't know.
00:08:35.440 --> 00:08:43.120
For example, if I have a a tick that feels like it's gonna be in my arm, it feels like I have to move it, otherwise it's like I'm gonna just drop off or something.
00:08:43.600 --> 00:08:47.120
Yeah, I I don't know if I had the same sort of build-up like you do from what you're saying.
00:08:47.200 --> 00:08:58.559
So I don't like again, I'm not maybe as physical as yourself, those ticks, but I did when I was younger, and when I'm thinking about when I was younger, did I did I feel like I kind of got the urge of what was coming?
00:08:58.720 --> 00:08:59.440
I don't think so.
00:08:59.519 --> 00:09:01.360
Like, and I've never been able to suppress either.
00:09:01.679 --> 00:09:04.480
So with suppression, I find it a little bit weird.
00:09:04.559 --> 00:09:09.519
But going back to your question, with if we could say anything, I reckon there's a couple of points.
00:09:10.320 --> 00:09:15.360
I reckon it's a mixture of it's all fun and games, like we just kind of said, but I've got to go home with this.
00:09:15.519 --> 00:09:17.840
When once I leave you, you don't have to think about it.
00:09:17.919 --> 00:09:23.279
Yeah, we it's constantly with us, and my brain is like a fucking bouncy ball when I'm terrestrial is really bad, it's just constant.
00:09:23.440 --> 00:09:31.679
Yes, but then also this is something that I think, especially after a few situations that have happened with the BAFTAs and and even more recently, with a few other things.
00:09:33.120 --> 00:09:34.639
I nice feet.
00:09:34.879 --> 00:09:40.320
I think people don't realise that we are not actively thinking about what's just come out of our mouths.
00:09:40.480 --> 00:09:43.919
We're not thinking when I'm not sitting there thinking, don't say it, don't say it.
00:09:44.240 --> 00:09:44.879
It's not like that.
00:09:44.960 --> 00:09:50.879
It's a case of literally I hear it like you would hear it coming out coming out of like I didn't know that actually was a thing until I met you.
00:09:51.039 --> 00:09:53.600
Because I remember there's sometimes you'd almost hear what you said after you've said it.
00:09:53.679 --> 00:09:55.679
Yeah, I'd even have to ask sometimes, so what did I say?
00:09:56.000 --> 00:09:57.279
Because I've it's I've not paid attention.
00:09:57.519 --> 00:09:58.240
I do that all the time.
00:09:58.320 --> 00:10:01.440
Yeah, hello, even again, like when they're just doing that, like sorry, what was I just talking about?
00:10:01.519 --> 00:10:02.879
Because it's just so distracting.
00:10:03.120 --> 00:10:11.200
Yeah, you're almost losing your train of thought in the process, and even so I I picked Evie and my m up to come here today from from around the corner, and even Eve said, like, oh, so how do you get on driving?
00:10:11.279 --> 00:10:22.240
I was like, it is really hard to have a conversation, remember where you're driving, uh, as well as driving, yeah, uh and remember what you're doing out and with ticks as well.
00:10:22.320 --> 00:10:30.639
So it's not like I can't handle it, I definitely can, but it is fucking hard work at times to be multitasking when your brain is basically trying to fucking throw you off course all the time.
00:10:30.720 --> 00:10:34.879
And I don't mean in the car disclaimer, I don't mean throw me off the road, I mean as my brain.
00:10:34.960 --> 00:10:36.080
Yeah, I felt safe for the car.
00:10:36.399 --> 00:10:37.679
I do get often comments about my driving.
00:10:38.080 --> 00:10:39.679
Josh is a psychotic driver.
00:10:40.240 --> 00:10:47.039
I didn't notice that is absolutely not true, but I did not notice he's used to driving tractors on Irish roads.
00:10:47.440 --> 00:10:48.799
Fucking oh well, there you go.
00:10:48.960 --> 00:10:50.480
Yeah, snail peas, 24-7.
00:10:50.639 --> 00:10:51.200
Josh is the opposite.
00:10:51.440 --> 00:10:52.799
It's basically a white hillbilly.
00:10:53.039 --> 00:11:01.120
It is interesting though, seeing like different cases of Tourette's because some people can't drive because of their Tourette's, and some people can drive and they don't tick when they drive like at all.
00:11:01.360 --> 00:11:14.159
Whereas obviously you still tick when you drive, but it's not something that you're like, see, one of my ones that used to be worse was actually every time I saw a big lorry, I used to put my hand and go pin pew, pimp pin, all the big lorry drivers whilst driving.
00:11:14.399 --> 00:11:14.559
Yeah.
00:11:15.360 --> 00:11:15.919
Do you know what though?
00:11:16.320 --> 00:11:18.159
I don't, you know, fuck the DVLA.
00:11:19.840 --> 00:11:21.919
As long as I know I'm safe and I'm being safe.
00:11:22.240 --> 00:11:24.799
But if I know I can't drive when I shouldn't, I won't do it.
00:11:25.039 --> 00:11:25.600
Do you know what I mean?
00:11:25.679 --> 00:11:26.720
I'm not like reckless.
00:11:26.879 --> 00:11:31.840
If I really can't say control of my hands, or oh, I feel a bit all over the shelf, I wouldn't drive that day.
00:11:32.559 --> 00:11:35.600
Yeah, I don't think I could I don't think I could drive with my Tourette.
00:11:35.919 --> 00:11:39.200
No, like again, I think it's the physicality, right?
00:11:39.360 --> 00:11:39.840
For you.
00:11:40.559 --> 00:11:48.320
Yeah, so I do have motor ticks, so the reason why I couldn't like learn to drive in the beginning was because I started having seizures when I was 16.
00:11:48.480 --> 00:11:52.080
Obviously, you learn when you're 17, so I could I've never been able to even have a lesson.
00:11:52.159 --> 00:11:59.440
But then my best friend has this like driving simulator on his um cunt on his PC, and he's got like the wheel, the pedals, everything.
00:11:59.840 --> 00:12:00.480
He's comfortable.
00:12:00.960 --> 00:12:03.919
So I absolutely love it when I go to his house and we try it.
00:12:04.240 --> 00:12:12.960
But when I was trying it, I'd be like driving, and then I'd like get stuck doing this, or my eyes would close and I'm just like, Well, now I've got to like pause the game.
00:12:13.200 --> 00:12:21.679
But if my head, I sometimes have moat ticks where I'm just doing this, and that could last like a good 20 seconds, and obviously if I'm driving, like yeah, that's no joke.
00:12:22.000 --> 00:12:22.639
No, it's not.
00:12:22.879 --> 00:12:28.559
No, I've got that, and it is a shame because it it it must you must feel like it holds your back, but it is it unfortunately it is what it is, isn't it?
00:12:28.639 --> 00:12:31.120
Yeah, it's a safety thing at the end of the day, isn't it?
00:12:31.360 --> 00:12:34.559
Yeah, I'll just be passenger princess for as long as I need to be.
00:12:34.879 --> 00:12:35.600
Cat chicken.
00:12:35.759 --> 00:12:35.919
Yeah.
00:12:36.399 --> 00:12:38.240
That is a lovely lad this time of year.
00:12:38.480 --> 00:12:50.720
So I was gonna say with Tourette's as well, because I don't even think you've talked about what where your Tourette started and how it happened originally, and obviously, because of Tourette's awareness might be good for people to know kids because I think some people might just think you're born with Tourette, Tourette started straight away.
00:12:50.879 --> 00:12:54.399
And just for both of you guys, like when you started noticing it being part of your life.
00:12:54.720 --> 00:12:57.039
I haven't heard your story actually from your point of view.
00:12:57.120 --> 00:12:58.960
I've just read a little bit of it, so I'd be curious to do.
00:13:01.200 --> 00:13:05.279
Um no, it's it's it's it's it does sit down again.
00:13:05.519 --> 00:13:08.320
Sorry, right, let's talk on a damn hall in a dream.
00:13:08.720 --> 00:13:12.960
Um yeah, so for me, it was a case of it sounds really dramatic.
00:13:13.120 --> 00:13:23.279
I was on a I was 14 and a half, I was on a school ski trip in Italy, and it was the second to last day of this ski trip, and I'd fallen over.
00:13:23.519 --> 00:13:27.039
Not a big thing, I didn't register it as a big accident or anything.
00:13:27.120 --> 00:13:41.840
Yeah, but come the next day, our last day of skiing, we were on a ski lift and it was a fairly long one that was like four or five minutes coming up, and I started basically out of nowhere convulsing from a pain that I was feeling in my back.
00:13:42.080 --> 00:13:42.879
Did you hit your head?
00:13:43.519 --> 00:13:47.600
So that's what I couldn't tell you 100% if I hit my head the day before, but I must have done something.
00:13:47.840 --> 00:13:51.919
So they reckon that it could have been a spinal cord injury that triggered something in the back of my brain.
00:13:52.159 --> 00:13:57.679
But I always seem to think that I knew I think I always had it, but it wasn't triggered until that point.
00:13:57.840 --> 00:13:59.360
But they can't tell me that for sure.
00:13:59.600 --> 00:14:01.440
But that's what I personally deep down believe.
00:14:01.759 --> 00:14:05.360
I've heard of that before, where it's just kind of lying dormant and then something triggers it.
00:14:05.600 --> 00:14:09.519
But then I've also had moments throughout my life when my ticks have like lied dormant for a long time.
00:14:09.679 --> 00:14:11.840
Well, yeah, when I was about 18, fuck.
00:14:12.000 --> 00:14:13.200
Yeah, waxing and waiting, yeah.
00:14:13.279 --> 00:14:13.360
Right.
00:14:13.840 --> 00:14:20.799
But when I was like 19, my ticks went really quiet for not like not like a whole year of silence, but I borderline almost forgot I had to rettes.
00:14:20.960 --> 00:14:24.639
And then it came, I think can't remember how maybe around 20, it came back again.
00:14:24.720 --> 00:14:29.279
And then when I started my barbering career at like 21, it kind of was a bit quieter as well.
00:14:29.440 --> 00:14:31.519
Yeah, when I first met you, you didn't take much at all to be careful at the time.
00:14:31.600 --> 00:14:31.679
Yeah.
00:14:31.919 --> 00:14:32.639
It was later on again then.
00:14:32.879 --> 00:14:35.759
But it really has waxed away for me where I I've met people that didn't even realise.
00:14:36.000 --> 00:14:39.600
And I didn't actually at the time have to tell them because it wasn't a big issue, but then it became bad again.
00:14:39.919 --> 00:14:40.320
Big issue.
00:14:40.639 --> 00:14:41.120
Fuck.
00:14:41.279 --> 00:14:42.320
Read all about it.
00:14:42.480 --> 00:14:42.960
Right.
00:14:43.440 --> 00:14:45.919
Yeah, and then for you, when did you kind of start?
00:14:46.399 --> 00:14:48.000
I didn't have anything dramatic like that.
00:14:48.080 --> 00:14:57.200
It was just like super slow, slow onset with like started with maybe one or two ticks and then I was kind of about the same age as you actually.
00:14:57.519 --> 00:15:07.120
So yeah, and I think you hear about how some people can start showing signs of ticks when they're like three or four.
00:15:07.440 --> 00:15:10.559
And I we weren't one of the we weren't one of those people.
00:15:10.799 --> 00:15:11.120
No.
00:15:11.360 --> 00:15:19.840
Um, so I was in school, and they do say that like Tourette's can be uh can become like prominent around puberty.
00:15:20.080 --> 00:15:20.320
Hello.
00:15:20.799 --> 00:15:22.159
And I do think that that plays.
00:15:22.639 --> 00:15:24.240
Well it's it's the brain industry, isn't it?
00:15:24.480 --> 00:15:27.519
I think there is something to like there is something with that, definitely.
00:15:27.840 --> 00:15:28.159
Yeah.
00:15:28.879 --> 00:15:29.200
Yeah.
00:15:29.360 --> 00:15:40.480
So I was at school and my first one, um, well, what I think was my first one, just sounded like a hiccup, but I had it like a lot, like so many times a day.
00:15:40.799 --> 00:15:46.159
And then kind of like what I'm doing now with my legs, I remember them just jumping under the desk, not showing off.
00:15:46.399 --> 00:15:48.159
Not obviously as much as I'm doing now.
00:15:48.320 --> 00:15:53.200
Um, but it would just be like not not even like once a day, it was just every now and then.
00:15:53.679 --> 00:15:55.679
And then uh beads on.
00:15:58.639 --> 00:16:03.360
There's the beads on your very side caught they caught my eye, and then that was what it Oh god.
00:16:03.519 --> 00:16:05.440
Sorry, I stopped your mid-flow there.
00:16:05.919 --> 00:16:07.120
Yeah, I was like up.
00:16:07.600 --> 00:16:22.480
Um and then when I was 16 and I was at college, they got worse again, and it was like clapping and more motor ticks, and then when I was 18 they got worse again, and then when I was 20, they got worse again, so it was kind of just like slow progression, very, very slow, yeah.
00:16:22.639 --> 00:16:22.960
Hey!
