Episode 8 - Support Groups

‘The very first meeting I went to a support group, there was someone there who was speaking about her relationship with her husband - explaining the process of having him in a care home. It was a lengthy process and quite frightening… it gave me some sort of a perspective but was very difficult to hear. Now, people are coming to me - oh gosh, feel like an old timer now - it’s like you’ve already been through this and have a lot of knowledge you can share.’

Roberta McKee-Jackson has found support groups immeasurably valuable – a chance for people experiencing dementias to come together and share their experiences. Her husband Noel lived with Posterior Cortical Atrophy (PCA) and has sadly passed since this podcast was recorded.

Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper. 

PCA Support Group meeting, hosted by Rare Dementia Support at The Hub