Empowered Aging. Proactive Strategies for Seniors with Type 1 Diabetes

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Welcome to Think Like a Pancreas--The
Podcast where our goal is to keep
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you informed, inspired, and a little
entertained on all things diabetes.
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The information contained in this
program is based on the experience
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and opinions of the Integrated
Diabetes Services clinical team.
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Please discuss any changes to your
treatment plan with your personal
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healthcare provider before implementing.
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Hey everyone.
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Welcome back to Think like
a Pancreas--The Podcast.
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Today we're gonna be talking about
something that does not get nearly enough
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attention, and this is what it looks like
to grow older with Type one Diabetes.
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My guest is Joanne Milo, who has
lived with T1D for 60 years and just
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launched a brand new project called
T1D to 100, which is a resource website
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for people aiming to thrive with type
one diabetes in every decade of life.
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Joanne is also known for her
long running blog, the Savvy
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Diabetic, and helping to build the
amazing loop and learn community.
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Joanne, welcome.
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It is so good to have you.
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Thank you, Catherine.
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It's, it's great to be here with you.
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It's always wonderful.
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Yeah, you're just so incredible.
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So, um, and just one of my favorite
people and just so glad that diabetes
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brought me to you and to be able to
get to know you because of this, this
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thing we have to deal with every day.
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Is there anything that really sparked
your desire to create this website?
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Yeah, it's, um, well, the way I look at
all of this is everybody's on a journey.
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We're, we're born.
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We live our lives.
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Mm-hmm.
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And then we kind, there's
an end game and then we die.
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I mean, it's, it's just a reality.
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And if you're doing that with T1D,
it's just that much more complicated.
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And, um, I, I think I was maybe in my
sixties and started to have some medical
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issues or surgeries and started to get
a little concerned that... I looked at
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the end and looked at my, my husband
and thought, I don't have children.
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Who's there for me?
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What am I gonna do?
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And, and I talked to a lot of people and
I started to hear older people getting
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frightened of-- they're frightened alone.
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They're frightened of what's going to
happen, who's gonna take care of me?
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And I started to look at that
and thought, there are no answer.
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There's no, nobody's talking about this.
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Mm-hmm.
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Uh, I told a group of friends,
long-term T1Ds, to my dining room
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table, and we sat around about 10
of us saying, what are the issues?
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What are we concerned about?
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What do we think we need help with?
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And came up with a list.
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I chatted with Bill Polanski and Paul
Madden on a Zoom and said, I, I, I really
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think we need to pay attention to this.
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Bill said to me, well, what's the problem?
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You're living longer Isn't
that just wonderful?
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And the answer is yes, of course.
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We're very grateful.
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It's technology that's let us live longer.
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But the reality is nobody knows what
to do with us and no one knows how to
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comprehensively take care of us and
make sure we are safe till end of life.
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And became real clear to Bill and to Paul.
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This is an issue and
nobody's dealing with it.
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No one's looking at it, no one's setting
up safeguards and, and systems that will
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work for us, and very little research.
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And so I thought, we need to do that
and we need to educate ourselves
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because I've learned over 60 years,
we have to advocate for ourselves.
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There aren't that many T1Ds total.
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There are more, there are more
T2Ds, there are more people.
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We have to take care of
ourselves first and foremost.
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And, and I'm used to advocating
and I'm used to being a loud voice
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and say, there's a problem here.
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Um, so we met several times and
we made a list of things that
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we thought were major issues.
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I just started putting it together,
saying, what do we do with this?
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What, how do we get attention?
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How do we, uh, get the research
community lined up with us?
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And so I've connected very, very
well with research community.
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And then on a visit to my endo
on a day, there were just issues.
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And he said, how are you doing?
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I said, I, I'm, I'm tired of this.
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I'm just overwhelmed and tired of it.
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And he said, no, not you.
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And I said, yeah, um, I am struggling.
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And he said, I'm sorry to hear that.
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And then the appointment went on.
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It wasn't even addressed yet.
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I was taking calls from
people going, I'm scared.
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What do I do?
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And I thought, we, we need to address it.
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So, um, that was the beginning
of the decision that we
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need to get out information.
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It's knowledge that helps us plan and
at least not get caught by surprise.
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Truly informational.
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Share the information.
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Connect to the research community,
and then educate caregivers who
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really don't know what to do with us.
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And as an aside, I think
they'd rather not deal with us.
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Um.
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Yeah.
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We're not as, as 10 year olds and we have
far more problems, um, complications,
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issues, uh, comorbidities, and, um, we
are complicated and we take more time
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and it, it piles up and it gets worse.
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So it's like how do we
prepare for that future?
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It seems like so many providers just
have thought of type one diabetes, of
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this juvenile disease, and for so long,
just it seems like they forget that
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people with type one diabetes get old.
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And oftentimes people with type one
diabetes are diagnosed later in life.
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I mean, the amount of people I've
met that weren't even diagnosed
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until they were in their sixties
is... Truly, it's blown my mind.
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I never even realized until I
started meeting so many people.
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Well, I, I was diagnosed in 1965 and at
that time, most of us we were told we
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would not live past age 40 and, and I'm
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terrible.
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71. So that, that number
has gone by the wayside.
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But we weren't expected to be here.
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A lot of women were told not to
have children, um, because of
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the stress and the difficulties.
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Without the technology that just
wasn't even thought of at the time.
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Mm-hmm.
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Um, so we got a lot of
ages who are careless.
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They have no next generation.
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Yeah.
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We are living longer.
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There are way more being
diagnosed as adults.
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And actually, I think the statistics
I recently heard through, uh,
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Breakthrough T1D, there are
more adult T1Ds than children.
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Yes.
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So we've, we've tipped the
scales and the over 60 crowd
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is a fast growing demographic.
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We're still here.
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Mm-hmm.
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And, but nothing is really prepared
for us coming on in such large numbers.
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Yeah.
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Yeah.
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It seems the only way where they've really
paid attention to the adult population
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is with a lot of the technology.
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I mean, majority of the things we use
work better in adults than they do in
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children, but kind of beyond that point,
it's, it's just like a forgotten age.
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So in coming together with the
group in your dining room table,
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what were these ideas that
flourished as you guys discussed?
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Uh, we were furiously taking notes and
it, it boils down to, there were a lot
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parts to it, uh, but it's basically,
um, who's gonna take care of me?
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How do I get prepared, prepared for
emergencies, falls, all the things
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that change of your living situations?
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Where am I gonna live and how?
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What does that look like?
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What's gonna happen to my body?
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And the more I hear it, the more things
are blamed on T1D and long term T1D.
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Doctors aren't always screening for
there, there are lots of issues.
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How do I keep coping?
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Um, as you age, as anyone
ages things happen to you.
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You know, you get conditions.
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You get new diseases.
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You have falls.
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And how do you keep
bouncing back emotionally?
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Uh, as you age, as
anyone ages there's loss.
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You lose your driver's license.
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You lose your ability maybe to
live alone or cognitively you
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lose your, your grasp on things.
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And how do we, we're trained
to control our diabetes.
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That's the big word, is control.
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How do you do, if you're getting tired,
you're cognitively a little bit off,
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you miss a step when you're doing
your, your insulin infusion changes?
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That's all real frightening.
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And then what happens if you're
support network isn't there anymore?
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Partners die.
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Um.
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Yeah.
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Children don't support aging parents
and the technology is confusing.
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And then you have systems, you have
healthcare and hospital systems
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that really are just beginning to
understand, don't pull devices off of
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people when you're in the hospital.
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You know, listen to the patient.
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But that's not everywhere.
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And, um, so we're saying don't pull
devices, you know, work with whoever's
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taking care of you in the hospital.
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Mm-hmm.
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Let them know that it is type one
diabetes, not type two diabetes.
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I, I've had several hospitalizations
and surgeries and I finally said,
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I think we should have a wristband.
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A paper wristband like they
give you in the hospital.
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Um
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mm-hmm.
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Say fall risk or allergic to penicillin.
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I wanted one that said
T1D or Type one Diabetes.
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Yeah.
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And asked to look at the hospital and
they said it would take five years to get
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through compliance to order wristbands,
so I ordered 500 of them for $75.
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Had 'em printed.
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Anytime I go to the hospital, I put it on.
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I share it with anyone
who wants one of them.
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It's easy, easy to do.
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And the last time I was in the hospital,
I was in pre-op and I said, excuse me,
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do you mind if I put on my wristband?
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And they said, you don't need that.
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We, we understand.
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And then they went through their
questions and they said, I see
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you have type one diabetes.
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And I said, yes.
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And they said, do you need insulin?
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And I thought, they don't understand.
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That's what the wrist band is for because
if, if you can't speak, you can hold up
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your wrist and say, Hey, look at this.
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This is important.
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Yeah.
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So it's all these safeguards and
tricks and tips that we can share in
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our community just to make us safer.
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Mm-hmm.
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Um, then there's stories,
people's stories.
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We wanna know how people do
what they do as they're aging.
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One lady I was talking with and she was
living a lovely life and suddenly her
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husband had a stroke and died and she
said, I always thought I'd go first.
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I think that's what we don't plan.
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Our caregiver will be there.
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We'll outlive him.
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Yeah.
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And its not a guarentee and her,
we've written about her journey.
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We interviewed her and she's
the epitome of, one of the
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fears we have is, what happens?
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And how suddenly does it happen?
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And how can you be aware?
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She didn't know how, what the passwords
were to get into the computer.
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She didn't know-- he did the finances
and we interviewed her and that
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night, both of us who interviewed
her couldn't sleep going, uhoh.
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Yeah.
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We better prepared for this.
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You don't want these things, but
they do happen and they will happen.
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So everything we can do to share that and
help people be resilient in this journey
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seems just essential at this point for us.
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Yeah, absolutely.
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And it really is like-- going into
assisted care, having that plan in
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place makes such a big difference.
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Like it's not fair to go in and, and
have to give up what you've been using
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for years because they'll only allow
you to do MDI or um, take over that
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control of, of how you want to navigate.
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Oh, put you on a sliding scale.
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Oh my gosh.
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I learned a lot about options for
living if you aren't able to stay
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in your home or you don't want to,
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mm-hmm.
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Some places have a huge surcharge
on type one diabetes patients.
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00:13:22,635 --> 00:13:27,765
Um, they don't want them,
if they do, it costs more.
240
00:13:27,855 --> 00:13:32,085
I, I heard someone gets,
gets charged per injection.
241
00:13:33,015 --> 00:13:36,285
Um, I've heard others where
they don't have night staff that
242
00:13:36,495 --> 00:13:41,415
is authorized or certified to
deal with a type one diabetic.
243
00:13:41,415 --> 00:13:44,625
So if you say, I have low blood
sugar, they call the paramedics
244
00:13:44,625 --> 00:13:46,005
instead of giving you some juice.
245
00:13:46,335 --> 00:13:48,045
It's an education process.
246
00:13:48,105 --> 00:13:50,115
It's a change of the system.
247
00:13:50,235 --> 00:13:56,865
And it's also critical that we have
allied health providers who are
248
00:13:56,955 --> 00:14:01,365
knowledgeable about this disease and
can understand the devices and help us.
249
00:14:01,905 --> 00:14:01,995
Mm-hmm.
250
00:14:02,235 --> 00:14:08,805
Um, we, we will need help and there's
a real lack of prepared people.
251
00:14:09,600 --> 00:14:12,510
And, and the issues of
liability if I touch a pump.
252
00:14:12,510 --> 00:14:16,140
So how do we make sure
we're safe as we age?