00:16:23.200 --> 00:16:26.000
And do you ever have times when it levels out or is it kind of constant?
00:16:26.559 --> 00:16:31.919
Um no, I have much, I have much, much better periods, especially if I'm like can't chicken.
00:16:32.639 --> 00:16:35.120
Um I'm trying to think.
00:16:35.279 --> 00:16:39.600
There's like certain things where I do where I just don't tick at all, and I'm sure you're the same.
00:16:39.759 --> 00:16:44.000
Like if I'm on the sofa with pillows and blankets, I can basically they can just sit there.
00:16:44.399 --> 00:16:48.720
I've seen you post those videos, you look so cozy when you get yourself all snuggled up.
00:16:48.879 --> 00:16:51.759
But I think it is putting yourself in those positions where you know it's gonna help.
00:16:51.840 --> 00:16:51.919
Yeah.
00:16:52.080 --> 00:16:53.200
But again, I'm probably similar.
00:16:53.279 --> 00:16:54.879
That it's probably the best place to be, is on the sofa.
00:16:55.279 --> 00:16:56.480
It's cutting hair a lot of the time.
00:16:56.639 --> 00:16:59.840
Yeah, I yeah, when I'm cutting hair, it's actually I think it's the distraction as well.
00:16:59.919 --> 00:17:03.440
And I think we spoke about this before we came on that you do a lot of painting and stuff like that as well.
00:17:03.600 --> 00:17:05.759
Getting creative can also be really good for it, right?
00:17:06.000 --> 00:17:10.880
Yeah, so I'm an artist, and like people say to me, Oh, like, how are you an artist with Tourette's?
00:17:10.960 --> 00:17:14.240
Don't you just like scribble on it or rip it up or paint all over it?
00:17:14.319 --> 00:17:16.000
And I'm like, no, I don't think I've ever done that with this.
00:17:16.240 --> 00:17:24.960
This is that kind of stigma though of not fully understanding it though, because the brain is such a weird and complicated place to be, yeah, that actually sometimes it kind of works in your in your favour.
00:17:25.200 --> 00:17:30.000
Where yeah, if you hone in on something, fuck off.
00:17:30.160 --> 00:17:31.359
You can you can get it done.
00:17:31.839 --> 00:17:47.759
There's also what something else I wanted to say before we carry on talking, is obviously I think Evie and I are actually bouncing off each other quite a lot with our ticks, so it just because I'll even I want to make clear that I might not be as ticked as normal, but again, because when you meet someone with tourette, so I don't know if you found this, yeah, you tend to really it gets worse because you're with someone else.
00:17:48.000 --> 00:17:50.640
I mean, yeah, the I Swear premiere was like chaos.
00:17:50.799 --> 00:17:53.119
Hey! We sounded like a room full of birds.
00:17:53.599 --> 00:17:55.359
It was like a fucking domino effect, wasn't it?
00:17:55.440 --> 00:17:58.480
Yeah, but it was that was so um uh such an unbelievable feeling.
00:17:58.559 --> 00:18:03.920
I don't know if you felt the same that everyone with tourette's got together and it was fucking noisy trying to watch a film.
00:18:04.160 --> 00:18:14.880
But it was just but everyone knew that they everyone was fine, everyone's in a comfortable setting with people that understand, and there was something really beautiful about that.
00:18:14.960 --> 00:18:15.440
Yeah, yeah.
00:18:15.599 --> 00:18:20.880
Um no, I loved it so much, especially because cinemas are such a difficult place for people with Tourette's anyway.
00:18:21.200 --> 00:18:26.240
Like all of us going there knowing that it would that it like would have been a safe space.
00:18:26.480 --> 00:18:28.160
I think there's like something really special about that.
00:18:28.400 --> 00:18:32.799
100% and celebrating the film I swear in general is just mad.
00:18:32.960 --> 00:18:38.799
Like what what is what have you found your response the response in your point of view after after the film coming out?
00:18:39.039 --> 00:18:40.319
What like the public's response?
00:18:40.480 --> 00:18:41.920
Yeah, public or people or friends.
00:18:43.119 --> 00:18:50.720
I mean, everyone that I spoke to that has seen it has had such like has had such high praise for it.
00:18:50.880 --> 00:18:57.839
My um my grandparents went to see it, which I was worried about because of the language in it and fuck them.
00:18:58.160 --> 00:18:59.200
Um and their mums.
00:19:00.880 --> 00:19:07.039
And when I'm around my grandparents, my grandma and granddad, I don't tick very much, and I don't really know why that is.
00:19:07.119 --> 00:19:13.440
They see a lot of motor ticks and stuff, but I don't think they've heard the full extent of my coprolalia, which is the swearing ticks.
00:19:13.680 --> 00:19:14.319
Can't chicken.
00:19:14.559 --> 00:19:16.799
Can't you are what you eat.
00:19:17.200 --> 00:19:18.720
I was really worried about them seeing it.
00:19:19.440 --> 00:19:24.000
But when we picked them up from the cinema afterwards, they got in the car, and I was like, What did you think?
00:19:24.160 --> 00:19:27.599
And my grandma pointed at my granddad and went, He cried the whole film.
00:19:27.759 --> 00:19:31.759
Oh and like it hit them really, really hard.
00:19:31.920 --> 00:19:32.960
They they loved it.
00:19:33.519 --> 00:19:34.240
Chicken.
00:19:34.400 --> 00:19:37.839
Um, but it is quite a hard-hitting film as well.
00:19:38.000 --> 00:19:38.240
Definitely.
00:19:38.480 --> 00:19:40.799
I think Tourette's or no Tourette's it's a it's an incredible film.
00:19:40.880 --> 00:19:41.039
Yeah.
00:19:41.279 --> 00:19:45.680
Like it's just I think that's that's the whole point of it, right?
00:19:45.759 --> 00:19:48.480
I mean, I was gonna say I loved it, yeah.
00:19:48.720 --> 00:19:52.240
Well, my mum texted straight away saying like she sat there and cried for the entire film.
00:19:52.319 --> 00:19:52.799
Do you know what I mean?
00:19:52.880 --> 00:19:53.759
It was even I was the same.
00:19:53.920 --> 00:19:56.960
I'm sitting there tearing up, and obviously, you see, because it must be so difficult.
00:19:57.119 --> 00:20:04.880
Obviously, now it's still difficult to live with Tourette's imagination, but going back to that place where nobody knew what it was, and people were viewing people with dress completely differently.
00:20:05.119 --> 00:20:09.680
And hopefully, because like you guys, what you do with your social media, hopefully 20 years' time would be the next step.
00:20:10.160 --> 00:20:14.160
Yeah, and hopefully, the more awareness you spread, it'll kind of be the same thing where it's just not hope so.
00:20:14.240 --> 00:20:16.240
I mean, I don't know if it'd be the same, but I really do hope so.
00:20:16.319 --> 00:20:18.400
But I think unfortunately that the job is never done.
00:20:18.640 --> 00:20:20.079
Yeah, it feels like that, doesn't it?
00:20:20.240 --> 00:20:22.640
That brings us nicely on to our another thing we wanted to bring up.
00:20:22.720 --> 00:20:24.880
Um, for some of you that don't know, you might not have seen the story.
00:20:24.960 --> 00:20:26.160
I have posted it on my socials.
00:20:26.400 --> 00:20:32.319
Oh no, it's been quite a big thing about this young lad with Tourette's who him and his family got um killed.
00:20:32.640 --> 00:20:37.119
He wasn't allowed on a British Airways flight because he's got Tourette's.
00:20:37.200 --> 00:20:46.720
And they would the the the company the BA have said it wasn't because of his condition, but it was the the threat to other passengers and uh and staff, and I just think that's fucking bollocks.
00:20:46.880 --> 00:20:53.680
Yeah, um basically they told the airline, they told the airport prior to come in, he was wearing his disability lanyard the whole time.
00:20:53.759 --> 00:21:04.720
And yes, unfortunately, I don't know if you've had a similar sort of situation in an airport, there is obviously sensitive words you shouldn't say, and unfortunately, that is the kind of shit that will come out, it's just the type of works, unfortunately.
00:21:05.039 --> 00:21:11.039
But I am so anxious and stressed at an airport that oh but that that anxiety can sometimes just make it all worse.
00:21:11.440 --> 00:21:16.000
But this poor little lad was going away with his mum and dad, his little sister, and him, and he's 13.
00:21:16.160 --> 00:21:21.359
Yeah, and they got they let him get all the way to the gate before they made uh before they said no, unfortunately.
00:21:21.519 --> 00:21:24.480
They had a representative from BA telling that they weren't allowed on the flight.
00:21:24.640 --> 00:21:27.599
They offer them a refund, they have declined the refund.
00:21:27.759 --> 00:21:29.680
Uh, I don't know what the situation I should be after.
00:21:29.839 --> 00:21:30.960
I'm actually quite fortunate.
00:21:31.039 --> 00:21:33.200
I'm meeting this young lad Mason tomorrow.
00:21:33.359 --> 00:21:39.200
Nice and so I'll be making a little video about it and hopefully talking to him, make sure he's alright, as well as pushing the issue.
00:21:39.359 --> 00:21:41.759
But what's your thoughts on that, Evie, with that situation?
00:21:42.480 --> 00:21:45.200
I mean, yeah, the way that they fuck.
00:21:45.839 --> 00:21:54.960
I did feel bad because they said that they'd told the airline in advance because though this is like exactly what they were trying to avoid.
00:21:55.119 --> 00:21:59.759
And I feel like that made me that made me feel quite sad because it's obviously something that.
00:22:00.160 --> 00:22:06.480
They were worried about and were trying really hard to avoid, and like, hey, it it happened anyway.
00:22:06.640 --> 00:22:06.880
Fuck.
00:22:07.119 --> 00:22:09.759
I think all they needed to do was once they got on the flight.
00:22:10.240 --> 00:22:10.720
Bitch.
00:22:11.119 --> 00:22:16.160
Which I've I've I've been on planes, I don't know when the last time you took a flight, but like, you know, fuck you.
00:22:16.640 --> 00:22:18.880
We do have to let people know because I do understand from everyone else's point.
00:22:19.119 --> 00:22:20.079
Fuck you, Angie Mum.
00:22:20.240 --> 00:22:24.079
From everyone else's point of view, that it is a bit weird if you're hearing someone screaming and shouting on the flight.
00:22:24.240 --> 00:22:27.759
Some people might be nervous and it is a plane, then you know there's obviously stuff around it.
00:22:28.160 --> 00:22:36.960
But like even if they've already pre-warmed them, all they needed to do was when they get on the flight, was on the tunnel, just say to everyone, Good evening, ladies and gentlemen.
00:22:37.039 --> 00:22:43.759
Just to let you all know that we have a passenger on board who's a young teenager with Tourette's, and if he does shout things out, then that's all they needed to say.
00:22:43.839 --> 00:22:54.640
And the other thing that I want to say is what the fucking difference is is it between What's the difference between someone having a peanut allergy and having to make sure no other passenger has peanuts, peanuts, penis?
00:22:56.720 --> 00:22:58.559
Make sure no one else has peanuts on the flight.
00:22:58.640 --> 00:23:02.880
What's the difference between doing an announcement to say this is a you know there's a guy with tourettes on this flight?
00:23:03.839 --> 00:23:04.400
I've got to travel.
00:23:04.480 --> 00:23:06.160
We're going away from my stag during a couple of weeks.
00:23:06.240 --> 00:23:06.480
Yep.
00:23:06.559 --> 00:23:13.039
I'm shitting it because I feel like if this is I mean, I'd be surprised if anyone touches that sort of subject again with tourettes.
00:23:14.319 --> 00:23:15.759
But it does make me nervous.
00:23:15.839 --> 00:23:17.039
And even Lucy made a point to me.
00:23:17.119 --> 00:23:19.440
She goes, I'd actually understand a little bit more if it was an adult.
00:23:19.519 --> 00:23:20.559
But he's a 13-year-old boy.
00:23:20.720 --> 00:23:21.440
He's a young lad, yeah.
00:23:21.680 --> 00:23:26.799
Like with his parents there with a disability lanyard again, just making that double clear, they covered all bases.
00:23:27.119 --> 00:23:28.559
And he still wasn't allowed on that floor.
00:23:28.720 --> 00:23:30.079
So is that a common thing for people who don't know?
00:23:30.319 --> 00:23:40.160
So with Tourette's, when you are traveling, do you always make it aware to the airlines or like say trains or anything, or do you kind of just go about your life day to day and just because obviously Pete, you're spreading awareness about it, but a lot of people still don't know.
00:23:40.400 --> 00:23:40.799
Bitch.
00:23:40.960 --> 00:23:44.079
So do you make it aware to people before you go traveling?
00:23:44.640 --> 00:23:44.880
Oh.
00:23:46.079 --> 00:23:46.880
So I'm talking too much.
00:23:47.359 --> 00:23:51.119
I mean, I I don't think we've ever told them in advance.
00:23:51.279 --> 00:23:55.039
I usually have a lanyard on just so that it's like clear as day.
