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This week, Jeremy talks to Dr. Kelly Gwathmey, Chair of Neuromuscular Neurology at Virginia Commonwealth University, about recent research showing racial disparities in the time it takes to confirm an ALS diagnosis. Learn more about the research conducted at VCU at https://www.sciencedirect.com/sci…
This week, Jeremy catches up with Brooke Eby, a social media influencer living with ALS, about her efforts to raise awareness of ALS and critical funding for ALS research, and how she uses levity and humor along the way.   Find ways to follow Brooke’s journey at https://hoo.be/limpbroozkit   Check …
This week, Jeremy kicks off National Wellness Month with Melissa Enfinger from The ALS Association’s Care Services team.   To participate in research into the mental health and wellness needs of people living with ALS, go to https://milwaukee.qualtrics.com/jfe/form/SV_4I9CXsunR8LrTYa This episode i…
This week, Jeremy explores some of the ongoing fights to make insurance work more effectively for people living with ALS. He is joined by Shannon Todd from The ALS Association’s Care Services team and ALS advocate Katie Adams, who updates us on her ongoing fight for insurance coverage of her power …
This week Jeremy explores some of the barriers insurers establish that make it difficult to use insurance for essential health care needs, and talks to Kara Nett Hinkley, National Vice President of State Advocacy at The ALS Association, about some of the work being done to break down those barriers…
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