253
00:14:16,290 --> 00:14:16,830
Yeah.
254
00:14:16,920 --> 00:14:24,600
It's such a big thing that the website is,
I mean, that's a huge start, but we have
255
00:14:24,600 --> 00:14:29,850
to get that to these healthcare providers
'cause they need to make a change.
256
00:14:29,850 --> 00:14:35,340
We can be super prepared, but if
we grow old, we lose our family
257
00:14:35,340 --> 00:14:40,140
members, even if we have a plan and
they're not willing to follow it,
258
00:14:40,590 --> 00:14:42,000
you know, what, what are we gonna do?
259
00:14:43,140 --> 00:14:47,250
Parents whose kids had, they, they
took care of the kids as type ones, as
260
00:14:47,580 --> 00:14:51,930
children, and they needed to be taken
care of, and then the kid goes to college.
261
00:14:52,020 --> 00:14:56,300
This parent with all this knowledge
is kind of put out to pasture.
262
00:14:56,640 --> 00:14:58,140
Their knowledge is not being used.
263
00:14:58,140 --> 00:15:04,470
How do we use those people to be, provide
support for an elderly person who can't
264
00:15:04,470 --> 00:15:06,660
quite remember how to put on a CGM?
265
00:15:06,900 --> 00:15:07,290
Yeah.
266
00:15:07,530 --> 00:15:10,260
And even sit there and step it through.
267
00:15:10,380 --> 00:15:15,660
And even if these people weren't
like, you know, licensed providers,
268
00:15:15,720 --> 00:15:17,400
how can we get them to help?
269
00:15:17,400 --> 00:15:20,790
I see how that could make such a big
difference because of course they know
270
00:15:20,790 --> 00:15:29,670
how to insert a CGM and um, yeah, they
would be excellent to join the team of,
271
00:15:29,940 --> 00:15:32,370
you know, these facilities right there.
272
00:15:32,370 --> 00:15:39,735
Not enough and certainly not enough allied
professionals that we, we need more help.
273
00:15:39,795 --> 00:15:43,665
And, and with this demographic
coming on so strong, it really
274
00:15:43,665 --> 00:15:48,344
needs attention because people will
not get the support they need and
275
00:15:48,344 --> 00:15:49,574
they'll end up in the hospital.
276
00:15:49,574 --> 00:15:54,615
And that's another burden of,
of cost and burdening the system
277
00:15:54,615 --> 00:15:55,814
that doesn't have to happen.
278
00:15:55,935 --> 00:15:56,295
Yeah.
279
00:15:56,505 --> 00:16:02,775
I wonder, did were any, did any ideas
come out of ADCS of like, what we could
280
00:16:02,835 --> 00:16:08,474
potentially do to better prepare like
our, you know, hospitals and long-term
281
00:16:08,474 --> 00:16:10,485
care facilities and places like that?
282
00:16:10,574 --> 00:16:12,165
Not, not yet.
283
00:16:12,300 --> 00:16:13,905
I, I, I think it's beginning.
284
00:16:13,905 --> 00:16:16,099
I was on a meeting last
night with my team.
285
00:16:16,560 --> 00:16:16,980
Mm-hmm.
286
00:16:18,435 --> 00:16:22,395
It was last night and this morning I
got an email from one member saying
287
00:16:22,605 --> 00:16:27,135
she spoke to another, uh, diabetes
educator and they're looking at
288
00:16:27,195 --> 00:16:29,235
how to provide that kind of care.
289
00:16:29,295 --> 00:16:34,365
So it's beginning and it's gonna come
from our community, and it's going to be
290
00:16:34,395 --> 00:16:39,105
to keep pushing the educators saying, you
have the skills that we're going to need.
291
00:16:39,825 --> 00:16:41,025
You can make money here.
292
00:16:41,685 --> 00:16:45,495
It's okay, you can get coverage,
but we're gonna need the help and
293
00:16:45,495 --> 00:16:46,995
we're gonna seriously need it.
294
00:16:47,115 --> 00:16:51,075
And people can do well on
their devices for a long time.
295
00:16:51,975 --> 00:16:56,775
Uh, but a lot of people are gonna need
some support and, and, and it gets,
296
00:16:57,885 --> 00:17:02,655
bringing back to the, what are some
of the issues as you physically age?
297
00:17:02,655 --> 00:17:08,295
Sometimes it's hard to open devices
and I've had difficulty opening CGM
298
00:17:08,295 --> 00:17:16,515
containers, um, I have arthritis and you
know, how do we make those things easier?
299
00:17:16,575 --> 00:17:16,965
Uh.
300
00:17:18,455 --> 00:17:21,630
The, the other issue that came up, and
I didn't understand it was an issue,
301
00:17:21,630 --> 00:17:24,570
but it is, is physical geography.
302
00:17:24,570 --> 00:17:27,150
Someone mentioned it in our
early meetings since, I don't
303
00:17:27,150 --> 00:17:28,260
know what you're talking about.
304
00:17:29,670 --> 00:17:34,500
We've been poking ourselves for
50, 60 years with needles and
305
00:17:34,500 --> 00:17:39,750
infusion sets, and we've been
the CGMs and our skin is damaged.
306
00:17:39,780 --> 00:17:41,130
Our skin gets sick.
307
00:17:41,460 --> 00:17:42,000
We age.
308
00:17:42,000 --> 00:17:43,560
We lose the fatty layer.
309
00:17:44,100 --> 00:17:46,470
Um, where do we stick the devices?
310
00:17:46,680 --> 00:17:51,690
And so we came up with a, an amazing
document called "Skin in the Game"
311
00:17:52,410 --> 00:17:57,510
of all the community input of things
they use that make it easier for your
312
00:17:57,510 --> 00:17:59,820
skin to handle all these devices.
313
00:18:00,300 --> 00:18:03,990
A local university and their
department of dermatology because
314
00:18:04,140 --> 00:18:06,270
the head of the department is a T1D,
315
00:18:06,575 --> 00:18:06,995
mm-hmm.
316
00:18:07,080 --> 00:18:11,970
And, um, he says, how do we validate
that this skin thing is a big thing?
317
00:18:12,210 --> 00:18:16,440
I'm running outta spaces, you know,
I've used that for so many years.
318
00:18:16,440 --> 00:18:22,004
So, um, it's just shedding the light
on the-- it's different now for us.
319
00:18:22,905 --> 00:18:28,575
Um, there's another area that we can touch
on briefly, but digestion and the way
320
00:18:28,575 --> 00:18:31,665
our bodies handle hypo and hyperglycemia.
321
00:18:32,145 --> 00:18:37,635
Lots of parts of this and we'll be
doing some seminars on it, but bringing
322
00:18:38,024 --> 00:18:42,315
your blood sugar up from low sometimes
doesn't work the way it used to.
323
00:18:42,885 --> 00:18:43,125
Right.
324
00:18:43,125 --> 00:18:47,835
Being that it doesn't work the way
it used to as we aged, let's get
325
00:18:47,835 --> 00:18:52,125
the knowledge out and the tools
that say, all right, it's changed.
326
00:18:52,155 --> 00:18:54,705
Here's the new way we do things.
327
00:18:54,764 --> 00:18:56,685
And just education.
328
00:18:57,585 --> 00:18:59,595
Yeah, and not even just digestion.
329
00:18:59,595 --> 00:19:02,475
Have you noticed changes
with insulin impact?
330
00:19:02,595 --> 00:19:03,045
Absolutely.
331
00:19:03,675 --> 00:19:03,945
Yeah.
332
00:19:05,310 --> 00:19:12,240
It's, it's your body is shifting and, and
changing and, uh, the liver's involved
333
00:19:12,240 --> 00:19:14,970
and, and your, your, your nervous system.
334
00:19:15,030 --> 00:19:21,840
So digestively, um, I did a, a, a
presentation a few years ago with, um,
335
00:19:21,899 --> 00:19:24,600
some experts at Stanford on digestion.
336
00:19:24,780 --> 00:19:27,330
And it's a tricky issue that
nobody wants to talk to.
337
00:19:27,330 --> 00:19:28,050
Mm-hmm.
338
00:19:28,215 --> 00:19:28,710
And talk about.
339
00:19:29,520 --> 00:19:30,300
It's unpleasant.
340
00:19:30,480 --> 00:19:31,260
It's important.
341
00:19:31,260 --> 00:19:35,399
And probably 50% of long-term T1Ds
are dealing with gastric issues.
342
00:19:35,909 --> 00:19:36,210
Yeah.
343
00:19:37,020 --> 00:19:38,370
We don't wanna talk about it.
344
00:19:38,490 --> 00:19:43,860
Um, neuropathies are things we'd
rather deny, but they are real.
345
00:19:44,610 --> 00:19:50,879
And particularly this first wave of
aging, T1Ds didn't have the benefit
346
00:19:50,879 --> 00:19:54,540
of better control, better technology.
347
00:19:55,110 --> 00:19:55,200
Mm-hmm.
348
00:19:55,440 --> 00:20:02,220
So maybe subject, beside the disease,
to have more issues of complications.
349
00:20:03,659 --> 00:20:04,169
So is
350
00:20:04,169 --> 00:20:05,699
it's a, how do you handle it?
351
00:20:06,510 --> 00:20:07,199
Yeah, yeah.
352
00:20:07,230 --> 00:20:13,199
Complications in general are just so
hard to talk about and it certainly makes
353
00:20:13,199 --> 00:20:21,149
people feel ashamed or embarrassed or, you
know, there's just so many words and yeah,
354
00:20:21,149 --> 00:20:22,980
they don't want, wanna talk about it.
355
00:20:24,000 --> 00:20:24,720
Just, yeah.
356
00:20:25,260 --> 00:20:26,040
I don't wanna go there.
357
00:20:26,040 --> 00:20:28,320
I don't, I don't wanna involve my spouse.
358
00:20:28,435 --> 00:20:28,675
I know.
359
00:20:28,794 --> 00:20:30,449
I just, I don't wanna talk about it.
360
00:20:30,449 --> 00:20:32,879
Which, which is totally understandable.
361
00:20:32,879 --> 00:20:32,939
Yeah.
362
00:20:32,969 --> 00:20:37,050
Um, I had that discussion this
morning with my husband because I, we
363
00:20:37,050 --> 00:20:39,870
talked last night and he said, it's
the first time I really understood
364
00:20:40,439 --> 00:20:41,850
an issue, that I was having.
365
00:20:41,850 --> 00:20:43,860
And I said, I don't like to talk about it.
366
00:20:44,070 --> 00:20:46,919
I just, I don't wanna
sound like complaining.
367
00:20:46,980 --> 00:20:48,300
I, but it's real.
368
00:20:48,300 --> 00:20:50,399
And I'd rather not say
those words out loud.
369
00:20:50,730 --> 00:20:51,120
Um,
370
00:20:51,419 --> 00:20:51,540
Yeah.
371
00:20:51,540 --> 00:20:52,169
But they exist.
372
00:20:52,379 --> 00:20:57,689
So maybe if we can share on a website
or uh, a Facebook group where people
373
00:20:57,689 --> 00:20:59,550
can actually feel safe to talk.
374
00:20:59,550 --> 00:20:59,610
Yeah.
375
00:21:00,750 --> 00:21:05,760
It'll help us understand and,
and get some solutions that, that
376
00:21:06,195 --> 00:21:09,225
make it a little bit easier and
feel like part of the community.
377
00:21:09,465 --> 00:21:09,735
Yeah.