00:23:55.119 --> 00:23:58.160
I mean, someone's twitching away, it's pretty obvious anyway, I think.
00:23:58.400 --> 00:23:58.559
Personally.
00:23:59.839 --> 00:24:05.519
Um, but I don't think we've ever told them in advance just because for me, I'm quite an anxious flyer.
00:24:05.759 --> 00:24:11.440
And I know that a lot of people, when they're stressed and they have Tourette's, their ticks get worse.
00:24:11.519 --> 00:24:15.599
But if I'm like really anxious about something, I don't tick very much.
00:24:15.680 --> 00:24:21.119
So usually in an airport, I'm not as ticky as I am now because I'm worried about flying, if that makes sense.
00:24:21.279 --> 00:24:22.240
Yeah, even off going through your head.
00:24:23.599 --> 00:24:24.720
With anxiety of it all.
00:24:24.960 --> 00:24:29.279
Yeah, so like I'm not usually as ticky as this when I fly.
00:24:30.400 --> 00:24:35.200
Um, but like if I was to get really ticky, I would probably ask them to do an announcement.
00:24:35.440 --> 00:24:41.200
But going back to Mason, I feel like they were saying that there was a threat, this 13-year-old boy.
00:24:41.519 --> 00:24:44.400
Hello, just because of what he'd been saying.
00:24:44.559 --> 00:24:47.759
But like he'd gone through security, so he'd been checked.
00:24:47.920 --> 00:24:49.359
They know that he didn't have anything.
00:24:49.759 --> 00:24:50.400
Such a valid point.
00:24:50.559 --> 00:25:02.799
So if they let him on the plane, my mum made this point the other day, they could have done the announcement and said he has Tourette's, there's no like meaning to his words, he's been security checked, he doesn't have anything, he's just a boy with Tourette's.
00:25:02.960 --> 00:25:03.680
I completely agree.
00:25:04.000 --> 00:25:08.240
It shouldn't even have to be said, but I agree that they could have double covered themselves.
00:25:08.400 --> 00:25:08.640
Yeah.
00:25:08.799 --> 00:25:11.200
And again, I saw the video of the representative from BA.
00:25:11.279 --> 00:25:11.359
Yeah.
00:25:11.680 --> 00:25:19.920
She seems to be very calm and delivered that, you know, because I saw a bit of a mix of views in the comment section of that video because some people were like, Oh, it's not her fault.
00:25:20.079 --> 00:25:22.000
I'm not saying it's that individual's fucking fault.
00:25:22.079 --> 00:25:25.200
It's obviously a higher-up situation that have made it trickle down.
00:25:25.759 --> 00:25:29.599
But unfortunately, she was the face of basically the person telling them that they can't get on.
00:25:29.759 --> 00:25:30.000
Yeah.
00:25:30.160 --> 00:25:38.319
But um, anyway, so I think she was higher up because in the video, I'm sure Mason's dad was saying, like, is there someone else I can speak to?
00:25:38.400 --> 00:25:42.640
And she was saying that like she was the most senior person she's speaking to.
00:25:42.880 --> 00:25:46.880
Hey, hey, hey, hey! So I mean I think I think that's right anyway.
00:25:46.960 --> 00:25:55.680
But uh it'll be interesting, like I said, hopefully the the video that this podcast will come out similar sort of time to maybe when I release the video of Mason as well on my social.
00:25:55.920 --> 00:25:56.400
So we'll see.
00:25:57.920 --> 00:26:00.559
Yeah, because it's the thing, like I'm not even trying to jump on the clout of it.
00:26:00.640 --> 00:26:02.319
I just actually one, I want to make sure Mason's alright.
00:26:03.200 --> 00:26:05.680
Because I want to remind him that actually this is fine.
00:26:05.920 --> 00:26:09.039
Hey, I looked at yeah, yeah, yeah.
00:26:09.200 --> 00:26:10.720
Oh, that looks dehydrated.
00:26:10.880 --> 00:26:14.559
Um beat.
00:26:14.960 --> 00:26:18.960
But I also want to check in on Mason, make sure Mason's alright, as well as talk about the story.
00:26:19.039 --> 00:26:19.279
Yes.
00:26:19.440 --> 00:26:21.119
Yeah, you know, I'll be looking forward to it.
00:26:21.200 --> 00:26:22.319
I'll be looking out for it.
00:26:24.559 --> 00:26:25.839
That's actually one of my ticks.
00:26:25.920 --> 00:26:26.799
I say that all the time.
00:26:26.880 --> 00:26:27.680
Oh the time.
00:26:28.079 --> 00:26:28.400
Fuck off.
00:26:28.880 --> 00:26:32.000
So you know that you know the phrase, this is what I said at the football the other day.
00:26:32.240 --> 00:26:34.079
This is quite a funny tick, and I've got to say.
00:26:34.319 --> 00:26:38.480
You know, in the film Legend with uh Tom Hardy, he goes, okay, me, shoot at.
00:26:43.680 --> 00:26:44.880
But fuck off.
00:26:45.200 --> 00:26:49.119
I was obviously just not looking because I'm not a bastard, but we all have eyes.
00:26:49.359 --> 00:26:55.279
And I, out of nowhere, out of nowhere, I thought correct.
00:26:56.319 --> 00:26:59.519
I was just sitting down, minding my own business, drinking my pint, trying to watch the football.
00:26:59.599 --> 00:27:02.880
But at the top of my lungs, I went, I came here for a titwank.
00:27:04.000 --> 00:27:07.440
And everyone heard it, and all my boys were obviously screaming.
00:27:07.519 --> 00:27:09.440
The table next to us found it fucking hilarious.
00:27:09.519 --> 00:27:15.119
But again, this maybe brings me on to a point that again with Tourette's that I think people wouldn't understand.
00:27:15.279 --> 00:27:17.680
I actually did a brief video about it the other day.
00:27:17.920 --> 00:27:21.359
But it's the embarrassment and the shame of what comes out of your mouth sometimes.
00:27:22.160 --> 00:27:26.799
Like I am, I've got quite dark humour, I like being pushing it to the line, as you well know, Quinn.
00:27:27.119 --> 00:27:27.759
I do, yeah.
00:27:28.240 --> 00:27:30.319
But there is some things like that in that setting.
00:27:30.400 --> 00:27:32.720
Like, I didn't want to say okay, my friend's hit wank.
00:27:32.880 --> 00:27:36.720
I really don't want to say that in public at 31 years of age.
00:27:37.039 --> 00:27:39.599
But that is something that I think people don't understand.
00:27:39.680 --> 00:27:43.279
That I don't mind being the centre of attention, but when it's not even my own doing.
00:27:43.359 --> 00:27:44.640
Yeah, yeah.
00:27:45.039 --> 00:27:47.039
And sometimes I just want to be in the background a bit more.
00:27:47.359 --> 00:27:52.000
I know, I feel like my Tourette's doesn't really suit hello, what I look like.
00:27:52.160 --> 00:28:04.400
Because like I've got loads of ticks talking about dicks, and like I'm this woman all dressed in purple, and you know, I try and make make myself look quite nice, and then I can like thank you, and then I could like say to my brother, get your dick out.
00:28:04.480 --> 00:28:06.960
Yeah, and like it doesn't fit, you know what I mean?
00:28:07.039 --> 00:28:09.599
Like that's a really good genre on Paul Nutton.
00:28:09.759 --> 00:28:12.480
It's it's it's awful.
00:28:14.240 --> 00:28:24.960
I do get what you mean though, about like I basically what you're saying is I'm not you're not saying that you're innocent, but you're your what you portray is you're a young person who isn't not trying to talk about dicks.
00:28:25.039 --> 00:28:26.000
Yeah, fuck.
00:28:26.319 --> 00:28:28.480
I'm also trying not to talk about dicks.
00:28:28.799 --> 00:28:30.000
That's all you talk about.
00:28:30.240 --> 00:28:32.720
It is, and I just have to I just have to work with dicks.
00:28:32.960 --> 00:28:34.640
I five me bamboobs.
00:28:41.200 --> 00:28:43.759
You said mamboobs so quietly that it hurt.
00:28:44.160 --> 00:28:46.079
I've had that one about five years.
00:28:46.400 --> 00:28:47.440
Probably six years actually.
00:28:50.079 --> 00:28:51.200
It's from Miranda.
00:28:51.359 --> 00:28:51.920
Have you ever seen it?
00:28:52.000 --> 00:28:52.559
Yes, I love it.
00:28:52.720 --> 00:28:54.640
I've got so many ticks from that show.
00:28:54.720 --> 00:28:55.519
It's not even funny.
00:28:55.680 --> 00:28:56.400
Cunt chicken.
00:28:57.680 --> 00:28:59.200
Also, sorry, should we get back on track?
00:28:59.440 --> 00:29:00.400
I don't even know what we're talking about.
00:29:00.559 --> 00:29:01.680
No, I forgot what we went to know now.
00:29:05.200 --> 00:29:06.960
It's a great topic to stay on, to be fair.
00:29:07.200 --> 00:29:09.759
But there was actually my sister-in-law pointed it out.
00:29:10.000 --> 00:29:10.319
Don't care.
00:29:11.519 --> 00:29:12.240
Sorry, Carol.
00:29:12.799 --> 00:29:13.119
Fuck.
00:29:13.759 --> 00:29:14.640
My name's Eevee.
00:29:14.799 --> 00:29:16.480
Which actually is quite is it actually?
00:29:16.720 --> 00:29:17.680
Not Evie, no, sorry.
00:29:17.920 --> 00:29:18.640
Readers, readers.
00:29:18.880 --> 00:29:19.440
Readers, sorry.
00:29:19.599 --> 00:29:20.160
Yeah, it's readers.
00:29:20.480 --> 00:29:21.359
It's my brother's readers.
00:29:21.680 --> 00:29:21.759
No.
00:29:21.920 --> 00:29:23.359
Which because she's actually been following you for years.
00:29:23.519 --> 00:29:24.640
She said hello as well.
00:29:24.720 --> 00:29:24.880
Yeah.
00:29:25.119 --> 00:29:26.400
She's actually very excited about this.
00:29:27.519 --> 00:29:39.119
She was, and she's actually asked a question because she was saying the power of social media, because when you had a so you were trying to get diagnosis, and then there was a girl on TikTok who commented, and that I was looking into it last night, and that's quite fascinating.
00:29:39.279 --> 00:29:42.079
And obviously for people who don't know, maybe just to explain that situation.
00:29:42.400 --> 00:29:48.880
Yeah, so um it's kind of a bit awkward because you've got my old diagnosis, which turned out to be wrong for me.
00:29:49.039 --> 00:29:49.839
Hey, fuck off.
00:29:50.079 --> 00:29:52.079
So what's Josh might even know about it?
00:29:52.240 --> 00:29:53.599
Josh might not even know about this, to be fair.
00:29:54.000 --> 00:29:54.720
You do, I'm sure you do.
00:29:55.039 --> 00:29:56.079
Wrong diagnosis, what do you mean?
00:29:56.240 --> 00:29:59.359
Yeah, I was diagnosed with FND in 2019, and it turned out to be wrong.
00:29:59.599 --> 00:30:00.240
Oh, sorry, right.
00:30:00.559 --> 00:30:01.039
Sorry, I missed.
00:30:02.000 --> 00:30:05.039
I thought I thought you meant Tourette's and I was like, I'm pretty sure they're right.
00:30:06.960 --> 00:30:08.799
Yeah, no, that's that one's right.
00:30:09.200 --> 00:30:09.680
Fuck off.
00:30:10.079 --> 00:30:14.240
Um yeah, I was diagnosed with FND in 2019, and then hello.
00:30:14.720 --> 00:30:22.319
And then in 2021, this girl in America was like, Evie, really needs to look into this, cunt chicken.
00:30:22.799 --> 00:30:25.519
Um, and she was spamming me all the time.
00:30:25.839 --> 00:30:28.640
And eventually I messaged her and I was kind of rude.
00:30:28.720 --> 00:30:29.680
I was like, What do you want?
00:30:31.119 --> 00:30:39.759
Because she had been bugging me for so long, and I didn't really understand what she was saying because once you have a diagnosis and you've had it for a while, you like settle with it.
00:30:40.000 --> 00:30:40.880
Cunchicken.
00:30:41.279 --> 00:30:44.079
And um, yeah, she was basically exactly right.
00:30:44.160 --> 00:30:49.599
So it turned out to be like encephalitis inflammation of the brain and uh Lyme disease as well.
00:30:49.759 --> 00:30:51.039
Fuck the kids.
00:30:51.680 --> 00:30:57.519
Um, which neither were things we'd ever considered, but it is a pretty cool story though.
00:30:59.039 --> 00:31:06.240
So sorry, just to be clear, so so she's reached out and she's told you that you might have been misdiagnosed because of her own experience.
00:31:06.480 --> 00:31:06.799
Yeah.
00:31:07.039 --> 00:31:07.440
No way.
00:31:07.519 --> 00:31:09.519
I didn't so I didn't realise it was quite like that.
00:31:09.839 --> 00:31:11.359
Yeah, it was weird things as well.
