OM DENNE EPISODE
Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care during Terence's lifetime – and some of the things that perhaps haven't.
Kate discusses the importance of remembering times when haemophilia treatment wasn't so readily available, getting a diagnosis, treatment decisions, feeling isolated, and the importance of support and understanding.
CREDITS:
Speaker: Dr Kate Khair
Interviewer: Kathryn Jenner
Music: Once Again Royalty Free Music by Benjamin Tissot via bensound.com
Engelsk
USA
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ANDRE EPISODE I DENNE PODKAST
In part 4 of our mini-series in conversation with Terence O'Rourke, he reflects on changes in treatment for haemophilia and the arrival of Factor VIII.
Terence describes some of the prejudice he experienced as a person with haemophilia, and the faith his wife had in him. He also discusses the pr…
Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people.
Helen leads an active life despite her condition and is a passionate advocate for the rare bleedi…
In part 5 of Terence O'Rourke's story, he again reflects on his working life and how this was impacted by both his haemophilia and its treatment.
He discusses his approach to and choices about treatment and managing his haemophilia, and about eventually overcoming hepatitis C.
Terence continues t…
The final part of our mini-series featuring Terence O'Rourke, in which he reflects on living with severe haemophilia A.
In this episode, Terence discusses his approach to making decisions about treatment, and the importance of teamwork in both his working life and in relation to his haemophilia ca…
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