378
00:21:10,005 --> 00:21:14,955
I think everything, for most people,
everyone is different, but for most
379
00:21:14,955 --> 00:21:19,875
people to feel like they're not alone,
they have support, they have the ability
380
00:21:19,875 --> 00:21:23,445
to find a community going through
the same things as them means such...
381
00:21:24,045 --> 00:21:28,215
that is probably the biggest thing that
has come out of this, and it's not new
382
00:21:28,455 --> 00:21:32,025
is, is community and social interaction.
383
00:21:32,025 --> 00:21:38,065
I, we just published, um, uh, a
news article about like super agers.
384
00:21:38,225 --> 00:21:42,795
The people that live long and they
have studied super agers and it isn't
385
00:21:42,795 --> 00:21:44,565
what they eat, it isn't what they do.
386
00:21:44,715 --> 00:21:47,505
It's their connection to community.
387
00:21:47,925 --> 00:21:52,155
That is their central
point is stay involved.
388
00:21:52,155 --> 00:21:53,115
Stay connected.
389
00:21:53,295 --> 00:21:57,045
Even if you're an introvert,
stay part of a community.
390
00:21:57,705 --> 00:22:02,800
You benefit so much that
it becomes essential.
391
00:22:02,800 --> 00:22:06,960
So we're, we just put, put
out a, um, document on how to
392
00:22:06,960 --> 00:22:08,250
start your own support group.
393
00:22:08,340 --> 00:22:09,950
How do you find a dia buddy?
394
00:22:10,500 --> 00:22:12,639
How do you reach out?
395
00:22:12,970 --> 00:22:18,750
Um, I, I met somebody who, uh, at
the age of 60 had never met another
396
00:22:18,750 --> 00:22:25,620
T1D, and we invited him to just a, a
little, uh, coffee group that we had.
397
00:22:25,710 --> 00:22:30,929
And he sat there with eyes wide open
going, oh my gosh, you guys understand?
398
00:22:31,590 --> 00:22:35,730
Um, and he's the one that came
up with the name T!D to 100.
399
00:22:36,419 --> 00:22:39,689
He said, do you know, I think
maybe I can live longer.
400
00:22:40,020 --> 00:22:44,340
And it, it was this awareness
that, I'm not alone.
401
00:22:44,730 --> 00:22:44,790
Yeah.
402
00:22:44,790 --> 00:22:50,010
It's a very lonely journey because
everyone's diabetes is different
403
00:22:50,010 --> 00:22:52,409
and unique, but you don't have to.
404
00:22:53,535 --> 00:22:54,875
You don't have to do it alone.
405
00:22:55,325 --> 00:23:01,455
And, and so we're really pushing
the concept of connect in any way.
406
00:23:01,460 --> 00:23:04,845
We, we have the resources of the
communities that are open for
407
00:23:05,025 --> 00:23:07,755
groups and group walks or gathering.
408
00:23:07,755 --> 00:23:07,965
So...
409
00:23:07,965 --> 00:23:12,675
How do we keep people connected
when they get to 80, 90, 100?
410
00:23:12,735 --> 00:23:17,535
Kind of when they're at that point that
they can't get out so much anymore.
411
00:23:18,135 --> 00:23:18,375
Yeah.
412
00:23:18,555 --> 00:23:20,445
Well, thank goodness for Zoom.
413
00:23:20,445 --> 00:23:20,505
Yeah.
414
00:23:20,625 --> 00:23:27,245
Um, there are several Zoom events
that are so warm and welcoming.
415
00:23:27,245 --> 00:23:30,495
A discussion yesterday on how
do you keep them positive?
416
00:23:30,795 --> 00:23:36,645
Because everyone, very often people
like to talk about the dramatic events
417
00:23:36,645 --> 00:23:41,475
that happen or the, the injustice
and, and things that don't go well.
418
00:23:41,475 --> 00:23:47,850
And, and that has a place uh in a group,
there's a sense that you can be uplifted
419
00:23:47,850 --> 00:23:51,900
in a way and at least not feel so alone.
420
00:23:51,900 --> 00:23:54,900
It's like you come away,
go, yeah, I get that.
421
00:23:54,900 --> 00:23:56,190
They understand me.
422
00:23:56,850 --> 00:23:56,940
Mm-hmm.
423
00:23:57,360 --> 00:24:02,550
Um, so it, it's interesting, as you get
into your eighties, you are more isolated.
424
00:24:02,730 --> 00:24:02,820
Mm-hmm.
425
00:24:03,060 --> 00:24:06,450
Um, that's something we're gonna
have to address is, how do we
426
00:24:06,630 --> 00:24:08,760
reach into those people as well?
427
00:24:09,180 --> 00:24:14,250
Um, social media helps and, and
I'm seeing groups with, you know,
428
00:24:14,250 --> 00:24:20,340
50 years plus and, and they,
people join and go, Hey, I'm here.
429
00:24:20,790 --> 00:24:25,680
And it's, it's a, it's a whole interesting
awareness of, I have somebody to
430
00:24:25,680 --> 00:24:28,230
talk to and listen to and be part of.
431
00:24:28,920 --> 00:24:31,440
So it's, it's so, so essential.
432
00:24:31,950 --> 00:24:37,530
Not just diabetes, but, um,
to live well is connection.
433
00:24:37,740 --> 00:24:42,660
And particularly with this disease,
which is so, so, so hard, uh, uh,
434
00:24:43,530 --> 00:24:49,665
people live well with this, but I always
say, it is a tough, tough disease.
435
00:24:49,845 --> 00:24:50,865
It is constant.
436
00:24:51,044 --> 00:24:52,304
You didn't ask for it.
437
00:24:52,304 --> 00:24:53,514
You don't get paid for it.
438
00:24:53,715 --> 00:24:57,014
It costs you money and it's unrelenting.
439
00:24:57,405 --> 00:24:58,605
How do you keep going?
440
00:24:59,294 --> 00:25:02,054
And it's, it's talk to others
that are doing the same.
441
00:25:02,250 --> 00:25:03,405
It it has.
442
00:25:03,615 --> 00:25:04,725
Yeah, I totally agree.
443
00:25:05,205 --> 00:25:10,155
I think doing it alone
is, is really difficult.
444
00:25:10,155 --> 00:25:14,575
Finding the community that also lives
with it is what makes a huge difference.
445
00:25:14,575 --> 00:25:17,790
Cause, you know, talking to
people that don't live it, I
446
00:25:17,790 --> 00:25:19,590
think most of us get frustrated.
447
00:25:20,010 --> 00:25:24,030
I literally live, I talk to people
about diabetes all day, but my family
448
00:25:24,210 --> 00:25:26,610
and my friends are totally clueless.
449
00:25:26,610 --> 00:25:31,260
I mean, they no way could I ever
trust them to do anything for me.
450
00:25:31,410 --> 00:25:31,830
So.
451
00:25:32,010 --> 00:25:32,850
That's interesting.
452
00:25:32,850 --> 00:25:35,040
And, and, and it's not unusual at all.
453
00:25:35,370 --> 00:25:36,965
And, and it's okay.
454
00:25:37,740 --> 00:25:40,990
I don't particularly wanna know
what your problems are either.
455
00:25:41,390 --> 00:25:43,110
I don't live their life.
456
00:25:43,380 --> 00:25:43,620
Yeah.
457
00:25:43,710 --> 00:25:45,780
And I don't like to feel elitist.
458
00:25:45,780 --> 00:25:50,700
Like, if you don't have T1D, you
don't understand, the bottom line
459
00:25:50,700 --> 00:25:53,040
for me is you don't understand.
460
00:25:53,040 --> 00:26:00,020
You can't possibly understand
what 24/7 feels like as a T1D.
461
00:26:03,015 --> 00:26:07,855
I used to say we're 24 hours away from
dead, and, uh, a doctor reminded me, No
462
00:26:07,905 --> 00:26:09,885
you're actually six hours away from dead.
463
00:26:10,305 --> 00:26:12,615
I said, well, thank you for that, but, um.
464
00:26:12,615 --> 00:26:12,945
Thank, yeah.
465
00:26:13,785 --> 00:26:19,995
I said growing old with this disease,
it, it's so very constant that connect
466
00:26:19,995 --> 00:26:24,825
with others who really, truly understand
not to take away from the support
467
00:26:24,825 --> 00:26:29,025
people, the spouses, the parents,
um, they have a different journey.
468
00:26:29,835 --> 00:26:30,015
Yeah.
469
00:26:30,105 --> 00:26:34,605
Um, I, I don't know what it's like to
be a parent of a child with diabetes
470
00:26:34,665 --> 00:26:40,485
and I didn't understand what my parents
went through, and I think I was 35
471
00:26:40,485 --> 00:26:44,775
years old when I finally thanked my
parents for the support they gave me.
472
00:26:44,985 --> 00:26:47,475
Uh, and stopped being
angry at the whole thing.
473
00:26:47,475 --> 00:26:47,835
So.
474
00:26:48,345 --> 00:26:48,435
Mm-hmm.
475
00:26:48,675 --> 00:26:50,355
Um, that's a different journey.
476
00:26:50,535 --> 00:26:50,745
Yeah.
477
00:26:51,075 --> 00:26:51,315
Yeah.
478
00:26:51,315 --> 00:26:54,165
It really is where you're at right now.
479
00:26:54,915 --> 00:26:57,525
Before we dive further
into today's episode.
480
00:26:57,930 --> 00:27:01,140
I want to give a quick shout
out to our sponsor, TempraMed
481
00:27:01,470 --> 00:27:03,570
makers of the Vivi Cap device.
482
00:27:04,260 --> 00:27:07,800
If you use insulin and who
doesn't use insulin, you probably
483
00:27:07,800 --> 00:27:11,550
already know how sensitive insulin
can be to temperature changes.
484
00:27:12,330 --> 00:27:16,800
When insulin gets much too cold or
too hot, it can lose its strength,
485
00:27:17,340 --> 00:27:21,810
and that means higher blood sugars,
along with all the fun symptoms like
486
00:27:21,840 --> 00:27:26,730
headaches, drowsiness, hunger, bathroom
trips, and even blurred vision.
487
00:27:27,870 --> 00:27:31,440
What's tricky is that those
unexplained blood sugar swings can
488
00:27:31,440 --> 00:27:35,160
often be linked to insulin that's
exposed to the wrong temperatures.
489
00:27:35,910 --> 00:27:38,520
That's where the Vivi Cap
can make a real difference.
490
00:27:39,540 --> 00:27:43,170
It's a simple pocket size device
that protects your insulin
491
00:27:43,170 --> 00:27:45,390
pens in extreme temperatures.
492
00:27:46,170 --> 00:27:47,190
No charging.
493
00:27:47,310 --> 00:27:48,450
No ice packs.
494
00:27:48,780 --> 00:27:53,700
Just pop your pen inside the
cap and it's ready to go 24/7.
495
00:27:54,659 --> 00:28:00,990
Vivi Cap is FDA registered, TSA approved
and built for everyday life or travel.
496
00:28:01,379 --> 00:28:03,540
It's super easy and super flexible.
497
00:28:04,169 --> 00:28:08,699
So if you want to take one more variable
out of your diabetes management, check
498
00:28:08,699 --> 00:28:12,749
out Tempramed's Vivi Cap at tempramed.com.
499
00:28:14,070 --> 00:28:15,810
Now let's get back to today's program.
500
00:28:16,560 --> 00:28:19,649
What are some things, and I know
you recommend this on the website
501
00:28:19,649 --> 00:28:25,230
too, but what are some things
that you have prepared for aging?
502
00:28:25,379 --> 00:28:30,570
You know, I think you talk about
like your emergency planning and
503
00:28:30,574 --> 00:28:32,610
um, you know what you have for that.