00:31:11.440 --> 00:31:21.759
She was she was like watching um watching my videos and sending me screenshots of my pupils where my pupils were dilated and was like, this is a sign of it, this is a sign of it.
00:31:21.839 --> 00:31:24.720
And I was like, oh my god, like she was kind of low-key stalking me.
00:31:24.880 --> 00:31:26.000
But like we're really good friends.
00:31:26.319 --> 00:31:27.039
Oh, when the when there's over.
00:31:28.079 --> 00:31:31.680
So just how many followers have you got on TikTok and so other platforms as well?
00:31:31.920 --> 00:31:34.400
At the moment on TikTok, there's 15.3 million.
00:31:34.640 --> 00:31:35.279
Isn't that mental?
00:31:35.440 --> 00:31:36.000
Hello fuckers!
00:31:36.160 --> 00:31:37.519
It's like five times the size of my own.
00:31:37.920 --> 00:31:43.119
Yeah, when you put it in perspective like that, which is even mad because kind of touching on that.
00:31:43.440 --> 00:31:44.079
Are you alright?
00:31:44.319 --> 00:31:44.720
Yeah, yeah.
00:31:46.799 --> 00:31:47.119
I'm alright.
00:31:47.440 --> 00:31:47.920
Yeah, sure.
00:31:48.079 --> 00:31:48.240
Sure.
00:31:48.559 --> 00:31:48.880
You're sure.
00:31:50.160 --> 00:31:50.400
Okay.
00:31:52.000 --> 00:31:53.039
Fuck off then.
00:31:53.359 --> 00:31:54.960
Um can we get a medic?
00:31:55.359 --> 00:32:05.680
Um with regards, again, I know it can sometimes feel a bit uncomfortable to talk about followers like that, but I mean, obviously, one, 50 over 15 million is fucking mental.
00:32:05.759 --> 00:32:07.359
And congrats to that because you deserve it.
00:32:07.519 --> 00:32:07.920
Thank you.
00:32:08.160 --> 00:32:12.400
But does it also how does it make you feel almost knowing that when you do put stuff out?
00:32:12.559 --> 00:32:14.880
I know it doesn't mean necessarily 15 million people see every video.
00:32:15.119 --> 00:32:15.359
Yeah, yeah.
00:32:15.599 --> 00:32:18.480
But how does it feel that there's a potential that they could see all that?
00:32:19.440 --> 00:32:21.759
Um it's kind of scary.
00:32:21.839 --> 00:32:27.440
I mean, there was a period where I stopped uh like just showing any videos where I was ticking.
00:32:28.640 --> 00:32:39.759
Um like it used to be that if I was having a bad tick day, I would talk about it with my followers and share it with people, and then like I just stopped stopped doing that.
00:32:39.839 --> 00:32:49.839
But I guess when you're being super vulnerable with things like dystonia and seizures and other mobility issues, that is really scary to be really vulnerable.
00:32:50.079 --> 00:32:50.640
Hello.
00:32:52.240 --> 00:33:02.240
But like I started talking about stuff like that in like 2018, so it's been quite a long time, and I think eventually I got kind of maybe a bit too used to it.
00:33:02.319 --> 00:33:04.720
Like sometimes I worry that I'm too comfortable online.
00:33:05.200 --> 00:33:06.079
Yeah, fuck.
00:33:06.240 --> 00:33:08.319
So I get people say to me, Oh, how do you do it?
00:33:08.480 --> 00:33:13.359
And I think a lot of the time I don't actually think about people seeing it, which sounds really silly.
00:33:15.599 --> 00:33:18.079
Yeah, which I don't know if that's a great maybe not.
00:33:18.400 --> 00:33:19.200
I think it's quite a normal thing.
00:33:19.279 --> 00:33:20.960
Over a period of time, you're gonna get used to that, aren't you?
00:33:21.039 --> 00:33:24.480
So you've got to have, I mean, I think it's incredible that you put yourself out there.
00:33:24.559 --> 00:33:29.839
And I think it's kind of like your story and a couple of others kind of inspired me to want to put myself out there more.
00:33:29.920 --> 00:33:46.400
And I think not saying it's any different from a guy's point of view, but I think for a bloke with Tourette's to be as vulnerable as eyes lights, I tend to try and put myself out there as it can be difficult, and I think we just I'm trying to show all, but I'm also not trying to show it as just a fucking highlight highlight reel.
00:33:46.640 --> 00:33:54.480
Like I I want to show how how how well we're doing, but also I do want to show the side of well, it can be shit, but I also don't want it to come across like a fucking victim.
00:33:54.720 --> 00:33:59.680
Because I don't need I don't need sympathy, but I'm all putting myself out there for if anyone else is also feeling the same.
00:34:00.000 --> 00:34:00.480
Lesbian.
00:34:00.640 --> 00:34:02.720
I don't think anyone would ever view it as a victim, but that's what I'm saying.
00:34:02.799 --> 00:34:09.119
Why it's such a good thing with the movie I swear coming out, and you guys, like for people like me or Ryan who don't who didn't grow up knowing about threats.
00:34:09.920 --> 00:34:15.840
You're showing the sad side of it, or not the sad side, but showing the side of it that actually affects you day to day is what more people need to know about.
00:34:16.159 --> 00:34:16.800
Yeah, definitely.
00:34:17.039 --> 00:34:18.719
I think that is the day-to-day stuff, right?
00:34:18.800 --> 00:34:23.519
And again, for me, it's not just about yeah, when I get do a twitchy haircut and it's really fucking funny.
00:34:23.679 --> 00:34:36.719
That is, I think, the same way I've drawn people in to show what I do, and I like to show people that I am, even though I have Tourette's and it is a real struggle, that I can still crack on with my day job and something that I'm passionate about and actually took me on trumpet, I'm fucking good at it.
00:34:36.880 --> 00:34:39.039
So that's what I'm just trying to show.
00:34:39.119 --> 00:34:40.960
But well, that's the same to you to be fair.
00:34:41.039 --> 00:34:49.679
So aside from like Tourette's, because that must happen a lot online where people view you as a person with Tourette's, but aside from like your diagnosis and all these things, you're saying you do arts.
00:34:49.760 --> 00:34:53.519
Do you have any other things that you do business-wise or like aside from everything else?
00:34:53.920 --> 00:35:00.239
Well, I was a gymnast for a long time, and that was like kind of just my personality for so long.
00:35:00.480 --> 00:35:03.039
Um, and then when I got more unwell, I had to quit.
00:35:03.199 --> 00:35:10.000
But um, I would say, like, yeah, I mean, a lot of people know me for like my love of animals, and I post a lot about animals.
00:35:10.079 --> 00:35:14.159
I've got three rabbits at home, which are basically like my kids.
00:35:14.400 --> 00:35:23.519
Hey, um, but it's like, yeah, it's like you're you're known as like the barber with Tourette's, but you're also like just Josh, like and I'm just Evie.
00:35:23.760 --> 00:35:30.800
Like we are Fuck we are people, but it's kind of unfortunate that the Tourette's is so obvious.
00:35:31.039 --> 00:35:33.280
So maybe people might notice that first.
00:35:33.519 --> 00:35:41.440
And I often think that sometimes when people see me twitching in public, um, they probably don't realise that I can have a normal conversation with people like this.
00:35:41.920 --> 00:35:42.320
But you are okay.
00:35:44.480 --> 00:35:48.159
I mean, don't be wrong, I can imagine having having a seizure is a completely different fucking thing.
00:35:48.320 --> 00:35:48.480
Yeah.
00:35:48.719 --> 00:35:54.079
But but like, you know, just seeing you maybe struggle, they might think you're struggling, but actually it's just this is just what we have to deal with.
00:35:55.360 --> 00:35:55.519
Yeah.
00:35:55.679 --> 00:36:03.360
But like I again, like when I get stuck in like a tick or something like that, and I can't stop it, and again, sometimes it depends what I'm doing, where I am, who I'm around, whatever.
00:36:03.440 --> 00:36:04.159
But breasts.
00:36:04.480 --> 00:36:05.840
It doesn't mean lovely.
00:36:06.559 --> 00:36:09.199
Um chicken.
00:36:11.840 --> 00:36:13.360
I actually have no idea what I was talking about.
00:36:13.840 --> 00:36:15.440
I don't think I was going anywhere with it.
00:36:15.599 --> 00:36:19.760
But then as soon as you said breasts, because it was so clear, breasts just came into my brain.
00:36:21.920 --> 00:36:22.719
Like a flash.
00:36:23.280 --> 00:36:25.760
Um nipple, right.
00:36:26.800 --> 00:36:27.519
I don't know what we're talking about.
00:36:27.679 --> 00:36:29.599
So with your art as well then, what kind of art do you do?
00:36:34.320 --> 00:36:35.840
Um mandalas.
00:36:35.920 --> 00:36:36.000
Yeah.
00:36:36.079 --> 00:36:38.480
I'm a mandala artist, so like your tattoo is very, very strong.
00:36:40.400 --> 00:36:41.440
Get that stuck on there.
00:36:41.760 --> 00:36:47.039
I do actually have a I have two friends I think that have tattooed my artwork.
00:36:47.199 --> 00:36:51.119
But they're from like years ago, so I kind of look at it now and I'm like, eh.
00:36:53.679 --> 00:36:55.280
Yeah, we'll we'll get that going.
00:36:55.599 --> 00:37:01.840
I mean, they still look nice, don't get me wrong, but like I think as an artist, when you look at work from years ago, you're like, oh, that's not great.
00:37:02.079 --> 00:37:05.280
That's the nice thing about documenting online because you can see how much you've improved over the years.
00:37:05.440 --> 00:37:07.440
The same guys, yeah, 100%.
00:37:08.000 --> 00:37:10.559
But I mean, yeah, god, I I I think you should definitely do that.
00:37:10.639 --> 00:37:11.920
Maybe not to have it on him.
00:37:12.079 --> 00:37:13.599
Or maybe you say that you shouldn't do that.
00:37:14.000 --> 00:37:16.000
But we can definitely have it drawn out, put it on him.
00:37:16.159 --> 00:37:17.119
And then maybe you could put something.
00:37:17.440 --> 00:37:18.480
Why are you getting him into this?
00:37:18.719 --> 00:37:21.679
This has to be his on your inner, yeah.
00:37:21.840 --> 00:37:21.920
Fine.
00:37:22.559 --> 00:37:25.920
I'll do something similar, but in his one, it has to be a hidden message.
00:37:26.239 --> 00:37:28.079
Josh was looking for a full face mandala.
00:37:29.119 --> 00:37:30.159
No, like you're a cunt.
00:37:30.800 --> 00:37:33.039
I was gonna say like fuck just in the middle.
00:37:35.119 --> 00:37:35.920
Just leave my mark.
00:37:36.639 --> 00:37:37.360
Oh my god, no.
00:37:37.920 --> 00:37:40.719
Put like a five-leaf clover or something just to wind it right up.
00:37:40.960 --> 00:37:41.360
Yeah.
00:37:42.880 --> 00:37:44.800
Well, you paint as well, though, don't you?
00:37:45.039 --> 00:37:46.800
I haven't I haven't done as much painting as I'd like to.
00:37:46.880 --> 00:37:54.079
I've always been I've always been I've always sketched in that, and again, like I can draw eyes just with with my eyes closed.
00:37:54.159 --> 00:37:55.920
It's just something I've just repetitively done.
00:37:56.000 --> 00:37:57.599
And that's like why I like that one as well.
00:37:57.679 --> 00:38:05.760
But um, but yeah, I've always found that's like a good little like release and a break for me, like when especially when I'm feeling really twitchy.
00:38:05.920 --> 00:38:06.079
Yeah.
00:38:06.320 --> 00:38:11.440
Fuck! Yeah, I barely tick when I'm I might have like some in my face, so I get lows in my eyebrows.
00:38:11.519 --> 00:38:13.039
My eyebrows are like always dancing around.
00:38:13.119 --> 00:38:13.199
Right.
00:38:13.440 --> 00:38:19.519
So like when I'm drawing, I might be doing stuff with my eyebrows, but I'm not gonna have like big, like full body ones.
00:38:19.599 --> 00:38:22.079
And I think people people don't realise that.
00:38:22.239 --> 00:38:28.480
But I think people also know, like quite commonly, that people with Tourette's or stutters can sing really well.
00:38:28.719 --> 00:38:30.000
I mean, not all of us, obviously.
00:38:30.159 --> 00:38:35.280
Hey, but I mean we can sing without singing uh without stuttering or ticking.
00:38:35.519 --> 00:38:37.599
I just I was gonna go straight to spando our ballet then.
00:38:37.679 --> 00:38:38.320
Go on, go on then.
00:38:38.559 --> 00:38:39.199
No, I'm not gonna do it.
00:38:39.440 --> 00:38:44.480
No, but you know, the first bit that comes straight away.
00:38:44.639 --> 00:38:46.239
Oh, take the stage.
00:38:46.480 --> 00:38:48.880
But I mean it is true though, I think, yeah.
