OVER DEZE AFLEVERING
Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here: https://www.youtube.com/watch?v=y6CrrVGfBTk
Breaking Down Barriers is sponsored by Roche, Sage Therapeutics, Teva Pharmaceutical, uniQure, Wave Life Sciences, The Griffin Foundation, Neurocrine Biosciences and PTC Therapeutics.
Breaking Down Barriers is sponsored by Roche, Sage Therapeutics, Teva Pharmaceutical, uniQure, Wave Life Sciences, The Griffin Foundation, Neurocrine Biosciences and PTC Therapeutics.
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IN DEZE AFLEVERING
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OUDE AFLEVERINGEN ZOEKEN
Zoek naar eerdere afleveringen van Help 4 HD Live!.
ANDERE AFLEVERINGEN IN DEZE PODCAST
End of Life: The Caregiver Perspective, Part 2
Helpful information on being prepared for a disaster: https://www.ready.gov/disability
Information about FEMA: https://www.disasterassistance.gov/
Here are some tips for people with disabilities to prepare for disasters:
Make a plan
Create a network of people who can help you in an emergency, …
Our Lived Experience (Panel from Help 4 HD Symposium)
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