504
00:28:32,970 --> 00:28:35,760
You talk about like health and wellness.
505
00:28:35,910 --> 00:28:39,210
So what would you like encourage people?
506
00:28:39,420 --> 00:28:43,140
The primary push that we've had
for quite a while, all through
507
00:28:43,140 --> 00:28:45,600
COVID as well, is a go bag.
508
00:28:45,840 --> 00:28:49,380
And what, what we've put up on
the website is a checklist of
509
00:28:49,380 --> 00:28:50,919
what you put into your go bag.
510
00:28:51,440 --> 00:28:51,830
Mm-hmm.
511
00:28:51,830 --> 00:28:55,170
And urgency is, just make a go bag.
512
00:28:55,170 --> 00:28:56,580
Just get a backpack.
513
00:28:56,910 --> 00:28:58,230
Get a bag you like.
514
00:28:58,290 --> 00:29:02,580
Anything that, you know, we say waterproof
because you may be in a place where
515
00:29:02,580 --> 00:29:04,650
it's raining as you well know today.
516
00:29:04,830 --> 00:29:05,070
Florida.
517
00:29:06,350 --> 00:29:11,730
Um, or that's hard enough to
hold two weeks of supply because,
518
00:29:12,150 --> 00:29:13,470
what if there's an earthquake?
519
00:29:13,530 --> 00:29:16,800
What if there's a tornado and
you have to get out quickly?
520
00:29:16,920 --> 00:29:18,030
You have to go to the hospital.
521
00:29:18,090 --> 00:29:19,500
Grab your go bag.
522
00:29:19,560 --> 00:29:25,350
Grab your insulin from your fridge, and
go, instead of having to sweep it into
523
00:29:25,350 --> 00:29:27,390
a bag or figure out what you're taking.
524
00:29:27,990 --> 00:29:31,530
It takes less than an
hour to put it together.
525
00:29:32,010 --> 00:29:32,219
Yep.
526
00:29:32,429 --> 00:29:35,520
On the website we have
pictures of people's go bags.
527
00:29:35,520 --> 00:29:38,429
They come in all different
colors and directions.
528
00:29:38,429 --> 00:29:41,790
I did a Zoom with Nicole
Johnson, who was the first Miss
529
00:29:41,790 --> 00:29:44,100
America wearing an insulin pump.
530
00:29:44,310 --> 00:29:49,590
And we talked about go bags and she showed
her go-bag, which was this beautiful
531
00:29:49,590 --> 00:29:53,429
tote bag with the logo of Miss America.
532
00:29:53,429 --> 00:29:56,490
And I said, you don't wanna use that
'cause someone's gonna steal your bag.
533
00:29:56,879 --> 00:29:59,459
They don't want-- it's a beautiful bag!
534
00:29:59,459 --> 00:30:03,149
But whatever is durable enough
that you can grab and go.
535
00:30:03,449 --> 00:30:05,760
And even if it's not emergency.
536
00:30:05,760 --> 00:30:09,389
Suppose someone calls you and say,
I have two tickets to go to Paris.
537
00:30:09,389 --> 00:30:10,139
Do you want them?
538
00:30:10,139 --> 00:30:11,550
You have to leave in an hour.
539
00:30:11,790 --> 00:30:12,060
Just grand.
540
00:30:13,445 --> 00:30:13,865
You can.
541
00:30:14,004 --> 00:30:15,570
It doesn't have to be a drama.
542
00:30:15,870 --> 00:30:21,300
What came up in a meeting last
night was you can also set up a mini
543
00:30:21,300 --> 00:30:25,500
go bag um, and, and I'm beginning
to realize how important this is.
544
00:30:25,500 --> 00:30:30,179
Anytime you leave your house and you're
gonna be gone for more than an hour,
545
00:30:30,659 --> 00:30:30,750
mm-hmm.
546
00:30:30,990 --> 00:30:35,580
What if your insulin infusion
site fails while you're out?
547
00:30:36,030 --> 00:30:39,899
What if you get a flat tire and
you're waiting for the tow truck and
548
00:30:40,784 --> 00:30:42,750
you, you need to change something?
549
00:30:43,379 --> 00:30:51,405
Um, a little kit that has insulin
infusion set, uh, syringes and,
550
00:30:51,659 --> 00:30:54,480
you know, and sugar grab it and go.
551
00:30:54,600 --> 00:30:57,600
Too many people who should
know better don't have these.
552
00:30:57,600 --> 00:30:58,050
They say,
553
00:30:58,350 --> 00:30:58,679
Right, exactly.
554
00:30:58,679 --> 00:30:59,220
I won't be gone.
555
00:31:00,090 --> 00:31:03,629
And don't know if you're
not gonna be gone long.
556
00:31:04,169 --> 00:31:05,370
Right, exactly.
557
00:31:05,730 --> 00:31:07,260
And you never know what's gonna happen.
558
00:31:07,290 --> 00:31:09,600
I mean, and this is for all ages.
559
00:31:09,600 --> 00:31:13,620
This isn't even just
for the aging population.
560
00:31:13,725 --> 00:31:17,205
I mean, everybody, I think,
should have this go bag.
561
00:31:17,205 --> 00:31:18,165
And I love the name.
562
00:31:18,165 --> 00:31:19,485
I just love this "go bag".
563
00:31:19,875 --> 00:31:20,325
Um.
564
00:31:20,595 --> 00:31:20,655
Go.
565
00:31:20,655 --> 00:31:24,135
Yeah, I mean, I have like a little
pouch, but I do forget to grab it
566
00:31:24,135 --> 00:31:28,335
sometimes, even though it's literally
hanging right in front of my door, so.
567
00:31:28,335 --> 00:31:28,995
Mm-hmm.
568
00:31:29,001 --> 00:31:31,275
Also, like you, you mentioned syringes.
569
00:31:31,275 --> 00:31:36,555
I mean, keeping syringes like
everywhere so that, um, like for
570
00:31:36,555 --> 00:31:39,465
me, like me, if my pod's gonna fail,
I'm gonna pull my insulin outta my
571
00:31:39,465 --> 00:31:41,385
pod and inject until I can get home.
572
00:31:42,195 --> 00:31:43,815
Diabetes is stressful enough.
573
00:31:44,445 --> 00:31:50,475
Don't let something that's not in
your expectation happen and then make
574
00:31:50,475 --> 00:31:54,645
your life a little bit worse when all
you need to do is go get this cute
575
00:31:54,645 --> 00:31:56,145
little bag and carry it with you.
576
00:31:56,265 --> 00:31:56,385
Yeah.
577
00:31:56,625 --> 00:31:58,125
It's not that difficult.
578
00:31:58,275 --> 00:32:01,665
It is a reminder that you have diabetes,
but that's not the point of it.
579
00:32:01,665 --> 00:32:07,275
The point of it is to reduce stress
and the things are unforeseen
580
00:32:07,275 --> 00:32:08,535
because you don't foresee them.
581
00:32:09,885 --> 00:32:13,515
They happen when you don't expect
them and don't need them or want them.
582
00:32:14,085 --> 00:32:14,265
Um.
583
00:32:14,270 --> 00:32:14,440
Mm-hmm.
584
00:32:14,595 --> 00:32:17,715
And it just takes the away
a stress just a little bit.
585
00:32:18,015 --> 00:32:20,415
So we have, we have checklist for go bags.
586
00:32:20,865 --> 00:32:27,285
Um, I also always recommend have
your medical data in one place.
587
00:32:27,285 --> 00:32:29,235
How you take care of your diabetes.
588
00:32:29,505 --> 00:32:32,745
The medication lists that
you, whatever it is you take.
589
00:32:33,225 --> 00:32:35,325
How you take when you take it.
590
00:32:35,835 --> 00:32:36,345
Um.
591
00:32:36,975 --> 00:32:38,955
The list of your healthcare providers.
592
00:32:39,285 --> 00:32:44,205
So if an emergency comes up and you
end up in the hands of a medical
593
00:32:44,835 --> 00:32:50,385
environment, you, you don't have to, uh,
remind them what your surgeries were.
594
00:32:50,385 --> 00:32:51,524
What your medication are.
595
00:32:51,585 --> 00:32:52,095
It's right there.
596
00:32:53,055 --> 00:32:55,725
So yeah, we have pages
that you can fill in.
597
00:32:55,815 --> 00:32:58,815
You can scan 'em in and put
'em on a, on a flash drive.
598
00:32:58,815 --> 00:33:00,735
You can load 'em on your phone.
599
00:33:01,155 --> 00:33:04,845
There's a way also... so that's what
we call a personal medical resume.
600
00:33:04,845 --> 00:33:06,945
Just have your stuff in one place.
601
00:33:07,305 --> 00:33:09,195
Update it every six months.
602
00:33:09,825 --> 00:33:13,514
Um, and maybe we'll put a reminder
on, you know, it's time to update.
603
00:33:14,175 --> 00:33:14,325
Yep.
604
00:33:15,645 --> 00:33:19,305
Just you have the stuff
available and ready to go.
605
00:33:19,785 --> 00:33:19,875
Mm-hmm.
606
00:33:20,115 --> 00:33:25,215
Set your... people have mobile phones
these days that you can set up Android
607
00:33:25,245 --> 00:33:28,185
or iPhones for emergency access.
608
00:33:28,215 --> 00:33:32,055
Most people don't know that and so
we have instructions for both phones,
609
00:33:32,685 --> 00:33:35,385
um, on how to access that and put in.
610
00:33:36,135 --> 00:33:41,205
So emergency personnel or anyone that is
helping you can get to your information.
611
00:33:41,205 --> 00:33:41,294
Mm-hmm.
612
00:33:42,105 --> 00:33:46,395
So it's just tips and tricks and
things that we don't think about,
613
00:33:46,395 --> 00:33:49,485
but as a group, we have thought
about them and we are adding things.
614
00:33:50,205 --> 00:33:50,294
Mm-hmm.
615
00:33:50,534 --> 00:33:52,094
To make it, just make it easier.
616
00:33:52,094 --> 00:33:52,844
It's hard enough.
617
00:33:53,415 --> 00:33:53,679
So, yeah.
618
00:33:54,225 --> 00:34:00,705
Yeah, thinking of like this emergency
folder of, of our information just is
619
00:34:01,064 --> 00:34:05,534
so helpful because, you know, a lot of
the healthcare systems, they do have,
620
00:34:05,715 --> 00:34:10,815
they can eventually access all of your
historical things, but that takes time.
621
00:34:11,205 --> 00:34:14,384
It's not like they can just hop on
and right away they have all your
622
00:34:14,384 --> 00:34:17,924
history, but if you bring it along,
like you're, you're setting yourself
623
00:34:17,924 --> 00:34:20,295
up for potentially better outcomes.
624
00:34:20,384 --> 00:34:20,565
Yeah.
625
00:34:20,565 --> 00:34:24,255
I have a little clear cover little
binder and it's in, there's one in
626
00:34:24,255 --> 00:34:25,924
my car, there's one in my Go bag.
627
00:34:26,205 --> 00:34:29,505
When I've been in the hospital,
I put it on the nightstand.
628
00:34:29,505 --> 00:34:35,550
And it says, "read this. I have type
one diabetes." It's big and it's bold.
629
00:34:35,700 --> 00:34:37,290
Whether they're gonna
read it, I don't know.
630
00:34:37,330 --> 00:34:41,070
But if they come in and ask a question,
you can refer to it and say, Hey, this,
631
00:34:41,400 --> 00:34:43,260
these are my settings on my insulin pump.