00:38:49.199 --> 00:38:53.840
I feel like that's more common knowledge than some other parts of Tourette's might be.
00:38:54.000 --> 00:38:55.679
I feel like I see that online quite a bit.
00:38:55.920 --> 00:38:57.280
What the distraction thing?
00:38:58.000 --> 00:39:03.360
Yeah, about like singing because there was there was like a guy on um who went on the voice with Tourette's a few years ago.
00:39:03.440 --> 00:39:04.159
I've forgotten his name now.
00:39:04.320 --> 00:39:16.559
He used to be quite big in the Tourette's community on YouTube, and he went on the voice and he got through the whole song without ticking, and then the song stopped, and the judges turned around because they pressed their buzzers and he was like ticking away, and they had no idea.
00:39:16.719 --> 00:39:20.480
Fuck! They had no idea that he had Tourette's because he uh went the whole song.
00:39:20.719 --> 00:39:24.159
It's bizarre how the brain works because I do find it fascinating how that works.
00:39:24.239 --> 00:39:25.360
I've seen it with you before in the past.
00:39:26.079 --> 00:39:27.519
I love Baldman, and there earlobes.
00:39:27.679 --> 00:39:28.000
You too.
00:39:28.639 --> 00:39:29.360
Not on the earlobes.
00:39:31.119 --> 00:39:32.079
Nice to see you, mate.
00:39:32.320 --> 00:39:33.360
Okay, you popped into my brain.
00:39:34.159 --> 00:39:34.960
Earlobes, that's fine.
00:39:35.199 --> 00:39:36.159
You need your earlobes reading.
00:39:36.320 --> 00:39:37.119
I do love a good earlobe.
00:39:37.199 --> 00:39:37.760
Can I see your lobe?
00:39:37.840 --> 00:39:38.079
Do you mind?
00:39:38.159 --> 00:39:38.960
Do you mind just showing me your lobe?
00:39:39.679 --> 00:39:40.400
This has become the thing.
00:39:40.480 --> 00:39:41.760
We see earlobes every single day.
00:39:42.000 --> 00:39:43.119
I didn't know if you were ticking or not.
00:39:43.280 --> 00:39:44.239
I know it was mate.
00:39:45.280 --> 00:39:48.320
I was just gonna say show me your lobe, because we we see ears every single day.
00:39:48.719 --> 00:39:50.079
Josh is trying to talk a weird thing.
00:39:51.199 --> 00:39:52.079
Can I be honest?
00:39:52.159 --> 00:39:53.679
Josh is trying to make this a thing.
00:39:53.840 --> 00:39:56.400
He wants to try to make earlobes a thing.
00:39:56.559 --> 00:39:58.000
It's you're trying to break my lobe.
00:39:58.079 --> 00:39:59.679
Yeah, it's not a thing.
00:40:00.000 --> 00:40:02.000
So, what makes a nice earlobe?
00:40:02.239 --> 00:40:04.000
You've got a nice sweet ear little earlobe.
00:40:05.039 --> 00:40:09.760
For me, I like a nice big earlobe, bit of flesh on there, something to play around with.
00:40:09.840 --> 00:40:10.239
Do you know what I mean?
00:40:10.320 --> 00:40:11.280
It's just like a fetish thing.
00:40:11.519 --> 00:40:12.320
No, it's not.
00:40:12.559 --> 00:40:13.840
No, it's not a fetish thing.
00:40:14.000 --> 00:40:15.119
That's what I call across the room.
00:40:16.400 --> 00:40:18.800
Because you look very scared that way.
00:40:19.760 --> 00:40:20.559
It's not like that.
00:40:21.360 --> 00:40:22.880
It's more just appreciation.
00:40:23.119 --> 00:40:25.920
Because we we cut people's hair, so we're staying above people's heads all the time.
00:40:26.000 --> 00:40:27.360
So everyone's got different ears.
00:40:27.440 --> 00:40:28.480
That's all I'm talking about.
00:40:28.639 --> 00:40:31.840
I'd give yours if you want a rating, I'd give them a solid seven and a half.
00:40:32.000 --> 00:40:33.519
I didn't ask for that, but thanks.
00:40:33.920 --> 00:40:35.119
Well, now you've got it.
00:40:35.360 --> 00:40:36.159
Seven and a half.
00:40:36.320 --> 00:40:36.480
Yeah.
00:40:38.400 --> 00:40:39.679
Yeah, well, maybe you've got to work on it.
00:40:42.159 --> 00:40:43.519
Do the piercings add any extra?
00:40:44.079 --> 00:40:44.480
Maybe it does.
00:40:44.559 --> 00:40:45.599
Okay, we'll bring it up to an eight.
00:40:45.760 --> 00:40:46.159
Oh, thanks.
00:40:46.559 --> 00:40:46.960
I'll take it.
00:40:47.679 --> 00:40:48.639
You're a bizarre person, you are.
00:40:50.239 --> 00:40:52.159
Do you do this with every guest that you have to do?
00:40:53.679 --> 00:40:57.920
It's gonna become a you wait till I get to check out Ryan's while he takes those headphones off.
00:40:58.480 --> 00:40:59.519
Show me a tea.
00:41:00.000 --> 00:41:00.880
Just show me the ear.
00:41:01.039 --> 00:41:02.800
Just show me your ear.
00:41:04.800 --> 00:41:06.159
Oh, that's meaty.
00:41:06.480 --> 00:41:07.360
That's a meaty lobe.
00:41:07.599 --> 00:41:07.920
Dear Lord.
00:41:08.480 --> 00:41:09.360
Anyway, sorry.
00:41:10.400 --> 00:41:14.000
For people listening, Ryan, our cameraman, has a very meaty lobe.
00:41:15.280 --> 00:41:15.760
Penis.
00:41:16.480 --> 00:41:17.280
Oh no.
00:41:18.079 --> 00:41:19.760
He's got a meaty penis too.
00:41:20.000 --> 00:41:20.159
Stop.
00:41:20.480 --> 00:41:21.360
Which we are.
00:41:21.840 --> 00:41:22.400
We need to move on.
00:41:24.800 --> 00:41:28.480
So with um because obviously sorry, my head has gone now with that.
00:41:30.400 --> 00:41:31.280
But chicken.
00:41:31.679 --> 00:41:35.360
What is because obviously we've talked a lot about like different ticks, things.
00:41:35.440 --> 00:41:38.880
What's the funniest situation that your threat has put you in in your life?
00:41:39.519 --> 00:41:42.320
To both of you guys, or like say a funny moment that you can remember.
00:41:42.880 --> 00:41:44.000
Have you got something off the bat?
00:41:44.079 --> 00:41:44.800
Do you want me to go first?
00:41:45.440 --> 00:41:48.239
I did have one, but I've forgotten it, so you can go fucking cunt.
00:41:48.639 --> 00:41:54.400
I had one the other day, and there's a lot of funny situations that have come from being at Lucy's family home at the dinner table.
00:41:54.559 --> 00:41:54.960
Oh god.
00:41:55.119 --> 00:42:01.760
So I've got like my father-in-law, Paul, and Tracy, my mother-in-law, and usually either both or one of both their brothers.
00:42:02.079 --> 00:42:04.239
And this was only like two Sundays ago.
00:42:04.400 --> 00:42:08.079
My ticks were really bad and it like really amped up throughout the course of this dinner.
00:42:08.320 --> 00:42:09.280
We got to dessert.
00:42:10.480 --> 00:42:16.800
I can't even remember some of the ticks that had already happened by this point, but because they're so good and I'm so comfortable, I think my ticks were just extremely bad that day.
00:42:17.039 --> 00:42:17.599
Beans.
00:42:17.840 --> 00:42:19.199
But I'm very comfortable there.
00:42:19.440 --> 00:42:25.119
But my mother-in-law was handing out dessert, which was I think it was chocolate-covered strawberries.
00:42:25.440 --> 00:42:28.079
And Lucy's mum, Tracy, had chocolate on her fingers.
00:42:28.719 --> 00:42:32.239
And I might have looked her straight in the eye and said, Tracy, let me suck those fingers clean.
00:42:33.280 --> 00:42:36.000
I didn't want to say that to my my future mother-in-law.
00:42:36.239 --> 00:42:37.360
She took it like a trooper.
00:42:37.679 --> 00:42:38.400
Hello, David.
00:42:38.559 --> 00:42:40.079
And I didn't actually get to suck them.
00:42:40.239 --> 00:42:41.840
But it's just uh sorry, Paul.
00:42:42.000 --> 00:42:42.239
Thank God.
00:42:42.800 --> 00:42:44.800
That for me, that was a really funny situation.
00:42:44.960 --> 00:42:50.800
I felt really embarrassed at the time, but it was really funny, and I can look at it, look back at it even only a couple of weeks ago and think it was fucking funny.
00:42:50.960 --> 00:42:51.679
Yeah, that's good.
00:42:52.800 --> 00:42:53.440
And yeah.
00:42:54.159 --> 00:42:54.320
Wow.
00:42:54.800 --> 00:42:55.760
So yeah, that was something.
00:42:56.159 --> 00:42:57.280
That was literally two weeks ago.
00:42:57.519 --> 00:42:58.719
Because I can't go that far back.
00:42:58.800 --> 00:43:00.239
I can't fucking remember all my tics.
00:43:00.639 --> 00:43:01.840
I don't know if I can top that.
00:43:01.920 --> 00:43:08.079
I sometimes like to ask a panel of people that I know because then they'll they'll have their own aspects or they'll have their own perspective of funny ticks.
00:43:08.800 --> 00:43:09.679
Yeah, that's good.
00:43:09.840 --> 00:43:16.400
Fuck! Um the o well, there's a few, but one of them that I was we went up to an eight.
00:43:21.039 --> 00:43:24.239
That point five makes a big difference to my to my ego.
00:43:24.480 --> 00:43:25.039
Fuck off.
00:43:31.280 --> 00:43:31.760
All right.
00:43:32.079 --> 00:43:34.320
So there was a there was a couple that came to mind.
00:43:34.960 --> 00:43:36.800
One of them was Therese camp.
00:43:36.960 --> 00:43:40.800
Hello, Buckers, in um 2021, I think.
00:43:41.280 --> 00:43:42.079
Special camp.
00:43:45.199 --> 00:43:46.639
Where the windows taste great.
00:43:51.280 --> 00:43:52.719
Everyone in the room is crying.
00:43:52.960 --> 00:43:53.920
I'm so sorry.
00:43:54.159 --> 00:43:56.960
Even if his mum behind the camera cannot keep it together.
00:44:00.239 --> 00:44:01.519
That's definitely staying in.
00:44:03.360 --> 00:44:04.239
We're allowed.
00:44:05.280 --> 00:44:06.239
We're allowed.
00:44:06.480 --> 00:44:07.440
Um sorry.
00:44:09.280 --> 00:44:10.079
Tourette's camp.
00:44:10.320 --> 00:44:12.239
Tourette's count 2021.
00:44:12.960 --> 00:44:16.400
Um This isn't gonna be that funny after all that.
00:44:17.039 --> 00:44:18.800
Your tick was funnier than my own.
00:44:18.960 --> 00:44:19.760
Your ticks are funny.
00:44:20.079 --> 00:44:20.320
Sorry.
00:44:20.559 --> 00:44:21.039
Thank you.
00:44:21.199 --> 00:44:22.639
Um not funny, ha ha.
00:44:23.119 --> 00:44:23.519
Wee.
00:44:24.320 --> 00:44:28.400
Um so there was like 40 of us with Tourette's in one room.
00:44:28.639 --> 00:44:29.119
God chicken.
00:44:30.000 --> 00:44:30.320
Yeah.
00:44:30.880 --> 00:44:33.760
And I have a tick where I say my own name, wee.
00:44:34.079 --> 00:44:38.800
And it's usually kind of like, well, at the time it was Evie, what you doing all the time.
00:44:39.119 --> 00:44:41.199
And I would like say it to myself over and over again.
00:44:41.519 --> 00:44:43.440
That sounds like the name of a really good song.
00:44:43.760 --> 00:44:44.159
Really?
00:44:44.400 --> 00:44:45.599
Evie, what are you doing?
00:44:53.679 --> 00:44:56.639
Um, and that was a big one for me at the time.
00:44:56.719 --> 00:45:01.840
Like I was saying it all the time, and I managed to spread it around at Tourette's camp.
00:45:02.000 --> 00:45:04.960
So we were having this like seminar, I think.
00:45:05.039 --> 00:45:05.280
Yeah.
00:45:05.519 --> 00:45:06.000
Bitch.
00:45:06.159 --> 00:45:13.679
We were having like this seminar where a kind of like neurologist person comes in to talk to us all about Tourette's as if as if we don't know enough about it.
00:45:15.039 --> 00:45:18.639
I'm saying expert because we get told we get told about our own fucking condition.
00:45:20.000 --> 00:45:20.960
I've run in the story.
00:45:21.360 --> 00:45:30.079
I mean So we were at this like seminar, and like Eevee, what you're doing was just echoing from all different corners of the room.
00:45:30.320 --> 00:45:33.519
And this was like four, no, five years ago now.
