OM DENNE EPISODE
Join us as we talk to Kate Miner for HD Awareness Month.
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ANDRE EPISODE I DENNE PODKAST
Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here: https://www.youtube.com/watch?v=y6CrrVGfBTk
Breaking Down Barriers is sp…
Our Lived Experience (Panel from Help 4 HD Symposium)
Helpful information on being prepared for a disaster: https://www.ready.gov/disability
Information about FEMA: https://www.disasterassistance.gov/
Here are some tips for people with disabilities to prepare for disasters:
Make a plan
Create a network of people who can help you in an emergency, …
End of Life: The Caregiver Perspective, Part 2
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