632
00:34:43,590 --> 00:34:43,770
Mm-hmm.
633
00:34:44,130 --> 00:34:46,620
This is, these are the medications I take.
634
00:34:46,950 --> 00:34:51,330
These are the ones that are central
medications, not just supplements.
635
00:34:51,480 --> 00:34:55,170
Um, because they don't
you, but you know, you and
636
00:34:55,200 --> 00:34:58,740
Yeah, but also you can't speak
clearly for yourself a lot of
637
00:34:58,740 --> 00:35:00,900
times in a hospital situation.
638
00:35:00,900 --> 00:35:03,660
So you thought and...
639
00:35:04,230 --> 00:35:06,540
Your advocate may not
know all the details.
640
00:35:06,540 --> 00:35:06,750
Right.
641
00:35:07,170 --> 00:35:07,770
Exactly.
642
00:35:07,980 --> 00:35:08,220
Yep.
643
00:35:08,220 --> 00:35:11,700
It, it, it just, it takes
a little preparation.
644
00:35:11,700 --> 00:35:18,090
I don't know how to help people carve
out the time to do it, uh, but I think
645
00:35:18,090 --> 00:35:21,630
it's an intention that you say, you
know, I just wanna feel a little safer.
646
00:35:21,630 --> 00:35:25,150
I want that problem to be gotten rid of.
647
00:35:25,280 --> 00:35:27,960
I'll take a half an hour
and pull it together.
648
00:35:28,170 --> 00:35:28,260
Mm-hmm.
649
00:35:28,500 --> 00:35:29,790
It's just, it's a planning thing.
650
00:35:29,790 --> 00:35:32,400
A lot of people don't like to
plan and I understand that.
651
00:35:33,030 --> 00:35:33,270
Right.
652
00:35:33,870 --> 00:35:35,550
But a lot of people
don't like stress either.
653
00:35:36,000 --> 00:35:38,485
Let's see if we can reduce the stress.
654
00:35:39,060 --> 00:35:43,530
Aging alone is stressful because
this topic, it's difficult.
655
00:35:43,710 --> 00:35:45,960
It's just really, really difficult.
656
00:35:46,530 --> 00:35:50,550
Nobody really wants to face
the fact that we won't be here.
657
00:35:50,940 --> 00:35:55,950
As far as I know, that's a reality and
we, and we will all be on that path.
658
00:35:56,310 --> 00:36:01,215
So, one more topic, and I think it's just
important to say real quickly, mm-hmm,
659
00:36:01,755 --> 00:36:06,825
towards end of life and if in hospice
care, this is something I just learned.
660
00:36:07,035 --> 00:36:11,505
Um, there is a thinking that
you withhold insulin at end of
661
00:36:11,505 --> 00:36:16,065
life and that is possibly the
worst advice that can be given.
662
00:36:16,305 --> 00:36:20,235
I never thought about it because I
didn't think about that part of life.
663
00:36:20,475 --> 00:36:24,525
You will, it will, you will end your
life, but it will be a bad way to go.
664
00:36:24,525 --> 00:36:29,535
So you should have written into your
wishes, do not withhold insulin.
665
00:36:30,165 --> 00:36:30,615
Yeah.
666
00:36:31,275 --> 00:36:32,265
But it happens.
667
00:36:32,385 --> 00:36:39,555
So this is all just trying to make
things as easy, least stress and make
668
00:36:39,555 --> 00:36:44,255
you feel as good as possible for all
the days you have left going forward.
669
00:36:44,475 --> 00:36:44,745
Yeah.
670
00:36:44,835 --> 00:36:45,375
It's just,
671
00:36:45,435 --> 00:36:45,585
yeah.
672
00:36:46,800 --> 00:36:53,070
Be set up to succeed and to be as happy as
possible, because that's what you can do.
673
00:36:53,280 --> 00:36:53,550
Right.
674
00:36:53,880 --> 00:36:54,120
Yeah.
675
00:36:54,360 --> 00:36:56,190
That's in our, in our own control.
676
00:36:57,750 --> 00:37:03,120
What are some things that you think,
just kind of in all of your discussions,
677
00:37:03,270 --> 00:37:08,850
has been like, have you found any
trends for what has helped lead
678
00:37:08,850 --> 00:37:12,040
you guys to aging so well with T1D?
679
00:37:12,300 --> 00:37:16,350
Because I mean, I look at you, I know
you, you go to Pilates and you are
680
00:37:16,350 --> 00:37:21,090
living like a great life, um, from a
physical activity standpoint, and you're
681
00:37:21,090 --> 00:37:23,400
enjoying the things that you wanna do.
682
00:37:23,910 --> 00:37:27,600
Is there, like, do you feel like, you
know, it's, there's things that you did
683
00:37:27,780 --> 00:37:32,010
that led you to be able to age so well
already, even, you know, you didn't have
684
00:37:32,010 --> 00:37:34,120
all of these tips, so how'd you do it?
685
00:37:34,980 --> 00:37:41,399
The overriding thing for me is to try to
live as best as possible in, in gratitude.
686
00:37:41,545 --> 00:37:44,970
I, I am, when things go wrong,
and, and quite honestly, they're
687
00:37:44,970 --> 00:37:48,029
going wrong at a faster pace
than I can actually keep up with.
688
00:37:48,299 --> 00:37:53,229
But when they do go wrong, I, I very
often go to, but I'm still lucky.
689
00:37:53,250 --> 00:37:57,180
I, first of all, I live in this
century, not the previous century
690
00:37:57,180 --> 00:37:58,770
where the technology wasn't there.
691
00:37:58,830 --> 00:38:01,710
Or I'm grateful that,
that the sun is shining.
692
00:38:01,770 --> 00:38:05,370
I, I sometimes have to reach
for the gratitude, but it just
693
00:38:05,370 --> 00:38:07,470
kind of makes me feel better.
694
00:38:08,220 --> 00:38:11,069
All the research says keep moving.
695
00:38:11,220 --> 00:38:18,600
Just if you look at anything on zones or
what the long agers do, they keep moving.
696
00:38:19,049 --> 00:38:21,509
Don't sit, don't sit and watch tv.
697
00:38:22,545 --> 00:38:26,355
Somehow get up and move and interact.
698
00:38:26,805 --> 00:38:29,295
And so also stay connected
in the community.
699
00:38:29,805 --> 00:38:34,515
Um, in, in my Pilates class, I've
heard instructors say, we do this
700
00:38:34,515 --> 00:38:41,025
exercise not because if you fall,
it'll help you get up and it's when
701
00:38:41,055 --> 00:38:43,125
you fall, it'll help you get up.
702
00:38:43,125 --> 00:38:43,215
Yes.
703
00:38:43,395 --> 00:38:46,155
As we age, we have nerve damage.
704
00:38:46,155 --> 00:38:52,785
We have proprioception falter, and
we are far more prone to falls.
705
00:38:52,785 --> 00:38:53,805
Mm-hmm.
706
00:38:53,811 --> 00:38:58,815
Uh, if vision issues, or you wear
bifocals, you're prone to falls it.
707
00:38:59,085 --> 00:39:05,445
If you're used to charging through life
and you go fast, you're gonna fall.
708
00:39:05,535 --> 00:39:10,725
It's all these little parts and you don't
wanna fall because that will set you back.
709
00:39:10,725 --> 00:39:17,985
So be strong or make sure you're, you
have some level of fitness 'cause that'll
710
00:39:17,985 --> 00:39:20,055
help you get off the floor if you fall.
711
00:39:20,055 --> 00:39:20,115
Um.
712
00:39:20,865 --> 00:39:21,315
Yeah.
713
00:39:22,470 --> 00:39:26,130
And as we age, very
often we don't hydrate.
714
00:39:26,520 --> 00:39:31,020
That's, that's, that's a tough
one to kind of make that habit,
715
00:39:31,020 --> 00:39:32,820
but make sure you're hydrated.
716
00:39:33,090 --> 00:39:33,150
Yeah.
717
00:39:33,150 --> 00:39:37,080
Drink whatever fluid you can,
but just make sure you hydrate.
718
00:39:37,650 --> 00:39:41,820
Um, there's, they're basic things
and I guess the other one is sleep.
719
00:39:42,270 --> 00:39:43,920
Um, sleep can be challenging.
720
00:39:44,160 --> 00:39:48,630
You age, uh, there are issues of
sleep apnea and, and what those
721
00:39:48,630 --> 00:39:51,630
are, but take care of those things.
722
00:39:51,660 --> 00:39:52,920
'cause sleep is essential.
723
00:39:52,980 --> 00:40:00,780
It's where your body recharges
so it basic things, but you can
724
00:40:00,780 --> 00:40:02,280
get overwhelmed and not do them.
725
00:40:03,330 --> 00:40:06,870
So maybe we can, as a
community, help help each other.
726
00:40:08,220 --> 00:40:09,540
Stay on a healthy path.
727
00:40:09,870 --> 00:40:11,280
Yeah, yeah, absolutely.
728
00:40:11,280 --> 00:40:15,810
I love, you know, help each other
and hold each other to that.
729
00:40:16,260 --> 00:40:21,870
But yeah, I read when I was probably,
I dunno, I wanna say like 18.
730
00:40:22,049 --> 00:40:23,820
Sheri Colberg wrote a book.
731
00:40:23,850 --> 00:40:28,770
It was like 50 Secrets of the Longest
Living People with Type one Diabetes,
732
00:40:28,800 --> 00:40:31,440
and I found it to be very inspiring.
733
00:40:31,500 --> 00:40:36,270
Some of the stuff now is, you know, it's,
it's an older book now, but I think the
734
00:40:36,270 --> 00:40:41,610
overall message is still so important from
what you get out of it because that's,
735
00:40:41,670 --> 00:40:43,140
that's pretty much what the book says.
736
00:40:43,740 --> 00:40:51,540
These people have stayed active and
made physical activity such a, like
737
00:40:51,540 --> 00:40:53,350
given it such a spotlight in their life.
738
00:40:53,400 --> 00:40:54,569
So definitely.
739
00:40:54,600 --> 00:40:56,759
Make it as simple as possible.
740
00:40:56,940 --> 00:40:58,109
Reward yourself.
741
00:40:58,109 --> 00:41:02,775
If it isn't a thing you like to do,
uh, find the things that you do.
742
00:41:02,775 --> 00:41:08,805
Like these are, these are all the things
that are out there and you hear them.
743
00:41:09,375 --> 00:41:12,225
Um, how do you make
them part of your life?
744
00:41:12,325 --> 00:41:13,505
How do you actually do it?
745
00:41:13,884 --> 00:41:14,345
Yeah, yeah.
746
00:41:14,345 --> 00:41:16,705
Actually put it on your, on your calendar.
747
00:41:16,720 --> 00:41:21,255
And if you don't, keep a calendar, keep
a calendar and, and you know, I, I write
748
00:41:21,255 --> 00:41:26,295
in the days I have Pilates class and I
write in days when I have activities.
749
00:41:26,415 --> 00:41:26,775
Um.
750
00:41:27,465 --> 00:41:27,555
Mm-hmm.
751
00:41:28,725 --> 00:41:30,525
This is all the smart things.
752
00:41:30,525 --> 00:41:32,115
It's not whether you have diabetes or not.
753
00:41:32,115 --> 00:41:36,045
These are just the smart things,
but particularly for your cognition
754
00:41:36,285 --> 00:41:40,275
and your wellbeing with diabetes,
because you do take care of yourself.