00:45:33.760 --> 00:45:47.360
And I still get the odd person say to me, you know, every now and then I still say, Eevee, what you doing five years later, and it was just from every corner of the room, and it was really funny because I made a video of it that went quite viral, and you could just like hear it in the distance.
00:45:47.760 --> 00:45:50.239
Oh my god, people saying it.
00:45:50.320 --> 00:45:51.360
Yeah, it was great.
00:45:52.159 --> 00:45:53.679
I feel like that's a tattoo shit.
00:45:54.159 --> 00:45:54.559
Wow.
00:45:55.199 --> 00:45:56.400
Eevee, what you're doing, yeah.
00:45:56.559 --> 00:45:57.119
That would be quite good.
00:45:57.599 --> 00:45:58.639
It does creep me out though.
00:45:58.719 --> 00:46:02.480
Like, even now, I don't say evie, what you're doing anymore, but it's just like Eevee.
00:46:03.679 --> 00:46:05.760
Like, imagine if you had a tick where you're like, Josh.
00:46:06.239 --> 00:46:08.000
See, I I really creepy.
00:46:08.880 --> 00:46:10.559
I don't think I've ever ticked my own name.
00:46:10.719 --> 00:46:11.679
But I can't be 100%.
00:46:11.920 --> 00:46:12.239
But I wouldn't have to be a good one.
00:46:12.480 --> 00:46:14.400
I don't know where it's come from, but I don't like it.
00:46:14.800 --> 00:46:16.159
I sometimes do get names in my head.
00:46:16.239 --> 00:46:19.920
Like I said to her, David Seaman was living in my head for a good 18 months, went through.
00:46:20.159 --> 00:46:21.760
Yeah, you're obsessed with David Seaman for a while, yeah.
00:46:22.079 --> 00:46:28.400
Seaman! But I started to realise all over your face why David Seaman's name was in my head.
00:46:28.559 --> 00:46:30.639
And I think obviously it is the second name.
00:46:30.960 --> 00:46:35.440
Tits! But I think it was also, and I was like, but why David Seaman of all people, right?
00:46:35.519 --> 00:46:37.039
And I was like, where's that come from?
00:46:37.199 --> 00:46:45.599
Then I came to the conclusion that my older cousin, well, I don't see that often, but when he was a kid, I was a bit obsessed for him being my older cousin, and his room was dedicated to Arsenal.
00:46:45.840 --> 00:46:47.519
Um, that was firm.
00:46:47.920 --> 00:46:48.239
Sorry.
00:46:49.119 --> 00:46:49.519
Thank you.
00:46:49.760 --> 00:46:51.119
Um good punch.
00:46:53.519 --> 00:46:58.320
But I realised that my cousin had all these pictures and basically a shrine to David Seaman.
00:46:58.559 --> 00:47:01.039
So I think that must be where it came from, but that was unlocked.
00:47:01.119 --> 00:47:02.800
Like we're talking like 25 years later.
00:47:03.039 --> 00:47:05.599
That's crazy when it sits in your subconscious for that long, then, isn't it?
00:47:05.679 --> 00:47:08.559
It's maybe maybe 24, 20, 23 years.
00:47:08.639 --> 00:47:11.840
But like we are talking that I reckon that has been at the back of my brain all that time.
00:47:11.920 --> 00:47:13.360
Now it's just come out that way.
00:47:13.519 --> 00:47:14.320
All over her face.
00:47:14.559 --> 00:47:17.199
I blurted out semen at my therapist the other week.
00:47:17.440 --> 00:47:17.760
Really?
00:47:17.920 --> 00:47:18.079
Yeah.
00:47:18.400 --> 00:47:19.920
What did he have to say about that?
00:47:20.159 --> 00:47:24.719
Well, he tried to go past he tried to just ignore it, but then I started giggling, so he did as well.
00:47:24.960 --> 00:47:25.599
Yeah.
00:47:25.920 --> 00:47:35.679
He's got a good like sense of humour, so I wasn't really but he's Irish, so he said something in an Irish accent and it sounded like semen, so then my Tourette's was like semen.
00:47:37.280 --> 00:47:51.920
Um but going back to what you said before, I've always said, like, I've always thought that for people with Tourette's, this is how I look at it at it anyway, that we have like this is gonna sound really stupid, in our brains, like a filing cabinet with all our old ticks in.
00:47:52.079 --> 00:47:52.320
Yeah.
00:47:53.119 --> 00:48:00.400
And I can find that literally like years down the line, a tick from like seven years ago could just randomly blurt out.
00:48:00.480 --> 00:48:03.280
And I fully believe that they're all like stored away somewhere.
00:48:03.599 --> 00:48:04.639
Do you know what I reckon it's like?
00:48:04.719 --> 00:48:05.920
Did you ever watch Bruce Almighty?
00:48:06.480 --> 00:48:06.639
Yes.
00:48:06.880 --> 00:48:10.079
A little bit like you know, when he pulls out the filing cabinet, I reckon it's actually like that.
00:48:10.320 --> 00:48:12.719
There's nothing behind it, but it's about two miles long.
00:48:12.880 --> 00:48:13.920
That's exactly what it is.
00:48:14.079 --> 00:48:16.480
Because I I genuinely feel like I'm not the brightest.
00:48:17.360 --> 00:48:21.199
I was gonna do I'm just gonna start doing Elvis then.
00:48:21.840 --> 00:48:23.119
Oh, I didn't give you your chance.
00:48:23.440 --> 00:48:26.320
I um when to become one.
00:48:27.360 --> 00:48:28.400
These are an issue.
00:48:28.719 --> 00:48:29.679
These are an issue.
00:48:30.400 --> 00:48:31.679
We never worried about this before.
00:48:31.760 --> 00:48:32.880
This has become problematic.
00:48:34.800 --> 00:48:35.599
What's the question?
00:48:36.719 --> 00:48:38.719
I'd often think that I'm not the brightest person.
00:48:38.800 --> 00:48:48.880
No anchors, but my brain obviously has a lot more capability than I I am aware of because again, like we're talking about holding in that information, and there's things that come up.
00:48:48.960 --> 00:48:50.320
I'm like, how the fuck is it?
00:48:50.719 --> 00:48:58.400
And also, uh the association game, my tourette is so quick at like hearing I hear something, I'm not even thinking about responsible.
00:48:58.559 --> 00:49:02.320
My ticks have said something that is not only funny but relevant to that conversation.
00:49:02.480 --> 00:49:05.039
Yeah, my mum says that my ticks are really quick.
00:49:05.280 --> 00:49:05.840
Cut chicken.
00:49:06.159 --> 00:49:07.679
Funnier than you, like you always say that.
00:49:07.760 --> 00:49:09.199
You say my tourette is funnier than me, doesn't it?
00:49:09.280 --> 00:49:11.440
You always say and I'm fucking funny, so they must be good.
00:49:11.599 --> 00:49:13.039
Yeah, you always funny.
00:49:13.280 --> 00:49:14.159
That was sarcastic.
00:49:14.559 --> 00:49:15.760
No, it wasn't.
00:49:16.320 --> 00:49:17.039
It definitely was.
00:49:17.440 --> 00:49:18.320
I missed it.
00:49:18.559 --> 00:49:19.280
Cut chicken.
00:49:19.679 --> 00:49:20.239
Cut chicken.
00:49:20.400 --> 00:49:21.519
Chicken can't chicken.
00:49:21.920 --> 00:49:23.039
Ever seen a chicken's cut?
00:49:24.079 --> 00:49:25.039
Not personally, no.
00:49:25.360 --> 00:49:26.079
When I came from it.
00:49:26.320 --> 00:49:27.440
I'm vegetarian though, so.
00:49:27.599 --> 00:49:28.400
Oh, you're veggie.
00:49:28.639 --> 00:49:28.880
Yeah.
00:49:30.079 --> 00:49:33.039
Josh has a vendetta against vegetarians, so I used to get a lot of stick for that.
00:49:33.280 --> 00:49:34.079
Are you vegetarian?
00:49:34.159 --> 00:49:36.559
I was, I grew up in a vegetarian household and I was vegetarian.
00:49:37.360 --> 00:49:39.599
And then I got you get a lot of stick off people like him.
00:49:39.840 --> 00:49:40.559
That's kind of crack.
00:49:42.800 --> 00:49:44.719
I don't know if I want to go for a meal with you after this, then.
00:49:45.119 --> 00:49:46.239
Yeah, true, actually.
00:49:47.440 --> 00:49:48.079
Oh, okay.
00:49:48.159 --> 00:49:49.039
I've got a question for you.
00:49:49.599 --> 00:49:55.119
And it's coming from me because and again, if it's something that you don't want to answer, we don't have to leave it in.
00:49:55.280 --> 00:49:59.760
But do you think you've ever met anyone with Tourette's that actually hasn't got Tourette's?
00:50:01.440 --> 00:50:02.000
Fuck!
00:50:06.800 --> 00:50:07.280
That's good.
00:50:07.599 --> 00:50:08.320
Oh, that's side.
00:50:09.679 --> 00:50:10.639
That's the clinic.
00:50:10.960 --> 00:50:11.679
That's good.
00:50:11.920 --> 00:50:16.480
Have you met anyone else with Tourette's that thing's got to be that's good.
00:50:17.119 --> 00:50:18.079
How did you know?
00:50:19.840 --> 00:50:21.119
Oh god, sorry.
00:50:21.280 --> 00:50:23.280
Um engine, mum.
00:50:24.480 --> 00:50:25.599
You can walk home.
00:50:29.679 --> 00:50:30.960
I genuinely don't know.
00:50:31.119 --> 00:50:31.920
Why have you?
00:50:32.239 --> 00:50:33.039
Fuck the kids.
00:50:33.440 --> 00:50:34.559
Obviously, you will never know.
00:50:34.800 --> 00:50:34.880
No.
00:50:36.239 --> 00:50:38.079
But I'm big old titties.
00:50:38.480 --> 00:50:39.679
And I'm not lovely.
00:50:39.920 --> 00:50:45.119
Um I'm I'm not saying this is just my percent my my opinion, right?
00:50:45.280 --> 00:50:50.880
But and that isn't I meet a lot of people with threats now because of the online stuff, and obviously people come to my barber shop.
00:50:51.199 --> 00:50:56.639
I I'm a cheeky wee, I tend to feel I I get the sense off someone when they've got tourists.
00:50:56.719 --> 00:50:56.880
Yeah.
00:50:57.119 --> 00:51:02.000
Like almost pro like even if they just walked in, it we almost trigger each other straight away.
00:51:02.559 --> 00:51:04.320
And I'm not saying I feel like we kind of had that.
00:51:04.480 --> 00:51:08.400
As soon as I picked you up, I got a bit more twitchy as soon as I was fine in the car when I picked you up.
00:51:08.559 --> 00:51:09.760
And that's not no sorry about that.
00:51:11.119 --> 00:51:20.559
But I'm just saying, I really don't mean that in a way of like, oh, it's your fault, but I just got to rets like there is this weird thing that like you kind of you both set each other off.
00:51:20.639 --> 00:51:20.880
Yeah.
00:51:21.039 --> 00:51:21.360
Fuck.
00:51:21.599 --> 00:51:24.400
I have met people that don't set me off that claim they have to rates.
00:51:24.719 --> 00:51:26.079
Hi-5 me, man boobs.
00:51:26.719 --> 00:51:27.440
Thanks, tits.
00:51:27.599 --> 00:51:29.199
Um I hope man boobs six.
00:51:29.519 --> 00:51:31.599
It's because you're doing this with your hands, so it's like right there.
00:51:33.360 --> 00:51:33.920
No, you're fine.
00:51:34.000 --> 00:51:34.800
Um gay.
00:51:35.119 --> 00:51:36.559
Sorry, my hands are a bit clammy as well.
00:51:36.800 --> 00:51:37.280
That's fine.
00:51:37.440 --> 00:51:38.000
Did you notice?
00:51:38.400 --> 00:51:38.719
I did.
00:51:39.440 --> 00:51:40.400
I thought you washed them.
00:51:40.639 --> 00:51:42.480
Um what was what's that?
00:51:42.639 --> 00:51:43.599
But that's what I'm trying to get at.
00:51:43.679 --> 00:51:46.960
It's the fact that I I can't say for sure that they don't have to.
00:51:47.599 --> 00:51:47.840
Which?
00:51:48.159 --> 00:51:51.039
I've met so many people where I have that feeling instantly.
00:51:51.280 --> 00:51:51.519
Yeah.
00:51:51.760 --> 00:51:52.800
But there's some people that I have.
00:51:53.119 --> 00:51:56.880
I think I have once actually, now that I think of some, but I I don't think I can talk about it.
00:51:57.039 --> 00:51:57.840
No, that's absolutely fine.
00:51:58.079 --> 00:51:58.800
I I I respect that.
00:51:58.880 --> 00:51:59.920
I wasn't trying to call you out when it was.
00:52:00.159 --> 00:52:01.119
Is that quite a big thing online though?
00:52:01.280 --> 00:52:02.159
People faking it.