755
00:41:40,575 --> 00:41:45,495
I told the group last night, anyone here
who's lived with this disease over 50
756
00:41:45,495 --> 00:41:47,535
years, you've done something really well.
757
00:41:47,595 --> 00:41:48,765
You've really.
758
00:41:49,860 --> 00:41:51,750
You know how to organize yourself.
759
00:41:51,750 --> 00:41:53,670
You know how to pay attention.
760
00:41:54,120 --> 00:41:57,780
You know how to live in reality
and take your medication.
761
00:41:58,170 --> 00:42:01,290
So kudos you, you did a great job.
762
00:42:01,470 --> 00:42:05,820
And just keep doing that and
feel good that you actually have
763
00:42:05,820 --> 00:42:11,250
those skills that got you to 50
years, and that was no easy feat.
764
00:42:11,550 --> 00:42:13,230
It's like these little celebrations.
765
00:42:13,230 --> 00:42:16,200
These little milestones that you reach.
766
00:42:16,920 --> 00:42:17,100
Yeah.
767
00:42:17,100 --> 00:42:18,420
Appreciate yourself for that.
768
00:42:18,630 --> 00:42:19,470
Absolutely.
769
00:42:20,070 --> 00:42:20,370
Mm-hmm.
770
00:42:21,030 --> 00:42:21,240
Yeah.
771
00:42:21,240 --> 00:42:23,700
I love that they give those,
you know, like those little
772
00:42:23,700 --> 00:42:26,460
coins, those milestone coins.
773
00:42:26,520 --> 00:42:27,960
Um, I know Friends for Life does it.
774
00:42:27,960 --> 00:42:30,630
I think there's some other
places that give them out too.
775
00:42:31,660 --> 00:42:32,610
Joslin does.
776
00:42:32,700 --> 00:42:34,975
Um, I have them all, um.
777
00:42:34,980 --> 00:42:35,940
Yeah, right.
778
00:42:36,000 --> 00:42:38,220
I look at mine like,
yeah, that's a long time.
779
00:42:39,950 --> 00:42:43,830
Joslin used to give a gold
watch when you hit 50 years.
780
00:42:43,860 --> 00:42:45,830
And I was so looking forward to that.
781
00:42:45,860 --> 00:42:48,130
I go to Joslyn in Boston.
782
00:42:48,299 --> 00:42:52,350
Every Christmas I would go there
to readjust my insulin needs.
783
00:42:52,350 --> 00:42:56,640
And I, it was a hard time as
a teenager, but it was smart.
784
00:42:57,270 --> 00:43:01,710
Um, but when I got to 50 years, I,
oh, I'm gonna get my gold watch!
785
00:43:01,980 --> 00:43:05,040
And they stopped giving gold
watches because so many of
786
00:43:05,040 --> 00:43:06,390
us were living that long.
787
00:43:06,390 --> 00:43:07,799
I thought wait, wait.
788
00:43:07,799 --> 00:43:08,490
That was wrong!
789
00:43:08,490 --> 00:43:09,089
How 'bout my watch?
790
00:43:09,799 --> 00:43:14,490
And so then they give
you a brass medallion.
791
00:43:15,000 --> 00:43:17,130
It's not a gold watch, but it's not.
792
00:43:17,130 --> 00:43:17,140
Yeah.
793
00:43:17,140 --> 00:43:17,700
That's not, still not the same.
794
00:43:20,790 --> 00:43:21,420
That's, yeah.
795
00:43:21,420 --> 00:43:22,500
You, you need that gold.
796
00:43:22,500 --> 00:43:23,520
You need a gold watch.
797
00:43:23,580 --> 00:43:26,700
You do, you have, you
certainly earned a gold watch.
798
00:43:26,700 --> 00:43:28,319
I think we need to make that happen again.
799
00:43:28,770 --> 00:43:32,045
And gotta get, gotta
get you that gold Watch.
800
00:43:32,045 --> 00:43:38,265
My husband, he actually bought
me a vintage, um space Watch
801
00:43:38,595 --> 00:43:42,884
that was created in the year that
I was diagnosed with diabetes.
802
00:43:42,884 --> 00:43:48,255
It was a 1965 watch, so it's a
vintage watch, um, for my 50 year
803
00:43:48,345 --> 00:43:51,075
because he goes, okay, you didn't
get your gold watch, but here you go.
804
00:43:51,495 --> 00:43:53,565
Oh my God, that is amazing.
805
00:43:54,194 --> 00:43:59,415
You have to celebrate and
realize how well you've done.
806
00:43:59,625 --> 00:44:03,674
Days are not easy and there are other
things that are really not easy, um,
807
00:44:04,035 --> 00:44:05,955
that you get through them is remarkable.
808
00:44:06,194 --> 00:44:10,215
I also think a lot of how we've
done so well is because we
809
00:44:10,215 --> 00:44:12,825
do pay attention to exercise.
810
00:44:12,825 --> 00:44:14,505
We do pay attention to food.
811
00:44:15,015 --> 00:44:18,705
It, it's been something that's
been drummed into so many of us.
812
00:44:18,705 --> 00:44:26,205
So I wonder if I didn't have type one
diabetes, um, would I be overweight?
813
00:44:26,235 --> 00:44:32,685
Would I uh, uh, see, I see my family,
who, who don't have T1D and I'm healthy.
814
00:44:33,194 --> 00:44:34,305
It's a reminder.
815
00:44:34,515 --> 00:44:37,575
Um, and that you're doing
it again, celebrate that.
816
00:44:37,665 --> 00:44:37,995
It's,
817
00:44:38,085 --> 00:44:42,075
I remember like growing up
on cosmic brownies and-- Oof.
818
00:44:42,884 --> 00:44:45,075
So yeah, learning about the food.
819
00:44:45,075 --> 00:44:47,995
Never, I don't, I don't know that it
ever would've happened without T1D.
820
00:44:48,555 --> 00:44:53,055
And sometimes we'll go get a sandwich and
he'll come back from buying the sandwich
821
00:44:53,055 --> 00:44:57,464
and I'll have a candy bar and I'll start
eating the candy bar before lunch and go,
822
00:44:58,035 --> 00:44:59,595
I don't understand why you're doing that.
823
00:44:59,654 --> 00:45:01,154
That's No, no, no, no.
824
00:45:01,424 --> 00:45:01,515
Mm-hmm.
825
00:45:01,545 --> 00:45:02,955
And he goes, well, I like it.
826
00:45:03,585 --> 00:45:08,235
And, and we're, we maybe have a little
more control on that, and we will,
827
00:45:08,654 --> 00:45:12,585
I'll have a bite after lunch, but
first I'll eat, okay, fried food.
828
00:45:12,975 --> 00:45:15,825
So I said, you just don't
have diabetes now do you?
829
00:45:16,025 --> 00:45:20,565
You're just... he said, "Well
I was hungry." I understand.
830
00:45:20,685 --> 00:45:24,705
Most of us did learn some
really good health habits.
831
00:45:24,710 --> 00:45:24,790
Mm-hmm.
832
00:45:24,870 --> 00:45:27,375
Because type one diabetes, so.
833
00:45:27,380 --> 00:45:27,470
Mm-hmm.
834
00:45:27,549 --> 00:45:27,630
Yep.
835
00:45:28,665 --> 00:45:30,735
And I'm definitely grateful for that.
836
00:45:30,795 --> 00:45:31,695
Portion size.
837
00:45:31,935 --> 00:45:37,485
Um, I learned that, um, at Joslin
Clinic and I mean, it was so detailed
838
00:45:37,485 --> 00:45:41,715
that they would cut off pieces,
like parts of a piece of bread so
839
00:45:41,715 --> 00:45:43,245
you have the right number of grams.
840
00:45:43,245 --> 00:45:45,975
I went, well, that's a little
extreme, but some people did that.
841
00:45:46,634 --> 00:45:53,475
Um, but understanding portion size and
consistency and, and a lot went into what
842
00:45:53,475 --> 00:45:56,145
got us here this many years down the line.
843
00:45:56,295 --> 00:45:56,384
Mm-hmm.
844
00:45:57,375 --> 00:46:02,985
You also learn long term you
can do everything right and
845
00:46:02,985 --> 00:46:04,515
not get the result you expect.
846
00:46:04,725 --> 00:46:07,035
This disease is capricious.
847
00:46:07,035 --> 00:46:09,285
It is un unexpected.
848
00:46:09,285 --> 00:46:09,495
Rude.
849
00:46:10,440 --> 00:46:11,370
Unreliable.
850
00:46:11,370 --> 00:46:13,230
You, things happen.
851
00:46:13,500 --> 00:46:17,279
I watched a little video reel of a
little girl saying, it's not perfect,
852
00:46:17,430 --> 00:46:19,200
but you can be as good as possible.
853
00:46:19,350 --> 00:46:22,140
You can do the best you can.
854
00:46:22,200 --> 00:46:26,250
And, um, it's an understanding
that it's not, you are not
855
00:46:26,250 --> 00:46:27,420
gonna be perfect every day.
856
00:46:27,420 --> 00:46:29,520
This disease doesn't let that happen.
857
00:46:30,180 --> 00:46:30,330
Mm-hmm.
858
00:46:30,505 --> 00:46:33,359
Uh, and yet you can keep going.
859
00:46:33,480 --> 00:46:35,460
So it's, it's just that awareness.
860
00:46:35,640 --> 00:46:35,910
Yeah.
861
00:46:36,180 --> 00:46:36,420
Yeah.
862
00:46:36,420 --> 00:46:37,080
Absolutely.
863
00:46:37,080 --> 00:46:38,670
And I love that a little
girl was saying it.
864
00:46:38,790 --> 00:46:39,060
Yeah.
865
00:46:39,089 --> 00:46:43,710
It's just that reminder that this
disease doesn't let you be perfect.
866
00:46:44,430 --> 00:46:44,700
Right.
867
00:46:45,029 --> 00:46:48,000
Uh, it just doesn't, life
doesn't let you be perfect.
868
00:46:48,060 --> 00:46:50,970
So, um, the disease disease
869
00:46:50,970 --> 00:46:53,009
just follows that, that path and.
870
00:46:53,009 --> 00:46:54,120
It sure does.
871
00:46:54,359 --> 00:46:56,790
You do everything right
and everything goes wrong.
872
00:46:57,509 --> 00:46:57,779
Mm-hmm.
873
00:46:58,710 --> 00:47:03,569
And, and there are days, there are
days where you can explain it and, and
874
00:47:03,569 --> 00:47:07,460
you don't, try not to beat yourself
up and you try to get back on track.
875
00:47:08,294 --> 00:47:11,774
Um, and you give yourself some
grace on that period of time.
876
00:47:11,805 --> 00:47:12,464
Mm-hmm.
877
00:47:13,064 --> 00:47:13,305
Yeah.
878
00:47:13,634 --> 00:47:14,685
Yeah, absolutely.
879
00:47:14,805 --> 00:47:16,064
Giving yourself the grace.
880
00:47:16,095 --> 00:47:19,214
It's just such a good way to say
it, but it's what we have to do.
881
00:47:19,214 --> 00:47:20,595
We have to give ourself grace.
882
00:47:22,004 --> 00:47:23,745
And maybe humor.
883
00:47:23,805 --> 00:47:28,754
It is all, if you were sitting a hundred
feet above watching everyone on earth
884
00:47:28,754 --> 00:47:31,995
doing all these things and getting all
stressed, you'd say, oh, calm down.
885
00:47:31,995 --> 00:47:33,015
It'll all work out.
886
00:47:34,725 --> 00:47:40,455
Some, some perspective of it,
it'll work out or it won't.