00:52:02.239 --> 00:52:03.119
Yeah, did it, yeah.
00:52:03.360 --> 00:52:03.760
Yeah.
00:52:04.000 --> 00:52:05.760
Thankfully, not so much these days.
00:52:05.840 --> 00:52:07.199
I feel like it's calmed down.
00:52:07.440 --> 00:52:09.360
But I think it has, and I don't think you'll know.
00:52:09.440 --> 00:52:11.760
There's a few that off straight off the bat, was it Ticks and Roses?
00:52:11.920 --> 00:52:12.719
She was a big one online.
00:52:13.280 --> 00:52:18.079
And like I think I don't know how it came out that she ended up well, actually I do.
00:52:18.159 --> 00:52:20.079
I I saw a video the other day about it.
00:52:20.239 --> 00:52:23.519
She put herself out there all out of the blue and it was she became quite big.
00:52:23.760 --> 00:52:24.159
Breakfast.
00:52:24.400 --> 00:52:28.159
But then it was all a little bit her ticks were a limit to Do you recognise that?
00:52:28.320 --> 00:52:28.800
Blackfist.
00:52:29.360 --> 00:52:30.159
Do you know what it's from?
00:52:30.719 --> 00:52:32.639
I never meet people who know what it's from.
00:52:33.119 --> 00:52:33.599
Blackfist.
00:52:33.679 --> 00:52:34.480
Have you ever seen the video?
00:52:34.639 --> 00:52:34.719
No.
00:52:36.800 --> 00:52:37.360
In the kitchen.
00:52:37.599 --> 00:52:38.000
I know it.
00:52:39.199 --> 00:52:40.639
I know I do now, it's been explained.
00:52:41.679 --> 00:52:42.800
But what we're gonna talk about enough.
00:52:44.159 --> 00:52:45.840
People online and personally pretending.
00:52:46.159 --> 00:52:51.280
She she was a big one who said that she was very handy.
00:52:56.000 --> 00:53:02.639
But she she she came out and it was her ticks were like too I don't know how else to say it, but they were like too perfect.
00:53:02.880 --> 00:53:03.599
If you know what I mean.
00:53:03.920 --> 00:53:09.440
Like they were too they were like, I mean, oh don't do that, don't do that, don't do that, do it.
00:53:09.840 --> 00:53:12.480
It was too it there was sorry if anyone who saw my hairline then.
00:53:13.039 --> 00:53:16.800
But um that's worse than the hairline, don't worry.
00:53:17.440 --> 00:53:18.400
You look great, Josh.
00:53:19.599 --> 00:53:21.599
No, you look quick.
00:53:23.760 --> 00:53:25.199
That's not the first time you troll to it.
00:53:25.920 --> 00:53:26.159
No.
00:53:26.559 --> 00:53:29.679
You we actually do give Quinn on a slap at the end of every episode as well.
00:53:30.159 --> 00:53:31.119
So it's just good for you to know.
00:53:33.519 --> 00:53:34.480
That was quick.
00:53:34.639 --> 00:53:36.480
But so anyway, but basically it came out.
00:53:36.559 --> 00:53:42.480
I think people started to question her online, and then actually Widlough her sister posted that she's never been diagnosed from a sister.
00:53:42.719 --> 00:53:47.599
But I think and there was that Elphabara Alpha Bar, whatever her name is.
00:53:47.679 --> 00:53:48.639
Was it Scarlett Moffat actually?
00:53:49.199 --> 00:53:49.599
Scarlett Moff.
00:53:49.760 --> 00:53:51.199
She got in trouble, didn't she, a few years ago for the instruction?
00:53:51.599 --> 00:53:54.480
She made a really fucking stupid comment on a documentary she did.
00:53:54.639 --> 00:53:56.719
Actually, Jody and Nicole Dyer were on it.
00:53:56.880 --> 00:53:57.920
Yeah, I was invited on it.
00:53:58.159 --> 00:53:58.559
Oh really?
00:53:58.719 --> 00:53:59.199
I refused.
00:53:59.440 --> 00:54:00.480
Yeah, I'm not really yeah.
00:54:00.559 --> 00:54:02.559
I'm not saying that you shouldn't or shouldn't not go on it.
00:54:02.639 --> 00:54:04.400
Yeah, I don't actually have any recollection of that.
00:54:04.559 --> 00:54:06.960
I've only watched it once to kind of see nice feet.
00:54:07.119 --> 00:54:12.639
But she'd made a comment about that she had ticks and that she didn't want to get too close to it.
00:54:12.719 --> 00:54:24.400
In case she caught it, that set us back in the threats community because then people honestly, I'm not saying people are stupid, no one is, but unfortunately, people do take things that betray you, and it's like, but of course you can't catch it.
00:54:24.559 --> 00:54:25.199
Yeah.
00:54:25.840 --> 00:54:38.079
Yeah, someone that I mutuals with after that actually got a text from someone at work that where she works saying, hi, like I don't mean to be rude, but I saw the channel full documentary and I'm a bit worried about coming into work now.
00:54:38.159 --> 00:54:39.119
Am I gonna catch your tour?
00:54:39.360 --> 00:54:46.880
You joke you know, someone that I was mutuals with, and so obviously she sent a message back saying, like, this is absolutely disgraceful.
00:54:47.119 --> 00:54:49.519
No, you're obviously not gonna catch my Tourette.
00:54:49.760 --> 00:54:55.360
Cunt chicken, but it just shows that um Evie, what the media puts out there.
00:54:55.599 --> 00:54:57.039
Oh, that was my take that I was telling you about.
00:54:57.119 --> 00:54:57.920
Oh, yeah, yeah.
00:54:58.079 --> 00:54:58.719
Fuck you, yeah.
00:54:58.880 --> 00:54:59.440
Hey cunt.
00:54:59.599 --> 00:55:01.679
Oh, I didn't know if you were talking about electric vehicles.
00:55:02.000 --> 00:55:02.239
What?
00:55:03.119 --> 00:55:04.400
Oh, the cars, right?
00:55:04.559 --> 00:55:05.039
Hello.
00:55:05.519 --> 00:55:07.039
Um, what was I saying?
00:55:07.199 --> 00:55:12.559
But it just shows that what the media puts out there does actually have an effect and people do believe it.
00:55:12.880 --> 00:55:14.000
People believe anything, that's the issue.
00:55:14.079 --> 00:55:19.280
It's yeah, I haven't even got an example of something that's outrageous that people believe, but Santa.
00:55:19.599 --> 00:55:20.880
There is so many things like that.
00:55:22.159 --> 00:55:23.760
Sorry, kids, Santa Israel.
00:55:24.639 --> 00:55:25.280
Bitch.
00:55:26.159 --> 00:55:27.519
This is a kids' podcast.
00:55:28.320 --> 00:55:29.039
Oh yeah.
00:55:32.400 --> 00:55:34.239
Oh no Lord of all kids.
00:55:34.960 --> 00:55:35.280
That was cool.
00:55:35.440 --> 00:55:37.039
Plus, I've been saying that the whole time.
00:55:37.280 --> 00:55:37.840
To the kids.
00:55:38.000 --> 00:55:38.480
F the kids.
00:55:38.559 --> 00:55:39.599
I've been saying that the whole episode.
00:55:39.679 --> 00:55:40.960
I think it's all the time it's true.
00:55:41.199 --> 00:55:41.519
Maybe not.
00:55:42.239 --> 00:55:42.320
Yeah.
00:55:42.800 --> 00:55:43.519
Fuck off.
00:55:45.280 --> 00:55:46.719
Santa was so good.
00:55:47.760 --> 00:55:49.440
That was that kind of opening it up to me.
00:55:50.800 --> 00:55:52.719
I'm sorry, my head's going to get back to it.
00:55:52.960 --> 00:55:53.519
What were we saying?
00:55:53.679 --> 00:55:54.800
What were we talking about?
00:55:55.039 --> 00:55:59.199
Uh the oh media and how they can portray things in a certain way and make people believe.
00:55:59.280 --> 00:56:05.920
But that goes in so many different directions in life, which is back to it again, why people spreading awareness for like with threats or other conditions.
00:56:06.400 --> 00:56:06.800
Oh, of course.
00:56:06.880 --> 00:56:13.679
And I think actually this comes back to the topic of like, you know, I'm so glad this is why we're doing it, because Tourette's Awareness Month is between May 15th to June 15th.
00:56:13.760 --> 00:56:13.920
Yeah.
00:56:14.000 --> 00:56:14.079
Yeah.
00:56:14.159 --> 00:56:15.519
And we're slap banging the middle right now.
00:56:15.760 --> 00:56:16.239
What day is it?
00:56:16.400 --> 00:56:17.599
Today's the 31st, isn't it?
00:56:17.840 --> 00:56:19.840
Do you guys do a lot of work with Tourette's Awareness?
00:56:20.159 --> 00:56:20.559
Gay!
00:56:22.000 --> 00:56:24.480
Um well, I would say so, yeah.
00:56:24.800 --> 00:56:25.039
Yeah.
00:56:25.360 --> 00:56:32.960
I think we kind of like we unofficially do it ourselves because I've done a lot of work with Tourette's Action, and Tourette's Action is the leading UK charity for Tourette, so there's a great charity.
00:56:33.039 --> 00:56:34.960
And we've I've have you done stuff with them as well.
00:56:35.199 --> 00:56:37.440
Well, I went to their Tourette's camps, that was Tourette's Action.
00:56:37.599 --> 00:56:41.519
So the kids I know I did a campaign with them last year, maybe the year before.
00:56:41.679 --> 00:56:49.440
Um yeah, not to say that I wouldn't do it again 100%, I'd do it again if we worked together, but I think we you and I probably have done it, we do it all out in our own in our own way.
00:56:49.679 --> 00:56:50.079
Yeah, yeah.
00:56:50.239 --> 00:56:55.119
And again, I think we just try and put ourselves out there to I often think about the younger kids.
00:56:55.199 --> 00:57:02.880
I think about the teenagers that are going through the tough time of dealing with threats and also dealing with a tough time of life like teenage the fuck you nonce.
00:57:03.519 --> 00:57:10.000
Dealing with like things of that age, any whether it be puberty or oh yeah, relationships and all that sort of yep, big problem for some.
00:57:10.239 --> 00:57:15.039
Um but you know, we it can be difficult at the best of times, let alone dealing with threats on top of that.
00:57:15.199 --> 00:57:16.159
Colin, what about you, Colin?
00:57:17.199 --> 00:57:20.960
Um so Gabley.
00:57:21.119 --> 00:57:24.559
Well, I'm trying to say is I I do it to help other people, yeah.
00:57:24.719 --> 00:57:26.480
Yeah, to help other people that are going through it.
00:57:26.719 --> 00:57:28.960
I mean, and and adults as well, but especially the kids.
00:57:29.119 --> 00:57:29.920
Well, that's kind of the thing.
00:57:30.000 --> 00:57:37.599
I know you bump into a lot of people who you've helped over the years because they come into the shop and all, but do you have that often where you meet people now that you know you've helped who also struggle with similar things?
00:57:38.239 --> 00:57:46.480
Yeah, I get I get people who say to me quite a lot, um actually, you know, I was telling you we were just on holiday uh a couple weeks ago down by the coast.
00:57:46.719 --> 00:57:53.039
Um we we went to grab a bite to eat somewhere, and this woman came over me.
00:57:53.280 --> 00:58:00.960
Fuck off, came over, she came over to us when we were at the table and said, Um, I know this is really weird, but hello.
00:58:01.360 --> 00:58:06.719
And she recognized me and she said that there was a mum at a baby group.
00:58:06.880 --> 00:58:07.679
Was it mum?
00:58:07.840 --> 00:58:14.159
Um, uh like a baby group who had been diagnosed with Tourette's, and they were literally just talking about me a few days before.
00:58:14.320 --> 00:58:16.480
And this was like somewhere that we'd never been before.
00:58:16.559 --> 00:58:20.639
It was like totally random, like totally random chance meeting.
00:58:21.199 --> 00:58:28.800
But like it's really cool to know that you're helping people and having like no idea about it, people that you've never met, and like making a difference to some.
00:58:29.199 --> 00:58:30.320
That's the best bit about it, I think.
00:58:31.039 --> 00:58:31.280
Fuck.
00:58:31.440 --> 00:58:32.159
Um that's the deal.
00:58:32.400 --> 00:58:33.440
Yeah, it was really cool.
00:58:33.840 --> 00:58:37.760
And that happens, that happens quite a lot, even if it's not in person.
00:58:37.920 --> 00:58:39.119
Get DMs quite a lot.
00:58:39.199 --> 00:58:40.320
I'm sure that you're not.
00:58:40.480 --> 00:58:41.039
Yeah, definitely.
00:58:41.119 --> 00:58:50.000
I I it's hard because there's some situations that especially when they're really young, like say the kid, like I often get parents messaging me, which I completely appreciate.
00:58:50.480 --> 00:58:59.199
But when they're talking about that, there's the kid that's maybe 10 or a little bit under, it's got donors to let's I'm not saying I can't give them advice, but obviously I never even had to let's that young.