887
00:47:41,024 --> 00:47:44,745
But stressing on it doesn't
bring it any easier.
888
00:47:44,745 --> 00:47:45,285
Making it easier.
889
00:47:45,495 --> 00:47:45,705
Yeah.
890
00:47:45,944 --> 00:47:47,654
It doesn't change it either.
891
00:47:47,745 --> 00:47:50,595
You know, getting, getting upset
if anything is just gonna make it
892
00:47:50,595 --> 00:47:53,085
worse because you got some stress.
893
00:47:54,015 --> 00:47:54,285
Yeah.
894
00:47:54,524 --> 00:47:56,024
It'll just like, you need more insulin.
895
00:47:58,035 --> 00:47:58,455
Yeah.
896
00:47:59,055 --> 00:47:59,325
Yeah.
897
00:47:59,685 --> 00:48:04,125
I think, I don't, I love, like, I
love the pages where they use humor to
898
00:48:04,365 --> 00:48:06,375
kind of cope with type one diabetes.
899
00:48:06,375 --> 00:48:09,255
So that's, that's kind of
my, that's my type of people.
900
00:48:09,285 --> 00:48:10,515
That's what I like to use.
901
00:48:10,575 --> 00:48:13,965
So, it's sometimes a little
dark humor, but it works.
902
00:48:15,045 --> 00:48:19,605
So yeah, it's just makes everything,
I don't know, humor makes everything
903
00:48:19,605 --> 00:48:22,005
a little bit easier to, to manage.
904
00:48:22,065 --> 00:48:22,424
It does.
905
00:48:23,235 --> 00:48:26,295
And I think you bring it back to
just, community sometimes helps
906
00:48:26,295 --> 00:48:31,035
you see the humor and when you just
are so deep into, this is horrible.
907
00:48:31,995 --> 00:48:32,415
Absolutely.
908
00:48:33,825 --> 00:48:37,464
Giggle is, yeah but, you know,
from the other side, it's kind
909
00:48:37,485 --> 00:48:41,865
of... so it's helpful to have
other perspectives sometimes.
910
00:48:42,045 --> 00:48:42,285
Yeah.
911
00:48:42,465 --> 00:48:46,785
And you, I have to say, are
just so absolutely incredible
912
00:48:46,785 --> 00:48:48,465
at getting a community together.
913
00:48:49,575 --> 00:48:52,695
I know you have a Facebook
page for T1D to 100.
914
00:48:52,785 --> 00:48:56,835
The Loop and Learn community is just, of
course, I've been a part of that for a
915
00:48:56,835 --> 00:49:00,075
long time, but it's just, it's so amazing.
916
00:49:00,075 --> 00:49:01,065
It's like, you did that.
917
00:49:01,155 --> 00:49:04,455
Like, it's just so, I can't wait
to see what the community becomes
918
00:49:04,455 --> 00:49:07,615
for, you know, the T1D to 100.
919
00:49:07,685 --> 00:49:09,315
I just see it grow, growing.
920
00:49:09,945 --> 00:49:11,895
We've been up for three weeks.
921
00:49:12,045 --> 00:49:15,135
Uh, the Facebook group is, is growing.
922
00:49:15,135 --> 00:49:17,925
It's going, it's, it's
faster than I anticipated.
923
00:49:18,375 --> 00:49:18,825
Um.
924
00:49:19,575 --> 00:49:23,174
We're touching a nerve of people
who are saying, yeah, you're right,
925
00:49:23,355 --> 00:49:25,005
I don't know what to do as I age.
926
00:49:25,245 --> 00:49:25,995
I need help.
927
00:49:26,174 --> 00:49:30,404
And, um, people are just coming
out saying, how do I help?
928
00:49:30,404 --> 00:49:31,575
How do I get involved?
929
00:49:31,725 --> 00:49:32,025
Um.
930
00:49:32,025 --> 00:49:32,115
Mm-hmm.
931
00:49:32,595 --> 00:49:36,585
And we're looking at a, a group
that focuses on advocacy because we
932
00:49:36,705 --> 00:49:40,935
do need to help organizations and
hospitals understand what we need.
933
00:49:40,995 --> 00:49:43,785
We need nursing schools to
understand what we need.
934
00:49:43,964 --> 00:49:46,484
Um, all of this is advocacy.
935
00:49:46,484 --> 00:49:52,964
We need some pressure on, um, fundraising
organizations to acknowledge that
936
00:49:52,964 --> 00:49:55,005
we are a large group of people.
937
00:49:55,125 --> 00:50:01,245
Um, most of the large groups that
do fundraising don't focus on aging.
938
00:50:01,484 --> 00:50:01,815
Um.
939
00:50:01,875 --> 00:50:02,174
Right.
940
00:50:03,134 --> 00:50:05,984
We're not as cute on the,
as as poster children I see.
941
00:50:06,585 --> 00:50:08,205
You're absolutely adorable.
942
00:50:08,205 --> 00:50:11,475
So I can't agree with, I
disagree with that one.
943
00:50:12,630 --> 00:50:16,980
But it, it, it's, we're just not the
cute little ones that they parade out.
944
00:50:17,160 --> 00:50:19,140
And maybe they should have
us all come out with walkers.
945
00:50:19,200 --> 00:50:19,680
I don't know.
946
00:50:19,950 --> 00:50:24,900
We, we need a, a place at the
table in, in congressional, um,
947
00:50:24,960 --> 00:50:29,520
pressure and, um, making changes,
otherwise changes will be made and
948
00:50:29,520 --> 00:50:31,080
we don't have a seat at the table.
949
00:50:31,200 --> 00:50:36,570
So it's, we are pulling together
an advocacy effort, trying to get
950
00:50:36,570 --> 00:50:40,200
the voice loud enough to say, pay
attention to this demographic.
951
00:50:40,470 --> 00:50:41,340
We're not huge.
952
00:50:42,000 --> 00:50:43,500
We are not type twos.
953
00:50:44,010 --> 00:50:46,470
And even they require that advocacy.
954
00:50:46,470 --> 00:50:49,920
So part of those things
we're trying to do as well.
955
00:50:50,730 --> 00:50:53,220
Type one, is so incredibly unique.
956
00:50:53,220 --> 00:51:00,600
And right now there is not nearly
enough taught in school about it.
957
00:51:00,810 --> 00:51:05,190
So it's like, it either needs to start
getting taught so that people can be
958
00:51:05,190 --> 00:51:12,645
better cared for, or we need to come up
with a way that we can get those people
959
00:51:12,645 --> 00:51:17,055
that were parents of a type one to be
able to go in and, and help people.
960
00:51:17,475 --> 00:51:22,865
Some kind of easier path than
becoming, you know, this,
961
00:51:23,025 --> 00:51:27,105
getting these certifications
or whatever's necessary now.
962
00:51:27,165 --> 00:51:27,435
Yeah.
963
00:51:27,705 --> 00:51:30,225
And certifications would absolutely help.
964
00:51:30,465 --> 00:51:35,445
It, it was, would kind of regulate
the knowledge base, um, so everyone's
965
00:51:35,535 --> 00:51:39,435
kind of on the same page and it
would've reduced the liability.
966
00:51:39,525 --> 00:51:41,715
People are there, the
people have the knowledge.
967
00:51:42,195 --> 00:51:47,785
With more and more people aging into
this category, the help will be needed.
968
00:51:47,785 --> 00:51:50,475
The there, there has to
be a change in the system.
969
00:51:50,475 --> 00:51:52,905
So we advocate for the change.
970
00:51:53,145 --> 00:51:55,755
Hopefully we can get into the
nursing schools so that they
971
00:51:55,755 --> 00:51:57,525
teach the proper information.
972
00:51:58,875 --> 00:52:01,695
A lot is still being misinformed.
973
00:52:01,995 --> 00:52:02,085
Yes.
974
00:52:02,085 --> 00:52:03,435
So it's education.
975
00:52:03,435 --> 00:52:04,365
It's community.
976
00:52:04,365 --> 00:52:11,025
Again, it's having a voice and
sharing that and it's our goal.
977
00:52:13,560 --> 00:52:17,560
I kind of have three-pronged of
approach, which, which is help the T1D.
978
00:52:17,580 --> 00:52:20,970
That's my primary, you
know, help my people age.
979
00:52:20,970 --> 00:52:21,060
Mm-hmm.
980
00:52:21,390 --> 00:52:24,150
Greatly and as happily as possible.
981
00:52:24,600 --> 00:52:30,030
Then interact with the research
community who will validate our concerns.
982
00:52:30,420 --> 00:52:31,200
They'll study it.
983
00:52:31,200 --> 00:52:33,060
They'll say, what are you concerned about?
984
00:52:33,570 --> 00:52:38,360
Um, I'm speaking at a conference,
uh, next week, uh, at Harvard Joslin,
985
00:52:38,430 --> 00:52:43,450
and, and my husband is as well,
because he is the caregiver of a T1D.
986
00:52:43,470 --> 00:52:46,620
So let's get the voice
of what our needs are.
987
00:52:47,010 --> 00:52:52,050
Let them research it, validate it, and
let's take that into the healthcare
988
00:52:52,050 --> 00:52:54,780
community and say, this is the reality.
989
00:52:54,780 --> 00:52:57,360
This is how you need to
practice the medicine.
990
00:52:57,600 --> 00:53:00,390
This is how you, to provide care.
991
00:53:00,780 --> 00:53:04,880
So it's, it's a kind of a
three-prong approach and, um, that,
992
00:53:04,880 --> 00:53:08,180
that's our goal is to be loud.
993
00:53:08,930 --> 00:53:09,790
It's so good.
994
00:53:09,975 --> 00:53:14,415
Like, thank you, so much for having
such a great voice that you're
995
00:53:14,415 --> 00:53:20,355
willing to travel to these places
and give these talks and create these
996
00:53:20,355 --> 00:53:23,235
sites and, uh, make the difference.
997
00:53:23,355 --> 00:53:24,445
We're all the experts.
998
00:53:24,464 --> 00:53:25,515
We are the experts.
999
00:53:25,694 --> 00:53:31,305
We, you, you can't live with something
24/7 every single second and not come
1000
00:53:31,305 --> 00:53:35,985
away with some expertise and that
we can share it and that someone's
1001
00:53:35,985 --> 00:53:38,865
willing to listen and make changes.
1002
00:53:38,870 --> 00:53:39,069
Mm-hmm.
1003
00:53:39,150 --> 00:53:44,700
For us is really pretty essential
so that we deserve to be safe.
1004
00:53:44,730 --> 00:53:48,000
We deserve to be taken care of as we need.
1005
00:53:48,600 --> 00:53:51,779
And, um, we have to help
those who are gonna do that
1006
00:53:51,839 --> 00:53:53,430
understand what those needs are.
1007
00:53:54,240 --> 00:53:54,930
Absolutely.
1008
00:53:55,259 --> 00:53:56,790
If they don't know, we'll help 'em.
1009
00:53:57,214 --> 00:54:01,439
I, I, I mentioned in my
talk to ADCES, just ask us.
1010
00:54:01,500 --> 00:54:04,020
Ask anybody who's lived with
this disease for a while.
1011
00:54:04,020 --> 00:54:05,069
We'll talk to you.
1012
00:54:05,310 --> 00:54:10,049
We have a lot to say and we will help
you understand what the needs are.
1013
00:54:10,319 --> 00:54:10,410
Mm-hmm.
1014
00:54:10,950 --> 00:54:13,439
So we, we welcome that opportunity.
1015
00:54:13,709 --> 00:54:15,299
Some great researchers out there.
1016
00:54:15,299 --> 00:54:16,379
Amazing people.
1017
00:54:16,500 --> 00:54:16,770
Yeah.
1018
00:54:16,890 --> 00:54:20,189
I'm really, I'm really, really
glad that you're going to these
1019
00:54:20,189 --> 00:54:24,839
conferences and people are, people are
definitely hearing you, so thank you.
1020
00:54:25,305 --> 00:54:28,845
Is there anything that you
feel like everyone with type
1021
00:54:28,845 --> 00:54:30,015
one diabetes should know?
1022
00:54:30,135 --> 00:54:34,065
If you could tell everybody
one thing, what would it be?
1023
00:54:34,185 --> 00:54:34,935
Top of my head?
1024
00:54:35,175 --> 00:54:36,245
Make a go bag.
1025
00:54:36,555 --> 00:54:40,335
I, I think it's kind of check your,
how well you're coping with this
1026
00:54:40,335 --> 00:54:42,615
because it's so, so, so constant.
1027
00:54:42,615 --> 00:54:42,705
And
1028
00:54:43,275 --> 00:54:43,965
mm-hmm
1029
00:54:44,880 --> 00:54:45,765
keep on track.
1030
00:54:45,860 --> 00:54:49,165
It'll, it'll help you
happily make your go bag.
1031
00:54:49,185 --> 00:54:54,285
It will help you, um, stay level when
you're talking to your care providers.
1032
00:54:54,435 --> 00:55:00,525
Uh, it just, this disease is hard
and so how do we make it easier and,
1033
00:55:00,585 --> 00:55:02,985
and help each other stay connected.
1034
00:55:04,005 --> 00:55:07,215
Eat food you like periodically
that isn't on your list.
1035
00:55:07,215 --> 00:55:11,235
You know, just be as happy as
possible and, um, but connect.
1036
00:55:11,295 --> 00:55:12,105
Absolutely connect.
1037
00:55:12,345 --> 00:55:12,915
That's great.
1038
00:55:13,215 --> 00:55:13,665
I love that.
1039
00:55:14,385 --> 00:55:20,310
So I think this is, this is
only the start and hopefully the
1040
00:55:20,310 --> 00:55:23,460
listeners today, um, feel inspired.
1041
00:55:23,520 --> 00:55:28,320
You know, with you're a parent, you know,
your, your child's gonna grow up and not
1042
00:55:28,320 --> 00:55:31,230
have you one day, you know, get involved.
1043
00:55:31,230 --> 00:55:33,360
It's never too soon to get involved.
1044
00:55:33,450 --> 00:55:37,935
I think that sometimes we forget
how fast life can, can go by.
1045
00:55:38,670 --> 00:55:40,020
Be, be the difference.
1046
00:55:40,020 --> 00:55:43,830
It has to be-- you know, if, if
you don't do it, who's going to?
1047
00:55:44,040 --> 00:55:45,030
Joanne's going to.
1048
00:55:45,360 --> 00:55:49,950
But we need to, you know, we need
to come together and, and do it.
1049
00:55:49,950 --> 00:55:54,060
So hopefully we will, you know,
people are gonna be inspired by you.
1050
00:55:54,440 --> 00:55:54,930
Well, thank you.
1051
00:55:54,930 --> 00:55:58,950
I just hope people set some attention
and say, yeah, we, we just need to
1052
00:55:58,950 --> 00:56:00,750
make it a little better for all of us.
1053
00:56:01,200 --> 00:56:04,560
We, we live in a chronic, crazy world
right now, and, and there's a lot of,
1054
00:56:05,050 --> 00:56:09,960
um mm-hmm, concern and unhappiness,
but we can do something about this
1055
00:56:09,960 --> 00:56:14,580
stuff that affects us so, so directly
and others who need our help.
1056
00:56:14,580 --> 00:56:16,260
So reach out.
1057
00:56:16,260 --> 00:56:21,430
Be part of the community and come visit
us and, and ask us what your questions.
1058
00:56:21,430 --> 00:56:23,400
We're on Facebook right now.
1059
00:56:23,400 --> 00:56:24,150
We're growing.
1060
00:56:24,150 --> 00:56:25,320
We're on Instagram.
1061
00:56:25,560 --> 00:56:29,910
I'm learning about social
media, um, also on LinkedIn.
1062
00:56:29,910 --> 00:56:32,700
So we're trying to get the
word out that we're here.
1063
00:56:32,700 --> 00:56:33,660
And where do they find you?
1064
00:56:33,660 --> 00:56:37,110
Can you tell 'em what the, what
the social media pages are called?
1065
00:56:37,110 --> 00:56:39,390
And also what's the website, URL?
1066
00:56:39,450 --> 00:56:42,180
We can link it in the, in the
podcast description as well.
1067
00:56:42,510 --> 00:56:46,130
They're, um, T1Dto100.com.
1068
00:56:48,450 --> 00:56:48,930
Put that in.
1069
00:56:48,930 --> 00:56:49,740
You'll find us.
1070
00:56:49,890 --> 00:56:54,330
Just so you know, um, doing our graphics
for the website was real interesting,
1071
00:56:54,420 --> 00:57:00,160
uh, exercise in, what is the image
and the, um, essence of what we're
1072
00:57:00,160 --> 00:57:03,040
trying to convey to the community.
1073
00:57:03,060 --> 00:57:04,740
And it's that we're on this journey.
1074
00:57:04,800 --> 00:57:05,940
Everyone's on a journey.
1075
00:57:06,060 --> 00:57:07,290
It's their own journey.
1076
00:57:07,860 --> 00:57:11,700
And you can be, it's like a river and
you can understand it's gonna flow.
1077
00:57:11,700 --> 00:57:17,190
It's gonna take a lot of funny turns,
and sometimes you'll have, um, running
1078
00:57:17,190 --> 00:57:19,380
streams and you'll have rocks in there.
1079
00:57:19,980 --> 00:57:22,200
And you are on your own journey.
1080
00:57:22,350 --> 00:57:26,640
Make that journey as smooth as
possible, as understandable.
1081
00:57:26,640 --> 00:57:30,360
And if you get thrown out of the
canoe, get back in the canoe or
1082
00:57:30,360 --> 00:57:33,420
whatever your way is of navigating.
1083
00:57:33,900 --> 00:57:39,330
How do we navigate this together and
be as safe as possible and, um, enjoy
1084
00:57:39,330 --> 00:57:41,190
the journey as much as possible?
1085
00:57:41,910 --> 00:57:42,660
That's the goal.
1086
00:57:42,660 --> 00:57:46,770
So we have this sense of a, of, of,
kind of like a river, and that's
1087
00:57:46,770 --> 00:57:49,140
kind of our goal of we're all here.
1088
00:57:49,350 --> 00:57:50,400
We're all doing this.
1089
00:57:50,460 --> 00:57:52,950
Let's, let's do it as well as we can.
1090
00:57:53,070 --> 00:57:53,430
Yeah.
1091
00:57:53,430 --> 00:57:57,240
And that's like the perfect imagery
of everything you just said.
1092
00:57:57,240 --> 00:58:01,935
Like, I mean, what a great quote
and image to, to give to everything.
1093
00:58:01,935 --> 00:58:03,345
And the website is beautiful.
1094
00:58:03,495 --> 00:58:05,175
It is very nicely done.
1095
00:58:05,355 --> 00:58:05,745
So.
1096
00:58:05,805 --> 00:58:09,285
That was a, that was a project of
passion to figure this one out.
1097
00:58:09,285 --> 00:58:09,865
Um, thank you.
1098
00:58:09,865 --> 00:58:15,795
That people feel safe in it and, um, and
enjoy what they're reading and learn.
1099
00:58:16,575 --> 00:58:16,905
Yeah.
1100
00:58:17,115 --> 00:58:19,605
Well, I really enjoyed,
uh, this conversation.
1101
00:58:19,605 --> 00:58:24,285
It's always such a pleasure to talk
to you, get to, to hear about what
1102
00:58:24,285 --> 00:58:28,425
you're doing and, um, you know, you
are, you're truly incredible and
1103
00:58:28,545 --> 00:58:30,315
just greatly appreciate your time.
1104
00:58:31,935 --> 00:58:32,115
Perfect.
1105
00:58:32,115 --> 00:58:34,605
And thank you so much for
what you do in our community.
1106
00:58:34,605 --> 00:58:34,815
So.
1107
00:58:35,175 --> 00:58:35,835
It's wonderful.
1108
00:58:35,985 --> 00:58:36,525
Thank you.
1109
00:58:36,825 --> 00:58:37,755
Thank you, thank you.
1110
00:58:38,175 --> 00:58:43,035
Well, um, and thank you to our listeners
for joining us today on the Think Like
1111
00:58:43,035 --> 00:58:50,805
a Pancreas--The Podcast, and we will
link Joanne, the T1D to 100, uh, all
1112
00:58:50,805 --> 00:58:54,765
the social media platforms and we'll
link the website in the description.
1113
00:58:54,765 --> 00:58:58,815
So make sure, if you haven't seen those,
check 'em out, join the social media
1114
00:58:58,815 --> 00:59:02,025
pages and you know, come on, engage.
1115
00:59:02,445 --> 00:59:06,375
Um, Joanne's gonna be very
welcoming on, on those platforms.
1116
00:59:06,615 --> 00:59:10,125
So thanks again for listening
and we'll catch you next time.
1117
00:59:10,130 --> 00:59:10,590
Thanks everyone.
1118
00:59:11,085 --> 00:59:14,475
Thanks for tuning in to Think
Like a Pancreas--The Podcast.
1119
00:59:14,565 --> 00:59:18,825
If you enjoyed today's episode, don't
forget to like, follow or subscribe
1120
00:59:19,215 --> 00:59:21,015
on your favorite podcast app.
1121
00:59:22,065 --> 00:59:24,735
Think like a Pancreas--The
Podcast is brought to you by
1122
00:59:24,735 --> 00:59:26,505
Integrated Diabetes Services.
1123
00:59:26,985 --> 00:59:32,055
Where experience meets expertise, passion
meets compassion, and diabetes care
1124
00:59:32,055 --> 00:59:33,945
is personal because we live it too.
1125
00:59:34,590 --> 00:59:38,280
Our team of clinicians, all living
with type one diabetes understands
1126
00:59:38,280 --> 00:59:39,509
the challenges firsthand.
1127
00:59:40,259 --> 00:59:42,540
We're here to help no matter
where you are in the world.
1128
00:59:43,200 --> 00:59:47,009
In glucose management, the self-care
strategies, the latest tech,
1129
00:59:47,310 --> 00:59:52,860
sports, and exercise, weight loss,
type one pregnancy, and emotional
1130
00:59:52,860 --> 00:59:54,420
wellbeing, we've got you covered.
1131
00:59:55,050 --> 00:59:58,259
We offer consultations in
English and Spanish via phone,
1132
00:59:58,259 --> 01:00:00,180
video, chat, email and text.
1133
01:00:00,870 --> 01:00:01,545
Wanna learn more?
1134
01:00:01,995 --> 01:00:08,250
Visit integrateddiabetes.com or
email info@integrateddiabetes.com
1135
01:00:08,640 --> 01:00:09,990
to schedule a consultation.
1136
01:00:10,710 --> 01:00:14,499
On behalf of Think Like a Pancreas--The
Podcast, I'm Gary Scheiner,
1137
01:00:14,850 --> 01:00:16,770
wishing you a fantastic week ahead.
1138
01:00:17,009 --> 01:00:18,870
And don't forget to think like a pancreas.