00:58:59.440 --> 00:59:00.159
No, me neither.
00:59:00.400 --> 00:59:06.719
I find it difficult to like give them a good solid piece of advice if I haven't dealt with it myself.
00:59:07.599 --> 00:59:17.039
I think the way I want to end this on a more behind, or it yeah, it doesn't have to be funny, but what's one of your best interactions with someone in public who's come and said hello?
00:59:17.360 --> 00:59:22.320
Because we spoke about this just before, and I don't know if you had any other any other good ones.
00:59:22.639 --> 00:59:25.440
Um beat.
00:59:26.480 --> 00:59:30.239
Um I'll put you on the spot now.
00:59:30.320 --> 00:59:33.039
I've got one off the bat because I told it to you before.
00:59:35.519 --> 00:59:37.039
Can you remember any mum?
00:59:39.119 --> 00:59:40.320
Everyone's getting put on the spot.
00:59:40.559 --> 00:59:50.719
Not from like I've had a good interaction with someone that was genuinely really good because of a tick that I had, but it wasn't someone who knew me.
00:59:51.039 --> 00:59:57.440
Oh well no, they you had to explain and then they Yeah, and we just got on really well, and it was actually because I'd scared the life out of him.
00:59:57.840 --> 01:00:03.840
Although I was in London at one of my appointments and I came out the clinic and we were waiting for an Uber.
01:00:04.000 --> 01:00:08.559
Hey! And this guy came out of the clinic and I turned around and went boom right in his face.
01:00:08.719 --> 01:00:09.599
Cut chicken.
01:00:10.079 --> 01:00:14.320
Because with my Torettes, it really attaches on to B words, like with the lips.
01:00:14.400 --> 01:00:18.719
I don't know if your tics, hello, um, cling on to certain sensations.
01:00:18.880 --> 01:00:22.800
So, like, because for me it's in my lips, but but it's like I don't know.
01:00:22.880 --> 01:00:23.920
No, you said that I don't know.
01:00:24.239 --> 01:00:25.840
It's like a really big sensory thing for me.
01:00:25.920 --> 01:00:29.039
So like breakfast, hello, loads of different B words.
01:00:29.840 --> 01:00:30.960
So thank you.
01:00:31.360 --> 01:00:37.760
So, like at the time, going but was a really big thing for me, and I just happened to turn around and do it really loud right in this guy's face.
01:00:37.920 --> 01:00:38.880
Hello fuckers.
01:00:39.519 --> 01:00:46.239
Um and like he jumped an absolute mile, but he carried on walking and he was waiting for an Uber a bit further down.
01:00:46.400 --> 01:00:51.519
And I turned to my mum and I was like, I've got to say something, like I can't just leave it at that.
01:00:51.920 --> 01:00:54.320
So I went over and I was like, I'm really sorry I scared you.
01:00:54.400 --> 01:00:55.920
I have Tourette's, like, I didn't mean to.
01:00:56.000 --> 01:00:59.599
Hello fuckers, and we actually just had a really nice conversation.
01:00:59.760 --> 01:01:02.239
Um, and it was just really, really nice.
01:01:02.639 --> 01:01:03.199
Oh, that's lovely.
01:01:03.840 --> 01:01:04.480
That's a nice one.
01:01:04.880 --> 01:01:06.559
That is lovely, and I think you do, yeah.
01:01:06.639 --> 01:01:14.880
I mean, I think straight away I kind of it's easier for me to recall bad situations than it is good, which I hate saying that because but it is true.
01:01:15.119 --> 01:01:16.400
But bitch.
01:01:16.719 --> 01:01:22.960
I remember once there was an unfortunate time where I'd made a bit of a fool of myself out of my friends, and I got left by my friends in London.
01:01:23.280 --> 01:01:27.599
And uh, for good reason, they were they should they they had the they they made the right call.
01:01:27.840 --> 01:01:35.280
But I um I was actually then on the train with like a bag of five Big Mac meals, and I dropped all the drinks, the drinks were gone.
01:01:35.360 --> 01:01:42.480
I'm I'd lost the majority of the chips, but I had three Big Mac burgers, and I was very twitchy, and I had to get on the tube and then change.
01:01:42.719 --> 01:01:46.239
Obviously, I if it wasn't already clear, I had a couple of drinks that night.
01:01:46.400 --> 01:01:48.880
Woohoo! And my ticks went really mad.
01:01:48.960 --> 01:01:57.360
I think because a little bit I'd been left on my own, and I was trying to give out the burgers because I thought I can't eat eat, I'll take three of them on, but I can't eat all five.
01:01:58.079 --> 01:01:58.880
Fuck off, Mike.
01:01:59.199 --> 01:02:00.000
I was trying to give them out.
01:02:00.159 --> 01:02:05.840
We obviously I do get it a random person on the tube giving out food from a bag that you have no idea where it's coming from.
01:02:05.920 --> 01:02:06.480
You're not gonna take it.
01:02:07.360 --> 01:02:11.039
But there was a bit like I sat next to this youngish couple, they were probably younger than me at the time.
01:02:12.079 --> 01:02:16.800
Um it's the man boobs, like that's like my like my nickname.
01:02:17.039 --> 01:02:17.679
I like that.
01:02:18.960 --> 01:02:21.760
And I was talking to this couple, and I went, I know this sounds really weird.
01:02:21.840 --> 01:02:24.079
I'm a ja fuck fuck, I'm a genuine person.
01:02:24.159 --> 01:02:25.039
I have tourettes, by the way.
01:02:25.119 --> 01:02:25.920
But would you like a Big Mac?
01:02:26.079 --> 01:02:27.920
And he went, Yeah, I'll have a Big Mac.
01:02:28.400 --> 01:02:29.920
And we sat there and we ate a burger together.
01:02:30.000 --> 01:02:31.280
And I meant, I know this is really weird.
01:02:31.360 --> 01:02:40.480
I said, and I told him my story of the night, which I'm not gonna go into now, but and I explained about my Tourette's and he just made me feel so much more comfortable because I was I wasn't in a really anxious position.
01:02:40.639 --> 01:02:43.599
Hello! And I'm I'm glad he accepted my burger and we had a good chat.
01:02:44.079 --> 01:02:44.639
That's so nice.
01:02:45.039 --> 01:02:47.599
So if you ever remember doing that, mate, just thanks.
01:02:48.159 --> 01:02:48.719
That is great.
01:02:49.119 --> 01:02:50.239
That's really sweet.
01:02:50.559 --> 01:02:51.519
Fuck off, mum.
01:02:51.679 --> 01:02:53.679
Yeah, that's really really nice.
01:02:56.159 --> 01:02:58.960
I think this is where we should think about wrapping up, don't you?
01:03:00.159 --> 01:03:05.199
Right, so you I just want to say one, appreciate you coming down to do this, two, it's been a fucking great show.
01:03:05.280 --> 01:03:06.480
I hope Queeline's enjoyed it.
01:03:06.559 --> 01:03:07.360
Yeah, it's been great to meet you.
01:03:07.760 --> 01:03:08.239
Yeah, you too.
01:03:08.320 --> 01:03:12.000
I've had queef before I've been calling you queef without you even knowing for a while.
01:03:12.800 --> 01:03:13.119
Fuck off.
01:03:13.280 --> 01:03:16.000
Well, I say a while, just earlier today.
01:03:16.159 --> 01:03:16.639
Fuck off.
01:03:16.960 --> 01:03:18.639
I have had it quite often in my life.
01:03:19.119 --> 01:03:21.039
I've had worse, but we all get into that now.
01:03:21.119 --> 01:03:21.840
I'm not gonna die.
01:03:23.199 --> 01:03:23.440
Yeah.
01:03:23.679 --> 01:03:24.960
But I really appreciate you calming down.
01:03:25.039 --> 01:03:26.960
I hope you've enjoyed yourself and yeah, I appreciate you.
01:03:27.280 --> 01:03:29.599
I don't want to get cringy, but before we finish, coaching.
01:03:30.320 --> 01:03:34.639
No, don't need to say, Oh god, I was just gonna say thank you because hello.
01:03:34.960 --> 01:03:38.559
Just last week my Tourette's was really bad and I was really struggling.
01:03:38.800 --> 01:03:44.079
And like, you know those days where you get like really down in the dumps and you're like, I don't want to have Tourette's anymore.
01:03:44.239 --> 01:03:46.159
Like, just really, really sorry for yourself.
01:03:46.320 --> 01:03:48.159
I've been having quite a few of those days lately.
01:03:48.480 --> 01:03:51.679
So, like when I found out I was coming here, I was like really looking forward to it.
01:03:51.840 --> 01:03:52.800
Oh, I'm tough to hear that.
01:03:53.039 --> 01:03:53.840
Really lifted me up.
01:03:54.159 --> 01:03:57.679
It's always good to be around someone else with Tourette's, I think.
01:03:57.760 --> 01:04:00.400
So I don't have anyone near me, a lot of people down south.
01:04:00.480 --> 01:04:04.159
And my lovely friend Saren, I don't get to see her very often.
01:04:04.480 --> 01:04:06.960
Otto Cook is exactly love that bitch.
01:04:07.119 --> 01:04:07.840
Yeah, she's amazing.
01:04:08.000 --> 01:04:09.280
She's she's a beautiful human being.
01:04:09.440 --> 01:04:10.239
Yeah, she is.
01:04:10.480 --> 01:04:12.239
Um, so I was really looking forward to this.
01:04:12.400 --> 01:04:12.719
I'm so excited.
01:04:13.119 --> 01:04:16.800
Being around someone like me, I think you need to be around people more that are.
01:04:17.199 --> 01:04:18.239
And I think that is definitely important.
01:04:18.320 --> 01:04:28.639
And I I do get what you're saying, that it's not always possible to be around people, but that's why I encourage people to try and come some come to my shop, not just for the business, but actually to meet other people that do the same thing.
01:04:28.800 --> 01:04:29.039
Yeah.
01:04:29.199 --> 01:04:30.079
You know, that's what we need.
01:04:30.320 --> 01:04:30.719
I appreciate it.
01:04:30.800 --> 01:04:37.840
Actually, the one last question I will ask is if you could take a pill tomorrow to have to take your Tourette's away, would you take it?
01:04:38.719 --> 01:04:40.159
Depends what day you ask me on.
01:04:40.400 --> 01:04:42.480
This is true, but let's say an average day.
01:04:44.880 --> 01:04:48.719
I made a video about this years ago and I said no, absolutely not.
01:04:49.280 --> 01:04:55.840
But there's no right answer, but I've I'd say your answer is right because I've said no, because I believe that it's made me who I am.
01:04:56.079 --> 01:04:57.599
Yeah, I mean I think the same.
01:04:57.679 --> 01:05:01.440
I think my confidence because I have Tourette's has gotten so much higher.
01:05:01.599 --> 01:05:02.480
Like, hello.
01:05:02.960 --> 01:05:05.920
Like, you probably won't believe this, but when I was in college, I was actually mute.
01:05:06.079 --> 01:05:06.719
Fuck off.
01:05:06.880 --> 01:05:08.400
I was mute for like nearly two years.
01:05:08.639 --> 01:05:12.400
But your mum still wishes probably sometimes, yeah.
01:05:12.639 --> 01:05:12.960
Hello.
01:05:13.280 --> 01:05:15.519
Just a remote wouldn't be a bad thing every so often, would it?
01:05:15.760 --> 01:05:16.880
Just fucking shut it off.
01:05:17.280 --> 01:05:22.480
Um, but like when my Tourette's got way more vocal, it literally pushed me out of myself.
01:05:22.800 --> 01:05:23.199
Hello.
01:05:23.599 --> 01:05:29.920
And so I think the way that I can talk to people that I haven't met now so easily is because of my Tourette.
01:05:30.079 --> 01:05:31.519
So I'm very grateful for that.
01:05:31.920 --> 01:05:36.639
So maybe no, but then sometimes I'm like, yeah, get rid of it right now.
01:05:36.800 --> 01:05:37.280
Hello.
01:05:37.760 --> 01:05:43.360
But um, but also I wouldn't have met you or Saren or all these other people if I didn't have Tourette.
01:05:43.519 --> 01:05:45.519
So no, no, I respect that.
01:05:46.159 --> 01:05:48.639
Yeah, beautiful stuff.
01:05:49.280 --> 01:05:50.400
And that wasn't a man boobs.
01:05:50.800 --> 01:05:51.760
That wasn't man boobs.
01:05:51.840 --> 01:05:52.320
I'll take it.
01:05:52.480 --> 01:05:53.840
But you are a man boobs, we'll stay for it.
01:05:54.239 --> 01:05:55.119
Stay tuned for next week.
01:05:55.360 --> 01:05:56.320
I keep looking at you.
01:05:56.480 --> 01:05:57.360
Hello, fuckers.
01:05:57.519 --> 01:05:58.079
Bye, fuckers.
01:05:58.320 --> 01:05:59.440
Beep, beep, beep, beep, beep.
01:05:59.679 --> 01:06:00.159
Beep.